TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  migraines Nausea,weight loss, major confusion, memory loss,difficulty concentrating,tingling and numbness in feet and legs, dizziness, fatigue, Irritable, panic. I am satisfied w/ the 25 lb. weight loss in 5 months, well actually now I am starting to lose too much weight. It did take my migraines away. But I started school shortly after taking topamax and I was never one to stuggle in school. The simplest tasks are so difficult I feel ridiculously STUPID, my skills have declined not only in my studies but at work. I have been in denial about the medication making me this way I blamed it on stress. I took my last dose today and I am done!! I walk around like a freakin' zombie, I hope I can get my mind back to where it was. I hope it has not destroyed my brain forever. F 25 6 months
5/18/2005
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 4  migraines and depression Lethargicness at first, it will go away/ tingling in hands, feet, and face It helps my bipolar, and migraines. Just DON'T mix it with Lithium. My doctor's did it, and I had Lithium toxcity, and renal failure, and I almost died. F 25 3 years
5/16/2005
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 1  Migraine prevention MY BIGGEST WARNING IS BE CAREFUL DRIVING AT NIGHT UNTIL YOU KNOW HOW THIS DRUG WILL AFFECT YOU! I experienced very weird visual disturbances at night, not being able to re-focus after looking directly at a bright light. It was like a laser show. Would have been cool, had I not been behind the wheel! Focusing your attention farther down the road & straight ahead helps. Everyone is right that many foods taste differently. Sodas are awful. I also experienced the tingling in my hands, feet & mouth. There was so much more, though. I drank a gallon of water a day, but my mouth always felt like fuzz and I was still constipated. I experienced debilitating weakness & fatigue, yet couldn't sleep at all. I developed a wracking cough, shortness of breath, and back pain reminiscient of the time I had pneumonia, but my lungs were totally clear. My doctor was so determined to keep me on this medicine to help my migraines that she prescribed me 3 other medications to treat the symptoms caused by the Topamax! Ironically, the Topamax also gave me low-grade headaches similar to the kind you would get with a cold, so I didn't avoid the headaches altogether. My dosage was very low, only 50 mg. I have asked my doctor to reduce my dosage to 25 mg. & have been on that for a week. My side effects have lessened, but not gone. I'm not sure I will continue past another week. I think I have reached my limit. F 36 3 weeks
5/16/2005
 5  MIGRAINES, DEPRESSION, OVERWIEGHT NUMBNESS AND TINGLING IN HANDS,FEET AND FACE. SWEETS AND SOFT DRINKS DIDN'T TASTE RIGHT FOR A WHILE(this will go away). LEG CRAMPS. SLEEPINESS. WIEGHT LOSS. MOST ALL SIDE EFFECTS GO AWAY ONCE YOUR DOSAGE GETS LEVELED OUT AND IS WELL WORTH IT! TOPAMAX SAVED MY LIFE! I HARDLY GET ANYMORE MIGRAINES AND THE DEPRESSION IS GONE. I'VE LOST A TOTAL OF 80 POUNDS IN 5 YEARS OF BEING ON IT. THE SIDE EFFECTS ARE MINIMAL AND WELL WORTH THE OUTCOME. F 36 5 years
5/13/2005
 3  migraines foggy-head, quivering lips (has ANYONE else had this?), weird taste in mouth (especially w/ carbonation like everyone else), cognitive/memory confusion, crying easily 25 mg. am. + pm. Didn't read up on side effects until today, in order not to anticipate them, and am stunned at similarities with what I'm experiencing re fuzzy headednss, and general low mood. Left the stove on twice yesterday. Sat and waited at a green light today. Crying at sappy commercials....going to give it a couple of more weeks to see what happens. Headaches took a while to subside, but finally have. F 47 3 weeks
5/11/2005
 2  Migraines, chronic daily headaches Tingling in extremities, significant weight loss (down from 140 to 115 lbs) due to chronic diarrhea -- extensive GI testing has ruled out most other causes, some hair loss, lack of mental clarity (spelling, name recognition, word recall, etc.), problems regulating body temperature The weight loss sounded OK at first until I realized how much I would be losing and that I'd be losing that weight on the toilet (sorry to be graphic, but you should know what you're in for...). The package insert says people lose 7% of their body weight on average, which would have been fine, but now I look absolutely sickly and my friends and colleagues will not stop coming up to me to share their F 31 10 months
5/7/2005
 1  mood stabilizer, binge eating decreased hand strength & hands burning, mood swings, crying, impulsive & suicidal thoughts discontinuing - also on wellbutrin and seroquel, this is only new element and was relatively stable previously. had aggression which was partially why this was introduced. suicidal thoughts seem to get consecutively worse each day. have had two attempts before and i feel myself fighting myself - but it is if something is pushing, and I completely believe it has to do with this medication. it is really terrifying. F 31 6 weeks
5/6/2005
 3  trigeminal neuralgia and depression severe freezing episodes - chills; severe depression helped me lose weight and did affect the taste of what I ate and drank F 47 8 months
5/5/2005
 3  migraine Tingleing of hands and feet. Severe in the feet in the beginning. Subsided when I cut back to 75 mg per day (at night). ALL/98% of my mental confusion, which was severe even at low doses, subsided when a friend of mine suggested I try taking the bid dosage at night. Topamax always had a sedatative effect so sleeping was improved and thus my mental function was better. It had a positive effect on my mood. Sodas were flat for about 2-3 months, with some tongue numbness, which has subsided. My deliterious effects subsided - however hair loss became one - when I took my 75-100mg at night instead of 50mg bid. I couldn't function. HAVING SAID THAT. After being on Topamax for almost 2 years my migraines have returned. It could be stress or related to hormones. There were days I praised the drug, but I'm not sure if it stays effective without dosage increases. And I WILL NOT consider losing more hair - however, there are days I'd lick the sweat off the back of a bull's butt if it would just stop the pain. F 44 2 years
5/4/2005
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 4  Partial seizures, migraines Extreme tingling, numbness in nose, lips, hands, feet during first month's titration to 100 mg/day. for one hour after taking dose. Carb beverages flat for first 4 months. Sl. improved but miss the taste of a really good Belgian ale on occasion :-( Libido non-existent. Lost 15 lbs. My doc went too fast (would have had me up to 100 mg/day by end of a week!!!)she is an idiot--I spent a week in bed from sleepiness/lethargy then a drug rep friend, thank goodness(from Ortho) told me go slower (25 mg/wk) and that was the answer. Migraines and seizures have improved. Increasing dose to prevent occ breakthrough migraines (doc suggested it) made me so agitated and irritable I couldn't sleep or stop moving while awake. Now I just take Axert for occ h/a. Still on 100 mg/day Top. Cognitive slowing, some trouble with word-finding, memory but don't see a way around it. Too many other drugs have same or worse effects. F 48 5 months
5/3/2005
 5  peripheral neuropathy mental confusion, spelling errors, etc. weight loss. I had migraines but didn't know topamax would take care of that. They're gone! And most of my side effects are too except I still struggle at times with F 50 7 years
5/1/2005
 4  migraines ringing in ears, weight loss even though I am already thin, very strong tingling in extremities(hands and feet) to the point of painful, sinusitis- my sinuses flow heavy all the time now, soft drinks and some other foods do taste awful I started on 25 mg twice a day and worked up to 100 mg twice a day to control a migraine problem of 3-4 per week on average, but now have about 1 a week which is good. Topamax does work, but after 5 months none of my bad side effects have lessened so I am not really too happy overall about this drug. I gave a 4 rating because it works not because I want to keep using it. M 44 5 months
4/30/2005
 3  Migraines, vestibular &/or Meniere' tingling/numbness in fingertips, Have had migraines for years. Recently had sudden symptoms of either Meniere's or vestibular migraines. Doctor prescribed Topomax as result. Working up to dosage of 100 MG. I am extremely grateful to have found this site, because all my symptoms are described here! F 51 16 days
4/26/2005
 3  Hypo-mania, binge eating While spinning up on Topamax (2nd day) and spinning down on Trileptal I experienced vertigo, significant cognitive blocks, and panic. This occurred for 15-30 minutes and then subsided. I had a few headaches already (possible dehydration?). High glycemic carb cravings dropped slightly. My bank account seems to have money in it. No impact on sex drive. While I am thrilled about the prospect of losing weight, I am more excited about the prospect of living life without hypo-mania: No more excessive spending. No more pushing down thoughts of screwing every attractive girl. No more hyperactivity and embarrassing myself because of it. No more feeling like I have a million projects to do and none are getting done. M 35 4 days
4/25/2005
 3  seizure's an eating disorders weight loss, deppression and i've been on my menstrul now sence the 14th of this month this is whats really beginging to worry me I wanna have children in the posibable future is doing any damage to me. This drug has helped with my seizures thow an isn't as hard on the body as the one I took as a kid. F 32 6 months
4/23/2005
 3  migraine prevention loose stools; signifcant loss of appetite; itchy body; tingling hands and feet, sometimes face; drowsiness. I started off with 25mg...my reguarl dosage will be 100mg..I'm now at 50mg and I must say the side effects are of some concern to me, but I much rather have them for now than to endure the pain of migraines...I cringe at the thought of what happens at 75 and 100 mg though!! F 34 2.9 weeks
4/23/2005
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 4  chronic headaches rapid heart rate, tingling tongue when eating, fatigue, depression early on (possibly due to transition from neurontin), mild weight loss It has reduced occurrence of headaches. So far I haven't noticed any pronounced trouble with concentration and memory. F 32 3 weeks
4/22/2005
 5  PTSD due to multiple tasing Tingling in limbs, face. Soda and certain food tastes funny. Weight loss. Topamax has been great for me. I was shocked five times in less than a minute with a 50,000-volt Taser by a power-hungry, abusive deputy who did not want me calling his sargeant/dispatch for help. I was traumatized severely by this and the events that followed, and was unable to cope. My psychiatrist put me on Neurontin, which made me gain weight and did nothing to help. Then he tried Topamax. For the first time in months, I could wash my dishes; I could complete a thought; I could finally watch TV; I could listen to someone talk and really hear what they were saying, even though I may not remember it later. And even better than that, I finally felt it was okay to not have to constantly be doing something with my hands, i.e., needlepoint that I inevitably messed up, or a straight stitch of yarn, or just wringing them, anything to be moving them. I remember telling my doctor that I loved the Topamax because it slowed my brain down to a pace where my thoughts were not racing back and forth. I stopped F 35 1 years
4/21/2005
 2  Rebound headaches Severe memory loss, weight loss, acne, hair loss, loss of vocabulary, tingling in hands and feet, moodiness, depression, lack of energy. It took 3 mo's to become 'tolerable' to side effects. Four mo's into topamax, I tried an antidepressant to control my depression but the two combined side effects, I couldn't get out of bed I was so darned tired. 7 mo's later, I'm taking less aspirin, but still 1-3 tabs a day. I used to get 1 or 2 actual migrains a year, now I've gotten 5 in the past 4 months. My hair is so thin, my face broken out like a teenagers and 2 wks ago I took my wedding ring off and put it somewhere but don't remember where - I feel like crap so I'm done with this drug. Good luck to all of you. F 38 7 months
4/21/2005
 5  migrane/vertigo bleeding and drowsiness for the first week I feel GREAT, I wasn't sure at first about the drowsiness because I am a single mother and working and going to school full time really concerned me but after the first week it's gone and I have never felt better. No more headaches and no more dizzy spells that I was getting real bad and this drug seems to my a miracle drug and my Dr. started me on 25mg and we have had to only up the dosage to 50mg so far, I have only been on 3 weeks as of now and loving it, I just can not express how great and back normal I feel. F 33 3 weeks
4/18/2005

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