TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  headaches tingling, confusion, drowseness, HAIR LOSS, HAIR LOSS, weight loss, memory loss, loss of the headaches:) It has realy helped for my headaches ,i feel like im in a better mood . i'v lost 45 lbs. i'm just wondering how long this hair loss will go on .it's realy starting to scare me. i think the hair loss side effect needs to be more reconized! this med has helped alote, though i'am thinking of going off because of the hair loss. F 32 1 years
10/10/2006
 5  Bi-polar (rapid Cycling) Loss of weight (yippie!), Yes it took a little getting used to in the begining, but it was worth it. I don't have any tingling or those other problems I have read here. I feel like a normal person (Sanity) on this unlike other drugs like lithium or depakote. Those make me feel stupid. I am taking 300 mg per day. I love this stuff. I also take 200 mg Tegratol per day and 300 mg Welbutrin. M 45 1 years
12/26/2004
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 5  Bipolar 1 eye pressure, weight loss I was switched to topamax because my first cocktail of meds made me gain weight. I loved Topamax !! It helped my mood better than any other stabilizer Ive ever been on!! Plus I lost all the weight..But im off it now because im pregnant...I would recommend Topamax for anyone whose gained weight from mood stabilizers! F 25 1 years
7/16/2005
 5  Severe Migraine Drowsiness after taking dose. Problems finding the right word (word searching). Mood swings. Some pains in legs. Jerking in legs and arms starting about an hour after dose. Shaking in hands (tremors). Confusion, forget what I was about to say. Weight loss. These sound like bad side effects and many of them, but since starting this medication I have not had a migraine. The side effects I have got used to, the migraine's I could never get used to. I owe a lot to this medication and the side effects to me are a small price to pay for getting my life back. I take my dose before bed so the jerking doesn't effect me much as by the time I wake up its settled, the drowsiness is good because I take it before I sleep, the pain in my legs in not constant, on and off and not severe at all, the tremors usually start a few hours before I'm due to take my dose so I think it could be my bodys alarm clock letting me know I'm due to take it. Word searching can be a little annoying but bearable, forgetting what I was going to say, happens to everyone anyway!! Just a little more with this medication, and the weight loss, I'm still at a healthy weight for my height with a BMI of 20. If you can try stick with it, this medication could change your life for the better. I tried so many medications and they all failed but this one changed everything. Kelly. F 24 1 years
100mg
1/5/2012
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 5  Severe Migraines Minor tingling in hands,feet and tongue. Diarrhea and slight stomach pains. Rapid weight loss, altered taste, curved appetite. This is my second time on Topamax. I was previously on Topamax for about a year and a half and lost approximately 65 lbs due to the curved appetite. In that time never experienced one migraine, instead had maybe one or two small tolerable headaches. I then went off due to pregnancy and breastfeeding. Once my daughter was weaned I immediately called my doctor and was put back on my Topamax. I am only in my first week this go around, but so far... NO MIGRAINES!! F 29 1 years
11/10/2006
 5  migraines Petichiae in my feet, with a bluish purple hew. There are small lumps under my skin also. This is very strange. I find nothing in the brochures that say this is a SE of the Topamax. But it started when I first started the Topamax,and stopped for about one month and the spots went away. I then started back up again and it's gotten way worse since the summer. If you experienced anything like this with the Topamax please email me and let me know. Thanks so much!!! I am taking 50 mgs and have now cut back to 25 to see if the symptoms will go away!!! F 45 1 years
12/27/2006
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 5  Severe Migraines Loss Of Memory (Dopey drug), smell more than used too, trouble remembering words, studdering, tingling hands/feet, weight loss 80lbs in the past year other than that nothing else really bothersome well I do haver trouble sleeping sometimes. This is a MIRACLE drug in my opinion. I have been on lot of others and this to me is the best. Yes there are side effects but to me they are well worth it. I deal with the memory issues,wear more deoderant,eat high protein things,etc.. you learn to deal. If your like me and have lived with SEVERE migraines this IS a MIRACLE! F 31 1 years
1/2/2007
 5  Migraine Tingling hands, feet and face, loss of appetite short term, altered taste of food short term. Never had Migraines before a year ago when they suddenly appeared and changed my life forever. Finally prescribed Topamax and cannot live without it. If I forget to take it my day is miserable. My short term memory loss I have now is nothing compared to the cognitive impairment I was experiencing without any treatment. I would not take myself off this for anything unless assured there was something better on the market. I do suffer from days where I need more than the dosage I am on and wonder if they are getting worse and should I take more but that just brings on more tingling hands and face. I have lost weight, I do have more energy because I feel a lot better than used to. I am no longer on antidepressants, I actually have periods regularly which is strange as a 40 year old with PCOS. This seems in complete opposite to most on this site, but I love this stuff. Its not perfect, but Its so much better than where I was. F 40 1 years
100mg 2X day
5/22/2010
 5  migraines tingling in fingers,and toes,loss of appetite,bad taste in mouth hair loss F 49 1 years
30 mgs 1X day
2/17/2010
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 5  mood stabilizer a bit of forgetfulness My doctor desribed me as "soft bipolar". Or I would describe myself as a high functioning depressed person that becomes agitated sometimes. Topamax has really smoothed out my moods. My only complaint would be that I feel a bit dulled. My best friend noticed this too, that I'm not as witty or sharp. But my boyfriend finds me a lot easier to live with. No negative physical side effects at all--maybe because I do split my dose up to 3x a day. Also, I lost no weight. I did not want to, but I see a lot of people want to use this for a diet drug aand it may not happen for you. F 29 1 years
50 3X day
10/21/2010
 5  MIgraines weight loss, head itching, some hair loss, tingling of feet and hands, loss of words. Nothing real major I can deal with all these side effects, I love the Topamax it has been a godsend to me. I have had migraines since I was 15 and nothing has helped but this drug. I have lost weight from it, which I needed to anyways so that was an extra plus. A few small migraines have slipped by but nothing like before. F 53 1 years
2X day
8/19/2010
 5  Daily migraines Initially I had a difficult time finding the right word or saying the wrong word, but this went away over time. Weight loss, appetite loss, hair loss, feeling "spacey" or "out of it" or like I was really tired or had low blood sugar even when I had slept well or just eaten, this also tends to improve with time. Soda tastes strange, other foods sometimes taste odd. Tingling in hands and feet. I was scared to death to take this medication because I had heard so many horror stories about it and finally gave in because nothing else had worked so far to prevent my chronic migraines. I wish I had not waited so long!!!! Yes, there are some strange and honestly a little scary at first side effects. They don't call it "Dopamax" for nothing. You feel really out of it, but its managable. I honestly felt just as dumb after a really bad migraine and it works really well for me in preventing them. I can see if it didn't work for you why it wouldn't be worth it, but the benefits SO far outweigh the funny side effects. and they really do wear off after a few weeks. Also an added bonus I found is I I tend to have an addictive personality. But on Topamax, I could care less about playing video games, eating junk food, having a drink etc. That is just something I found interesting... F 32 1 years
50 mg 2X day
7/28/2011
 5  Bulimia Temporary loss of critical thinking skills, temporary loss of extended vocabulary, tingling in extremities, loss of appetite. The cognitive side effects were temporary and affected my work but I bluffed and fortunately went out of town and had a sinus infection within the first 10 days on the drug so I played it off nicely. I feel like I am back to about 85% of my pre-Topamax intelligence. I am more than effective at that level. The positives outweigh the negatives. I have not binged and purged one time since I have been on this medication. I suspect it must act on the addiction response center in the brain because my pesky other bad habits have lessened in my time on this med (nail biting, over shopping, over dating, etc.) The weight loss leveled off as well and I stabilized at a healthy weight. Overall I am satisfied. F 34 1 years
200mg
11/15/2014
 5  migraine Memory loss, tingly fingers. Love this med. Changed my life F 42 1 years
150
1/29/2015
 5  Migraines Some tingling hands and feet (went away after awhile); Soda tastes flat; Weight Loss (40 lbs); Memory recall on words and names (always on the tip of my tongue). This was a miracle for me! I used to get up to 3-4 migraines a week. Nothing was working. My doctor suggested we try this. After the first year we did have to increase the dose from 100 mg to 200 mg because it felt like it wasn't working as well, but it's working now. It has brought me a new life and even though I sometimes miss the soda I really didn't need it anyway. F 33 1 years
2/29/2008
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 5  Migraine Soda tastes flat. Weight loss (40 lbs). Occasional tingling in my hands and in feet. Memory Loss - hard to recall words... always on the tip of the tongue. This medicine changed my life! I used to get 2-3 migraines a week. I am now down to 1-2 a month and even they aren't debilitating anymore. I am a totally new person. F 33 1 years
1/14/2008
 5  Binge Eating Disorder Decreased sex drive, difficulty with spelling, diet soda tastes like gasoline, tired but can be prevented with "alertec" Great for binge eaters or anyone with complusive eating disorder, it is a tough and secret and lonely place, this drug will make you loose interest in your addictive foods - it is brilliant, it changes your brain chemistry, it will make you sleepy, you can overcome this horrible disease, email me: F 36 1 years
12/11/2008
 5  Migraines Tingling in the tips of my fingers. I have been taking this for several months, and have noticed an improvement in my headaches. I do notices that I still get them during drastic weather changes, but for the most part, those "daily" headaches are gone. F 34 1 years
4/10/2008
 5  Headaches Tingling in fingers, some weight loss I began Topamax almost a year ago for headaches(4-5 times a week) that lasted longer than 24 hours and usually ended with me vomitting. I was started on 25 mg and it worked immediately so I stayed with the 25 mg dosage not wanting to take excess medication. Never had any extreme side effects but I have been on a low dosage. Also, I still got the occasional headache once or twice a month and have yet to find something to get rid of it. The past two months my headaches have been increasing but still less extreme than what they were. Overall I think Topamax is a great preventative drug. F 21 1 years
1/29/2009
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 5  Migraines Tingling, confusion, loss of appetite, can't drink sodas. All of these side effects went away. Took Topomax for 3 months, separated from my husband and he took me off of his ins. Just got ins back and the first thing I did was went back to the doc to get my Topamax. This is the best med that I've ever taken. It stopped my migraines from 3 to 4 times a week to just 1 or 2 a month mainly around my mentrual. I've lost weight. Can't spell, can't drink sodas, but that helped my weight loss. F 31 1 years
1/7/2009
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