TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Migraines | Pins and needles feeling, BAAAAAD loss of memory- severe "Blonde Moments" loss of appetite | No headaches AT ALL...its worth not being able to feel my feet most of the time | F | 20 | 2 months | 5/3/2006 | 4 | Migraines, constant headache | Weight loss; tingling in face, hands, and feet; severe reaction with alcohol | I've only been taking taking Topamax for 2 months and am in the process of increasing my dose to 150mg/day. My migraines were up to 4 times/week at their worst, and I've had a constant headache for 6 months. I've tried a lot of different medications, and have settled on Amerge for acute migraines, and Topamax and Percocet daily. I went on a migraine elimination diet and found about 6 food triggers. Taking Topamax and avoiding trigger foods have brought my migraines down to about 1/week. Topamax has also cut my Percocet use in half. I'm hoping that increasing the dose will help even more. If I don't take any painkillers, my daily headache becomes a migraine. FYI-I've heard about rebound headaches, but I had daily headaches before I took something for them every day. | F | 29 | 2 months | 11/6/2005 | 4 | Temporal Lobe Seizures | Rapid heart beat, fast deep breathing, weight loss, insomnia, leg pain, increase in energy, some aggitation, memory loss, slowed thinking. | The positive benifits of this medicine outweighs the negitive side affects by far, for me anyway. I lived on phenytonin for 3 years and never realized the affects of that medicine until I came off of it. I feel much better, and I have not had one seizure yet. I have not been taking Topamax for long, and it is a low dose, (100mg a day) so I'll keep that in mind. So far I am very pleased. | F | 37 | 2 months | 1/23/2006 | 4 | Migraines | Loss of vocabulary, train of thought; Severe knee pain, both knees (any else?); tingling in fingertips; trouble staying asleep. | I was on Topamax for a year and went off it 10 months ago because I was beginning to get migraines more regularly again. Also, I was sick and tired of being stupid, I am topamax-free, a fairly sharp person! Now that I am back on it to get my headaches under control again, I notice that the severe knee pain I was suffering that mysteriously went away last Spring, is back. Has anyone ever heard of this? Otherwise, I do believe that Topamax does help the severity and regularity of my migraines. I am already seeing my intelligence slip away again, and am not sure I'm up for that challenge again. A cure would be much better! At least before my daughter starts getting them. | F | 42 | 2 months | 2/10/2007 | 4 | seizures/migraines | extreme tingling all over hands/fingers/toes and face. Memory loss and confusion I was always forgetting words and names of objects even when I was looking right at them. I will lose my train of thought in almost every conversation. Much more tired than normal. Huge loss of appetite. | I am on 200 mg of topomax a day and haven't had a seizure or a migraine in over a month and if you have ever been a person who lived with either one of these disorders you know what a blessing it is to go one day without one these. | F | 27 | 2 months | 11/5/2006 | 4 | Builimia/ Depression | weird taste in mouth, some weight loss, stopped bulimia right in its tracks. Kind of dazed, acne, dehydration. | F | 26 | 2 months | 7/20/2006 | 4 | chronic abdominal nerve damage pain | I have some slight tingling in my hands and feet. I lost 10 lbs. in the first month (Great!) The most annoying is I have a swollen tongue and a burning sensation in my mouth which is painful at times, and yes, that icky mettalic taste. | This drug truly is like a miracle for me. I've been in pain for about 3 yrs. from this nerve damage. I've been using strong narcotic pain meds. and still not getting pain relief. I went to a chronic pain specialist and he started me on the Topomax along with Amytriptyline and some cortisone/long acting anasthetic injections in my spine. After 3 shots, I won't need those anymore as the Topomax should be enough. It's working so well for me, and well worth putting up with side effects I have. I was told the side effects can take a few months to go away, but will eventually. I am sorry for those of you who couldn't tolerate this drug. It has given me a hope for a future, which I had lost. | F | 59 | 2 months | 10/5/2008 | 4 | Seizures/epilepsy | Dizziness approx 2-4 times a week, needles in arms/feet every once in a while, SHRINKING FEELING. Cognitive issues; can't think of right word to use in sentence. | I am extremely torn about this medicine. I am taking it in conjuntion with Keppra and Lamicital. This medicine stopped seizures almost instantly, but the cognitive side effects are extremely frustrating. Both the dizziness and the issues of thinking of the right word. The shrinking feeling is a side effect I have not heard about with anyone else, and I am interested to see if someone else is having. I hate it, but have gotten use to it. It usually occurs about 2-4 times a week. It lasts about 5-7 minutes, and everything around me seems to become very small; almost Alice in Wonderland like? It only started when I started the Topamax. I was slammed onto Topamax -400mg starting the first day- due to a sudden increase in seizures, and this caused a crazy | M | 29 | 2 months | 1/29/2005 | 4 | Seizures/epilepsy | Dizziness approx 2-4 times a week, needles in arms/feet every once in a while, SHRINKING FEELING. Cognitive issues; can't think of right word to use in sentence. | I am extremely torn about this medicine. I am taking it in conjuntion with Keppra and Lamicital. This medicine stopped seizures almost instantly, but the cognitive side effects are extremely frustrating. Both the dizziness and the issues of thinking of the right word. The shrinking feeling is a side effect I have not heard about with anyone else, and I am interested to see if someone else is having. I hate it, but have gotten use to it. It usually occurs about 2-4 times a week. It lasts about 5-7 minutes, and everything around me seems to become very small; almost Alice in Wonderland like? It only started when I started the Topamax. I was slammed onto Topamax -400mg starting the first day- due to a sudden increase in seizures, and this caused a crazy | M | 29 | 2 months | 1/29/2005 | 4 | migraines | fatigue at first, some visual disturbance, congnitive problems -trouble finding words, some hair loss, slight decrease in appetite, some tingling in hands, feet, knees, lips. Some moodiness. | has decreased my daily, sometimes life-altering headaches by about 30-35 percent -enough to make me get back a good deal of my normal activities. I am slowly titrating up to 100 mg. I look forward to greater benefits to more dosage I can handle. I am impressed by what others have experienced. My side effects although bothersome are offset by the happiness I've regained from not having head-splitting pain. | F | 30 | 2 months | 4/14/2005 | 4 | PTSD (50 mg) | Tingling in my face; diarrhea | I am taking this with Lexapro and Trazadone. The Topamax definitely has helped with the anxiety. I don't feel worried that I am about to get killed all the time. The other stuff helps with the sleep issues. | F | 33 | 2 months | 5/31/2007 | 4 | Migraines | Nerve pain, drowsiness, loss of appetite, extremely vivid dreams. | All in all, I would have to say that Topamax has been good so far. My migraines have decreased significantly and I can live with the side effects of this medication as long as that continues. Two months into taking 100 mg per day (50 in the morning and 50 at night), I am still having severe nerve pain/tingling in my hands and feet...sometimes enough to wake me up in the middle of the night. That has been, by far, my worst side effect. I have been a bit more drowsy, but that has forced me to get the eight hours of sleep a night I should be getting anyway, so I can't complain. One other odd side effect is that I'm having extremely vivid dreams. I've never been one of those people who remembers dreams and now, almost every morning since my dosage has been 100 mg per day, I wake up and remember two or three dreams from the night before. I've also noticed a loss of appetite, but no real weight loss yet, only about six pounds over two months. | F | 24 | 2 months | 6/8/2007 | 4 | Migraines/bipolar/weight loss/pain | A little hair loss but that seems to be subsiding. My face breaks out occasionally but even that subsides after a day or two. I feel rather dumb when trying to choose words but other than that I know it's beginning to work for the weight loss and my migraines are almost non existent now. It's great cause I've been fighting migraines all of my adult life. This has helped so much! | F | 42 | 2 months 50 mg. | 1/2/2014 | 4 | migraines | memory loss, confusion, tingling, appetite loss, numbness, occasional ringing in ears | I started on 12.5 mg and could barely handle the cognitive side effects, but have gradually worked my way up to 50 mg and it's been a bit of a miracle worker. I admit that while it's strange dealing with full-body numbness and I dislike looking like a twig (went from 135 to 120 at 5'8"), it's nice to finally get rid of the headaches that have been plaguing me for months. The memory loss, confusion, and tingling were only present during the first 2-3 weeks of taking the medicine. | F | 17 | 2 months | 6/16/2009 | 4 | Migraines | Severe tingling in feet, insomnia, coke tastes real bad, hives, swelling of lips and tongue, rapid weight loss and this was all after taking 50 mg. My doctor started me off on 25mg/day for one week and increased my dose to 50mg. The first day I was on the 50mg, I ended up in the emergency room from hives, swollen lips and tongue and I had difficulty breathing. I was put on steroids for one week and received a steroid shot while I was there. They decreased my dose back to the original 25mg for an additional 2 weeks. I have been on Topamax for 2 months and I am now back up to 50mg and I feel great. I have suffered from migraines for over 10 years and this has really helped. Sometimes you have to take the bad effects to get the positive effects in the long run. | If you are taking Topamax and experiencing some less serious side effects, don't give up. Check with your doctor to see if you can decrease your dose for a little while. When I started taking Topamax I weighed 149 pounds. Not too bad for my height at 5'10. I am currently at 129 pounds. You really have to make yourself eat. Some people say you have to be on a higher dose to lose weight but that's really not true. I think it's just because you lose your taste for everything. I have started taking vitamin supplements and doing some weight training because I have no muscle tone left in my body. I have been accused of being anorexic for the first time in my life. | F | 37 | 2 months | 7/4/2008 | 4 | weight gain from lithium | tingling of toes and hands and feet, can't find the right words to describe things, forgetful a bit | I take 300 mg of lithium morning and 450 night. I also take 25mg topamax at night. I have a feeling this has to be raised. If anyone knows anything about this combination please email me, my doctopr is not too great in that department. | F | 19 | 2 months | 2/28/2009 | 4 | purging disorder/OCD food related | tingling in hands/feet, nosebleeds/sinusitis, sinus infection, mild weight loss, memory lapses, fatigue, difficulty with words, trouble concentrating, general feeling of weakness, some dizziness | total cessation of all purging. OCD behaviors almost stabilized. despite really irritating side effects, this drug has really worked with compulsivity where no other drug has worked for me. | F | 30 | 2 months | 1/23/2008 | 4 | seizures | confusion, extreme eye twitching, tingling finger tips, low consentration,20 lbs loss in 1 month, lots of energy, better sleep,loss of taste of some foods and drinks | the side effects are tolerable if you don't sercomb to them-- try yoga, and working out lightly, it works for me. I'm more relaxed. I was diagnosit with bipolor 10 years ago(prozac 150 2x day).I have been having slight seizures for years and never Knew it, until I almost lost my life with a full blown seizure 2 months ago. I can deal with the side effects, what I can't deal with is leavinG my 8 &6 year olds without a mom. deal with it! This to shall pass. | F | 40 | 2 months | 2/13/2008 | 4 | migraines | loss of words, trouble communicating, increased appetite (welcome for me), tingling in hands and feet | Did help with migraines, but the word retrieval issues were too much for me. I might try again if beta-blockers don't work. Side-effects are better than debilitating migraines; worth a try. | F | 44 | 2 months | 2/7/2008 | 4 | migraines | tingling/numbness of feet (especially the heel of my right foot) to the point where its painful...worst at night and in the morning. sometimes i feel like im extremly wide eyed and high. weight loss, loss of appetite, | i took topamax in the past at a (much) higher dose for bipolar with the same side effects. when taken with other prescription meds it can have an extremly sedative effect (hence the nickname "dopamax". I learned this the hard way after being prescribed topamax and abilify at the same time. it does wonders for my migraines though. you get used to the tingling of the feet. i've found that applying strong pressure on the painful site can help. Weight loss of about 7 lbs. Makes my ambien kick in within a matter of minutes...when i took the ambien alone it would take 40 mins - 1 hr before i could fall asleep. All and all topamax has been helpful | F | 21 | 2 months | 7/12/2008 |