TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | migraine prevention | tiredness, bloating, decreased appetite, carbonated drinks taste horrible | the tiredness became less problematic when changed meds to PM; I was wondering if anyone else was having the bloating problem? It seems strange, since appetite has decreased. Dr has prescribed a diuretic for every 3 days, and I drop 5 pounds, which shows how much I'm retaining. As for the drinks, with all the kidney problems this med can cause, I guess we should all be drinking plenty of water, anyway! I tried Topamax a year ago at a higher starting dose and hated it (quit after 3 weeks), but this time, we have started very slowly and gradually, and I've gone from 15 headaches in June to only one so far in July (I can't even remember a month like this-I average 12 a month). | F | 51 | 5 days | 7/18/2007 | 4 | migraines | Severe hair loss tingling in feet and toes | I started on a low dose of topamax, in March my MD increased my doseage and that is when I began experiencing SEVERE hair loss. I stopped the medication. I recently saw a dermatologist and he said it would take 6 months (due to metabolic reasons and the hair growth cycle) for my hair to start growing again. This is devistating since my hair is waist length. He did say women's rogaine would help. | F | 35 | 5 days | 6/19/2008 | 4 | Bipolar | Weight Loss, Confusion & Sleepy all the time | I have to say that I really like this medicine. I take it with Effexor XR. I actually feel calm. I'm not compulsive, and running around like crazy. I can sit still. I'm also not eating the entire house anymore. I always use to be small and skinny. So it will be nice to loose this extra 15 lbs I stacked up in the last 2 years. | F | 24 | 5 days | 11/22/2009 | 3 | Migraine | Blurry vision - near and far, extreme drowziness, difficulty concentrating. | The Topamax seemed to help my migraine. 11 months ago I had lasik surgery and have been enjoying the pleasures of clear, sharp vision for the first time in decades. After one 25mg dose of Topamax, that all went away. I could not read street signs, the numbers on the clock, and barely enough to type this comment. It's affected my vision near and far. I'm hoping it will wear off and I will completely recover my eyesight. I am a chronic insomniac and have been since a small boy. I average 1-3 hours sleep per night and often have several consecutive days of no sleep at all. The Topamax completely knocks me out and gives me 6-8 hours of sleep, but I wake up sluggish, disoriented, and this will last for most of the day. Losing my train of thought and the inability to focus makes my job almost impossible to manage. Having said all this though... it has helped my migraines. I went from the Emergency Room "Please somebody just kill me" headache, to the "There may be a cure after | M | 54 | 5 days | 11/21/2007 | 3 | migraines | Feeling a bit stupid, tired, and tiggling in hands & feet. I have only been taking the medication for about 5 days. | Has anyone experiences weight gain from topamax or has it only been weight loss? Approximately how long until you noticed weight loss? When did you notice a difference in your migraines? | F | 29 | 5 days | 12/24/2006 | 3 | Migraines for 30 yrs. Run in family | I have only been back on for 5 days. I am supposed to be up to 300 mg per day in a little over two weeks, but already the horrible pins and needls and the TWITCHING has started back... | Using topamax last year getting 3/4 migraines/WEEK. Dropped back to 2/3 a wk. Impressive because my migraines r HORRIBLE. Dr started me on 50 mg/day & went up. Was just at new pcp and the PA looked at the bottle I brought & wrote script sort of same way. (Been out for a while.) Wrote a 10 day supply. Didn't bother to fill. Went to new neuro & wrote new script cause he thought it was weird what she wrote & gave to me. Had to ?? him on how to take it (you know NOBODY EVER starts off taking a full dose). Started by giving 100mg PM 1st wk, 100mg PM & AM 2nd wk then 200mg PM & 100mg AM 3rd wk as full dose. WAY TOO MUCH WAY TOO FAST? Woke this AM & HEEL was acutally "ASLEEP". I don't think I have ever had THAT feeling in my life! Right eye TWITCHING again. Last time it started twitching called my old neuro when it started twitch for over 5 min/time (even vid taped it) & she said that didn't think it was connected to the topamax! MY GOSH.Do a search of topamax/twiching & see what comes up & how common it is. How on earth can a NEUROLOGIST NOT BE AWARE OF THIS? I think this is outrageous! If you ever become more well read than your doc. GET A NEW ONE! They are only as good as their education. If they don't stay up to date they are worthless. I am not saying don't do YOUR homework. I am just saying they darn sure better be doing theirs, too! Do research, ask them, if they don't know the answer, they should be willing to FIND OUT and | F | 47 | 5 days 100mg 1X day | 6/22/2010 | 2 | Atypical Migraine | Memory loss, weight loss(10 lbs in 8 days), jittery, rollercoaster appetite, night time insomnia, day time fogginess, constant UTI, and still have a headache! I use to have a sex drive, but the urge to urine every 1/2 hour kills that. My heart is racey, like I've had too much caffeine, but I'm lethargic by day. I will be thinking about something, then get distracted and completely forget what it was that I was thinking about it. I'm stil on 25mg per day. I tritrate up in another 2 days to 50, 100mg per day is the goal. I'm worried that I won't remember my name by then. This started becaused I got a constant headache that wouldn't wuit 7 week ago. My head hurts less, but hasn't completely stopped. I'm considering quitting this crap in a week and dealing with the head pain. Especially since Ive not been diagnosied with a "real" Migraine yet. | F | 27 | 5 days | 2/11/2007 | 2 | Migraines | Tingling in hands and feet, nausea, constant headache, weakness, no energy, feeling stupid like drunk cant think straight, things taste funny, nothing sounds good to eat so you just dont ( I am 5'4 115 lbs normally so loosing weight for me is not a good thing) | I have only been taking this drug for 5 days and have lost 3 lbs. I have to force myself to eat. I regret anything and everything I eat. Its like being in your first trimester of pregnancy. The nausea is overwhelming. I feel so stupid. I cant carry on a conversation half the time since I cannot complete a sentence. I know what I want to say I just cannot make it come out of my mouth. Its like my brain is misfiring. I have had a constant headache (moderate) since taking this medication and nothing helps. I am a big diet soda drinker and it tastes awful now and I think I am in caffine withdrawl or something :) I would so starbucks but the thought of coffee makes me want to hurl. I am going to give this drug a try for the rest of the month but if these side effects dont ease up and the headache doesnt go away I dont see the point. I only have about 3 migraines a month so its not like I am suffering on a daily basis. I do have two small children however and those few days a month I am wort | F | 26 | 5 days | 10/5/2007 | 2 | migraines | feeling very drunkish or drugged within 5 minutes of taking the drug an it lasts all day. very tired and sleepy. extreme cramping in my lower back, upper legs and joints, shoulder pain that last thru the night. the pain is so uncomfortable that I can't sleep. | I've only taken this med for five day's. the sixth day will not be a part of the med program. We will be trying something else. | M | 65 | 5 days 30mg 1X day | 12/9/2022 | 1 | Doctor prescribed | Tingling in toes and fingers, finding it hard to come up with everyday words and spell them, racey heart, feeling like someone was behind me, not sure of my steps on stairs - overall creapy! | My new doctor put me on this because he took me off a beta blocker that kept my migraines away until I got cancer. It was given to me as a preventative. | F | 59 | 5 days 50 mg 1X day | 3/15/2023 | 1 | Migraine | Extreme anxiety, brain fog, increased heart rate, irritability, confusion,insomnia. | It's not even been a week and I am stopping this medication as from today. I haven't wanted to get out of bed for days I've felt so anxious and my head feels like it's going to explode. I barely sleep at night and when trying to talk to my partner I get confused and forget words. Horrid drug. | F | 26 | 5 days 25mg | 9/18/2015 | 1 | migraine | I have noticed every morning I wake up with a terrible migraine. I need to know is this normal. This is my second time to take it. I don't remember it do this the first time. | F | 40 | 5 days 25 | 11/1/2015 | 1 | migraines | Made me paranoid. Could not think, sounded like bees in my ears. Afraid I was going to die. Did not eat for 5 solid days. | This drug should be removed from the market for migraines. I only took it for 5 days, at the smallest dose. Any longer and I fully believe I would have committed suicide, and normally I am a very stable person. Of course my doctor thinks I made it all up, despite the fact that I visited her office 4 times in 5 days, and called 3 times in one day when normally I visit once or twice a year. We call this the crazy medicine. | F | 42 | 5 days | 8/18/2007 | 1 | Migraines | Severe memory problems. I acutally got lost a couple of times. I did not know where I was a few times. It only lasted a couple of moments, but it was very scary to me. Taste and smell (soda pop lost it's fizz). It was like my tongue had dead spots or something. I developed burning and cracking of the tongue. My dematologist said I now have Psorisis of the tongue, most likely due to Topamax. I also could not perspire. Very thirsty. My hair started falling out as soon as I started the drug. Then when I stopped taking the drug it is now falling out like I am on a chemo treatment drug or something!!! It is very, very frightening!!! I will probably have to start wearing a wig if it doesn't soon stop!! I was also diagnosed with "GLAUCOMA". My eye sight was very bad while on Topamax. I developed severe eye pain after being on the drup for 3 months. When I stopped taking it the pain got much worse. It has been 7 months since I stopped taking the drug and the pain is | F | 54 | 5 days | 10/2/2007 | 1 | migraines | Extreme, very extreme fatique to the point I just wanted to sit down and cry after taking it for only a few days. I immediately stopped the medicine and hope these side effects will be eliminated. I hate it! | F | 63 | 5 days | 5/23/2005 | 1 | migraines | Very loud tinnitus that still hasn't subsided. Confusion, problems finding words. Difficulty making sentences. Dizziness, hyperthermia (100 degrees), numbness in hands, feet, tongue, and face. Clumsiness. Difficulty spelling even easy words. Short-term memory loss. Deep, dull pain in my hands and feet for about 5 days after I stopped taking it. | The adverse reaction was absolutely horrible. The tinnitus has not gone away, and it is so loud that it's hard to pay attention to anything else. I took 5 pills (starter dose), and have been off of Topamax now for 9 days, so I fear that the tinnitus is permanent damage. The rest of the side effects are decreasing in severity or have gone. I had no idea my hearing could be permanently damaged. | F | 45 | 5 days | 2/20/2006 | 1 | migraines | memory loss and slow thinking made me too stupid to do my job! | I was having 2-3 bad migraines a week, then I started taking sudafed 12-hour for allergies and it seems to prevent me from getting migraines at all. Now I take 1/2 of a sudafed tablet every morning whether I feel allergy symptoms or not, and the only time I get a migraine is when I forget to take it. I think that some of my migraines are triggered by my allergies which explains it, but also I think the psuedophedrine somehow helps stabilize those nasty little blood vessels in my head. I only started going to dr's looking for an alternative when I read that psuedophedrine will be replaced with something else due to abuse. No doc has yet seemed to beleive the sudafed really does prevent them, and this topamax side effects are not worth it, even if it worked, which it doesn't - when I stopped my daily sudafed and started taking topamax, I started getting migraines again. For me, topamax is worse than taking nothing at all for migraines, as a computer programmer I really need to be able | F | 35 | 5 days | 8/7/2006 | 1 | Migraine Prevention | I had full side effects - dizzy, nausea, no appetite, lose of taste especially soda (almost like a chemical taste), flu like symptoms, thought/sight/smell of food made me sick, loss of balance, confusion, disoriented, loss of memory, loss of thought, could put speech together, HORRIBLE stomach pains, Diarreha, headache-migraine, tired, fatigue, muscle pain. MENTALLY & PHYSICALLY INCAPACITATED. | I have suffered with headaches and neck pain for 20 yrs and tired many, many different meds and was really hoping this would be the one but for me NO WAY. I know someone else who uses it and had no side efeects at all and only gets 1 or 2 migraines a year. I wish I could be so lucky. | F | 44 | 5 days 50 mg 1X day | 4/28/2010 | 1 | Daily Migraines | Unable to think straight, giddy, memory problems | When my daughter (age 12) was on this medicine (25 mg for four days, 50 mg for one day), she kept saying she felt weird and couldn't think. She was goofy and silly and laughing and said yes she had a migraine and yes it hurt but she didn't care! She tried to do her language arts sentences, simply combining one subject with two verbs, and cried because she couldn't do it. The neurologist said these side effects may get better over time or they may not. We stopped the meds that day! A ray of hope: Lately every time she goes to the chiropractor her migraine goes away! | F | 40 | 5 days | 5/13/2006 | 1 | Depression/Mood | HALLUCINATIONS | Stay away from this medication! For some reason my doctor started me at 50mg, which is a high dose to start on. On the 3rd day, I started feeling very strange and my mouth was becoming very dry and irritated. I then started hallucinating. The next two days were insane. The hallucinations became very vivid but I knew they weren't real. I would get stuck in a 'trip' for hours. I was hyperactive, forgetting what I was saying and what I was thinking. I tried telling my mom what I was seeing and feeling, and she came and stayed with me. I went to the ER and told them what had been happening. They drug tested me, saw I wasn't on drugs and handed me a pamphlet on schizophrenia as they discharged me. After some research, we found others who had experienced these same 'serious' side effects from Topamax. I stopped taking it and after the medicine was out of my system, I started feeling better. The whole experience was terrifying. The worst part was that people thought I was crazy and didn't even consider it was from the Topamax. I had specified that the only change in the past week was starting the medicine, and yet they refused to consider it as an option. Please reconsider starting Topamax and pursue an alternative if possible. I wouldn't want anyone to experience what I did. After the ER doctor telling me that Topamax is called "The Stupid Drug", I wonder if the benefits of this medicine outweigh the possible negative effects, and who is willing to risk this? | F | 30 | 5 days 25MG 2X day | 9/7/2012 |