TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  to help w muscle pain assoc w fms none recalled except weight loss which was needed While taking topamax for muscle pain I was taking Inderal for miagraines. I got so I no longer needed Inderal. Six+/- months I stopped topamax and HA's started back. Come to find out Topamax was helping the miagraines. I'm back on Topamax now. F 18 months
1/18/2005
 5  migraines tingling fingers/toes (not at all painful); eye discomfort; loss of energy; occasional burning sensation in head and chest; loose bowels; Before Topamax I was in moderate to extreme pain about 60 percent of the time. My neurologist put me on Topamax and stepped up the dosage slowly to 125 mg per day and now I experience about half the number of migraines that I used to have. Also, the severity of my headaches has decreased somewhat (no longer feels like I have a steel rod piercing my skull- the pain is now F 44 4 months
1/17/2005
 5  Migraine prevention Tingling sensation in fingers and toes; drowziness The benefit of not having migraines far outway the side effects!! I used to have 3-5 migraines PER WEEK. Since taking Topamax, I have had 3-4 migraines total. F 35 7 months
1/17/2005
 4  Migraines Lowered IQ is the best way I know to describe what Topamax did to me. I also experienced problem with keeping my balance and other co-ordination problems. Topamax helped lower the frequency and the severity of the migraines. The medication worked with respect to that-- but the side effects became just too much to deal with and to function normally. F 54 9 months
1/16/2005
 1  Head Tremors Unbelievable detachment and spiciness, forgetfulness, memory and speech problems, it blocks words when you go to speak and makes you feel slightly stupid, anxiety, Mild and Intermittent headache, Sleepiness and irritability, easily overwhelmed. Made my blood pressure very high. This drug did not do anything but make me feel like I was going half nuts!!! I was very spacy, sad and moody the whole time I was on it. F 38 30 days
1/13/2005
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 5  FMS/autoimmune related chronic pain Like others have said, carbonated beverages taste very strange to me, and I have stopped drinking them. I felt a little spacy the first couple of days, but that has passed. All other side effects have been positive. My mood has been fantastic, very cheerful and mellow--my stress level is way down. My appetite is down too, and I have lost 3 pounds since I started taking the drug a little over 2 weeks ago. I love this drug. Aside from the carbonated beverage thing, all my side effects have been postive, and the burning, tingly, electrical-feeling pain has been cut at least in half for me, which is a huge relief. I still have achy joints, and feel very stiff in cold weather, but those feel much more manageable now that the nerve pain is under control. Because my mood has been so good (I suffer from chronic depression, and take medication for that as well, but Topamax has added to the effectiveness of my Wellbutrin) and my anxiety level has been so low, my thinking has actually been clearer and more creative, which is apparently not the case for everyone (some people get foggy-headed on this drug). For me, it feels like since my energy is not so tied up in feeling lousy and being stressed-out and blue, I have more energy for other things, both physical and mental (writing, reading, etc.), and my motivation to follow through on ideas is much improved. Granted, I have been taking Topamax less than a month, so my experience may change with time--if it does, I will come back here and post an update. F 27 2.5 weeks
1/10/2005
 5  migraines Hate the taste of pop. Tingling of the extremities. Harder time controlling body temp (bad in Canada). Dry eyes. Meds for extra stomach acid. Lost weight and didn't need to. Skin looks bad. Can be very irritable. Complete insomnia. Haven't slept in over 1.5 months (rx drugs haven't helped) I was suffering from daily migraines and after 1 month of upping my dose to 100mg they basically went away. I get the occassional one. The drug works wonders and I will definitely stay on it if I can get some sleep. My neurologist said he hadn't heard of insomnia as a side-effect so he suggested I take all meds in the morning. Hopefully it works. F 30 3 months
1/10/2005
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 1  migraine prevention extreme anxiety, slowed mental functioning, aphasia. I could have lost my job because of my inability to think. It was like I had a stroke or was developing Alzheimer's symptoms. I normally have anxiety which I treat with an SSRI. However, when I started taking Topamax, my fears escalated significantly even though I was still taking my normal dose of the SSRI. I also felt very paranoid which I have never experienced before. I can only imagine what this drug does to your brain to make all of these horrible things happen. It was a creepy experience. F 39 3 weeks
1/9/2005
 1  Seizures oh my Gosh, where do i start! Numbness in my feet and hands. I've changed personalities, have incredible mood swings. Although it does somewhat control my seizures, but I can't bare the side effects. I'm constantly tired, moody and extremely emotional. I've had seizures for 5 years and have always expierenced some sort of memory and speech problems due to the anti-convulsant drug I was on, but after taking Topamax I feel as though I'm going crazy. I can't even conversate with people anymore because my memory is so bad and I can never seem to get the right words out. I just went to my Neurologist today and Thank heaven I'm getting eased off Topamax. This was not a good expiernce for me but for others; well, we all work different and everyone else expierences different side effects. I've heard from some that it's an excellent drug, especially for losing weight. Although, I only lost 7lbs in 10 months after taking 150mg 2x a day, I guess I'm just one of the rare few that Topamax didn't help in the loss of weight, but to each their own F 24 10 months
1/4/2005
 1  migraines Rapid weight loss--ten pounds in one month--I liked that, no appetitie, diarrea, anxiety attacks, sadness, deep depression, mental fog, word and name loss, pessimism, anger, suicidal thoughts, insomnia, crying, loss of interest in sex and love and other things that used to be important to me. I have never felt so lost, frightened, miserable, and so unlike myself. The weight loss is great, and I am not popping a zomig or an imitrex or an axert every day (it's also winter, and I have fewer headaches during the winter). I tried topamax a year ago at the suggestion of my neurologist, but I quit because I thought it was giving me anxiety attacks. We tried it again. I think I was terribly naive to give it another shot. I can't stop crying, and I don't feel functional. I have trouble recognizing myself. I think this medication is playing a dangerous game with my biochemistry, and that is too steep a price for migraine relief. F 37 33 days
1/4/2005
 5  mood stabilizer, depression weight loss, tingling in fingers,feet and nose. This went away after a few weeks. drinks taste flat at first. excessive thirst, hair loss and changed the texture of my hair. Sometimes I do find myself getting my words switched around. As a matter of fact my 8 year old laughs at me because of it. I think topamax is like a wonder drug. It has helped me tremendously. Plus I've lost 40 pounds. There are some side effects I have experienced that I didn't realize was due to taking this though, until I read some of the other comments. Such as the hairloss. And one other person said she felt like she was turning sideways when she was sitting still. I never realized anyone else did that. I've felt like that a few times. But all together I am stable and feel better than I ever have on anyother medicine. I also take Effexor 75mg. a day. None of my side effects are severe enough to stop taking this. They may get worse in time but I'll see. F 33 7 months
1/1/2005
 4  migraine/myoclonus the usual: metallic mouth, dry eyes, hair loss, numbness and tingling in skin, especially extemities, some nausea and appetite loss, double vision, fog(gier thought processing) reduced migraine immediately - by the time I was at 100 mg per day (slow upward titration to this point- started at 25 mg bid) - no headaches at all - no jerking movements, much better sleep - too bad the side effects are so profound....have settled at 150mg a day for dosage with maximum benefit with maximum tolerable side effects F 50 90 days
12/31/2004
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 3  migrains severe muscle pain in upper arms and hands. I have no night vision. I can not recall names and have trouble spelling. It has helped with migrains it has worked like a miracle drug. But at what cost. I am in so much pain I can no longer sleep at night. I can not drive at night and my memory is a joke. F 37 3 years
12/28/2004
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 4  migraine headaches it blocks words when you go to speak and makes you feel slightly stupid. I have lost 15 lbs in the 18 months I have been taking it and have reduced my headaches to by 2/3's and they are manageable do occur rather than raging. I take 200 milligrams each night. I was taking 300 but was getting too thin so I cut back. Some days I almost feel anorexic-no interest in food. F 62 500 days
12/27/2004
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 5  Bi-polar (rapid Cycling) Loss of weight (yippie!), Yes it took a little getting used to in the begining, but it was worth it. I don't have any tingling or those other problems I have read here. I feel like a normal person (Sanity) on this unlike other drugs like lithium or depakote. Those make me feel stupid. I am taking 300 mg per day. I love this stuff. I also take 200 mg Tegratol per day and 300 mg Welbutrin. M 45 1 years
12/26/2004
Email
 3  unknown pain? pain in foot,knee,and back..... F 32 1 days
12/23/2004
 3  unknown pain I have seen 8 doctors within the last 8 months pain in foot,knee,and back.....sharp tingling pain, I was taking neurontin 900mg per day. I wanted to gain weight but not only in my stomach area (I told my doctor i feel as if i look like a whale).... So now I'm trying Topamax. I will provide my email address as soon as i create it. F 32 1 days
12/23/2004
 1  Daily Headaches Waterey eyes, spacey, pop/beer tasted terrible after day 1; felt tired; Wasted an entire week on this medicine; not worth it! Would rather put up with my headaches then this stuff! F 37 7 days
12/17/2004
 3  Mood stabilizer Dry mouth; some weight loss; spaciness; loss of concentration; increased anxiety; increased belligerance; possible somnolesnce; carbonated sodas taste flat. First off, I'm still ramping up to my goal of 200 mg. I'm at 125mg, about to go up to 150mg. I'm also on two antidepressants and a stimulant (Provigil) for severe somnolesence. I was frustrated with my previous stabilizer (Abilify) because of my persistent sleepiness and weight gain (40 pounds in 6 months), so my psychiatrist put me on Topamax to help out a little with the weight (in addition to my going to the gym and watching what I ate). In the five weeks I've been on it, I've lost about 10 pounds (not a lot, but a start). But, man, I've been chewing my boyfriend up one wall and down another since I started this stuff. And *all* my diet sodas taste flat (which I guess is ok, since I need to drink water, what with the proclivity towards kidney stones this stuff'll give you). But I'm starting to get sleepy again, and it's just getting worse the more Topamax I take. And I'm going to take the Provigil over the Topamax any day of the week. I also F 30 5 weeks
12/15/2004
 5  Migraines Weight loss, rigning in ears, loss of taste for soda pops, some things do not smell right any more. At first was shakey but that has stoped now. I love it for the migraines though. F 28
12/8/2004

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