TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | Migraines | occasional tingling and cold in hands/feet; some hair loss, soda tastes gross...except fountain root beer=); 30 lb weight loss, lose my train of thought | I really am happy with this drug. Some of the side effects are quite annoying at times...medical professionals do call it "dopamax" but I have been on it for a year and my headaches keep getting better. I have lost weight (which wasn't a bad thing) gave up smoking (with almost NO withdrawl)...I just started HATING it after I started on the drug)...I think now that I have quit smoking the medicine will be able to help even more and my headaches will lessen even more! So I will take the occasional dopiness..I still function as a health care professional, and the tingley toes! I take 200 mg now, but I am hoping to be able to drop that down in the future. | F | 29 | 1 years | 3/24/2007 | 5 | Migraines | occasional tingling and cold in hands/feet; some hair loss, soda tastes gross...except fountain root beer=); 30 lb weight loss, lose my train of thought | I really am happy with this drug. Some of the side effects are quite annoying at times...medical professionals do call it "dopamax" but I have been on it for a year and my headaches keep getting better. I have lost weight (which wasn't a bad thing) gave up smoking (with almost NO withdrawl)...I just started HATING it after I started on the drug)...I think now that I have quit smoking the medicine will be able to help even more and my headaches will lessen even more! So I will take the occasional dopiness..I still function as a health care professional, and the tingley toes! I take 200 mg now, but I am hoping to be able to drop that down in the future. | F | 29 | 1 years | 3/24/2007 | 3 | Migraines | weight loss, the loss of words when trying to speak, tingling in my fingers and bad ache | I was informed that this medication decreases the effect of birth control, what are people doing when they are on this medication to prevent pregancy? Please email me to give me some advice. | M | 27 | 4 months | 3/22/2007 | 4 | Bipolar 1, Mood Stablilzer | Feet/Hand tingling/Numbness, Slight Insomnia, Weight Loss/ Supressed Appetite | I have been on Topamax for almost 2 weeks, slowly working up, stopping somewhere between 100-200 mg. Will decide as we go depending on progress. At 75mg right now, 2 morning 1 night. I go up 25 mg every 4 days-ish. Have lost about 8 lbs since starting, and my appetite is suppressed, but not in the anorexic sense. (which I have been diagnosed with in the past...) I eat smaller portions, but I am not turned off by food and have no problem enjoying a meal. I get the tingling mostly in my heels. drives me insane but only lasts for about 20 minutes, mostly when i am not moving. I itch right now, but I am hoping its bc of a sunburn haha. I was prescribed a sleep aide for the nighttime restlessness. Have had no cognitive problems that I've noticed (im very verbal too, and edit and write frequently at work). A little constipation but that might be due to the Welbutrin I am also taking. Still feel depressed sometimes. but that is why we are upping dosage....So far I am content. Also have notic | F | 23 | 10 days | 3/20/2007 | 3 | ODD | My daughter has just begun taking this medication. She has a loss of appitite (she is not overweight by any means) but this side effect was one reason she WANTED to try this medication. Her mood swings are starting to fade, she has gone to bed early many nights (we give her medicine to her at night). In the 2 weeks she has been on it, she has woken up 3 times with a stomach ache. Out of the 3 times she has missed one day of school. Talked to the doctor, and are thinking since she is eating less, she might not be getting enough fiber, thus causing sonstipation and tummy aches. Continueing the medication, upping fiber, and if any more tummy aches come, then will take her off of it. | She has tried 100 mg of Risperdal, no help with that medication. Currently on 25 mg of Topamax a night. If stomach aches do not come back will up her dose. Doctor wants her on atleast 100 mg a day (staggered) Will repost at later date with changes. | F | 13 | 2 weeks | 3/20/2007 | 1 | migraine headaches | EXTREME HAIR LOSS! Words didn't come quickly to me during conversations - like I knew the word to say but I just couldn't recall it. Tingling/numbness in fingers. Carbonated drinks had a metallic taste. Depression and suicidal thoughts. | The hair loss is horrid and unfortunately it began within 2 months of starting Topamax. However I blamed the thinning and change in hair texture on my new stylist and the color she used (what a coincidence that I'd changed stylists when I started this drug). But when I noticed that my hair felt just like it did when it I started losing it when I had undergone chemotherapy, I realized it had to be the topamax. If I'd known that hair loss was a potential side effect, I would not be in the situation that I am now. I'm hoping the hair loss stops now that I've discontinued the drug. The memory loss and language problems were so bad that I didn't speak in front of a group without first "rehearsing" in my mind what I was going to say. I also realize now that I was depressed and even felt suicidal at times. This drug is dangerous and every patient should be counseled and cautioned before they are prescribed it. My advice would be USE IT ONLY AS A LAST RESORT!! | F | 50 | 7 months | 3/20/2007 | 1 | Migraines. | Pins and needles,Fatigue,severe Depression,Loss of concentration,Memory loss,Trouble with comprehension,words didn't come to me as quickly,scrambled words,eye pressure/soreness. | I’ve been off Topamax for about a year now, and was only on it for about four months. I would have to say that the four months I was on Topamax, was probably the worst four months I have ever experienced in my life. When I first started the medication I was only on 50mg, and besides the slight tingling I experienced, everything was well. When I got up to about 150, I couldn’t concentrate at all, I physically and mentally felt ‘slower’ My words were scrambling up, and I couldn’t even carry a decent conversation because of it, my grades were dropping, and I felt ‘spacey’ all the time, I was constantly tired, and fell in a deep state of depression (and If you know me at all, im a very cheery and optimistic person) I felt like I lost touch with reality. None of my friends really wanted to hang out with me because I was so ‘out of it’. The only good thing about this medicine was not getting migraines. I wouldn’t recommend Topamax. | F | 17 | 4 months | 3/20/2007 | 4 | seizures, twitching | tingling, loss of appetite, trouble finding words, crying, trouble with the heat - when I start to get warm I tingle and itch ALL OVER | I sleep great, I have lost weight, I am not having seizures, my twitches have reduced but are not gone, the tingling that has replaced them can be annoying at times | F | 37 | 5 months | 3/19/2007 | 4 | Bipolar | Anxiety Attacks, not sleeping at night, don't notice any drop in appetite. | F | 53 | 4 days | 3/18/2007 | 1 | migraines | Tingling in hands and feet, blurred vision | I took Topamax for 1 week @ 25 mg prescrived by my PCP. Increased the dosage to 50 mg the next week, and after 2 days on 50 mg I had blurred vision. Immediately stopped taking the Topamax, and was put on IV steroids. This is the scariest thing I have ever experienced. I was headache free for 2 days over a period of 10 days. Not worth it. I am under the care of a nurologist and will look into other therapies. Not a migraine medicine in my opinion. | F | 33 | 10 days | 3/18/2007 | 3 | migraines | All carbonated drinks taste flat (I thought it was just me!), tingling fingers and toes, lethargy, mild depression | I've been taking topamax for about 3 months, and I'm still getting migraines, but they are lessening, at least. I'm hoping they go away completely, soon. I used to get them what seemed like every weekend when under a lot of stress, and now it's been almost 3 weeks, so something must be going right. I feel a little depressed, though. | F | 27 | 3 months | 3/17/2007 | 3 | Reflex Sympothetic Dystrophy / Pain | Headache, Swollen sore Gums, Confussion, Tired, Muscle twitches, weight gain, hunger (I know odd), Heart burn, did I mention confussion! | I have taken many drugs over the past 22 years. Topamax does reduce the pain. I always said that the only thing I had left was my mind, that my body was nearly gone with the pain, like a migrane all over your body every day for 22 years, then came along topamax. I took it for several months. Just couldn't get used to the brain fog and stopped. I became near bed ridden again. I finally restarted topamax again. I have taken it slower this time around and will deal with the cofusion if I must, it is much better than living in pain. | F | 41 | | 3/16/2007 | 5 | Bipolar II | Tingling in hands & feet, problems with my speech and some irritability, both of these side effects went away when I staggered my doses 3 times/day instead of all at night - Carbonated drinks taste flat, weight loss =^) | In my opinion, if you're a rapid cycler bipolar patient who often self medicates like me, then topamax should be the first choice of treatment because it works great. I have tried everything from Depakote to Lamatacil, Depakote causing heath concerns (high blood pressure due to annoying uncontrollable weight gain) and Lamatacil gave me tartitive dyskenisia...so finally my pdoc prescribed me topamax, which has taken away all desire to self medicate with alcohol, etc and has stopped my rapid cycling dead in its tracks...for the first time in my life I feel "normal" and it feels great. I find that by staggering the doses 3 times a day is the best way to stabilize my moods, plus it stops the irritability that I found I got when I took it only at night - Also, a good remedy for the cognitive "stupidness" that is associate with this drug is if you take Omega 3 fish oils with DHA/EPA (found at your local health food store, make sure you get the one free of heavy metals) | F | 24 | 4 weeks | 3/15/2007 | 3 | migraines with fainting | confusion, forgettfulness, dumbness, tired grades -have went down at school | Have not fainted once since on medication --still have occasional headaches dosage at 150mg now | F | 16 | 9 months | 3/14/2007 | 4 | daily chronic headaches | tingling hands and fingers, loss of words, difficulty talking | I was hestiate about taking Topamax (all the bad side effects)but after trying so many other drugs, I was ready to try anything. Besides all the side effects, this is the best I have felt in 7 years. I am at least functional in the world- sometimes I can't find the words to actually say what I want to say but I am no longer laying on the coach or have my head pinned between two pillows because of all the pain. I am not painfree but I am at least among the living :) | F | 42 | 2 years | 3/12/2007 | 4 | Migraines | At first tingling in fingers, toes, and nose. Now that only occurs if I forget a dose (it is actually a nice reminder.) Side affects that are still occuring: Carbonated drinks taste awful, the effects of alcohol are unknown (for example one night I can have 2 martinis and be fine the next night have the same and feel wasted. But I certainly cannot drink a lot the combination of this drug and alcohol are BAD.), sinus issues- constant runny nose and some nose bleeds, loss for words, weight loss | I have been able to deal with most of the side affects, but now the loss for words and sinus issues are really starting to get to me. I often feel really dumb when trying to articulate something. It will all be there in my head, but I will not be able to get the words out. I have to be careful around my employees because if I just start speaking quickly and not really speaking slowly the wrong words come out all together. I asked my husband the other day to start telling me everytime he noticed me having issues with this and in 2 days he must have said something at least 10 times. My goodness what do my employees and boss think of me, must think I am a total ditz! Also, I have been back and forth with the doctor about allergies and sinus issues, but I am now convinced it is the Topomax. I have tissues everywhere. On the other side of things for the 1.5 years I have been on this my migraines have significantly decreased. I went from having headaches almost every other day to | F | 26 | 1.5 years | 3/12/2007 | 3 | addition to an existing medication | Weight loss, cannot concentrate, anxiety attacks, palpitations, leg twitching at night, forgetfulness, | I was told about this site by a nurse. I am on other meds,( Trileptol,Lamictal,Adavan,Lexapro). I cannot tell for sure that my side effects are from topomax but I was on it once before for 6 months. I fired my Doctor since I couldn't function. The new one has me feeling normal again day by day. It is nice to have a place to interact with people who have experienced this drug. This dr. wants to keep me on topomax and off lamictal. I also have had a libido that won't quit. I've had my "friend for 14 months" that has now stopped. I would like to just keep in touch. | F | 42 | 5 months | 3/12/2007 | 5 | migranes | tingling in hands and feet, and i get very tired, | though i still get random times of where i cant see, its great my migranes have gotten a lot betetr and dont come as freequently. | F | 15 | 2 weeks | 3/11/2007 | 4 | depression | Tingling in hands for about a month off and on. ALWAYS tired. I can sleep 14 hour nights every night easy. Communication is sometimes diffult. Slight loss of apetite. | This medication has been very helpful. I get very frustrated when I can't remember words or when I'm in the middle of a story and my brain goes blank. I preach at a bible college and this medication has made me a lot more reliant on using notes and keeping my thoughts clear because I'm probably going to forget what I'm talking about. | F | 23 | 4 years | 3/11/2007 | 1 | epilepsy | living in space., no communication and speach. | at firs we thought it was working ,but after a month fits increased .we started to decrease dose and child got better and better until we stopped all medicine . | F | 2 | 370 days | 3/11/2007 |