TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Headaches, seizures Severe weight loss, tingling in hands and feet, memory loss, unable to find words, mood swings Although most of my side effects don't sound so great, things have improved. I have stopped having seizures, which were scaring the pants off my child, headaches are almost completely gone, the tingling in my feet and hands subsided after about a month, and mood swings are also a thing of the past...all these things go away once the medication is regulated. I still have problems gaining weight and with memory. I'm debating on whether or not I should speak to my neurologist about lowering my dosage...but when I have my appointment, I forget to bring these things up...ha ha, little head-humor there :o) F 33 10 months
11/14/2005
 4  Frequent Migraines short term memory loss, trouble saying what I am thinking at times, loss of appetite, light headed I am highly allergic to Imetrix and the recent removal of an adrenal gland triggered migrains that would last up to four days. I can honestly say that I have found relief due to the Topamax. I do not know how safe it is to stay on this drug as a preventative therapy, but I honestly don't want to stop taking it. I can't take another migraine. I just pray it doesn't go the way of Vioxx. F 47 2 weeks
11/11/2005
 5  chronic daily headaches, migraines tingling in toes and fingers. stomach pain. Small decrease in appetite.feeling spacey. I was getting really bad migraines 3 times a week, and daily headaches that were lasting up to 18 hours a day. Topamax is awesome. I've been drinking tons of water, I don't want to get a kidney stone! Pop tastes fine.Im taking 25mg for 4 days, then increasing evry 4 days till I reach a max of 100 mg.So far though all is well. I'd deal with almost any side effect not to have those nasty migraines!!! F 26 7 days
11/10/2005
 2  severe headaches I developed continuous severe headaches after a complicated neck surgery. After two years of trying every remedy with no relieve, the neurologist started me on 25mg of topamax and gradually increasing it to 75mg. On 50mg, I experienced daily diarrhea, word finding difficulties, fatique, concentration problems but it did hold off the headaches until late afternoon. So after two months the neurologist had me take 25 mg in AM and 50 mg in PM. After two weeks on this dosage, my right arm, hand, shoulder became increasing painful and numb. Soon I had developed a frozen shoulder because the nerves in my arm and finger were paralyzed. After two months, on this dosage I could not move my right arm and fingers, my right side of my head was numb, and my shoulder was frozen. I could not write or sleep the pain was so excruciating. I was clear of headaches but the right side of my upper body was paralyzed. I had a myelogram because my doctor thought I had another herniated disc, but that was not the case. Neurologists at Mayo Clinic examined me and concluded that my right arm, hands and right side of head had severe nerve damage and a frozen shoulder. I suspicious of the Topamax and mentioned this but neurologists had never heard of this happening with this drug. On my own, I gradually took myself off of this medication and my arm, shoulder and head are almost pain free. My headaches have not returned yet so I can only hope the Topamax did stop them permanently. I would be very cautious of this medication and try not to take it for the long term. Know the side effects and recognize any problems in your system. F 56 6 months
11/10/2005
 2  severe headaches I developed continuous severe headaches after a complicated neck surgery. After two years of trying every remedy with no relieve, the neurologist started me on 25mg of topamax and gradually increasing it to 75mg. On 50mg, I experienced daily diarrhea, word finding difficulties, fatique, concentration problems but it did hold off the headaches until late afternoon. So after two months the neurologist had me take 25 mg in AM and 50 mg in PM. After two weeks on this dosage, my right arm, hand, shoulder became increasing painful and numb. Soon I had developed a frozen shoulder because the nerves in my arm and finger were paralyzed. After two months, on this dosage I could not move my right arm and fingers, my right side of my head was numb, and my shoulder was frozen. I could not write or sleep the pain was so excruciating. I was clear of headaches but the right side of my upper body was paralyzed. I had a myleogram because my doctor thought for sure I had another herniated disc in My headaches have not returned yet so I can only hope the Topamax did stop them permanently. I would be very cautious of this medication and try not to take it for the long term. Know the side effects and recognize any problems in your system. F 56 6 months
11/10/2005
 3  Bi-polar, weight gain extreme tiredness, and weakness in muscles. I am hoping to lose weight on topomax because I have gained 70 lbs in 3 years and now have diabetes type 2. I am hoping to find out how long it took people to lose the weight, and how long it took to feel less tired. I have been on every kind of anti depressant available, and recently quit taking everything because of the weight gain and the diabetes. I am really disgusted. F 41 3 days
11/8/2005
 4  Migraines, constant headache Weight loss; tingling in face, hands, and feet; severe reaction with alcohol I've only been taking taking Topamax for 2 months and am in the process of increasing my dose to 150mg/day. My migraines were up to 4 times/week at their worst, and I've had a constant headache for 6 months. I've tried a lot of different medications, and have settled on Amerge for acute migraines, and Topamax and Percocet daily. I went on a migraine elimination diet and found about 6 food triggers. Taking Topamax and avoiding trigger foods have brought my migraines down to about 1/week. Topamax has also cut my Percocet use in half. I'm hoping that increasing the dose will help even more. If I don't take any painkillers, my daily headache becomes a migraine. FYI-I've heard about rebound headaches, but I had daily headaches before I took something for them every day. F 29 2 months
11/6/2005
 3  migraines tingling in hands and toes, loss of appetite, things taste weird, thirsty all the time, breathing problems, sleepiness, constant fatigue, garbled speech, confused at times, loss of memory, very moody, helped my migraines, made me lose 18 lbs, still working on adjusting the dosage b/c obviously haven't found the right dosage, too many side effects! F 21 5 months
11/5/2005
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 5  Migraines toes tingling(sometimes painful), slight weight loss, fatigue at first I used to get about 1 migraine a week, now I am almost migraine free. Topamax helped a great deal and the only annoying side effect is the tingling in the toes. Sometimes it does hurt but it goes away after a little bit. I had slight weight loss, but I gained most of the weight i lost back after I got my appetite back. Topamax works better than any other medicine I've tried for migraines, which is a lot. F 19 1 years
11/3/2005
 4  migraines I have a hard time focusing sometimes, and my fingers tingle. I just heard an increase of vitamin C will help this so I will try this. I'm most concerned with my hip pain. I know this is not a listed side effect, but it started happening after I began taking Topamax. It has given me a quality of life back. I can function again. F 37 2 years
11/2/2005
 2  migraines tingling fingers at first, sleep well, forgetfulness, inablity to complete a sentence, Topomax worked great for my migraines but it made me stupid. I would look at words that were mispelled and not be able to reason what was wrong. My memory was depleted. I could not form a coherent sentence. I could not remember names, places, etc. -things I had always known. I would misprounce words and not be able to figure out how to say a word. It rather scared me until I discovered it was the medicine. I am a teacher and it was becoming a huge problem for me. I was on 25mg a night. I decided it wasn't worth the side effects so I am trying something else. F 33 6 months
11/2/2005
 5  epilipsy, headaches short term memory loss, bad taste in food, nothing tasted right, weight loss, trouble finding words, confusion, tingling in hands Topamax has helped me tremendously. I lived with a headache every day for years, and since i've been on it, no more headaches!! What a godsend. Only problem is the memory loss gets to me. With 3 kids, memory is vital. But, not having seizures is also a very good thing!!! The good definitely outweighs the bad! F 26 4 weeks
11/1/2005
 5  Migranes/bi-polar None I have been on many medications over the past 23 years and Topamax is the second one that I have been on that I can take and not have any fears about. It has helped me get out of bed and off of the couch. I know that not every medication works with everyones system but I have been very fortunate to have had a great doctor to help me with Topamax. F 43 6 days
10/28/2005
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 3  seizures Numbness in right leg, trouble speaking, body odor, weigtloss, diaharea. Constant tingling in hands and legs (this went away after my dosage was upped, but the Numbness in my leg grew worse.) I don't mind the weight loss that much, but I value my speech, I only had a seizure once or twice a year anyway, after going on it, it descreased the chance of having them but I still have them once every about two years. M 17 4 years
10/26/2005
 4  migranes slight nausea the first 2 weeks, soda pop & beer tastes like crap (at first, I kept checking the expiration dates thinking it was spoiled). Cognitive response much slower,..I realize it at the moment but can't change it (very frustrating). I get hungry but things don't taste the same or I just don't feel like eating. So far, has significantly reduced my migraines but I've only been on it for about 3 weeks (but then I have about 2-3 migraines a weeks before I started). I've had 2 slight headaches since I started taking it. The first time, I didn't take my other meds to see what would happen. The 2nd time, I took one of my other meds (midrin) and it knocked out the migraine entirely. That usually doesn't happen. F 42 3 weeks
10/23/2005
 5  migraines If I fall asleep and I get woken up, I have "waking dreams" and flip out. I have to tell myself "stop wake up." This never happend until I started taking topamax. My dream is happening with my eyes open while awake. Also in the middle of the night if I wake up my mind wakes up and then my body is still paralyzed and I cant move it. I panic but I can't breathe heavier because my body is still paralyzed from sleep so I feel like i am dying. It has taken away my headaches. The only thing after 11 years. When I up the dose it makes me feel crazy and emotional for a couple of weeks though, and really scattered. It's difficult with school and ADD but i dont care because migraines are horrible. F 23 60 days
10/22/2005
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 1  Bipolar II I shot up into Hypomania in a span of 3 days. It was so intence. I will never take this medication again I was so hypomanic it was unbelievable F 21 7 days
10/20/2005
 2  RSD Lots of hair loss. I would of continued taking topamax but my hair was falling out big time. It took a good 4 months after discontinuing it for my hair to stop falling out. F 36 4 months
10/14/2005
 2  migraines I had side effects but if my migraines had been reduced, the side effects would have not have mattered. They were not bad enought to make me go off the medicine. I had high hopes of topamax being the 'migracle drug' for me but was disappointed. F 43 10 months
10/13/2005
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 5  migraines for the first 6-8 months - inability to formulate sentences at times, word loss, confusion (big time) and major studdering! tingling fingers and weight loss which was great - about a total of 40 pounds in 2 years. I had had migraines for years with no relief until Topamax. Which is the only reason I stuck through the side effects as long as I did, and I am so glad I did. I had to take Relpax for breakthrough migraines for almost a year. I now take 100 mgs at night before bed and no longer have any breakthoughs. This med has been great! F 29 2 years
10/12/2005

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