TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  chronic migraine without aura Topamax has been very effective in reducing the frequency of migraines I experience. I was having headaches at least 15 days per month and they would sometimes last for days. With topamax, I only get a couple mild, manageable headaches per month. The only side effect I am aware of is a painful burning sensation in my feet. F 25 6 months
100 mg
7/4/2013
 5  migraines none F 39 6 months
100mg. 2X day
2/3/2013
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 5  Migraines Titration period (25 mg to 100 mg): AWFUL heartburn no matter what I ate and/ or diarrhea. Exhaustion. During and after: Still cannot taste carbonation. Short term memory is pretty bad; I write EVERYTHING down. I lose my words often, mostly nouns, worse when I am tired. Neuropathy in toes, occasionally fingers All the side effects to say, I am still very happy with Topamax. No more worrying about the weather (ie. humidity, barometric pressure etc.)- which was my BIGGEST trigger. Some things still bother me, but not as bad (ie. smells, not enough sleep etc.) but if I catch it early enough I can actually stop it with OTC meds now. I still get the post-migraine "fuzzy" feeling but without the migraine, and I am ok with that. Occasionally I will have an awful period and have to take a Relpax and lie down for a couple hours, but that's only once a month maximum. I loathe the cognitive side effects, but I am learning to live with them and find ways to deal with and get around them. As my doctor told me when I complained of feeling "stupid", the Topamax stops migraines, which stops lesions from forming on your brain (like the lesions that Alzheimer's patients get!!!) so while you might feel stupid, it's actually stopping you from becoming "stupid". If you are thi F 34 6 months
11/21/2006
 5  BIPOLAR 1- ultradian cycling flat tasting soda, food in general tasted different, somnolence (after evening dose) MOTIVATION! MORE FOCUS! DO NOT TAKE THIS MEDICATION SOLELY FOR WEIGHT LOSS! If you do not have temporal lobe issues or problems with deja vu, jamais vu, INTENSE mania, ultra rapid/ultradian cycling due to bipolar disorder, migraines, or seizures, THIS MEDICATION IS NOT FOR YOU! you cant expect it to be a wonder drug and help to get rid of the 60lbs you gained from lithium or zyprexa or anything else you were taking before. it WILL make you dumber than a box of hammers. This medication has given me my life back. its given me my life back. finally able to work to my full potential. its mixed with lamictal (250mg) and i dont plan to stop anytime soon. my doctors can try to pry it from my cold, dead hands. F 25 6 months
9/23/2005
 5  Bipolar Experienced tingling in extremities only when dosages were increased. The only time I ever felt like an "idiot" was the very first day I started on Topamax, other than that I have been fine. Soda and anything with sugar tastes disgusting. Weightloss has also been a side effect. This drug has been a miracle for me. I have suffered with bipolar depression for years and have had a hard time with medications and side effects, topamax surprisingly has been a godsend for me, and my family too for that matter- I guess everyones body is different and reacts differently- I haven't lost my hair, I have lost weight, I feel good and no longer suffer any side effects of the drug. F 33 6 months
100 mg 2X day
9/3/2010
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 5  Cluster Migraines Tingling in fingers, depression, carbonated drinks tasted odd The tingling comes and goes but is more rare now. The depression also comes and goes. I've had to give up soda, it was all I used to drink but they taste awful now. A good thing I guess. It helped with the headaches immensely though. M 36 6 months
50 mg 1X day
4/21/2010
 5  Chronic Daily Headaches Tingling in hands and feet; minor memory lapses; minor lack of organizational skills; visual disturbances, but only when first getting out of bed in the morning. Topamax has completely cured my chronic daily headaches. For almost 2 years of suffering, I told my family doctor he had to do something, so after a cat scan of my sinuses which came back ok, he sent me to a neurologist who diagnosed me and prescribed Topamax. I had pain in my head every day for 2 years, every time I coughed, sneezed, or bent over, plus migraines on top of that. That is now completely gone, and I have not had a migraine for probably 3 months. I will not go off Topamax, and I will live with the side effects as long as they do not get any worse or affect my job. I go for a follow-up in 2 days and will discuss these with him. F 46 6 months
50 mg 2X day
3/16/2010
 5  Migraines weight Loss(25lbs.), slight memory loss-trouble finding that specific word, numbness/tingling of hands and feet at first but that tapered off. Topamax has worked miracles for me although I don't think it's the answer for everyone. I was experiencing a constant headache pain of about a 3 on scale of 1-10, with migraines 1-2 times a week. Since starting this drug 6 months ago I've had a total of about 3 migraines and that constant pain is gone. The side effect of weight loss is an added bonus for me but I did not lose any weight the first couple of months that I took it. The numbness/tingling was irritating at first but the benefit of not having a screaming headache was so worth it. I do notice that I cannot come up with the right words sometimes, but there again, I'd rather deal with that than be laying in bed writhing in pain for days! All in all, it's a wonderful drug but it is not one to be messed with, it's a neurological medication and can do a lot of damage if it's not taken properly or for the right reasons. Take it as prescribed and if something doesn't seem right, call your doctor immediately! M 40 6 months
50mg 2X day
12/11/2010
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 5  Migraines Soda tastes Awful, which is a good thing; very thirsty all the time; more flaky in the mind at times, but more level-headed, if that makes sense; numbness and tingling in hands and feet at times; very tired in the beginning, but not so much anymore; no weight loss for me :o( Topamax saved me! My migraines were debilitating, causing me to be a lesser person (went from 12-15 per month to 2-3 per month). I think that some side effects are better than having migraines on a regular basis. Yes, I am more forgetful now and even feel somewhat foolish at times, but nothing could ever compare to the constant time I spent lying on the couch, popping pills with no avail. I can now be a great mom and feel alive and pain free 98% of the time! Life is too short to suffer. I can't even imagine my life without Topamax and wish I would've known about it many years sooner! F 40 6 months
50mg 1X day
11/29/2010
 5  migraine headaches slight hair loss, difficulty finding words, vivid dreams, waking up in the night, and severe tingling in face when I drink caffeine I was having migraines DAILY, and Topamax completely got rid of them. Any side effects are worth the pain being gone. Being a high school student in all advanced placement classes and millions of extra-curricular activities is hard enough without constant pain. I am extremely grateful to Topamax for helping me. F 16 6 months
25 MG 2X day
12/1/2010
 5  Migraines minor tingling in fingers and toes, some thirst, weight loss initally but tapered off at 30 lbs, minor issues with concentration Overall, this medication has been a GODsend! I suffered from nearly 25+ migraines per month and now only approx 5 per month and this has allowed me to live a productive life. It is not perfect, but it is also a good performer in that it prevents severe migraine attacks and allows me to prepare for the "smaller" ones with my abortive medication by taking my preventative daily......until this medicine was out there, there was no hope......now, at least there is a day to day buffer against the beast of the harsh daily hammer on my head.....thank you Topamax! F 37 6 months
100 MG 2X day
9/28/2011
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 5  frequent migraines tingly hands and feet, metallic taste in mouth, weight loss, lack of concentration I was put on topamax my senior year of high school and so was my sister one after the other. We were both having constant migraines inherited from our mom (who is also on topamax)i could not handle the tingly feeling!! (I also have panic attacks to the nth degree and when ones coming on my hands and feet get tingly.... So the side effect made me think I was having a panic attack no good) but as long as I took it the migraines stopped and the tingly would subside after a couple of weeks of taking it. The metallic taste was awful. Can't complain about the weight loss as I dropped 30-40 lbs while on the drug. And yeah I needed to lose exactly that to be at a good weight (yay!) after 6months of taking it though the tingly came back with a vengeance and that was the end of that! My sister stopped taking it about a year later as she realized her migraines were stress related and now that she's understands this does not have migraines. I just take Excedrin for mine and mom is still on it 3 years later successfully no side effects. F 21 6 months
50 mg 2X day
9/30/2011
 5  PGTC Epilepsy Occasional inability to find a word, sleepiness For past 6 years, tried 4 different drugs in every conceivable combination. PGTC seizures "grand mal" still occurred every couple of months, and for awhile they were every 3 weeks. Finally stopped monotherapy and added Topamax (300 mg/d) to existing Lamictal (300/d) dose. I've been seizure-free since 12/06. Hard to tell about concentration, mood changes, etc. because I've been through so many drugs and so many side effects- what is normal anymore? But I can definitely live with this combination if it lets me drive, work, and live normally. M 22 6 months
7/4/2007
 5  Migraines Tingling fingers- went away Lack of appetite - Improved when only took medication at night instead of splitting up in two doses Irritability - Not going away Fatigue- Still an issue I saw a comment that said Migraine miracle drug. From 9 Imitrex a month to no more than 2 a month now. I am still concerned about mood swings and appetite. M 40 6 months
8/8/2005
 5  Migraines Tingling in feet, hands, and sometimes chin; thirst; "light trailers" in dim light; weight loss; emotional outbursts & depression at beginning of treatment; foggy feeling. I have suffered with migraines since I was seven years old. Many of them have taken me to the ER for pain and anti-nausea shots, and I have missed a lot of work over the years because of them. I am a high school teacher, and during the school year I usually end the school day with Exedrin Migraine on good days or Imitrex or Relpax on bad days. Last May my doctor put me on Topamax, but didn't warn me about any of the side effects, and, as usual, I didn't read the package insert. I then left the first of June with a group of 21 students for two weeks in Europe, then I flew to Greece for a month with my husband. By the time I met him, I was an angry, emotional mess. I was dropping weight like crazy, which was good on one hand, but I was depressed, emotional, and angry, and we couldn't figure out what was going on. My hands and feet had become numb, and I had started seeing these trailing lights when I moved my eyes in dim light (which I blamed on trying Absinthe in Paris one night F 50 6 months
10/11/2006
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 5  Migraines I have allot of confusion and trouble placing words. Feel hungry but couldn't eat, loss of wieght (didn't mind that), I felt off balance the first 2 weeks but that went away, and I am tired all the time. I felt that it worked miracles for my migraines but with the side effects being confusion and sleepyness, it made my school mark drop dramatically because i couldn't focus. F 18 6 months
6/15/2005
 5  Migraine Prevention Tingling in hands and feet, weight loss, slight confusion, aggitation, loss of menstrual cycle I went from 135 lbs to 115 lbs on 150 mg of topamax in about 4 months. I didn't really need to lose weight but it was a nice side effect. This drug has worked wonders for me. I was getting 4-5 migraines per week and now I get about 2 per month. I have stopped getting my period which concerns me. F 25 6 months
3/18/2005
 5  Migraine 3 xs a month Tingling in hands, feet and face. Can not spell. Memory loss. Not hungry ever. Pop taste nasty. I am the world's biggest motor mouth and I don't try to speak anymore, because I forget what I am saying. But it is getting better. Typing is a issue also. :) Wake up every 2 hours at night. I have had migrines since I was 9 years old. I black out with my migrines. Not fun going to the hospital all the time. I have had 1 headache not a migraine in 6 months. In my opinion that benifit out weighs all the side effects I have had on Topamax. I do have to force myself to eat I have lost 38 lbs. I am 5'5 and now weigh 112 lbs. The weight has been the hardest for me. I and now taking and staying at 200 mg a day 100 in morning and 100 at night. And HAPPY TO SAY MIGRAINE FREE!!! F 32 6 months
5/12/2007
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 5  Chronic Daily Headaches Weight Loss, limb tingling, loss of short term memory, felt stupid, "phantom bladder infections", achy legs Topamax worked great for my daily headaches 100mg a day, I lost 20 pounds which was also great! BUT the side effects made me give it up. I could handle the tingling and the aching. But the stupidiness was unbeleivable, I would forget the simpilest things and at the worst time. And then the phantom bladder infections started after 3 months, symptoms would last 2 - 3 days and then go away, this would happen 2 -3 times a month. This was the final straw for me even though my doctor could not say it was because of the topamax, I knew it was. Sure enough I weaned off the topamax and have not had a "bladder" infection since.It has been 8 months. F 44 6 months
11/18/2009
 5  headaches prevention I started on 25 mg then after 2 week went up to 50mg I was feeling confused tired shortbrethe moody n tingles hands feet it stops all my headackes I then went to 25mg ather tgen beong bit sleepy n short brethe nothing else o decided to stop for a week still get short brethe which doc looking on to I no it aint the tabs even on small dose no head ackes n o feel much betsr plus lost bit weight I dont mind F 39 6 months
25 mg
1/1/2014
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