TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Mood Stabilizer Headaches, depression, severe flu-like symptoms, constant fatigue, no appetite, nausea, dizziness, muscles aching, confusion, shortness of breath, difficulty communicating. I was hospitalized with severe depression and didn't know this made it worse. I cried more when I got home. I communicated all this with my PCP but they never said a word about it perhaps being Topamax. I have a condition that can cause some of this and put it off on that, but realized that it was so much worse. Today I just stopped taking it. After only 10 days, it can't hurt me as much as it can taking it. Still, I took a deep-sleep three-hour nap, but I was able to get a little bit of work done. I won't touch this stuff again. I wish doctors had to experience what their patients do, I caught one mistake they made already. I think I'd be better off on my own if I could write scripts for the anti-depressants that do work for me. F 47 10 days
50 3X day
6/6/2015
 1  Headache Doctor prescribed for chronic headache. It didn't do shit for the headache. I could tolerate the tingling feelings on my hands. I had sharp stomach pain every night that I took the pills. However, the depressing thoughts were what got me to stop. I am not a depressed person and I try to have a positive perspective on life. But since the day I've been on medication I felt mellow, and then I started to think about some deep depressive thoughts consistently. Now I can understand how medication can drive a person to a suicidal thought. Other little side effects for me- drowsiness during the day, constipation, blurred vision. People - don't take this medication bc you see "weight loss" as a plus. It's a dangerous drug. The possible side effects are not worth risking your health to be thinner. F 33 4 days
25mg
5/20/2015
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 3  Migraines I lost 75 pounds in less than a year doing nothing but taking this medication , has not helped headaches I am scared on how long is too long to be on it?? F 49 1 days
150
5/16/2015
Email
 5  mood stabilizer When I first started taking it I went thru the tingling legs, fingers, and lips. Hair loss, forgetful memory blurred vision but that only lasted for 2 wks at the most prob less. It's the generic topiramate that I don't like my insurance won't cover name brand and now I'm going thru all the site affects again except now I am dealing with extreme anxiety. This medicine isn't known for psychiatric needs but I went thru so many meds that made me gain so much weight and then I started this I was just a different person. A great person and I was healthy and lost over 60lbs in 6 months thanks to this medicine. F 23 7 years
100mg 2x d
5/15/2015
 1  back and migraine I loved the weight loss and the no migraines. But the side effects sucked. One day I woke up and you could see every vein in my body they was glowing. Doctor took me off right away. I stuck with the med for so long because my headaches are so extreme. Never again at least o don't have numb lips tingling legs feet of hands anymore. Has anyone had issues with their veins glowing.while taking topmax and what is exactly the cause F 41 4 years
100
5/6/2015
Email
 1  migraine cognitive impairment, numbness covering entire foot and knees, eyes shifted on their own, everything tasted awful I could only take topamax for two days before my doctor told me to stop immediately. I went to work and could barely function! I work with sensitive information that is federally regulated and I couldn't remember how to log onto my computer like I have been doing for over a year. My eyes were constantly moving (I had no knowledge of this until l later). This was a week ago and my tastebuds are still off to where the only thing I can stomach is popcorn and my hair is still falling out. I'd rather continue having my 2 migraines a week than take this medicine. F 26 1 days
50mg
4/30/2015
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 1  migraines Foggy Clinical type of deep depression Tingling extremities sharp pains in the back of my head extreme agitation, wanting to cry all the time, very anxious.it made my migraines associated vertigo even worse. I just got off and I still don't feel right May work 4 you, but it was very scary for me. I have suffered from migraines for 20 years. This medicine gave me the glimpse of how it may feel for someone to be clinically depressed everyday I feel so sorry for them F 30 2 weeks
25
4/29/2015
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 3  Migraines Topamax has improved my migraine severity and frequency. I used to get headaches about 6 or more times a month and they would usually last 2 days- so I had a headache almost all the time! I also taught 1st grade, so you can imagine it was awful!! Topamax took my migraines away almost 100% Now I only get 1 if I have insomnia ( menopause :( ) and haven't slept well for many nights. I am realizing that the side effects besides thinner hair, weight loss of a few lbs and some muscle cramps might be worse than I thought. I was reading others experiences and I think my vision problems & crushing fatigue may be related to Topamax? I think I may need to go off it! My neurologist prescribed it as my reg. dr won't even prescribe it! Hint Hint that it's serious stuff, but when you have a constant migraine you don't really care! I also am tired of being a complete couch potato. I have NO energy anymore at all. I also have lost my memory & feel stupid. Ok time to try something , anything else- there must be another option?!? Does anyone know of one? I take Sumatripan when I get a migraine- it doesn't work too well & insurance will only pay for 10 tablets a month. Sorry this is so long! Never written such a rambling rating - see? Dopa max! F 51 4 years
200mg
4/24/2015
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 4  Migraines/Ultradian Bipolar 1 F 35
50MG 1X day
4/23/2015
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Patient History
 1  Migraines Constantly clearing my throat due to phlegm, cough and anxiety attacks. Worked like a charm on my migraines, but it's not worth the side effects. Went to the doctor for the constant throat clearing and was given an antibiotic even though I had no other symptoms other than a cough. Went back when the antibiotics were gone and no relief. Doctor thought may be acid reflux and gave me a prescription for that. During the appointment I was asked if I had been on any new medications. I mentioned Topamax. She said that wouldn't do it. That evening, looked up the detailed list of side effects on WebMD and saw "condition in which stomach acid is pushed into the esophagus". Looked at the date I had the prescription filled then at the calendar and it was exactly how long I told the doctor I had been having the problem. Went back the next day and told my doctor to take me off of it. I also saw "anxiety" which I thought was being caused by the CONSTANT feeling of having to clear phlegm out of my throat that wouldn't move. Now I'm worried about the terrible withdrawal stories I read on another site. F 51 2 months
25 MG/ 1da
4/18/2015
 1  depression HAIR LOSS AND CRYING ALL THE TIME I've got bald spots on my head now from this stuff. And I'm crying all day long. It did give me more energy and helped with social anxiety but the price to pay for this is too high and I don't mean $$$ F 61 30 days
25mg 1X day
4/17/2015
Email
 1  Epilepsy Psychosis!!! Very rare but possible reaction to this medication. I would take seizures over this anytime! F 22 1 months
100 mg
4/9/2015
 4  Chronic Migranes Very tingly hands and feet, tiredness, but more even-keeled moods, actually. I feel less likely to get angry and moody, so that's good! I do feel a bit "high" occasionally and dopey. I take a lot of vitamins, including a B-12 to help with energy levels and Biotin to help with hair loss (if that side effect ever happens). I also am married to my water bottle...I drink between 12-16 cups a day. About a 10 pound weight loss in one month of taking Topamax, but biggest thing is the decrease of my migranes!! Titrate up SLOWLY! Take at least a month if your end dose is to be 100...don't rush it! Drink LOTS of water as Topamax will dehydrate you. F 42 1 months
100mg 2X day
4/6/2015
 5  migraines At the beginning I did the most of the side effects except no v&d, I had a hard time concentrating and my hands did tingle some, didn't want to eat but that went away after a few weeks once my body for use to it. Helps my migraine and I could afford to lose a few pounds do I was happy. All medication has side effects mine subsided after a few short weeks and very well worth it. F 46 2 years
50mg
3/31/2015
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 4  migraines Tingling, loss of appetite, thirst I'm really bad about taking my medicine so my only wish is that this came in a monthly shot. But I went from curled up in my room not able to attend school, not able to see my friends or enjoy time with my family because I couldn't stand light or sound or smell nearly every day, to being able to function seminormally and full migraines have been reduced to a bi-monthly (on a good month) event rather than a nightly one. F 19 2 years
50 then100
3/27/2015
 1  Migraines Okay at 25mg but once titrated to 50 mg side effects were immediate and Intense- I had excessive thirst even drinking 64 or more ouncesof water- My skin was itchy, I had no appetite, tingling in hands /feet very intense. I was so irritable as soon as I was at 50 mg - all side effects began and were moderate to intense at 50 mg.EVERYTHING irritated me to the point I would fly off the handle at the littlest thing- i was alsovery tearful. Not themedicine for me. F 48 1 months
50mg 1X day
3/25/2015
 1  Migraines seizure Swelling of the ankles an calves, tenderness of the body, Bone ache, confusion, brain fog, insomnia, concentration, bruising, rotted teeth, eye change, shakes, forgetfulness an TMJ Wasnt please with the drug. Did lot of damage in a short amount of time. been off it for 2 weeks swelling gone, aches almost gone. Lots of my problems have stopped. The main thing upset me most. ROTTED MY TEETH. i had healthy, white teeth. an now i have none! all teeth that are left have chips, cracks, back side missing, just bad teeth! NOT HAPPY F 37 7 months
200 2X day
3/22/2015
Email
 3  Migraine I had no appetite and I got to the point that I could not even force myself to eat. I was sluggish mentality and physically. I just felt bad overall. During the time I was on it I only had one migraine but I was taken off of it because those side effects were just intolerable. F 46 3 months
3/18/2015
 1  Migraines Loud ringing in ears, enough to give me panic attacks. Unable to eat anything for days in a row. Unable to sleep. Itchiness. Unable to think or concentrate. Unable to stand for more than five minutes. Dehydrated, even though I was drinking 90+ ounces of water a day. Stomach felt like I had swallowed a handful of razor blades and they were swirling around in there. Pain was horrible. This drug should be taken OFF the market. Unbelievable the side effects it has. Stay on it a year and you're pretty sure to end up with kidney stones. Great. Stops your bodies ability to sweat? That doesn't sound healthy in the least. I wouldn't take this POISON again for a million dollars. **and to the SNOT who said ''I dont understand all these side effects these people are having from this drug its not a narcotic so they are probably imagining or reading other peoples comments there is nothing in this drug to whack you out!!!!'' I am SO glad this medicine is working for you but how DARE you imply the rest of us are idiots reading stuff on the internet then playing it out. Have you even looked at this site for even five minutes??? There are TONS of people that this drug has practically RUINED their life! No one is making anything up, except for you. Are you always this rude and mean? F 49
75 mg 1X day
3/15/2015
Email

Patient History
 5  Migraines Minor weight loss, mental slowness, memory loss, thursty all the time (however this ensures I get my 8 glasses a day!), irritable this medicine does mess with your head and some days are better than others but chronic migraines do the same and are far worse. I used to get migraines lasting weeks at a time and would keep me from working for days. I still get migraines that break through every once in a while while taking this med but they aren't as intense as without meds. I have tried a dozen other drugs, side effects from topamax for me are much more manageable than other drugs. F 29 6 months
50 1X day
3/1/2015

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