TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
1 | migraines | vision loss, sleeplessness, metallic taste in mouth, made sodas taste very strange, edgy | After 1 week on lowest dose of 25mg per day my vision went from 20/20 to 20/200. It was probably worse on the second day I lost my vision as everything was blurred. I could not even read an eye chart in the ER and was given a shot of morphine and a CT scan. After 4 more days vision is returning but will follow up with eye doctor to ensure no perm damage. | F | 36 | 1 weeks | 6/25/2008 | 2 | seizures | loss of taste,severe tremors in right hand.forgotwords | made me so high at times like visiting alice when she was 10 ft tall.also severe insomnia,right hand would shake so bad i couldn't hold on to anything.i knickname this drug dopemax | M | 55 | 3 months | 6/23/2008 | 4 | partial seizures | a little sleepiness in first few weeks but went away | I have a brain tumour which was the cause of seizures and was put on steroids to reduce swelling in brain which caused huge weight gain. Tegretol & Dilantin were unsuccessful then my neurologist put me on TOPAMAX and within a few days I noticed settling in my symptoms also my moods had stabilised which was another affect of where my tumour is and the best thing - in 10 days I had lost 14KGs of weight!!! | F | 38 | 2 days | 6/21/2008 | 3 | complex migraines | Severe muscle pain, kidney stones, weight loss, mood swings, taste change. | Topamax does work for preventing migraines as long as you can handle the side effects. I have been tested for every kind of joint, muscle, nerve, bone and connective tissue disease and they all have been normal. (thank god) As soon as I stopped taking topamax within 2 days my pain was greatly reduced. Hopefully tomorrow will be even better. As for the kidney stones, I have had two in three years. They are extremely painful! Worst then giving birth. Tomorrow will be my third day without topamax and I'm happier with no mood swings and if a migrain returns my doctor and I are going to go down a different route. Good Luck. | F | 36 | 3 days | 6/20/2008 | 4 | migraines | Severe hair loss tingling in feet and toes | I started on a low dose of topamax, in March my MD increased my doseage and that is when I began experiencing SEVERE hair loss. I stopped the medication. I recently saw a dermatologist and he said it would take 6 months (due to metabolic reasons and the hair growth cycle) for my hair to start growing again. This is devistating since my hair is waist length. He did say women's rogaine would help. | F | 35 | 5 days | 6/19/2008 | 4 | hemiplegic migraine | tingling in fingers, face, feet; soda tastes flat; short-term memory issues; word/name-finding issues; loss of appetite; weight loss | even with all the side effects, i'm a believer. i've been on it about three months, and i've had no headaches. before, i had horrible one-sided migraine with aura and nausea--they often put me in the ER to get on narcotic pain meds and fluids. the side effects faded dramatically after the first month, although my appetite is still very much diminished. i also now go about 40-50 days between periods, but that is probably because of the weight loss (i now only weight 115 and am 5'6"--was 125 before). | F | 27 | 90 days | 6/9/2008 | 4 | severe migraines and TN | tingling of hands and feet first few weeks...some hair falling out as dosage exceeded 200 mg. (I am now on 400 mg) Problems spelling, short term memory loss (bad!) I sometimes forget my address and city, phone number but it passes. Speech is sometimes slurred..I lose my words. Despite this I am relieved of what was very extreme pain and suffering My migraines are greatly reduced..My trigiminal neuralgia is turned down from a 10 to 1-4. I am SO thankful. Topomax is not perfect but it is better than a life of hell. I was unable to eat due to the pain I was in and was losing weight so either way I am having to watch the weight loss...I try remind myself to eat. At least eating does not cause mortal pain. I do have EXTREME fatigue and get sleepy everytime I get still..I can fall asleep anytime I am sitting and I hate that. I try to keep moving..because I am so brain dead and tired I am unable to work but I am SO THANKFUL to be out of pain I just APPRECIATE this medication...I appre | After so many years of suffering...despite some side effects I am just very THANKFUL...the side effects are a small price to pay for the pain relief...THANK YOU! | F | 51 | 2 years | 6/7/2008 | 5 | migraines | The main side effect I have experienced so far is the tingling in my fingers and in the heels of my feet, mostly in the mornings. The taste of soda has changed a great deal and I have lost a lot of my appetite. I do think that I have had some more trouble concentrating and have had some memory loss however I'm not sure if it's been a tremendous amount or not. I've also experienced the word recall problem but again, I suffered from that issue prior to the medication so I can't attribute this entirely to the Topamax. | Overall I am very pleased with this medication. I have suffered from migraines for many years now without much success from preventative medications. I am still getting migraines occasionally however am only on 100 mg a day and have been on it for less than 2 months so I may need to have my dosage increased. | F | 31 | 35 days | 6/3/2008 | 5 | Cluster Migraines, Complex Migraine | Extreme tingling in fingers and toes, soda and beer tasted flat but not for too long, fatigue, forgetting words, names, short memory, twitching of right eye 24/7 | This is my miracle drug! After suffering for about 19 yrs. with debilitating cluster migraines which lasted for weeks at a time, and trying almost every drug that was prescribable during these years, also suffering horrible side effects, Topamax is the only drug that really took my headaches away. The side effects that I suffer almost daily are nothing compared to the pain of the migraines that I had. I started with 25mg twice a day and moved up to 50mg twice a day. When I start to feel really fatigued, get blurred vision or have the memory loss, I just stop for a day or two and I'm fine. But you'd better bet that I go right back on my Topamax! Once I went out of town and left my prescription at home, so I missed my pills for about 5 days, and my migraines came back in full force. I had to take Prednisone for a few weeks, and Relpax with Naproxen for a couple days until the Topamax got into my system again. I felt like crap! I do not miss my doses unless my sides effects get too heavy. | F | 43 | 1 years | 5/31/2008 | 4 | Bipolar NOS | Short-term memory loss, weight loss, feeling very stupid, disorientation sometimes, flat emotions, difficulty finding words, lethargy, moving slowly, feeling of drifting or being in a fog (can be pleasant, but not if you have to work), not as alert when driving, often feeling detached/in my own world. | Topamax has really helped with my manic issues (extreme irritability). It's helped me maintain stability through some very rough times, where previously I would have been a complete mess. I've taken it at a very low dose because I'm really sensitive to medications. However, over time I've realized just how dopey I've been and that I need to reduce my dosage or stop taking the drug altogether in order to not be walking around like a zombie. | F | 42 | 21 months | 5/29/2008 | 5 | Migraines | brief memory lapses, tingling in lips, hands, feet, no desire to eat, all went away within 4 weeks of continuing medication. | Its important to start slow and at a low doseage. Never start higher then 25mg. The side effects will be horrible. After taking it for a month the side effects should begin to taper off. But you've got deal with some of the side effects until your body gets adjusted to them. Some will some won't. You don't know until you try it. After 4 weeks the side effects went away for me, the only thing that didn't go away was that I still don't eat much. Good Luck! | F | 31 | 1 years | 5/25/2008 | 2 | Migranes | Mental fog, slow thought process, severly numb feet so numb it hurt. Numbness and tingling in hands for no reason. | This medication was incredebly expensive, $200 for 30 50mg pills. | F | 22 | 2 months | 5/25/2008 | 5 | Daily Persistant Migraine | Some Hair Loss, Eye Fatigue, Mild lip Tinging | I have suffered migraines for more than 20 years, and most abortives and preventives made me feel drunk, gave me heart palpitations, made my limbs shake and shreded my stomach and bowel linings. For the last 10 years I have felt tired, lost for words, confused and depressed, and when my migraines started coming daily 6 months ago I felt like my life wasn't worth living. I have been on Topamax for 3 weeks. It has changed my life. The pain is gone. I feel like I am back again, after many years. Look for the right drug for you! This one has saved me. | F | 39 | 20 days | 5/24/2008 | 3 | bipolar II | numbness, tingling in feet, decrease in appetite, but I'm not sure if that is going away | F | 22 | 7 days | 5/24/2008 | 4 | Migraines | Tingling, taste changes | F | 31 | 32 days | 5/23/2008 | 4 | migraine | tingly hands and feet (but this went away if I drank more water) soda tastes strange (after first 30 days it becomes less noticible though). I do not think about food like I used to (am not hungry all the time. My mood seems more stable (even though I am not taking topamax to control my moods). Effects of alcohol are definatly amplified by this drug, be careful if you drink while taking topamax. | My migraines are related to my menstral cycle. Since I have started taking Topamax the intensity of my migraines has decreased significantly. The frequency has not yet, but I have read this may take a few months. I am currently taking 50 per day. I also take Maxalt MLT 10mg to treat my migraines. I feel better now on Topamax than I have felt in a very long time. | F | 29 | 50 days | 5/21/2008 | 1 | migraine | Continuous headache. Occasional sickness. Tingling in feet and hands. Confusion. Pressure behind my eyes | I have been told to contine taking this medication for another 12 weeks and should see positive effects, I truly hope so,I am now taking 75mg soon to be increased to 100mg. So far no positive results only more migraines which my regular medication does not work for.Really depressed | F | 47 | 6 weeks | 5/21/2008 | 4 | BPD | Complete and total weight loss!100 lbs. Brain laps occainionally, like words will be missing from sentences. or sensless confusion. Forgetting things I learned in highschool--such as spelling.Massive hairloss-100-200 strands a day. I can eat any thing I want to but in the morning I wake up and I'm back to my 95 lbs. frame I was the morning before. | The scary thing is you never stop losing weight with this drug. Recently I've had to move from 200mgs. a day to 200mgs. every 3-5 days to avoid getting to thin at 5'1. I would only recomend it to certain candiates. | F | 26 | 2 years | 5/20/2008 | 2 | Neck issues, Left arm spasms | Memory loss, severe mood swings, crying, tingling in feet... | I have been trying to quit drinking soda pop for about 20 years--it did make me quit that--so that was good...but I voted for neck surgery then to be on this med for one more week...good luck to everyone that HAS to take it, I wish you well. | F | 36 | 10 days | 5/12/2008 | 3 | Migraines | You know, today is only the second day I have taken it and I took a two day break before the second pill. My doctor prescribed my first dose at 100 mg and I thought I was going to end up in the hospital. I had no idea what was happening to me. My face was numb, I didnt know where i was, I ended up leaving work for a brief time and driving to the store and not even knowing it. I was really scared. So I took a break for the weekend and doctor told me to take only 50mg. Not so bad today. Still confused a little, numb and tingly in my face. Soda taste really really bad. I know it is still a little too early to submit a rating but find it interesting how I am feeling alot of what everyone else is. | F | 34 | 2 days | 5/6/2008 |