TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Migraine The side effects that I experience are extremely hot feet which regularly blister (standing in the shower or just a puddle is an amazingly relaxing experience) the doctor prescribed a gell but E45 seemed to do a better job. Continuing feelings or paranoia, I initially started om 150mg twice per day but this may me feel suicidal, reducing the dosage improved the outlook considerably but I dream of getting even with people before situations exist. I wish that I had the same issue with losing weight that everyone else is complaining about nut maybe it is all of the other pills that I have to take for my heart. M 55 6 years
75mg 2X day
2/21/2016
 4  Mood Disorder Tingling feet, unable to process thoughts, shaky hands, weight loss, appetite loss. Although I have been enduring many side effects, the side effects are starting to calm down now. It takes about 10-14 days being on this particular drug to get Accustomed to. I am on topomax because I was recently diagnosed with a mood disorder, similar to bipolar but not. It calms me, and keeps me stabilized to the point where I am feeling like I am not fighting a war inside my head. I would rather deal with the side effects then my mood disorder, that is for sure! F 24 1 months
100 Mg
2/14/2016
 1  Mood Stabilzer/Possible Weight Loss The first three days I took only one pill a day at 25 mgs. It was ok. I felt a little "flat" but not in a bad way. The fourth day I went up to two pills a day as recommended by the shrink. It was alright although I began to feel brain dead at work. Speaking my own language was a challenge at times, food was tasting weird, I could barely keep my eyes open at my desk. This past Saturday I slept about 18 hours straight. Today, two days later, my skull feels like a metal helmet, I had waves of nausea all day long but couldn't eat anything all day to throw up. I considered going to the Emergency room but I didn't think they could do anything for me.The shrink told me to cut back by one pill but I just want to go cold turkey. I want this stuff out of my body. What a mistake! The Prozac was fine. If it ain't broke, don't fix it!!! I have been on Prozac for 20 years. I wanted to discuss possibly reducing my prescription but the psychiatrist thought to supplement with Topamax? I will admit the possibility of losing weight did lure me in even though I would be more medicated. I would rather be my chubby funny self than a nauseous zombie. Stay away from this crap. F 61 12 days
50mgs 2X day
2/1/2016
 1  Complex migraine prevention Anisocoria of the left eye. Altered state of consciousness lasting far beyond discontinuation of drug. I was given this drug for complex migraines and the morning after the first dose resulted in altered consciousness and anisocoria where the left eye was dilated and less reactive to light than the other eye. I was promptly told to discontinue the drug by my doctor and have ever since had more blurred vision - slight double vision at times - and a frequent manifestation of the conditions mentioned. I've had people mention the anisocoria many times, always the same effect. It continues to burden me with a majorly frequent 'haze' of altered consciousness, or a 'dopey' feeling. M 23 1 times
25 MG 1X day
1/18/2016
Email
 1  Migraines Hair loss, loss of words, writing and typing appear dyslexic, brain fog, anxiety, loss of cognitive function at usual level. Muscle aches in back, neck and shoulders. My eye sight deteriorated rapidly from 20/20 vision. This medication did help with my migraines, i have been off the medication for a year and i am still not how i was prior to taking the medication. I do not believe that my vision or memory, brain function will return to how i once was. F 42 4 months
50 1X day
1/3/2016
 4  Migraines/tension headaches tiredness, mental fog, dizziness, a bit of diarrhea I was prescribed topomax because I can't take excedrin due to a caffeine sensitivity and naproxen wasn't working. I was getting tension headaches EVERY SINGLE DAY, and they would often escalate into migraines. At first I was started with 25mg but that wasn't enough to prevent the migraines so I went to 50 mg. It prevents my migraines and tension headaches 75% of the time. Occasionally I have break through tension headaches and I ALWAYS get migraines on my period, even with the topomax. It does a pretty good job but it doesn't prevent every migraine. F 20 1 years
50 mg 1X day
12/29/2015
 3  migraines I was on 25 mg first and only had the tingling in my feet in hands, memory loss, and slowed reaction time but now I'm on 50 mg and I have extremem fatigue. It is very hard for me to stay awake during the day. I've only been on 50 mg for a week so I am going to try and stick it out. F 19 5 months
50 MG
12/22/2015
 1  Migraine Initially:tingling in hands and feet, nausea, insomnia, difficulty finding words, spelling and completing basic math computation, loss of appetite, change of taste and smells. Tingling and nausea eventually subsided. After approx 8 weeks: Hair loss. Though this drug was difficult to adjust to, I stuck it out. The nausea was extreme in the beginning, but did eventually subside after a few weeks. I woke up at 4:30 every morning and could not get back to sleep. It did stop my daily migraines that I was suffering from. After about a month, I felt great, despite the mental cloudiness that was difficult to manage. For example, I struggled to remember driving routes I had traveled for years. I decided it was a trade-off I was willing to make. Unfortunately, one day I noticed my hair texture had changed. My normally thick, shiny, manageable hair became dry and brittle. Then the shedding started, approximately 2 months after I began taking the medicine. I tried to stick it out, but I lost close to 50% of my hair in the 2 weeks that followed. I discontinued. I have now been off the drug for a month, and my hair is still shedding and there has been little improvement in texture. I am hopeful that my hair will grow back, but this has been very stressful. My headache specialist has prescribed Zonegran as an alternative, but I am weary of anything now, especially because a month off of the medication has resulted in little improvement on the hair loss front. F 39 2 months
50 mg qd
12/15/2015
 5  diabetic & high BP Dry mouth,I have so many other things going on I don't know what if any side effects I have. I have lost without being hungry. F 63 4 months
46 mg s
12/11/2015
 3  migraines Blurred vision, irritability, paranoia, depression, trouble sleeping, weight loss, mood swings, hair loss, fatigue , always freezing The first few months on it I felt dizzy, almost high, and was constantly stuttering my words. I went from having daily migraines to about 1 a month. What I thought was typical depression spiraled into the worst feelings ever, hopelessness, anxiety attacks and constant fatigue. As the months passed it all got worse. So far I've dropped about 22 pounds, and I cry for no reasons at times. My hair began thinning horribly about 7 months into taking the med. I've had my vision checked, all is well. I take 50 mg each night but I've decided to go off the med due to the negative side effects. It helped my migraines so much which is the only plus. It's been a little over 1 year and these effects have intensified GREATLY. I rarely sleep peacefully. Time for a change! F 25 1 years
50mg
12/10/2015
 4  Migraines Cannot drink any carbonated beverages due to horrible taste, lost about 12 pounds in the very beginning which I think is due to switching from soda to water. Topamax has really helped with my migraines, I was shocked to see all the terrible side effects on here. My boyfriend, his mom, aunt and my mom all take Topamax for various reasons and none of us have had any of these serious side effects. I think if you do start to have some side effects to mention it to your Dr. because every body is different and tolerates medication differently. F 24 6 months
100 1X day
11/29/2015
 1  Epilepsy I experienced two episodes of psychosis, along with paranoid thoughts, weight loss and had to be hospitalized for psychosis. I thought my husband was trying to poison me. I also experienced or so I thought was spirits around me. F 54 7 years
25 MG
11/24/2015
Email
 1   Fibromyalgia symptoms and big appetite F 47 1 days
11/21/2015
 3  Tingling in legs and feet. Back My sense of well-being is not here. I'm irritable, tired, uncomfortable...My head feels full of "I DON'T KNOW" what! Been taking for 6 days @ 25MG every 12 hours. Today starts 2x25MG every 12hours. However, I'm not going to do this to myself. GOD will help! F 67 6 days
25 MG
11/10/2015
 2  Neuropathy Confusion, dizziness Topamax did nothing for neuropathy. Side effects subsided to a tolerable level in under a month. Withdrawing HARD due to doctor refusal to taper (from 400mg/day!), so I had to cobble together my own taper schedule with leftover meds. Saw no problems with soda, but during withdrawal period coffee tasted like fried rice. F 22 5 months
200 mg 2X day
11/9/2015
 1  epilepsy Very bad stamic pain F 17 1 weeks
50
11/8/2015
 1  Off-label use for lower back pain Extreme paranoia (thoughts of being poisoned by co-workers), suicidal thoughts, anxiety, sleeplessness, creepy/jumpy sensations on skin. Discontinued Topamax after 4 days,side effects persisted about 2 more months. Worked great on lower back pain--but not worth the psychosis. They give this stuff to anxious teenagers? Frankly, I was borderline psychotic--and could only keep it together because I could reason it out that this was NOT MY PERSONALITY, and suicide is against my religion. I'm 55 now, but took this drug when 44 years old. F 55 4 days
?? 2X day
11/5/2015
Email
 1  migraine I have noticed every morning I wake up with a terrible migraine. I need to know is this normal. This is my second time to take it. I don't remember it do this the first time. F 40 5 days
25
11/1/2015
Email
 4  Alcohol dependence and Bi-polar II Tingling in feet, word retrieval issues, fatigue, weight loss Topamax helped curb my cravings for alcohol tremendously. It was as if I hadn't ever even drank. It also helped stabilize my moods and make better decisions beyond just not drinking. Unfortunately I had to stop taking it due to a liver issue that wasn't related to topamax. (Ironic to stop drinking and have your liver go to hell!) Side effects were worth it for pay off. F 40 1 years
150 mg
10/30/2015
 1  TIA due to a certain kind of migrai Dizzy, faint, magnified my normal symptoms im trying to control!! I was in and out of the ER 3 times this last weekend due to falling over and feeling faint. Coffee made me so shaky i had to lay down, pop and food in general is just gross and bland. After my last trio to the ER, we drove straight to my Neurologist and she told me to immediately stop taking it and is switching it. The withdrawals suck, but id rather deal with this..then another day of that! F 36 3 days
10/27/2015
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