TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Chronic Daily Headache | Small loss of appetite. Bad taste in mouth. | Definitely have made a difference to my daily headaches and am glad I am on the drug. Topamax has made a good difference to my life. I can go ahead and plan things now, knowing I will not be debilitated every single day with a chronic headache. I still get headaches but not every day. | F | 60 | 1 years 100 2X day | 2/23/2013 | 4 | epilepsy | headaches, dizziness, tingles in hands and legs, depression, some agitation and frustration, word retrival issues. Also, initial weight loss the first go round with this med. However, med. did help a great deal with seizures as adjunct therapy. | I have stopped this med. once and have begun again. Anyone done this before? If so, does the weight loss side effect still come into play along with all the other side effects? Has anyone stopped and started again with this med? replies appreciated. | F | 37 | 1 years | 1/5/2007 | 4 | migraines | tingling feet and hands and extremities went away after 8 weeks or so loss of appetite- a good thing! lost 10-12 lbs~ | been on Topamax 200mg for 1 1/2 yrs along with Zoloft 100mg for chronic migraines and chronic daily headaches. It helps immensly- except for the hormonal ones- I use Axert for those monthly monsters. After trying several migrain preventors from cardio-alpha blockers to every anti-depressant on the market this combination has seemed to work for the past year or so... | F | 37 | 1 years | 9/14/2004 | 4 | migraines | Side effects include brain fog which ranges from the loss of words to slight memory lapses, tingling in extremities (pins and needles), extreme thirst, weight loss, insomnia at higher doses, lethargy at lower doses, interference with oral birth control. | Overall, topamax has been a blessing to my chronic migraines. They have reduced the frequency and intensity of them, except for the hormonal migraines, which they haven't helped with. Worst side effects? Brain fog and birth control problems...but, I'm still with the drug, stand by it and take the side effects over the pain! | F | 31 | 1 years | 8/13/2004 | 4 | Partial seizures, Mood Stabilizer | Slight nausea in the beginning, Word finding difficulty, No effort minor weight loss, Depersonalization, Difficulty focusing, Minor weight loss due to appetite loss, Mild short term memory loss, Stronger long term memory loss, Kidney stones (my own fault), Mood Swings IF not combined with an anti-depr. | Orig., I was prescribed Topamax for seizures and mood stabilization (going through divorce at time-this stress worsened my seizures). It worked very well for me, if you can get through the side effects. Dosage should be started very low and increased at an extremely slow rate. It takes time and is not for everyone. My Dr. was very forthcoming about the poss. side effects, especially in continuing my education. Against his presumption, I completed my college, with honors. When I stopped taking it, I was at 100mg daily. That was a couple years ago. I did get kidney stones, thankfully, tiny ones that did pass-pain free. My own fault as I NEVER drank water. Caff. free Diet Coke (even on the Topamax-still taste yummy to me) Until a few days ago, was on Lamictal for only a month and the migraines and nausea were killing me. The severity so bad, was inducing my seizures. Began Topamax again, 2 days ago, after being off of it for a couple years. I get the brain foggies, but can deal w | F | 36 | 1 years | 9/21/2006 | 4 | migraine prevention | speech disturbances, trouble finding words | added effect of weight loss was/is GREAT | F | 35 | 1 years | 1/27/2005 | 4 | Chronic Migraines | Paresthesia, acute depression, chest pain, tinnitus, lethargy, insomnia, severe weightloss, estomatitis, hair loss, apathy, blurred vision, tachicardia, short-term memory loss, cognitive problems, loss of libido, distorted sense of taste. | I've had migraines since I was 11. They got to a point were I was having them every weeek, up to 5 a month and extremely painful. Topamax reduced them to 1 every couple of months. I lost 25 lbs in 3 months, which was far more than I needed. I'm now underweight. My family cannot recognise me, they say I'm a completly different person, like a zombified version. I feel super stupid, can't say what I mean. Can't remember anything, get lost constantly. I've had suicidal thoughts and confidence issues, because I can't express myself the way I used to. The migraines though have decrease both in quantity and intensity, they're not nearly as painful.I'm taking 200mg per day. Still I'm scared, don't feel sure about the side effects, sometimes I have intense chest pains and wish I could gain back my smarts. | F | 37 | 1 years | 11/8/2007 | 4 | Migraines | tingling in my hands and feet for the first couple of months, soda did taste funny initially though I don't notice anymore; I was also very tired the first few months, too; general memory loss and "dopeyness" are the long-term effects | I find that I can live with being semi-stupid if it makes my migraines manageable. Give it a few months -- you'll know if it's right for you by then. | F | 31 | 1 years | 8/29/2007 | 4 | Migraines | Nausea, upset stomach, tingling in my hands and feet, taste change, agitation, memory difficulty, fatigue, and kidney stones | I have been on this medication for a year, and some of the symptoms went away in the first three weeks, as described by my doctor. For the first three weeks I felt agitated (like my mind was moving too quickly for my body), and I constantly found it hard to think of words and was having trouble remembering things short-term, which made it very difficult to carry on a conversation. However, for the past year I have been dealing with an extreme "pins and needles" feeling in my hands and feet, taste change (carbonated beverages have a metallic taste), and fatigue. I would have dealt with those side effects - they were better that two debilitating migraines a week. However, in the past four months I have also felt constant nausea and have had diarrhea and a kidney stone. In the time that I've been on this medication my migraines have been reduced from two a week to about one a month (an amazing change), but I'm switching to another preventative, I can't deal with the side effects | F | 20 | 1 years | 7/23/2007 | 3 | Binge Eating Disorder | Acne, rash, some tingling in the extremeties. | This is like a miracle drug for binge eating disorder. It influences taste and helps you to realize when you are full. For example, I was eating sweets such as ice cream every day, and within a week I was no longer craving carbs and sugar, but apples and salads. It also helped me sleep, stabilized my moods, and I stopped having thoughts about hurting myself, even if I happened to binge or eat alot one day. I've been on and off it for a year because within a week of taking it I would have small breakouts on my face, which would get progressively worse until after about 16 weeks I would develop a red, itchy rash. The second time I was on it, I had to go on antibiotics to get rid of the rash on my face, which was irritated by heat and radiation. If you're not allergic to anticonvulsants, this drug is very helpful for binge eating and bulimia. | F | 21 | 1 years | 12/17/2007 | 3 | Severe Migraines | SEVERE inability to form words, spell, type, memorize, remember things. I would insert different words for words or different word endings on words or leave off endings when reading. WEIRD. Sometimes get lost while driving to work, put things in wrong places, etc... | I have been on T-max for a year and a half, off and on. IT DEFINITELY HELPS MY SEVERE MIGRAINES. I get them so bad that I get sick, can't see, can't smell,am sick for at least 24 hours....The trick is to take the MINIMUM dose as possible. I was acting like I had no brain at a mere 100 mgs daily and am now on 50 mgs and am much better. Still some confusion, definitely, but I can't live with the constant threat of migraines or I would have no life. If you have any questions, email me. I have probably been thru what you are going thru. I even went and had an MRI on my brain to make sure I wasn't crazy!That is how bad T-max can mess with your brain! | F | 35 | 1 years | 5/25/2007 | 3 | bipolar II mixed | i increased the dose very slowly (12.5 mg/week) to minimize cognitive side effects, but i still had them. fogginess, no memory, falling asleep while driving and everywhere else, decreased appetite, wt. loss | i liked the wt. loss and decreased appetite (i was overweight to begin with) but i'm not sure it worked like i'd hoped for the bipolar. i had gotten on it because i stopped having orgasms when i got on depakote, but it continued w/ the topamax. but i also got on effexor shortly i started on the topomax, so i'm unsure abt this side effect since effexor is known for causing sexual dysfunction, altho effexor typically lowers libido and arousal, which was not the case for me. i just could not have orgasms when aroused. | F | 52 | 1 years | 5/15/2003 | 3 | hemigenplegic migrain | takes hours to type, reading (which I used to love) in a effort b/c if tracking, insomnia, fatigue no matter naps or not, no appetite-lots of toast and Raisin Bran (and I hate Raisin Bran!), forgetting or saying or repeating the same words and so on... | I am tired of being tired to being treated like a "poor patient" who is too stubborn to take care of herself instead of someone who is trying to adjust AND get her life back. This type of migraine cannot be treated by triptans or anything but hospital administered narcotics, so I - and my family - live in fear of a migrain, another TIA and worse, a stroke. I am now on 50 mg in am and 100 mg in pm | F | 45 | 1 years | 5/27/2007 | 3 | migraine headaches | dizziness, passing out (only lately), fogginess, mental confusion, extreme tiredness (only lately), good weight loss (lost 50 pounds on a 5'3 | When I first started Topamax it seemed like a dream come true. It helped the migraines, nearly eliminating them, but now it doesn't seem to be very effective anymore. Due to the side-effects, I not only don't want to increase it, but I'm needing to decrease or get off it. It's causing me to pass out lately, and is causing dizziness like it did when I first started it. Other possible causes of this have been ruled out. It's also causing extreme fatigue lately and increasing confusion, memory loss, and forgetfulness. I have to write EVERYTHING down or I forget it the next damn minute. My friends and doctor have been so concerned about my passing out, they've even had me go through MRI's/MRA's, echocardiograms, tilt table tests, 30-day EKGs and even an EPS to make sure my heart is okay and everything is fine there...I've had to endure all of these tests because of the side-effects of this damn drug. I'm sure there's more that I've forgotten, but I'm too tired to continue ;) | F | 38 | 1 years | 7/11/2005 | 3 | migraines | disrupted thoughts, change in tastes (especially carbonated beverages, weight loss, fatigue | weight loss and change in tastes were immediate when starting the drug at 25 mg. have gradually increased over the past year to 150mg and while the drug has helped to decrease headaches, my brain function and overall disposition is suffering. under the care of a neurologist that is considering switching me to a different drug due to the chronic fatigue. | F | 35 | 1 years | 4/6/2007 | 3 | seizure | Some of the side effects I have expericenced are memory loss ,tingling in feet, can't sleep for more than five hours. I have recentally developed a need to urinate frequently. I have lost some weight but not any great amount. Have lost desire for sex but that could be my age prior to taking topamax. I was expericeing pain in my shoulders but I have started playing pickle ball four or five times a week and the shoulder pain has gone away. I'm a great beleaver in excersise and it's positive effect on your whole body. My appitite is less that before I started the medication. I do seem to get more aggravated over simple things. | I was started on this medication after a seizure but didn't feel I needed an additional medication but the doctor said the measured level at the time of the seizure should have prevented having one. I am not sure i didn't take some dilantin prior to feeling the seizure coming on but aggreeded to take the new prescription. I have been seizure free for two years with the addition. I'm prescribed 100mg but only take 75mg. and it has worked. | M | 69 | 1 years | 3/3/2006 | 3 | epilepsy | weight loss, HAIR LOSS, Memory and language problems, tingling in arms, hands, legs, and face (especially after excersize), and I've lost the ability to sweat. | I've been a topamax for a year for seizures and I've experienced some interesting side effects. If you're considering taking topamax because of its positive side effects like losing weight I suggest rethink it and join gym. You see once you go on topamax you may look better however you just can't remember anything or speak. :) | F | 18 | 1 years | 6/25/2005 | 3 | chronic migraines | tingling in hands and feet, painful at times, chest pain, fatigue, heart palpations, some weight loss | helped my migraines some, but not as much as I would like | F | 17 | 1 years | 12/19/2005 | 3 | Migraines | Anxiety,weight loss 25 lbs, general struggle to concentrate, recent hair loss, | I have been taking Topamax for migraines, for 1 year. I take 25 mg at bed time. I sleep very soundly but, I am generally more tired than pre-topamax. My migraines are much better as I was having 2-3 a week or more sometimes. Now, I have only 1 or two a month. The weight loss has leveled out, most of it occurred in the first 9 months. The anxiety is an issue, I don't like it because I am typically pretty relaxed. I read that someone tried deleting caffiene with Topamax and that helped anxiety. I'm trying that and, it helps some. Also, a great amount of hair loss in month 10 and 11 which seems to be letting up....hopefully. I have extremely thick hair but, not anymore! Concerning!!! The duh factor remains but, is better than it was in the beginning. I'm thankkful to be my own boss or I'm quite sure that I would be unemployed by now. Mixed feelings about this drug. Definitely helped my migraines and I had to do something......would love to be migraine free, skinny , smart and calm....m | F | 41 | 1 years | 11/27/2006 | 3 | cluster headaches | tingling hands and feet,severe abdominal cramps constipation,loss of appetitite,no energy, | after increasing debilitating headaches emergency room visits where fluids and morphine were needed, missed work I was willing to try anything. However the side effects are no longer worth it...the vertigo is so bad I passed out at work.....I have to take daily laxitives....depression....I cant articulate at work I stumble over my words...my hair is thin....I lack enthusiasm for anything and the people around me notice the difference....I am slowly tapering off the 125 mg a day....i cant live like this....I cry or get angry.....I have insomnia....I dont want the intense pain of the headaches sometimes weekly but I want my personality back...my clear thoughts....laughing.. | F | 51 | 1 years 125mg 1X day | 7/15/2010 |