TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | migraines | eye twitching, pins and needles/numbness in extremities, minor weight loss, weird vision things | i have been on and off of topamax for the last few years. i truly suffer from terrible migraines and am at a loss for what to do. i am giving it one more shot. in the past i've had similar side effects, but more weight loss and never the eye twitching issue before. has anyone had migraine success with topamax? has anything helped the side effects? potassium supplements used to help with the tingling, so i'm hoping it helps again with the twitching. please contact me [email protected] if you have any insight. | F | 25 | 30 days | 4/2/2009 | 5 | tension headaches, migraines | tingles, weight loss, some loss of train of thought in begining, fatigue in begining | Has really helped with my headaches. The weight loss was a nice side effect, but could be bad if too thin. I need to keep an eye on it. Currently at 200mgs. If you experience hair loss you need to take a GOOD multi vitamin with selenium and zinc! You can even add those onto you multi! Add omega 3's in as well! Hair loss on this drug is due to selenium and zinc deficiency. | F | 32 | 8 months | 3/28/2009 | 4 | seizure | at first i was extremely tired, all i wanted to do was sleep, weightloss(9lbs), loss of appetite, foods taste mildly different, and i actually think my hair feels thicker | i'm on a switch from a large dose of depakote, which i have been on for a long time and my body just isn't responding to effectively any longer... i have been on seizure medication most of my life, i have tried topomax previously but it was at a time when they found other more "effective" drugs for me, i am very happy with the weightloss so far i hope i lose more depakote has put alot of weight on me through the yrs. currently i am only on a small dose of topomax 100mg/day i am very happy so far but i am always afraid when i switch medicine, i have read about many ppl having more energy, i say "give it to me!", as far as weightloss goes, "i can afford to lose another 60lbs.", as far as distaste for carbonated beverages, "i dont like them anyway" wanting healthier foods, "artichokes and spinach are my 2 favorite foods!" so i think if those are the problems that people have with topomax gimme the problem!, and if i have a dopey moment oh well i know how to laugh at myself! i have been on disability for my seizures for about 10yrs now, i am tired of it, i want to be able to get out and do what i want in life! and if topomax gives me the energy then i say i am glad i am switching to topomax! i still have 1 more month until i am at my dose amount of 200mg at which time i will decrease my depakote, and stay on my dilantin with my topomax. | F | 35 | 1 months | 3/26/2009 | 3 | Migraine | Nausea, anxiety, exhaustion, but cant sleep! Also, everything carbonated tastes funny and some foods taste like soap. | I just started the medication so I am not giving up. I have tried just abot everything for migraines and nothing has worked. I was on elavil before which i went off to try topomax. I am not sure if i am anxious because of the stopping of elavil or the starting of topamax. Elavil made me hungry all of the time. I am a small person, but I still do not want to gain weight. Now, i feel so sick all of the time on Topamax. I just want to know if it gets better. | F | 30 | 14 days | 3/25/2009 | 4 | migraines | tingling in hands/fingers, weight loss, soda tastes weird, some word-loss on occasion, extreme fatigue--(extreme when i overwork myself, manageable as long as i remember to get extra sleep, pack a real breakfast and not just stop at starbucks, etc.) | After being misdiagnosed with sinus problems for years, i finally saw a neurologist who put me on topamax. i'm currently @50mg/day. Although it does make me very tired, the constant ache is gone and my severe attacks have decreased from 3-4 times a week to 4-5 times a MONTH. The side effects SOUND scary, and for some they are. but for me, they are worth getting rid of the headaches. Now I can function, i'm not missing out on things, so I'm not depressed, and i feel healthy! If you are a migraine sufferer and your DR. recommends it, it is definitely worth a try. | F | 26 | 3 months | 3/19/2009 | 2 | weight loss, mood stabilizer | tingling in hands and feet, flu like symptoms, carbonation tasted horrible, some appetite loss(yahoo) extreme fatigue, weakness, forgetting words, stupomax and dopomax qualities | This is my second time taking dopomax, I mean topomax. My new doctor prescribed it to help with weight loss and to help my antidepressant work better (cymbalta). She initially started me on 100mg a day which I think is way too high and I struggled with these nasty symptoms for a few weeks thinking I had a virus until, in a brief moment of brilliance over the foggy stupidity I had been swimming in, I looked up side effects of this drug. I am now weaning off of this drug. Can't really handle the side effects. and weight loss has been minimal for me | F | 48 | 30 days | 3/18/2009 | 3 | Migraines 2-3/week for past 10 yrs | extreme pins and needles sensation in feet, minor weight loss, spelling problems, left eye seems to have developed a bit of a pulsing twitch- has been going on for about 13 days now. | have been on and off this drug for a period of ten years now. I have experienced weight loss in the past, but not this time around as I have been back on for about three months now. I have tried many types, but Topamax seems to be one of the few preventative that has made a difference for me, however, within the past three weeks, my migraines are back in full force. I'm not sure if i have become immune to the medicine or what, but I suppose I will be looking to a new alternative if it doesn't get better soon. | F | 24 | 3 months | 3/15/2009 | 4 | migraines | numbness/tingling, loss of appetite, sodas taste disgusting, HEAVY menstrual bleeding and severe cramps | My daughter is taking this for migraines. So far, it works! It's the only thing so far that has worked. HOWEVER, menstruation is a nightmare for her- hemorrhaging, severe painful cramps, really impairing for a high school kid. With a family clotting disorder this seriously exaccerbates it, but we will work with an OB/GYN to fight that since the topomax is helping with the headaches. | F | 19 | 4 weeks | 3/7/2009 | 5 | Migraine prevention | occasional tingling in feet, carbonation tastes horrible, decreased appetite. | I have only been on Topamax for 2 weeks now, & am only up to 75mg, but I love it. I went from having a migraine almost every day to just having occasional headaches. The change was immediate too. The few side effects I've had have been worth not having migraines. | F | 17 | 2 weeks | 3/3/2009 | 4 | epilepsy | weight loss, confusion, tingling in face, memory loss, spelling issues, fuzzy vision and it possibly messed up my mentrual cycle | i'm 5'1 and was around 100 lbs when i started taking it, in the 1st yr i droped to 83 lbs!...it really messes up ur appetite, ive been on 200 mg a day since then and have manged to sustain a heaithier weight, but still don't like the taste of food sometimes. as for the rest of the side effects, they are VERY ANNOYING!!! they make me feel stupid and dumb! i always forget what im saying inthe middle of a sentance, and simple things like the alphabet are a freaking challenge!!...all in all though once you are used to the drug everything is pretty minor. | F | 24 | 5 years | 3/2/2009 | 5 | Migraine prevention | Occasional tingling in fingers, weight loss, irritable. | The irritability may be the topamax or withdrawal of the other meds that were ineffective for migraine prevention. After being a guinea pig for migraine medications Topaamax is a miracle. I was having a migraine every day. Taking Zomig daily. They stopped after the first dose of Topamax. Nothing else worked, neurontin, cymbalta, depakote, Zonegran, pain killers, muscle relaxers, anti-anxiety, so many other anti-depressants and anti-convulsants I cannot remember them all. Topamax has the least side effects, too. I had lost all hope after 8 years, until now. | M | 48 | 60 days | 3/1/2009 | 4 | weight gain from lithium | tingling of toes and hands and feet, can't find the right words to describe things, forgetful a bit | I take 300 mg of lithium morning and 450 night. I also take 25mg topamax at night. I have a feeling this has to be raised. If anyone knows anything about this combination please email me, my doctopr is not too great in that department. | F | 19 | 2 months | 2/28/2009 | 1 | Migraine Headaches | . After two or three days I started having bizarre effects. I appeared to lose all of my higher reasoning skills. I was very "spacy". I would sit down and then look up ten minutes later having no idea where the time went. I was also extremely crabby. | When I spoke to my doctor he did not seem upset or surprised. He said topamax was known to make people "stupid". | F | 41 | 10 days | 2/27/2009 | 5 | migraines | Been on 25mg. for 3 years. side effects... couldn't think/ not hungry/ some tingling/ lost 20 pounds. Gained about 10 back - weight is stable and can eat whatever I want. Tingling is only occasional. Confusion is a friend, I've learned to work with it. After 2 years I thought I didn't need it and weaned myself off. In about 3 months the migraines were back with a vengeance! Went back on 25mg. and in 3 months -- no more headaches. I WOULD NOT WANT TO LIVE WITHOUT TOPAMAX! | F | 50 | 3 years | 2/25/2009 | 3 | bipolar II | SO FAR: Prolonged bleeding during period (someone mentioned that on this page); word-dropping/misspellings, soda tastes flat (overnight!); occasional, moderate cramps & diarrhea; dry mouth; decreased appetite | This is part of my new cocktail. The other med added at the same time was Wellbutrin, so I am not sure which side effects belong with which med. I have been on 300mg Lamictal forever; love it. Used Seroquel for sleep. The reason I am now taking Topamax is for the weight loss and/or libido increase benefits (same goes for the Wellbutrin). Dumped the Seroquel and halved the Cymbalta to 60mg as my weight hasn't moved in 4 months even tho' I eat like a rabbit. We'll see how this goes...so far, so good...one week down, and the side effects are not unbearable as yet. I definitely eat less, which is great! I do not care for the "dumbed down" feeling, however. | F | 40 | 9 days | 2/25/2009 | 3 | cluster headaches | inability to concentrate, fatigue, failure to find correct words when speaking, numbness in fingers, toes, lips. | M | 43 | 30 days | 2/25/2009 | 1 | tremors caused by mini strokes | EXTREME muscle pain over entire body, muscle fatigue, EXTREME joint pain, muscle spasms all day and night, rapid weight loss, emotional wreck, crying all the time, severe insomnia, complete confusion, memory loss, repeating myself all the time, unable to grasp words from my brain to speak, in a general fog all the time. | Since being put on Topomax a few months ago as a treatment for my hand tremors that were a wonderful gift of my mini strokes, I have had an excruciating amount of pain all over my entire body. I cannot sleep, and I have no appetite at all. I have had unexplained problems with my potassium level dropping to dangerous low levels which caused my entire body to contract and bend in half. The doctors at the emergency room could not explain why my potassium levels had dropped and when I followed up with my PCP, she was clueless too. Since that event, the pain in my body is unbearable. I have been to my neurologist who has run multiple labs on me as well as a nerve conduction test which came out fine. It has to be this drug. I am contacting my doctor to be weened off of Topomax immediately. I will suffer with my tremors because the side effects of this drug are unbearable. | F | 59 | 4 months | 2/25/2009 | 4 | Migraine prevention | 15-20lb weight loss, tingling/stiffness in hands and feet, difficulty recalling words or spelling, slurred speech occasionally, facial paralysis | I have had chronically uncontrolled migraines since my early 20s. Topamax is a big factor in keeping them under control. Went from 5-6 a week to 1 a month. I'll take the side effects over the migraines. | F | 29 | 6 years | 2/24/2009 | 4 | severe migraine headaches | tingling in the arms and legs, forgetfulness, spelling problems, loss of hair, acting out temper problems (for the first time in my life) no longer happy all the time, pain in legs, sour feeling in stomach, decrease appetite | I know these side effects sound scary;however they did not occur all at once. The "tingling" happens if you do not drink enough water. Decrease appetite happens from too high a dose too fast and YOU WILL PUT THE WEIGHT BACK ON!!! AND MORE WHEN YOU COME OFF THE DRUG AND START TO EAT AGAIN! Take Vitamins. B's Zinc, Biotin and digestive enzymes so your body will absorb them this will stop your hair from falling out, and eat, even if you are not hungry. This med effects your thyroid gland not monitoring it and starving yourself to stay thin you will pay the same price as someone who suffers from thyroid problems. After 3 years, this drug took away a 20 yr hell I had with migraines, but I respect the power any med has--especially one as powerful as this. Taking the vitamins is a must as the drug interferes with the absorption of nutrients which is the cause for many of your symptoms. You esp. need B12 to stay mentally healthy. If you can't effort good vitamins get off the drug!!! | F | 50 | 3 years | 2/24/2009 | 3 | Migraine prevention | At first carbonated beverages taste flat but then this side effect goes away, brain fog when starting treatment, word finding and speaking problems, may cause drowsiness (good idea to take before bedtime) some tingling of hands and feet, This drug is not a good choice for anyone in public speaking, editors, lanquage professors, etc. | F | 56 | 3 years | 2/21/2009 |