TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Seizures | Tingling/numbness in fingertips, occasional insonimia at night, significant cognitive blocks and incoherency, inability to stay on task and concentrate, extreme weight loss (over 100 lbs), nausea,dizziness, food often tastes strange, also I have eye pressure. In addition, I do have occassional depression, however, I do have an additional terrible illness. Therefore it is difficult to separate and blame one pill's side effects from another. | Topamax has stopped the Generalized Seizures and this is outstanding and served the main purpose. I will tolerate the "minor side effects" which are from the pill. Topamax is a far better drug than others my body has had to endure for seizures. I am a teacher and I had seizures in front of the students and it was such an unfortunate ordeal for them to suffer through. I absolutely do not like being incoherent and at a loss of words. As a professional, standing in front of a group of people, staring at them and not having a word come to "mind" is a complete nightmare. Alas, I am now retired. It would be a pleasure to hear from others via email. | F | 55 | 2 years | 2/5/2006 | 3 | adhesive arachnoiditits | Lowered IQ, hard to find words(feeling really stupid at times), arm and hand tingling, hand joint pain, weight loss(loss of appetite), leg cramps, food tastes different, insomnia or trouble staying asleep, bizarre dreams, moodiness, slight hairloss, depression, feelings of going schizophrenic(seeing and hearing things), muscle jerks | I know these side effects sound pretty severe but it is better than feeling like your legs and feet are on fire. I am currently taking 150 mg. of Topamax a day. 50 mg. in the morning and 100 mg. at night. Topamax hasn't taken away all the burning pain but it has helped. I may need to increase the dosage soon. | F | 41 | 4 months | 2/5/2006 | 2 | chronic migraines | I have been a migraine sufferer on occasion, until this terrible blow out of migraines came out of no where! That is when I began to suffer from mirgaines that come on daily and linger around for four to five days, and then another replaces it. I get my words switched around, I can't remember people's names and I lose track of what I am saying. My migraine headaches are still as severe as before I began taking Topamax. My nausea is ever constant too. I keep up the hope that that the longer I take the Topamax, and the higher the dosage it goes up will help fight off these cursed migraines. I have also had an increase in appetite. | I started 25mg in the morning and in the evening three days ago. I have noticed that the morning dose causes me to feel flu like in the early evening. | F | 31 | 10 days | 2/3/2006 | 5 | Chronic/ Daily Migraines | Weight loss, Decreased appitite, pop tastes funny but like others i have switched to drinking water, hard time coming up with words sometimes | I have had migraines since i was two years old. I have been on what seems like every drug on the planet earth and so far this is the only one that has brought me any sort of relief without horrible side effects. Depakote was the only other drug that helped but the side effects were so bad i couldn't stay on it. I love topamax and hope it keeps working for me. | F | 2 months | 2/2/2006 | 5 | Chronic/ Daily Migraines | Weight loss, Decreased appitite, pop tastes funny but like others i have switched to drinking water, hard time coming up with words sometimes | I have had migraines since i was two years old. I have been on what seems like every drug on the planet earth and so far this is the only one that has brought me any sort of relief without horrible side effects. Depakote was the only other drug that helped but the side effects were so bad i couldn't stay on it. I love topamax and hope it keeps working for me. | F | 2 days | 2/2/2006 | 5 | severe migraine | weight loss, carbonation taste flat, tip of nose feels cold, burning in heels, tingling in pinky fingers, dry eyes, fatigue, temporary memory loss, and appetite loss | I used to get migraines for an entire week around my menstrual cycle, and my life would have to be put on hold. The migraines were so debilitating that I would just put my head down at work and school, and then go to bed the minute I got home for an entire week. I finally went on topamax, and my entire life has changed. Not only do I not get migraines, but I don't even get minor headaches anymore. I have been HEADACHE FREE since I have been on this medication. The side effects were very obscure at first, such as the inability to recall simple words or names, the extreme fatigue, and the fact that soda looses its carbonation. The side effects have decreased significatly the longer I have been on Topamax and are almost back to normal. This medication has given me back my life, and I don't know why it took me so long to find it. | F | 20 | 3 months | 1/30/2006 | 1 | Migraines | Loss of tactile sensation and ability to feel painful stimuli in fingers/feet, all over numbness/tingling (btw the 1st side-effect I noted was the tingling in my toes and fingers, triggered arthritis like joint pains and muscle pains, muscle stiffness, inability to sweat,balance/coordination/reflex problems(I was unable to drive after about 10 days on the medicine), no decrease in # of migraines ( headaches I was having on the medicine stopped after I discontinued Topamax), extreme shortness of breath after only walking 20 or so yards (asthma inhaler didn't help to relieve it), extreme fatigue, increased blood pressure, heart rate increased at times, weakness in muscles of arms,fingers and legs/feet, chest pain, eye ball pain and blurred vision, difficulty focusing, extreme depression/labile affect, difficulties with speech, nausea almost constant (took promethazine for controlling the nausea), increased thirst, back pain, dehydration, electrolyte imbalance, unable to work or drive du | Perhaps this drug helps some people a great deal for seizures, but for myself it had made me feel quite ill and jeopardized my ability to work in my field which requires coordination and touch sensitivity in my hands/fingers to do well. The vision problems snuck up on me in the 3rd week. I was never able to get up to the 3rd week dose levels--- the side effects were really bad and too numerous to continue on that medicine. The side effects I was having actually triggered daily migraines (as I got pretty stressed out as I lost the ability to feel hot/cold, pain, textures. And the vision problems were the last straw, that was what told me this medicine was making me sicker. People who feel the often reported tingling/numbness need to be careful not to end up getting burned by hot water and hot items (like heating pads)--- the inability to feel hot and cold (as well as pain) really snuck up on me. I wish my doctor knew more about the side effects of this medicine as I wonder now what more | F | 43 | 3 weeks | 1/30/2006 | 1 | migraine | Severe joint pain (knee and hip), tingling in feet, face and tongue, taste off (soda), fatigue, muscular pain and memory/language deficiencies | Although I did experience a slight decrease in my migraines during the short time I was on the medication, it certainly was not worth the side effects, particularly the joint pain which made it difficult to walk and sleep. Hopefully, the pain will diminish as I wean off of the medication. | F | 37 | 6 weeks | 1/28/2006 | 5 | migraine prevention | Hair loss | Hair Loss is the down for me, 25 mg at night, I can now think (no headache. I can deal with the not sleeping and weight loss. My doctor added Pamlor and that helps with the sleeping (up to 6 hours a night) and now trying to weed out what is causing the hair loss. Both have the side effect of hair loss but it started first with the Topamax and broke off down to the scalp. Help!!! | F | 42 | 3 months | 1/27/2006 | 5 | migraine prevention | Hair Loss is the down for me, 25 mg at night, I can now think (no headache. I can deal with the not sleeping and weight loss. My doctor added Pamlor and that helps with the sleeping (up to 6 hours a night) and now trying to weed out what is causing the hair loss. Both have the side effect of hair loss but it started first with the Topamax and broke off down to the scalp. Help!!! | F | 42 | 3 months | 1/27/2006 | 1 | Complicated Migraine | Personality changes, memory loss, inability to eat, feelings of being "zoned out" most of the time, clumsiness...was running into file cabinets, etc. at work, overall sick, lethargic feelings, anxiety, depression | I began Topamax @ 25 mg for 1 week and then was adding 25 mg per week up to a max of 100 mg. Early on I thought this was a miracle cure! Headaches were gone, but side effects were starting.Tried to ignore them as no headaches! When began 75 mg dose, feeling sick to stomach all the time, could hardly eat anything,was never hungry, forced myself to eat for fear of more headaches. Headaches started coming back, thought it was becasue I wasn't eating enough. At 100 mg. was so sick, started missing work. Terrible diaherrea,anxiety attacks,migraines every day. Dropped dosage to 50 mg. Symptoms got better, but headaches did not stop. Doctor said to stop taking it cold turkey. I wouldn't recommend that. I think you should slowly withdraw. When I stopped cold turkey, had severe panic attack, bad anxiety, insomnia, crying spells.It was horrible! I would never recommend this drug to anyone. Totally screws up your mind & body! For perimenopausal women take note: CHECK WITH YOUR OB/GYN IT IS VE | F | 42 | 30 days | 1/25/2006 | 4 | Temporal Lobe Seizures | Rapid heart beat, fast deep breathing, weight loss, insomnia, leg pain, increase in energy, some aggitation, memory loss, slowed thinking. | The positive benifits of this medicine outweighs the negitive side affects by far, for me anyway. I lived on phenytonin for 3 years and never realized the affects of that medicine until I came off of it. I feel much better, and I have not had one seizure yet. I have not been taking Topamax for long, and it is a low dose, (100mg a day) so I'll keep that in mind. So far I am very pleased. | F | 37 | 2 months | 1/23/2006 | 4 | migraine | occasional burning/numbness in arms, legs, face; digestive system changes - feel constipated at night, then diarrhea in morning; lost 17 pounds in 3 weeks! Soft drinks taste horrible. | I am taking Topamax to prevent migraines, but am happy to have lost 20 pounds. I did LOVE to eat and overate often, but since starting the Topamax, I will be hungry, but feel that there is nothing in the world that would truly be what I want, so I just don't eat. I am taking 50mg at bedtime, still having occasional migraines, but less than before. | F | 37 | 6 weeks | 1/21/2006 | 1 | bipolar/depression/eating disorder | inability to think, couldn't get out of bed, tremors in hand, headache, numbness in hands and mouth, couldn't think, thought of nothing but sex (the only good thing about this s*) and was able to have a great orgasm unfortunately by myself -- it was like the whole full body tingling thing; could hear my heart beat in my ear; my eyes hurt and were sensitive to sunlight; i couldn't keep down water; and i couldn't eat. | one day on this is one day too many. | F | 33 | 1 days | 1/19/2006 | 1 | migrains and weight loss | HAIR LOSS, tingling in my feet and hands, inability to recover the correct words when forming sentences, attention span. Soda tasted funny | first of all I was on topamax for 5 months and only lost 7 pounds which I put back on while still on the drug. my feet and hands kept falling asleep every day ALL THE TIME. I didnt think anything of it until I stopped the drug and now it doenst happen at all. I have always had a very thick full head of hair. it is also curly so it was natural to loose some hair daily. I always shed. But looking back, I realize that on a daily basis while conditioning my hair, my hands were covered in strands, COVERED! I had to snake my drain once a month since starting topamax. When I went to the hair dressers this past weekend they found three spots missing hair, two were small no bigger than a quarter, the other is almost the size of a fist! I didnt notice because it was the back of my head and under the firt layer of hair THANKFULLY! I stopped taking the drug Immediately, that was saturday. Today is wednesday and I already notice when I wash my hair that there is virtually no hair on my hands | F | 31 | 5 months | 1/18/2006 | 5 | Bipolar | Been on Topamax since Septemeber 2004 which is 3 months,, I am now up to 200 mg per day,, I feel great,, No symptons except some tingling ,,this is rare ,, other than that I feel great, some weight loss,, 10 lbs in the first 2 months and still losing I eat well no junk food ,, I can still drink pop,, but I drink alot of water as one should with this drug for kidney stones ,,, I think this is the best drug yet ,, since I have been diagnosed Bipolar in 1990,, I have been on Lithuim, Etc,, you can e-mal me at [email protected] | F | 46 | 3 months | 1/17/2006 | 1 | Weight loss | anemia,hair loss,weight loss of about 25#,muscle twitches,memory loss,irritability,trying to say words that wouldnt come out,weird dreams couldnt walk very far without getting winded. | I was only on this drug for 5 months and at one point had to have a heart catheter stuck into me because my Dr thought I had a heart attack.I did like the weight loss though but I would never take another drug like this to lose weight.I learned my lesson from this drug. | M | 41 | 4 days | 1/16/2006 | 4 | mood stabilizer | i was very eratic up down and going weird | side effects are only stomache pains | F | 47 | 2 times | 1/15/2006 | 3 | migraine | significant cognitive impairment: memory loss, word finding difficulty, slow comprehension, difficulty concentrating. Other: eye pain and redness, weight loss, change in taste acuity,loss of appetite | To summarize: over time the costs of taking this drug have begun to clearly outweigh the benefits. I started taking topamax in oct of 2004 for migraine. Titrated up to 50 mg twice a day. Reached therapeutic dose and migraine frequency decreased significantly from 3-4/wk to ~1 month. Tremendous benefit never seen with any other med. I did not need to lose weight, but started to lose at 100mg/d and continued until I was able to get better control of it. My lowest was ~102# and losing at 5'6". I have regained to ~110# My 1st MD said he did not believe the eye pain/redness was related to the med - I don't agree and my new neurologist does in fact believe it is related. FDA published a warning about this and all should be aware of the risks. I am now on my way to titrating down to 60mg at night and then getting off the med as the cognitve side effects are unbearable. I feel like I have lost all mental sharpness, it is incredibly difficult to carry on a conversation and function at work | F | 30 | 14 months | 1/15/2006 | 1 | Migraine | Severe itching, fever upset stomach, hair loss, mood changes, sleepiness | It did however work great on getting rid of my migraines. | F | 40 | 21 days | 1/15/2006 |