TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
1 | Migraine and epilepsy | Twitching of muscles, bodyaches numbness, tingling, sick, depressed | Starting taking this medication because of migraines seizures, first 7 days felt kinda out of my body ,hard to sleep loss of appetite.Then on second week dr. Wanted me to update dose to 2xday and by week 3 I was hardly able to walk ,felt like I was Carrying sand bags on me my muscles was twitching uncontrollable, I would sleep for hours upon hours and cry for no reason my feet would fall asleep when walking but my heels would be numb, my fingers would draw up and tingle my muscles would be so sore .I was have seizures in my sleep,my eye sight is wierd I feel like I have presure in my eyes unable to focus and when I can it's takes for ever ,my words want to come out but I am having trouble speaking as well.I am now trying to come off the medication with terriable withdraws .my head shakes for no reason my balance is terriable I have to have assistance walking. I called my Nero dr and told him about all this 2 times and he said to stay on it .and finally I went to er and that dr there said get off it .BAD BAD BAD MED .this is day 2 I have been with out it and I and on 25 mg vistreal and it seems to be helping me feel normal again hope I will get back to myself soon .I am glad that I listen to my husband and went to dr. This medication does ur body harm and it messes with ur head as well .I would not recommend to anyone | F | 42 | 3 weeks 50mg | 6/7/2016 | 3 | cluster headache, chronic migraines | Tiredness, some nausea | Also take for absence seizures and as adjunct to bipolar meds. It doesn't work well for cluster headaches or chronic migraines but it's still better than nothing. It seems to help absence seizures but I'm also on 400 mg lamictal for those so who knows? Also unsure if its effect on bipolar disorder as I take a lot of other meds for that. | F | 34 | 2 years 200 mg | 6/5/2016 | 5 | Migraines and depression | So far Topamax has been a blessing for me.Helps from having to suffer from having headaches for days.Also helps to stabilize my depression meds. | F | 60 | 3 years 200 x day | 5/29/2016 | 4 | Migraines | Tingling in fingers. Hair loss so I went off the Topamax but then the chronic headaches came back. Word loss. Initial weight loss of 70 lbs due to feeling full and I used it to my advantage because I needed to lose the weight. I also lost all taste for alcohol. Haven't had any desire to drink in over 3-1/2 yrs. drank regularly all my life before Topamax. | When I noticed the hair loss I stopped taking Topamax but had to go back on it because of the chronic migraines. The Topamax seems to really work for me as far as the migraines. The only other thing that works for my migraines is not legal in my stupid state. (MJ). So I will be taking the Topamax until they get smart and legalize it. Fortunately for me the loss of words isn't terrible. Tingling has pretty much subsided except when cold. I've kept the weight off but had to work at it. Hair loss doesn't seem to be so bad. The headaches are way worse than most anything because mine are the kind that don't totally dibilitate but last 2 to 3 weeks. My job is reading and reviewing files all day long. You can't do that when your head hurts and all you want to do is go home and sleep so it's Topamax for me cause they tell me there's nothing else. I can't take pain meds during the day because I fall asleep at my desk. Besides they don't really get rid of the pain - maybe for 10-20 min. | F | 64 | 1 years 200 mgs | 5/28/2016 | 1 | Migraines | Distaste for carbonated beverages, irritability, confusion, rage. | It's actually my (ex) wife that's taking topamax for migraines. First she lost 30lbs which caused an attraction to the drug, she says there are no more migraines. After 3 mo I first asked her to stop taking it after noticing a behavior change. After that nothing I could do was right, 9 mos later I hear she wants to divorce me. We have a very successful business, nice imcome , just finished building a new house. The rage got worse I suggested at that point to separate. I'm now divorced after 16 years together, have a 9 yr old boy that we share custody, I loved my family, I hate this drug | F | 45 | 1 years 25mg 1X day | 5/21/2016 | 1 | Trigeminal Neuropathy | Mental imbalance Confusion Desperate and disturbing thoughts | I was given this drug as treatment for a neuropathic condition. I was warned by the doctor there may be issues, but that I would know pretty quickly whether or not the drug was suited for me. Yes, that was correct! On the 2nd dose, I could tell something felt different in my brain. I was processing things differently --and distant (not so good) memories were coming back in a rush, as if they had just occurred. By day 4 when thoughts of suicide raced through my mind, thankfully I was still lucid enough to know it was the drug and I had to stop taking it. | F | 59 | 7 days 10 1X day | 5/20/2016 | 1 | Headaches | My doctor prescribed me this for headaches. Did not work! I was constantly tired, had tingling everywhere, and lost 10 pounds because I had no appetite. | Of course everyone is different. So if this works for you, great! | F | 21 | 2 months 100mg | 5/20/2016 | 1 | Migraines | Started off slow at 25mg to 50mg to 75mg for awhile. The MOMENT I was turned up to 100mg, severe UTI. One after the other. Every time I would try taking the topamax, another UTI. So I stopped. I no longer have signs of infection. I have developed chronic severe life ending pelvic and back pain. Had a cystoscopy done to check for IC which I don't really have. Topamax has ruined my life altogether. DO NOT TAKE IT. I would give anything to go back a year ago and have never taken that drug that ruined my existence. I now have permanent nerve damage and no quality of life. | PLEASE if anyone has had similar side effects do not hesitate to contact me. I can't be the only one to have a ruined life from this drug. It took a long time to get a doctor to admit and agree with me that it was the topamax that caused my problem. It was always within hours that the UTI would show up. I stopped the medication back in May of 2015. It is now May 2016 and I am worse than ever. | F | 34 | 7 months 100mg | 5/9/2016 | 5 | Uncontrolled migraines | I have increased my taper from 25 to 50 and noticed sleepiness the first day, but not the second. Some indigestion, but not intolerable. My goal is 50 mg BID, so I am hopeful it continues to go smoothly. | The huge thing NO HEADACHES. This is the first time in YEARS I have gone without severe headaches. It is life changing. | F | 39 | 1 weeks 50 mg | 5/1/2016 | 1 | Cluster headaches | Depression, increased pain, anxiety, unable to eat, fixation issues, not feeling myself at all. | Not at all a good med for me. Even if clusters stopped this would not be worth it. Had more success (however limited) through regular massage and oxygen. If I had not suffered these conditions earlier in life and not know what they are, the added distress would be unbearable. I have had clusters for over a year. | F | 33 | 4 days 25mg | 4/30/2016 | 1 | Migraine | Paranoid, anxiety, depression, diarrhea . I have never had depression and I was so bad off that I couldn't get out of bed. I was paranoid beyond reason and that started me feeling anxious about everything. I have mild IBS to begin with but Topamax made it so much worse. I had to go off it because of the side effects | Nightmare drug for me and I was told that the side effects would stabilize after a few weeks. They never got better they got worse. | M | 43 | 3 months 100 2X day | 4/27/2016 | 5 | anxiety | I've been taken off of topomax by my neurologist and having terrible withdrawals. | F | 56 | 2 years 400 mg | 4/20/2016 | 4 | Migraines & Seizures | Weight loss, memory loss, feeling kinda dumb, tingle in hands and feet. | Helped my migraines, went from 167 to 134 in about 2 yrs would eat whatever i wanted. You can't taste pop at first then it goes away. I was on and off for 5 yrs then the weight came back and didn't come off. I'm now at my highest 187. On zonegran now. Best of luck! | F | 33 | 5 years 100mg x3 | 4/20/2016 | 2 | Migraine, leg pains | It seemed ok for a very long time and I don't know what changed but I've become extremely paranoid, drudging about things from the past that shouldn't be drudge up. Feeling sad and alone. It's like...WTF is this med doing. | F | 49 | 5 years | 4/12/2016 | 1 | migraines and nerve pain | I took it last night at 9pm. I couldnt fall asleep until 3am. Didn't feel to bad. A little difficult to wake up. Nerve pain was worse. All day today I have been edging on a migraine and feeling odd. Those symptoms are not too far off from normal unfortunately but I can at least maintain my mood and ability to stay awake. I found myself very very angry about things that do not normally bother me at all. I kept it all inside my head because I know its not me, its this medication. I also kept falling asleep every time I sat down. Im dizzy and im having a hard time communicating. I feel poisoned. | I dont know if the side effects are worth the benefits... Im afraid to take it again honestly... I wouldnt be surprised if this drug is recalled. Bad Vibes | F | 37 | 1 days 25 mg | 4/12/2016 | 1 | Seizures, Brain Mass | Started out as extreme tiredness, which I can't complain about too much seeing as I've had insomnia since I was 8. So that's not too bad but the med's have been making me extremely moody and irritable which aren't good at all. I can't be around too much talking or I get annoyed easily and just want everyone to go away. Besides that they've been giving me extreme headaches(even though the doctors said they were headache medications too). But the main thing I am focused on is the pain. For the past two weeks it hasn't been nearly as easy to breath, if I had to guess what it's like to have asthma, this would be it. I have a constant cough when I breath and If I work too hard at work my breathing turns into heaving. My muscles feel like they barely work at all. And there is a sharp shooting pain in my upper abdomen area. I'm not 100% sure if these are things that will fade out in time or not, again I've only been on the medicine for a month. Everything seems to fluctuate except the breathi | They should be nicknamed the "succubus" pills. Because they suck the life out of you.... | F | 20 | 31 days 25mg 4X day | 4/9/2016 | 1 | OCD | blurred vision extreme abdominal pain followed by whatever I attempted to eat loss of appetite extreme weight loss in short period of time diarrhea constipation hair loss | Very dangerous drug. I wouldn't be surprised if it's eventually taken off the market. | F | 49 | 6 months 200 MG | 4/8/2016 | 5 | Uncontrolled Migraines | None so far... | I took the first dose last night before bed and I woke up today completely headache free!! I am on a taper increase dose so I will take 25 MG for one week, then increase to 50 MG for one week, then 100 MG at bedtime until reevaluated by my Headace Specialist. I hope this medication will help with my migraines. I have tried nearly everything else. If this medication works it will be worth any negative side effects. At least for me anyways! | F | 35 | 1 days 25 MG | 3/23/2016 | 1 | Migraine preventative | It turned me into a paranoid schizophrenic | My pain management doctor prescribed this in hopes it would reduce the number of migraines I was getting. I hadn't taken it for more than a week when I began to feel strange "in the head". This drug had me cowering in the corner, afraid someone was coming into my home. I would beg my husband not to leave for work because being alone began to terrify me. I felt detached from the world around me and everything was unreal. When I was forced to go out to buy groceries, I quickly threw items into the cart as having people around me caused great anxiety. All the while I felt like I was walking 2 feet above the floor. Upon getting home I would go to bed and literally hide under the covers until my husband came home. Often he would find me cowering in the corner of the room. It took me a while to realize it was the Topamax. I immediately stopped it and within two weeks I was back to my normal self but it was one of the worst experiences ever. Apparently the drug altered the neurotransmitters in my brain, causing such a horrible reaction. The only good to come of it was that I did gain a new understanding of what for many people is a permanent and frightening mental illness. Schizophrenia is no joke and nothing to make fun of. | F | 66 | 3 weeks 50 MG 2X day | 3/19/2016 | 4 | Migraine | Fatigue, weight loss, irritability, inability to concentrate or find words, over emotional at times | I have been on the medicine for almost 2 weeks and already lost 8 lbs. week one I was taking 50mg and now 75mg. No appetite, then when I do eat, it's like I get full really fast. That's NOT normal for me at all! Easily irritated and crying over things that are not worth crying over...quite pitiful. No urge to end my life, not so much depressed but sometimes feel a little blue. Still too early to tell but so far I'm emotional and withering away... | F | 25 | 2 weeks 75mg | 3/18/2016 |