TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  migraine induced vertigo dry mouth, daily headaches!! weight gain, tingling across back and in feet, confusion,at a loss for words, hot flashes, fatigue, all around feeling of unpleasantness I was given this drug to help my constant vertigo, but have been given more problems to go along with the original ones. Not only is there still the vertigo, but I had not had a headache for over a year, and I now have one constantly. F 58 45 days
2/28/2008
 4  severe migraines I was in a bit of a "confused state of mind" the first month while aclimating to the meds but that went away when my body adjusted to the medication. Also had tingling in my feet. Had some weight loss but that didn't happen right away. This has been a wonderful drug for me. I was experienced 10-15 migraines/month...at my worse 20. Now there are times when I have none. I also have been recently diagnosed with lupus so I'm sure the migraines are part of that disease but the migraines need to be treated separately. F 44 2 years
2/26/2008
 2  Mood Stablizer / Weight Control Severe near-sightedness, incontinence, tingly-ness, loss for words, soda tasted flat. I felt blind for the last 3 months and had 2 massive bathroom accidents after going to the max dose (200mg) - minor ones at smaller doses. Those two made me stop taking it. Milder effects: tingling in various body parts, felt dumb at times, Diet Dr. Pepper tasted flat. Didn't get the weight loss as most people did. F 32 4 months
2/26/2008
 5  Migraine Dry mouth, acne on body, some acne on face, tingling hands, dizziness, forgetfulness, confussion, memory loss, no taste for soda (which has been a good thing, because I was a huge soda drinker, and I am now 4 weeks off the soda and drinking more water and feeling great!)weight loss (which my doctor prescribed a small doseage of amatriptaline to counteract this side effect because I only weigh 105)and diarhea I LOVE THIS DRUG! The benefits far out weight the side effects. I suffered from severe migraine headaches and if you truly suffered from these headaches, almost ANYTHING is better than the headache! I was on Topamax once before and it was causing me to lose too much weight so a former doctor took me off of it and put me on another prevenative. Within a week I was having my headaches again. (I was 6 months w/o one (amount of time I was on it before)) I begged to be put back on it. I went to a new doctor and he agreed to put me back on Topamax and gave me Amatriptaline in a small doseage to counteract the weight loss side effect. I have been back on Topamax for 2 months now at 100 mg a day and feel great! I will deal with the side effects if I can be migraine free. F 30 2 months
2/22/2008
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 4  migraines Tingling/loss of sensation in all extremities including toes and nose. Inability to recall words. Weight loss (10 pounds at one point) Topamax was wonderful for my migraines, but the side effects went from amusing to irritating to downright annoying over the course of 4 years. I'm taking a beta-blocker now but I may need to return to Topomax or something similar. F 29 4 years
2/21/2008
 5  migrianes tingling in fingers but very bad in right foot. weight loss, about 20 pounds in first month and 1/2. appetitie supressent. i take 50gm at bedtime. i put up with the tingling in my feet and hands because the weight loss has been great for me. it has given me the boost i needed to change my diet and exercise habits which i now will also help my migrianes in the long run. only one migraine since on topamax and it is because i had to commute an hour to a meeting with no breakfast, a huge trigger for me. all in all i say try it, if it works great. if it doesnt, you try something else. F 23 2 months
2/19/2008
 4  Migraines Feeling stupid and unable to contribute to conversations as I was accustomed. I prided myself on picking the best word to use in a conversation, and all of a sudden I had no words, or even thoughts. Could not play my percussion instruments in the community band. I was fearful of driving, too. I did like the weight loss. Began a fast titration where, within 2 weeks, progressed from 25 mg day to 200 mg day. My family noticed a remarkable personality change, and I decided that the ongoining headaches that I had been experiencing for the past 40 years (I am 65) could continue. Doc suggested I start again at a slower rate; within a 6 month period I worked into 100 mg/day. Unless I experience trauma via surgery, or uncontrollable triggers, I am headache free most of the time. It's great. F 65 13 months
2/18/2008
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 4  seizures confusion, extreme eye twitching, tingling finger tips, low consentration,20 lbs loss in 1 month, lots of energy, better sleep,loss of taste of some foods and drinks the side effects are tolerable if you don't sercomb to them-- try yoga, and working out lightly, it works for me. I'm more relaxed. I was diagnosit with bipolor 10 years ago(prozac 150 2x day).I have been having slight seizures for years and never Knew it, until I almost lost my life with a full blown seizure 2 months ago. I can deal with the side effects, what I can't deal with is leavinG my 8 &6 year olds without a mom. deal with it! This to shall pass. F 40 2 months
2/13/2008
 2  Migranes Weight loss, tingly fingers and legs (esp when crossed), gave me KIDNEY STONES! Not good. The prescription helped but it wasn’t worth it. Made me lose 20lbs when I was already 130lbs at 5'5 (never felt hungry which i miss... because ive gained it all back), very tingly and it ended up giving me kidney stones!!! I've been off the prescription for a year and 2 months and I am still getting them. Be careful and ask your neurologist about this. F 20 10 months
2/13/2008
 1  Migraine headaches Hair loss (bad), tingling in fingertips, diarrhea, weight loss, fuzzy thinking. Even though I took 100 mg Topamax for 21 months, it didn't lessen the number of migraines I got. I finally gave up hoping it would work and gradually went off it. Funny thing - 8 months after being off Topamax, diet coke tastes wonderful! I didn't notice it tasting bad before (maybe it happened gradually). F 56 21 months
2/12/2008
 5  Migraine Occasional tingling of the hands and feet. Aphasia, and some mind numbing effects. On the initial taking of the drug, I had experienced bad stomach problems. ED. Originally started off with 100mgs, and got really sick. My doctor restarted me back to 25mgs for a week, then built me up to 200mgs a night for migraines. This stuff works great for me. Has cut them down by 80%. He upped me to 250mgs, taking 50mgs in the morning, but it was giving me problems trying to concentrate at work, so he told me to add it to my night routine. I have been taking it now for close to 3 years, and I still experience the tingling hands and feet every now and then. The aphasia happens like that as well. It does impact my concentration when I try moving from one thing to another, like working on the computer to answering the phone. M 43 3 years
2/11/2008
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 4  migraines loss of words, trouble communicating, increased appetite (welcome for me), tingling in hands and feet Did help with migraines, but the word retrieval issues were too much for me. I might try again if beta-blockers don't work. Side-effects are better than debilitating migraines; worth a try. F 44 2 months
2/7/2008
 1  Chronic Migrane Metallic taste, confusion, facial numbness, tingling in hands and feet, anxiety attacks, major memory loss, slured speech. I took this while I was pregnant for chronic migranes. My Neuro actually had me on 200mg a day and I was turned into a ZOMBIE! I hate his medicine! It cause me to have an anxiety attack at the top of the St. Louis Arch. To make this worse I was still getting massive break through pain and poping codine like tictacs. I was so glad when my new Neuro stepped me off this and replaced it with Amityptyline (Elavil) for maintance and Imitrex Injectable for break through relief. F 27 2 years
2/7/2008
 2  epilepsy weight loss F 63 5 years
2/3/2008
 3  MIGRAINES memory loss, word retrieval problems, occasional tingling in hands/feet, loss of appetite, HAIR LOSS, ACNE on face/back, HELPED WITH DEPRESSION Topamax worked very well on decreasing my frequent migraines. No complaints about the loss of appetite or help with depression. Some of the side effects, however, were intolerable. I developed ACNE on my face and back about two months after starting Topamax. I stopped taking it when I developed severe HAIR LOSS (Hair was coming out by the handful!) After blood tests revealed everything "normal", my doctor agreed with me that it must be the Topamax. I have been off of Topamax for 2 months and the HAIR LOSS and ACNE have decreased almost entirely. F 37 10 months
1/30/2008
 2  migrainous vertigo Pins and needles, dry mouth, sore tongue, constant nausea, dizzy spells, minor headaches, tearfulness, severe depression Did not agree with me sadly. Started on 25mg for a week then up to 2 x 25mg for 2 weeks. After the first 2-3 days I began to feel quite down/sad/crying with a lot of day time and night nausea. Over the next 10 days I began to feel far worse - hopelessness, remoteness, complete fatigue, flu-like feelings. Developed a MASSIVE tongue ulcer with sore, dry mouth and gums despite drinking gallons of water. Upset stomach, foggy head. And suddenly plummeted into acute depression. Doctor recommended I wean off as he had never seem me so ill. Took a week to come off it and three weeks later still have dry mouth, poor sleep, upset stomach and now need dental treatment for gum problems caused, dentist thinks, by the medication. A very frighteining experience..particularly the black dog of depression. F 47 3 weeks
1/29/2008
 5  Severe Migraine Aura (No Pain) I've had some increased anxiety and slight tingling in my head. Not many problems at all. I had daily migraine auras (silent migraines) for about 10 years. They got so severe they were debilitating. After 3 days on Topamax the migraines went away. With Topamax, I could feel the pre-aura come but would end abruptly and the aura would never develop. This is the first and only drug that ever worked on my auras. My aura blindness went away, I'm losing a little weight, no more attacks and I have some increased energy. With my increased energy comes a little anxiety though. So far I'm happy. M 44 1 weeks
1/28/2008
 5  mood disorder migraine slowed thinking, tingling, thirsty, weight loss. I was on Topamax for a year and a half before. I lost almost 40 pounds and was able to be myself. I was not bogged down by the misery of my mood disorder. I have gotten back on Topamax after alomst a year of not being on it, and it's amazing to me to see the differenc it makes in my life. I am willing to live with the few annoyances so that I can enjoy a fulfilling life. F 28 2 weeks
1/28/2008
 2  migraines numbness and tingling go away after a few weeks. decrease in thought process, bad stomach aches. did relieve back pain, restless legs.just felt numb. I couldnt think staight, spell, had to use directions to drive to numerous places I had been to before, increased anxiety, bad moods swings. made me feel as i was in a fog.took me several times to read something in order to process it. not worth it!!! F 37 6 months
1/28/2008
 1  Migrains due to head injury Extreme loss of short term memory(forgot where I was), confusion, panic attacks (once a day), depression, paranoid No weight loss, didn't get rid of my headaches, I actually forgot when my period was, I was walking home from class about two blocks when I forgot what day it was and where I was going. No one warned me about the side effects so I thought that my head injury was causing them, I thought I was going crazy. It cleared up within a week of slimming down my medicine. I will never take it again. I take Gabapentin now, and no head aches. F 21 1 months
1/25/2008

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