TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Migraines/weight loss I'm Taking along with 37.5 phentermine. I've lost 15 lbs so far and have had only a few MILD Headaches before my period since December. Topamax has been a life saver as far as my migraines go! Mild Tingling in feet sometimes, and diet coke still taste gross. The only Downside is the Blurred vision I get when we have tried to increase the dosage. F 45 4 months
125 1X day
4/22/2013
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Patient History
 5  Tonic-clonic Seizures Tingling in feet, hands, face -- sometimes painful; cognitive impairment for the first few weeks; bad memory loss -- especially with names, etc.; mentally slower in general; the good stuff -- weight loss!!! 25 lbs. so far w/ no change in diet. Despite the side effect profile of topamax, this drug works wonders for me in terms of completely stopping my grand mal seizures at 400 mg a day. So I'll take being a little slower mentally and seizure-free. At least Topamax doesn't make me really tired like the other drugs or make me hungry and fat. Moreover, I've lost weight without changing my eating habits or appetite, which rocks! It's a hard med to get used to in terms of side effects, but once your body adjusts to it, after about 1.5 months, then its smoother sailing. M 30 4 months
200 MG 2X day
1/2/2012
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 5  Migraines, Cluster Headaches I experienced most of the warned side effects for a period of a few days and then I got over them as my body adjusted to the meds and later to the dosage increase*. I was concerned and thought I was getting sick- but I learned to just wait it out for a few days. (This happened again when i changed the dose.) Now the only lasting side effect is occasional tingling/ loss of feeling in my feet and lower legs. (*I was on 50 mg for the first month then increased the dose when it wasn't working enough.) This medication has almost completely gotten rid of my migraines and has completely gotten rid of my cluster headaches. I have had about 2 migraines since increasing the dose (compared to about 4 a week.) I have tried other prescription meds and was disappointed. Personally, for my situation, this medication is impressive stuff. F 21 4 months
100 1X day
6/20/2012
 5  migraine relief I have experienced lack of appetite, tingling in hands and feet, and cognitive dysfunction/fogginess. I have had a problem with "word finding". I have had migraines for years with little relief from medication. After a two week migraine in May that had me took me on a brief trip to the ER, I went on Topamax. I'm a fairly articulate and well spoken person so I was EXTREMELY concerned about the cognitive side effects of this medication. While I have noticed it myself, my family and friends say they have not. I was originally very concerned that it was affect my job and my ability to speak, but it hasn't. It's the word finding that I find utterly confusing. I will know the word I am trying to say, but it just won't come out. This medication has all but stopped my migraines. I still have menstrual related migraines, but I have gone down from 7-10 debilitating migraines a month to 1 or 2. After a brief follow up with my neuro, I am dropping my dose to 75mg to see if it keeps the headaches at bay and possibly helps the cognitive impairment I am sure is there. A lot of people almost scared me off this medication, but I was determined to give it a try. Do not let another person's experience change your mind about trying this. Everyone will be different. F 29 4 months
100mg 1X day
10/7/2010
 5  migraines weight loss, tingling of hands and feet This pill has given me a new life. I had chronic migraines and it has reduced them completely. I barely have any side effects, can work and study with no problems whatsoever. F 22 4 months
50mg 1X day
8/10/2011
 5  Headaches due to brain tumor Hands and feet painfully tingle. Forget things, words, events. Hard to pay attention. Soda, especially colas taste flat, kinda soapy. Some foods taste different. Increased thirst. Weight loss. I can be fine one minute, then space out, forget what I'm doing the next. I forget where letters are on keyboard in the middle of typing. Balance is off. Lost more eye site since starting Topamax (not sure if due to med or tumor)I'm cold more, needing a sweatshirt often. (I usually wear shorts year round!) I didn't realize how much pain I was putting up with until starting this drug. I'm feeling better than I have in over 3 years. I've got a benign, inoperable brain tumor and it got to the point that I was living with constant, severe pain in my head for over a year. I was at 100 mgs a day, but am going up (now 125mg/day) due to some pain coming back. The side effects are nothing compared to the headaches I had before! I would trade "pain" for "stupid" anyday!! (as long as my family is around to make sure I'm OK) F 37 4 months
4/25/2006
 5  Migraines (severe & frequent) Tingling in fingers & toes, carbonated beverages taste flat, weight loss (30 lbs in 3+ months), some memory loss, hard to find words, skin absolutely glows (perfectly clear), increased energy, better mood (a little calmer) Love this drug! It's working beautifully for me - no interest whatsoever in snacking, binging, or really, eating in general (only for hunger, and much less frequent then before Topamax). Headaches are gone (it's really amazing). F 42 4 months
2/20/2007
 5  Migraines Tiredness, loss of appetite, aggression, tingling in the hands, feet and nose in the first couple of months. I've also lost 15 pounds. Most of these side effects have gone away for me now that i've gotten used to the medication. It also seemed the more water I drank throughout the day, the less bothersome these side effects were??? I'm now on 100mg taken all at once at night. I started on the sprinkles and moved to the 100mg tablets. I sleep better and have almost no side effects with the 100mg tablets???? I felt like a zombie in the beginning and with the aggression (lasted about a week) I almost stopped taking Topamax but I decided anything was better than constant migraines. I stuck it out and i'm so glad I did because Topamax is a blessing. I have been migraine-free for 4 months now!!! F 37 4 months
2/18/2006
 5  seizures weight loss, tingling in hands and feet, hair loss Benefits of the drug far outweigh the side effects. The only drug I have taken so far to that has controlled my seizures. F 44 4 months
7/13/2004
 5  migraines soft drinks taste bad which is a blessing in disguise, incompletion of orgasms for a while, dry mouth, tingling in only my hands and feet at first with lower milligrams, when reached 100mg. tingling in face, which is the most disconcerting, loss of weight I suffered silent migraines for many years thinking an ailment no one could diagnose. I had blurred vision, glazed eyes, pale and droopy face, full blown lethargy, sometimes unable to get out of bed for 3 to 5 days (with depression). And they said it could be menstrual migraines. Topamax is working better than anything thus far. It's not perfect, but I would say that at least 2/3 of my migraines have been conquered. I used to suffer, and I mean suffer insatiable cravings of chocolate/salty foods every day - now they are gone and I rarely have chocolate. What a blessing that is. It has also controlled my eating habits (during migraines I had insatiable cravings for food of any kind). Too many carbonated drinks aren't good for us, either, so I'm glad they taste bad, even though I miss them. And the best side effect - 15 lb. weight loss thus far. I'm not too happy with the tingling in my face which just recently started, but hoping that will pass, since I am happy with Topamax thus far. F 55 4 months
7/18/2006
 5  Migraines, weight loss sodas and some taste flat or odd, the weird tingling thing in extremities occasionally, double vision on awakening, and making more "typos" in first few months of taking it. Sleep like a baby! Overall, great. Started this drug since I have perimenopausal migraines and I am allergic to all NSAIDS and aspirin -- the amount of Tylenol I was taking was going to fry my liver, so Topamax is the lesser of two evils even thought this is a very powerful drug. Prediabetic also so my doc would welcome a 20 pound weight loss, so she wanted me to try this. Sleep definitely improved -- sleep soundly and wake refreshed. Some daytime sleepiness but this has passed as I got used to it. Fat around my midsection has started to go away -- even though I've only lost a couple of pounds my figure looks better because of this slimming in this area -- guess it is due to less cortisol/stress hormone and therefore less fat there. Feel less stressed and am doing better at work ( a new career.) Topamax still scares me but I think it has definitely improved my life -- wish it weren't so expensive though! F 51 4 months
1/14/2007
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 5  weight loss weight loss, memory loss, failure to retrieve words, tingling in face fingers and toes. pop tastes horrible (and it should, it's horrible for you) i was on 10 mg of zyprexa for over a year and gained about 50 pounds. it really hurt my self image and was making me a soppy mess. i tried working out but the weight was going no where. i was eating everything in sight and was gaining weight ongoingoing (im only 21 and 5 feet). my doctor prescribed 400mg of topamax and i suddenly cut down to one meal a day. i continued going to the gym and in 3 months i lost 30 pounds. i stopped taking the zyprexa because the topamax leveled me out and now im losing even more weight. the side effects are very tolerable once i got used to them. i would definently reccomend this to fellow crazys who have gained weight from anti psychotics. F 21 4 months
5/26/2007
 5  migraines tingling fingers/toes (not at all painful); eye discomfort; loss of energy; occasional burning sensation in head and chest; loose bowels; Before Topamax I was in moderate to extreme pain about 60 percent of the time. My neurologist put me on Topamax and stepped up the dosage slowly to 125 mg per day and now I experience about half the number of migraines that I used to have. Also, the severity of my headaches has decreased somewhat (no longer feels like I have a steel rod piercing my skull- the pain is now F 44 4 months
1/17/2005
 5  Bipolar/migraines The side effects from this drug make it sound awful but this one has been a total game changer for me. I might have a few balance issues here and there I'm not really sure if this is the medicine or because I can be a klutz but it's never given me brain fog and I've always been forgetful so I can't blame that on this life saving drug. It has taken my appetite and I only eat about once a day. I take it in conjunction with Cymbalta and it controls my bipolar symptoms pretty well most of the time. Topamax is an "off label" mood stabilizer that was originally favorable to me first of all because of how I reacted to other medications like depakote, lithium, and risperidol, but also because of the weight loss factor and the problems I have with my lower back. It's taken my migraines away either completely or made them so "dull" I can usually take care of them with Tylenol or can still take Maxalt with it. If there was an option for 10 stars instead of 5 I'd give it to topamax. M 30 4 months
50mg/day 2X day
1/2/2022
 5  Drs advised Improves sex drive Love it! F 67 4 months
100 mg 2X day
10/22/2023
 5  Migraine prevention Mild fatigue, tingling in heels, indigestion, all carbonated beverages taste flat I am taking 100mg per day and this drug has been a godsend for me. I was having approx. 6-8 migraines a month and have only had 2-3 very small ones since I began taking this medication. The side effects are very minor and occasional and are all things I can live with, although I will admit the carbonation thing is VERY strange. I miss beer and champagne and real Coke, but it is a very small price to pay and totally worth it. F 44 4 months
2/10/2009
 5  migraine dyslexic, acne, sinus irritation. ...too much for me at the higher dose but just right at 1/2. Went from 18 migraine a month to maybe once a month. Lost 10lbs in 4 months doing nothing. M 50 4 months
2/10/2009
 5  Addiction to Crystal Meth Tingling sensation in hands/feet/face and slurred speech. After many attempts to quit meth on my own, my mom took me to a psychiatrist and he put me on Topamax + Provigil. The Topamax was remarkably effective at reducing my obsessive cravings and compulsive drive to use meth. The Provigil greatly reduced the withdrawal symptoms. If you or a loved one wants to quit meth, this combination of medications will dramatically improve your chances for a successful outcome. M 26 4 months
1/22/2008
 5  diabetic & high BP Dry mouth,I have so many other things going on I don't know what if any side effects I have. I have lost without being hungry. F 63 4 months
46 mg s
12/11/2015
 4  migraines Tingling of fingers and feet (mainly heels), weight loss, "word dropping", taste changes After first trying Depakote and gaining 40 pounds my OB GYN was very worried and really wanted my neurologist to at least have me try the Topamax. I have been on it for 4 mos now and have lost 20 pounds (yay!) but I am a much pickier eater - but for the better. I do get tingling in my fingers and feet - it's worse when I go from cold to hot & my heels will sometimes bother me in the middle of the night & wake me up. I read that flax seed oil can help. I do sometimes forget things, like today in a cinversation I was having I couldn't remember the name of a band - but it always comes back to me. I used to get migraines every day and now I am not.I am so glad that I am not suffering the severe side effects that some people suffer with Topamax because the alternative migraine prevention medication, Depakote, almost always causes major weight gain and that isn't fun either. F 43 4 months
8/9/2009

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