TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  migraines fatigue at first, some visual disturbance, congnitive problems -trouble finding words, some hair loss, slight decrease in appetite, some tingling in hands, feet, knees, lips. Some moodiness. has decreased my daily, sometimes life-altering headaches by about 30-35 percent -enough to make me get back a good deal of my normal activities. I am slowly titrating up to 100 mg. I look forward to greater benefits to more dosage I can handle. I am impressed by what others have experienced. My side effects although bothersome are offset by the happiness I've regained from not having head-splitting pain. F 30 2 months
4/14/2005
 3  weight loss nausea F 20 14 days
4/12/2005
 3  NERVE PAIN pOP TASTED LIKE SHIT F 54 2 months
4/11/2005
 1  chronic migraines severe nausea, throwing up, severe weight loss F 18 10 days
3/31/2005
 1  seizures tingling of fingers and feet, soda and certain foods tasted horrible, nausea, sinus infection that would not go away, joint aches, chills, hair loss, dandruff, skin appearance and itching, depression, anxiety and inability to stay asleep for more than 2 hours. Topamax worked wonders for my seizures. Did not have one during the two months I was on them. Although I have been off of Topamax for about a month now, my tongue is still tingling and I am not sure if it will ever go away. F 35 2 months
3/22/2005
 5  acute migraines update on posting all side effects are gone I have been on this for about a year and a half now and my migraines have completely stopped. My last migraine was about 9 months ago. I am convinced Topamax is my miracle drug. F 41 1.5 years
3/19/2005
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 5  Migraine Prevention Tingling in hands and feet, weight loss, slight confusion, aggitation, loss of menstrual cycle I went from 135 lbs to 115 lbs on 150 mg of topamax in about 4 months. I didn't really need to lose weight but it was a nice side effect. This drug has worked wonders for me. I was getting 4-5 migraines per week and now I get about 2 per month. I have stopped getting my period which concerns me. F 25 6 months
3/18/2005
 5  migraines tingling feet and hands, legs Awesome drug! I was getting 2 severe migraines a week and having to go by EMS to the hospital. My doctor finally prescribed Toridol (ER IV medicine) for me to inject myself since Imitrex injections and all other meds did nothing. This has been a life saver for me! I take 100mg at night and I sleep fine (after my leg stops) I also take 150mg of Effexor for depression/anxiety. F 39 7 months
3/11/2005
 3  migraines Tingling of the fingers and feet, blurry vision occasionally, itching, carbonated beverages lost appealing taste not sure if working yet in short amount of time F 23 3 weeks
3/10/2005
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 3  migraines very negative effects on mood--made me have a short fuse; decreased frequency of headaches to about 7 per month (cut # of headaches in half) F 42 4 months
3/8/2005
 3  migraines very negative effects on mood--made me have a short fuse; decreased frequency of headaches to about 7 per month (cut # of headaches in half); made me strongly adverse to lemony smells of soaps; word retrieval problems F 42 4 months
3/8/2005
 3  migraines at 100mg:negative effects on mood--made me have a short fuse; made me strongly adverse to lemony smells of soaps; word retrieval problems; bad heartburn at 1st and needed to be put on meds for my stomach unfortunately no decrease in appetite or weight loss for me!!; did cut my # of migraines in half F 42 4 months
3/8/2005
 3  Migraines Very itchy body on 3rd week of treatment (75mg). Doctor tells me the symptoms are temporary, Ya ok, he doesn't have to live with it. Is there anyone else out there who also experienced an itchy body symptoms? And if so did it pass? I would Love to make this drug work for me, but I cannot live scratching myself 24/7. M 38 3 weeks
3/7/2005
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 5  Migraines Tingling in feet, hands, and occasionally face This drug, in combination with Atenolol and Trazodone, enormously helped my migraines. I went from having 3-4 a week to having 1-2 a month, and those are related to my menstrual cycle (I'm pursuing other treatment for those.) My whole quality of life has changed. F 31 2 years
2/28/2005
 4  Bipolor NOS (manic), bulimia Weight loss b/c of suppressed appetite and almost no carb cravings, stopped eating disorder almost cold in it's tracks. Occassional tingle in toes. No cognitive side effects at all. A little more hyper during first month. Leveled out during second. Excercise regularly now, much healthier, etc. I LOVE it. I've been on everything and this is the only thing that has ever made me feel like a normal person that can function normally at home and especially in social situations. I also take Klonopin to mantain panic attack control. F 26 3 months
2/28/2005
 3  Vertigo Tingling fingers and toes, typically in am and pm. Trouble sleeping once built up to full-dose on drug. Trouble articulating words and speaking intelligently. It took me down a few IQ points! Was having un-explained vertigo ... after MRI, CT Scan, COW, MRA tests, etc. Dr. suggested we start throwing different drugs at the vertigo to see what makes it stop. Pos: The Topamax did stop the vertigo/dizziness. Neg: It impacted by abiltity to speak clearly, I often reversed by sentences or couldn't remember how to even articulate or spell a word. F 35 30 days
2/28/2005
 4  migraines stomach pains no appetite at all not sleeping real well at night either. only able to drink anything just h2o any one else out their experience the stomach pains. I have only been on it for this is my 3rd week were i up my dosage one 5 mg in am and 2 25 mg in evening and next week to finalize 100 mg total. will the no hunger and stomach pains go away. i am not eating at all just posicles and some fruit F 40 3 weeks
2/22/2005
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 5  migraine headaches at first, I had a bit of confusion. I really noticed when I would be typing on the computer. It really only lasted a week or two. Also, my taste for soda, like everyone else says, but the good news is, I have switched to water. It has worked wonders for my migraines. I only take 50mg a day, and this a such a low dose. My appitite is slightly decreased, and I have dropped some wieght. but no other horrible side effects like I have read that others have had. F 37 2 months
2/20/2005
 4  Migraines Tingling hands, feet, cheeks. Feels like they are almost asleep. Light-headed, Dizzy - especially upon increased dosage. Feel like you are out of sorts. Have had headaches a few times a year (for the past fifteen years) that were always diagnosed as sinus. Recently was told that my headaches all along were probably migraines according to their description - all new to me. A neurologist tried a week of Frova, Reglan and steroids to try and rid me of a headache that wouldn't go away for what was then a couple of weeks. I felt better while on the meds, but as soon as I stopped the medications the headache started coming back. She then put me on Topamax. I followed a package instruction to take 25 mg for a week at night, then 25 mg AM and 25 mg PM, then a week of 25 mg AM and 50 PM, then 50 AM and 50 PM to get to my full 100 mg dosage. I have been taking the 100 mg for a few days and feel dizzy and light-headed. I no longer feel like someone has a (hate to be so graphic) knife in my temple, but I also hope I am not expected to function with this strange dizzy head. I still get headaches. I take Frova or Relpax when I start to feel the pains in my temples. I don't wait until they get out of hand. Have never had to be on a daily medication other than for allergy. The doctor seems to think I'll be on Topamax for quite some time - she mentioned 'a few years.' Hope this helps someone else with a similar situation. Things could be worse. F 41 23 days
2/19/2005
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 5  mood stabilizer/binge-purge insomnia, horrible floating sideways while sitting occasionally (this makes me dizzy), sinus problems similar to mild allergy symptoms), slowed mental process (learning how to slow myself down, however frustrated when cannot remember events or facts - it is getting better), strange also on bupropion 150 mg daily. was on depakote, gained 35 pounds rather quickly, went off, went on lithium 600 mg daily for 6 months then decided wanted to try drug in category that could possibly help with weight (if appetite controlled, less chance to binge, also combined with therapy). started on 100 mg topamax, sideways feeling too much for me, cut dose in half. so far so good. I'm getting use to the side effects. Have lost 5 pounds. Have not binged/purged since I have been on it (mainly b/c I don't have much of an appetite to binge on). Mood is good, though I am tired - which can bring me down. this one is worth sticking with, mainly because the b/p is most dangerous to health and after 5 years it's the first thing to help F 26 1 months
2/16/2005

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