TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  migraines foggy thoughts, tingling in fingers, lack of concentration, dry mouth, mood swings, dizzy, soda taste strange, can't find my words, weight loss, feel over medicated, slurred speech, zero sex drive (also take other meds) I have been suffering with migraines for many years but lately they have become much worse. However, I am also being treated for severe depression and anxiety (Effexor & Valium plus Ambien for sleep}. Can anyone tell me how long the side effects might last because they are wearing me out? I am a bright professional woman who feels quite embarrassed to speak to my peers when I am unable to find the right word or my speech becomes slurred. I am hoping someone will be willing to talk to me about this challenge. F 41 2 months
4/22/2006
 3  Migraines Urination frequency issues, abdominal pain Just started... Seems to be helping but it's really too early to tell. M 30 8 days
4/22/2006
 3  Epilepsy Weight Loss, broken out in pimples I am happy with the weight loss but not pleased about the pimple break out as my skin was very clear prior to the increase in Topamax. F 34 4 months
4/22/2006
 5  migraines speech difficulties, confusion, loss or hard to find choice of words to use, diffulty falling asleep, hair loss I started out taking 25 mg of Topamax increasing to 50 mg. Upon reaching the 50 mg my migraines were under control with Relpax. Then it happened I thought I was having a stroke, my speech was slurred my husband couldn't understand a word I was saying, I had some an episode in the Dr's office. I was out of work for a month, when I was able to return I was stuttering. The neurologist and Family Practice doctor and several other specialist all concluded it may have been the topamax, but I had not reached the optimal dosage. I was taken off the Topamax and have had migraines, rebound migraines, headaches consistently. My life is out of control, I can not even complete activities of daily living. Needless to say, I am now reconsidering taking topamax but under closer supervision, it has been the only medication to control my migraines. My neurologist also recommended botox injection for my migraines as well. F 38 1 months
4/20/2006
 4  migraines spelling problems (ckichen) forgetfulness, going grocery shopping ang coming home with 300.00 worth of everything else from walmart but food. Driving 6 blocks away to go to the Dr's office and ending up in a pet store 34 miles away. ( I rent and I cannot own a pet) I turned on 2 burners to put a kettle of water on and then put the ketlle in the fridge. I am only taking 25 mg at night and started taking another 25 mg in the morning today. I will eventullally be on 50 in the mroning and 50 mg at night. I hope the spellign thing gets better because every time I chage one word right I fix another wrong. So I iwll let you see my stupidity. I am normally a spelling genious.! spelling is awful and I can normally spell well. I can't find the right words. example: I called my best friend to complain about my neighbor. I told her that I couldn't sleep because my neighbor was watching movies at the top of her lungs all night. My friend thinks I am funny but sometimes it's embarassing. I call my sister my daughters name and my son's friend by my daughters name. I don't know if people think I am just stupid or assume I am drunk.My Mom tells me that I am now the stupid one in the family instead of her. I would rather be stupid than bed ridden with migrains so bad I can't function. I hope I can stay pain free and dumb for a long time. My mood is SO much better! I may be stupid now but I am so happy to be alive I could care less! I am serious. I think this is a miracle drug that is kind of fun to be on. (Just don't take it if you are a mother to a small infant or a surgeon or a pilot or something) F 31 7 days
4/20/2006
 1  migraine prevention From a dosage of 25mg to 150mg/day: it increased the number of migraines I get per week/month; affected my taste in food (everything tasted bland, soda tasted flat); saw minor hallucinations (trails, things in the corner of my eye); drowsy all the time; severely affected my memory, ability to do math, read a book, vocabulary-I could never find the right word for anything; and mild heartburn. I get migraine headaches 15-20+ times a month (so it's almost an everyday thing for me), but when I started Topamax, it was an EVERYDAY occurence. There was no doubt I would get a migraine, it was just at what point in the day would it hit me. I'm dissatisfied, but I can't not recommend it, if you have bad migraines, it may work for you. M 29 5 months
4/20/2006
 3  chronic daily headache weight loss, tingling in hands and feet, memory loss, inability to find the right words for things, slower thought process, EXTREME FATIGUE I suffered from a permanent headache that never went away for approximately two years. I began taking topamax, and the drug began to have results at 150mg/day. The drug was somewhat effective on its own, but I only got true results when I added an antidepressant. I now take 200mg topamax and 50mg nortriptylene/day. The side effects were severe, and the weight loss was extreme, as I was thin to begin with. However, I would endure almost any side effect in order to have relief from daily headaches which were preventing me from having any life whatsoever. F 29 2 years
4/19/2006
 4  migraines weight loss,tingling in the hands and feet,tiredness,loss of memory It took my migraines away. I was having them 2/3 times per week and couln't deal with life and now I can. The only ones it hasn't helped with is the hormonal ones,we need to work on that. I will not stop taking topamax. I tried once and my headaches came right back. Side effects will be a part of my life,headaches will not. If anyone reads this and can answer:When they were taking topamax did they seem to "level-off" on a dosage or need to go up continually? F 31 15 days
4/16/2006
 4  mood stabler at first, weight loss, I have had tingling in fingers and some numbness, even blue finger tips a few times. I don't know if this is related i take many other medications weightloss seems to have leveled off maybe I take 75 mg daily 54 8 months
4/13/2006
 3  migraines first week I was in heaven, thought this is the greatest, woke up feeling great better than in years, needing no caffeine at all thru the day, did had a few side effects mostly mental confusion but the good feelings out weighed all side effects. nO MIGRAINES When i increased dosage I totally lost it, my couldn't function, speak clearly, remember names, stuttered, you name it I just couldn't do it, I turned hateful even minor violent. I am still having problem with my mental capacity, I can't think, I can't remember, I can't even spell simple words anymore,I cut back on my dosage If I try and stop this drug I get a terrible migraine. I depend on this drug. I like this drug. I DON't RECOMEND IT TO ANYONE FOR MIGRAINES Don't start this drug unless you really talk it over with your doctor. F 53 1 months
4/11/2006
 4  migraines weight loss, increased uri, stomach irritation, messed up my periods F 32 4 months
4/10/2006
 3  Migraine Prevention Mental confusion, inability to recall facts, can't remember words in the middle of a sentence, mental fogginess, cannot spell anymore!/ carbonated drinks taste nasty, extreme thirst and dry mouth Extremely helpful with migraine prevention, definitely fewer! Can someone email me and let me know if any of of these side effects lessen after awhile? I am currently on 100 mgs...50 mgs in the morning and 50 mgs at night. Thanks1 F 34 60 days
4/6/2006
 5  
4/2/2006
 5  Epilepsy Mood Swings is the only side effect I have experienced. My doctor presribed prozac for that so I have no more swings. Topamax has controlled my seizures completely. I love it. I'm doing great on it. F 21 15 months
4/1/2006
 2  headaches At first all carbonated drinks tasted flat and I felt heavy and weighed down. These initial side effects went away after a month, but my headaches did not. It turned out my headaches weren't migraines afterall so the topammax had no impact on them. I did lose twenty pounds pretty quickly however, which was great, but then I becamme increasingly paranoid until I felt full out crazy and had to stop taking it - in spite of loving the weight loss aspect. A neurologist told me that Topamax can cause severe paranoia in some people. And boy did it ever. Almost ruined my life. I've tried taking small amounts again at times since I gained the weight back, but I become tired, paranoid and worried about stupid things almost immediately, so it just isn't worth it. Which is really saying something, since I'd almost be willing to give up a finger to lose twenty pounds. I guess I'm not willing to give up my mind. For the record - not everyone reacts like I did. My psychiatrist had never heard of anyo F 36 2 years
4/1/2006
 2  Temporal Lobe Epilepsy, Migraine Tingling in hands & feet, decreased libido, acne, fatigue & lethargy, some weight loss I was originally on Tegretol, but wanted to try Topamax for weight loss. While I did lose about 9 lbs. when I first went on it, the continued side effects made me miserable: the tingling in my hands and feet; no sex drive; bad acne on my back, chest, and face; always feeling tired and no energy to do anything. F 38 5 months
3/31/2006
 4  bulimia dizzy,tingling in fingers and toes (only for the first few days when increasing the dose), decreased appetite, head feels very stuffy w/pressure around my eyes, slower thought process,some anxiety and nervousness w/palpatations(which I never had before starting topamax) I started at 25mg, up to 100mg/day. Significant decrease in binging/purging. (mostly because of the decrease in appetite)I have lost 8 lbs. The only side effect that has been bothersome to me is the anxiety & palpatations which I have never had. Most of the side effects occur when you increase the dose, then they go away. Just that "stuffy head" and pressure around my eyes is always there. I am a nurse and I've noticed especially at work, my thought process is slower. I almost always have a delayed reaction to everything. Overall topamax has been the only medicine to help my bulimia. F 24 3 months
3/27/2006
 4  Bipolar/ADHD Stupidity, weight loss taken with amphetamine drug Made me ADD w/o the H 200 mg. day .... 150 okay less stupified... take at night and take 90 mg. of Dexedrine per day no side effects anymore M 1.5 years
3/26/2006
 1  Migrains Topomax worked great for my migraines but it made me stupid. I would look at words that were mispelled and not be able to reason what was wrong. My memory was depleted. I could not form a coherent sentence. I could not remember names, places, etc. -things I had always known. I would misprounce words and not be able to figure out how to say a word. And it only got worse. Rages, memory loss and word re-arrangement. No tolerence to loud noises and bright colors, pitch/tone, significant cognitive impairment: , word finding difficulty, slow comprehension, difficulty concentrating. Eye pain and redness, weight loss, change in taste ,loss of appetite, garbled speech hands curling up and unable to open them, unable to comprehend others, unable to complete thoughts or sentences, sadness, drowsiness, unable to really communicate to people. Severe language disorder. Loss of words although the picture was in my mind. Confussion and loss of organization to the point of routine tasks now com Worse medication I've ever seen. Crying, irritablity, memory loss, vision blurry, suicidal thoughts, irratic driving, I spent the majority of my time alone in my room, either sleeping or staring off into space. Crying spells, angry, then nice. Depressed, new personallity. I am unable to function. I am psychotic I cannot have a conversation with anyone, I can't remember what I have said. I can't think straight. I cannot function physically, suicidal thoughts seemd to get consecutively worse each day. Confusion, paranoia, insomnia, panic attacks, innability to complete the most simple task More words to discribe how I felt. Anxiety attacks, sadness, mental fog, word and name loss, pessimism, anger, suicidal thoughts, eye pressure increased, double vision. I became agitated and beligerent, bruised and sinus infections all the time, agitation, forgot common words and phrases, insomnia, loss of interest in sex and love and other things that used to be important to me. I couldn't stop F 47 1 years
3/25/2006
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 4  migraine prevention Tingling in hands, confusion (temporally), weight loss, don't like coffee nor chocolate anymore, concentration difficulties and still enjoy sex but CAN'T HAVE AN ORGASM ANYMORE with my husband???!!!! After a long search, I have finally got my sex life back to normal without having to quit topamax. I have tryed totally herbal and safe pills called SENSAFEM. You can read all about it on www.senfafem.nl and I bought them via www.drogisterij.net (the only online address where they send them around the world) This pill is for women only cause guys have the blue one... I just want to help women cause I know how frustrating it is to suddenly lose control of your great sex life with your husband. With this pill everything will go back to normal again! PS: I've also tryed SPANISH FLY and it also helps but it is different if you know what I mean... Good luck! Barbara. F 30 5 months
3/24/2006
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