TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Bipolar 1/Weight Stability the fact that this drug did nothing for me? Topamax was prescribed to me when my other medications for my Bipolar and Gen. Anxiety disorder were making me balloon. I was told that this drug would help my medications find a happy balance as well as kill the constant eating and weight gain. For the first 3 weeks or so it worked and then I went right back to a large appetite. Even worse, I constantly asked my dr. to take me off of it since I didn't feel it was working for me, and he refused. Luckily I'm seeing a new dr. and he said the same thing I said, "Why are you STILL on topamax?". yup. F 19 3 months
1/9/2010
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 1  Migraines from dysautonomia My 11-year-old daughter developed PARANOIA on Topamax. It was horrible to see her be afraid of her brother. She hid it from us for six months. We are together around the clock since she is unable to go to school. I saw her getting agitated, but did not see the paranoia until she had an emotional explosion one night. We got her off of it as quickly as possible. She was on 75mg. per day. She is thankfully recovering from the paranoia with the help of therapy. Her sweet disposition is returning, and she says her brother is nice again. Please be EXTREMELY cautious if taking this drug. Side effects built subtly. She is a calm and good natured child. She was agitated, hypersensitive, aggressive and paranoid. I thought her illness was getting worse. It was the drug that was making her worse. She urinated constantly. Don't let this drug ruin relationships. Get off of it if you notice any changes in yourself. F 11 7 months
1/6/2010
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 4  migraine Vertigo nausea possible rash taste change tingle weight loss No matter the side effects. So far the benefit is better than giving it up. I also have TMJ and my apparatus in my mouth aggrvates my migraines more. Topamax helps give continual medication. I also use Amerge for pain F 57 5 years
1/5/2010
 2  migraine headaches tingling hands and feet, any amount of caffeine causes my face to tingle and/or go numb It took me a good 6 months or so to determine that it was topamax+caffeine that caused my face to go numb. For a long time, I thought it was topamax alone. I have been able to virtually eliminate the problem by eliminating caffeine. F 30 1 years
1/2/2010
 1  Migraines Frequent 'presque vu', disturbed sleep because of pins and needles in feet, extreme weight loss, eventually debilitating paranoia My first stint w/ Topamax lasted six months and I lost 50+lbs which fueled my eating disordered behaviors. I found myself addicted to the appetite suppressing effect of the drug and put myself back on it but it became unbearable quickly due to the intense paranoia it would cause. Symptoms were especially difficult to manage during any change in dose. I did have fewer migraines while on the drug... F 19 1 years
1/2/2010
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 5  migraines dizziness,tired,weight loss Topamax has for the most part made migraines disappear. I do have occasional stress headaches and use OTC migraine medication. It also stabilizes my weight which is an additional bonus. F 35 6 years
12/31/2009
 3  Migraines and Weight Loss Soda tastes flat, a little forgetful, tired after taking pills. Nothing bad. I haven't experienced any side effects that are so bad that it would cause me to quit taking the Topamax. I'm looking forward to increasing my dosage (I'm currently on 25 mg twice a day for a week) on Saturday so that I can lose the close to 40 pounds I've gained over the last 2 years due to fibromyalgia meds. F 41 8 days
12/29/2009
 2  Mood stabilizer/bulimia/binging I experienced no side effects because this medicine did nothing for me. I have been taking 100 milligrams of Topamax twice a day for 2 months now, and absolutely nothing has happened. There have been no effects, either good or bad. This drug just doesn't do anything - it must be a sugar pill. I was hoping for weight loss even if it made me dumb and made soda taste bad, but it just did nothing. Oh well. M 27 2 months
12/29/2009
 1  Daily Headaches after Accutane Crying episodes, Mood swings, spacing out - staring at things in front of me without a thought in my mind, depressed feeling, unexcited about life, still have headaches, lethargic, eyes feel swollen and sight is blurry at times, mentally not all here. So, I have only been on the meds briefly for 3/4 nights @ 15 MG a night, but have already started feeling as if this medication is affecting my life. I honestly am not getting any work done at work, I feel lethargic, stupid, and I can't concentrate on what is in front of me. This is not typical of my personality at all. I am usually a go-getter and a perfectionist. I am mentally unstable at times. I cry and just want to curl up into a ball. I don't have any urge to want to make other around me happy (not typical) and very drained and lethargic around 2:00 in the afternoon. I just stare at the screen in front of me...waiting for the time to go by. My sight is blurry, not double (I don't think) and they appear as if I have allergies, which I do not. I am going to stop taking the meds in hopes that the headaches subside naturally...like most things in this world SHOULD and DO if you give them time. F 27 4 days
12/18/2009
 1  Daily headaches and migraines dizziness, tingling in fingers and toes, confusion, constantly thirsty, soda tastes bitter and gross Topamax was awful! I started off taking 50 mg/day. I didn't feel a difference. The doctor upped my dosage to 100 mg/day. It made my headaches worse. It also made me constantly thirsty. I couldn't feel my fingers and toes when I would wake up in the morning. Coke, my favorite drink, tasted nasty. (I eventually gave it up, which is probably better anyway.) I just didn't feel like myself. I don't recommend this medication. F 25 4 months
12/11/2009
 5  Bipolar II (rapid cycling) Nausea all day but could also be due to Yasmin that I started taking at the same time; anxiety in the first two weeks; difficulty with word retrieval; stumbling over my words; silly typos; a bit emotional (could be Yasmin); weight loss; stopped craving sugar and carbs; I think Topamax is wonderful! I was on Epilim (sodium valproate) for 15 months and although it helped stabilize my moods to a certain extent, I gained 40 pounds and experienced severe fatigue and brain fog. I have never felt so stupid in my life! I experience only about 10% of this brain fog on Topamax which I can cope with plus I have lost 11 pounds in just 6 weeks. It is wonderful to be freed from the binge eating and shopping sprees that I was prone to before. I feel like the real me has emerged from bipolar hell - a calm, in control, happy person who is in touch with the world. It took me 28 years to get the right diagnosis for my condition and 2 years to find the right drug... what a miracle! I am so grateful! F 44 6 weeks
12/10/2009
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 1  Epilepsy This medicine controlled my seizures but caused permanent brain damage. while I was on it, I felt my mental capacity deteriorate, I had problems finding words, I would start a sentence and I would forget what I was talking about. I had this numbing sensation, double vision, saw trails, insomnia, anxiety. Simply awful. THIS IS THE MOST HORRIBLE DRUG I HAVE EVER TAKEN! It controlled my seizures for the time I was on it but caused permanent brain damage and dumbed me down to the point that i never fully recovered. F 43 1.5 years
12/2/2009
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 3  Bulimia/weight loss/mood stabilizer In contrast to most views of Topomax on here, I have had little to no side effects. I take 100 mgs twice a day. It makes me drowsy, but that effect is wearing off. From what I've read, the main reason I don't have side effects such as tingling sensations, numbness, hair loss, and mental difficulties is that I happen to take vitamin supplements already that Topamax seems to deplete or require more of in the body. These supplements are: Multivitamin, Vitamin-B Complex, Vitamin-D3, and Flax-seed Oil capsules (Omega-3's). For some reason some or all of these supplements prevent most of the unpleasant side effects associated with Topamax. I am pretty excited about Topamax, especially because it just went generic as topirimate so now it's really cheap. I am really, really hoping this drug will give me some relief from my binge eating disorder which makes my life kind of stressful. Losing a significant amount of weight would definitely be nice, but it would be even nicer if Topamax could ease the struggle about binging/purging in my MIND. I'm hoping this won't just be a band-aid, but will be a multifaceted component to my emotional recovery. M 27 2 weeks
12/1/2009
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 1  Migraines INCREASED MIGRAINES, constant migraine, dizziness, nausea, blurred vision, speech problems, memory problems, mood swings, weight loss, loss of appetite, twitchy limbs, ringing in ears. I have lost 10 pounds in the last week, but I have had a severe migraine since the morning after I started taking it. Seriously, straight through for 7 days, even right now. My eyes were blurry and while I was at work yesterday I just forgot how to talk. I was shaky, nauseous, almost incoherent and felt like passing out. I ended up in the ER not to much later, my neurologist told the ER to tell me to stop taking it. Before this episode yesterday I noticed I was always on edge and moody. I couldn't concentrate, it could be due to the constant migraine or this medication. Either way, as great as the weight loss is, I can not continue to take this medication. F 24 1 weeks
11/29/2009
 4  epilepsy - partial complex seizures weight loss, inablity to spell and read. confusion The topamax did stop the seizures and I lost the 40 pounds I gained when I was on depakote but it impaired my ability to comprehend words. I was no longer able to spell and I would forget words when speaking and writing. It also eliminated my appetite which I didn’t mind but I wasn't eating a healthy diet because I wasn't eating much at all. I no longer take it and am now on lamictal and keppra. F 43 3 years
11/28/2009
 5  Rapid-cycling Bipolar--NO HCTZ!!!!! HUGE CAUTIONARY WARNING NEEDS TO GO TO ALL USERS ASAP NO HCTZ!!I WAS PRESCRIBED HYDROCHLOROTHIAZIDE FOR MY BLOOD PRESSURE MED.CAUSED CHRONIC VERTIGO! 4 DR.'S 2 ENR SPECIALISTS LATER,ICONSULTED A PHARMACIST) REGARDING MY CONCERN THAT THE SERIOUS VERTIGO SITUATION WAS BEING CAUSED BY A CHANGE IN MY BP MEDS.(THAT WAS AN UNBELIEVABLE 7 MONTH NIGHTMARE EXPERIENCE).I'VE BEEN REFERRED TO NEUROTOLOGY FOR FURTHER TREATMENT JAN/10?).ALL REVIEWED MY RECORDS (INCLUDING TOPAMAX (AKA TOPIMIRATE) PRESC))& SAID NOT SOURCE.I FINALLY DEMANDED NEW BP MED 76 HRS AGO FROM GP;WHAT A DIFFERENCE! DO NOT TAKE HCTZ W/TOPAMAX!!!! I AM NOT 100% BETTER...BUT I FOUND THE SOURCE (100% SURE) NO HCTZ!! MAY CAUSE SEVERE CHRONIC VERTIGO ISSUES NOT REGOGNIZD BY HEALTH CARE PROVIDERS OR PHARMACISTS AS ISSUE. F 49 6 years
11/27/2009
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 1  Bipolar I episode Suicidal thoughts, dizziness, precipitatesd drop in mood, uncontrollable blues and feeling that my entire being had been torn away and stored into a freezer. I had racing thoughts about all sorts of things to end it. I wasn't depressed, just EMPTY. Like in your deepest hole. It's a drug too new and I don't like being a guinea pig for a drug that my doctor can't really tell me the side effects except a bunch of MAYBES. After that, I'm never trying a super new new new new drug. Without counting the other possible side effects I read about it. The worst thing ever. F 25 1 weeks
11/24/2009
 4  Migraines AND seizures tiredness, lethargy, drowsiness I am on 200mg a day and can't beleive anyone gets any relief from 25mg. The only thing I don't like about Topamax is that the migraines it doesn't prevent are 10x worse than migraines off, but I have 10x less frequent headaches, it's as if my head just stores up the pain. I am blind and accidentally mixed-up my medicines overdosing on Topamax, and other than the lethargy and drowsiness this was the only time I had any side effects F 27 2 years
11/22/2009
 4  depression/alcoholism sleepiness, loss of appetite I've only been on this for 4 days. But already alcohol is starting to loose it appeal and I feel optimism that this drug is really going to help me kick bad habits. I feel a little tired, but my doctor said that will go away in a few days. I'll update as time goes on... F 34 4 days
11/22/2009
 4  Bipolar Weight Loss, Confusion & Sleepy all the time I have to say that I really like this medicine. I take it with Effexor XR. I actually feel calm. I'm not compulsive, and running around like crazy. I can sit still. I'm also not eating the entire house anymore. I always use to be small and skinny. So it will be nice to loose this extra 15 lbs I stacked up in the last 2 years. F 24 5 days
11/22/2009

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