TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  Dizziness, & Acephalic Migraines REALLY bad typos, loss of words, major loss of appetite, really bad restlessness, joint pains, lack of energy, soda tastes like cough syrup, kicked up my insomnia, hard to do school, stomach ache but that’s probably from not eating, bone chills, just overall lack of intelligence, over heat at night, and hard to fallow conversations. I’m so happy to see these side effects are the pills and not me. I have been taking 25mg at night for about two weeks now, I’ve been taking it for dizziness, and acephalic migraines. I think it has helped with the dizziness, BUT the side effects just aren’t worth it. My body can’t afford the weight loss, plus I love to eat and nothing sounds good anymore. It has also made thinking almost impossible. It’s so hard to concentrate, spell, or think of and use words correctly. I’m usually a really calm, laid back person but topamax makes me so restless I can’t stay still whatsoever, and when I do get to sleep I’ll wake up tapping my foot. I also get awful bone chills that make me shake for a good 10 minutes. If I sit in one spot for a short amount of time and then move my joints will hurt, which isn’t normal for me. It also causes back pain when I take a shower.I don’t sleep much anyway, but the pills have not helped my problem at F 16 2 weeks
12/28/2007
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 4  Constant Daily Headaches Lost weight.. about 20 to 25 pounds.. that I did not need to loose.. I went down to size 0 from size 4... Another side effect or maybe side effect that I want to ask women about.. First of all I stopped having periods.. So, my gyno wants to put me on birth control pills.. ( because of all the weight that I lost)... the second maybe side effect, yeast infections... did any of you notice yeast infections????? I started having yeast infections every months about two months after I started Topamax... It did help my headaches... they are gone.. after two years.. M 27 7 days
12/27/2007
 5  migraines, bipolar, addiction, weig good sleep, increased appietite The comments on this site had me so afraid I almost missed a great thing! I couldn't imagine getting any stupider then I already was. I finally got the nerve up to take 25 mg. Didn't feel a thing. Had to take 50 mg. Got tired. Slept good that night and had better mood, clearer thoughts, all around better. Called Dr. upped to 75 still not at max dose. Just hoping Dr. won't stop right before the miracle because I can tell this is the drug for me. Except the weightloss thing. Taken the obession of alcohol and drugs away. Lifted the haze of depression slightly for the first time since I don't know when. I feel sorry for those who have such bad side effects. F 39 4 days
12/21/2007
 3  Epilepsy Anorexia/some bulimia, Weight Loss (30 lbs!!! In A month and a half!!), Depression (already have depression so this was NOT good), Suicidal thoughts, made my acid reflux worse, aches and pains, severe Brain Fog, headaches, Aphasia, forgetfulness, Memory Loss, fatigue...and yet insomnia too so i had to dose myself with Benadril, ugh!, WORST MENSTRUAL PERIODS EVER!, Parasthesia (in my feet, heels, hands and...cheeks? WEIRD!), blurry vision, Inexplicable rage and annoyance at even the smallest things, inexplicable crying spells, Chest tightening, hair loss...this is ALL only on 25mg...ramped up for a while to 200 and nothing (side effect wise) really got much better except for maybe ONE day. If i missed ONE dose, i'd have to ramp back up again because my body was just so sensitive to it. Oh, and coming off of it isn't too great either. DEPRESSION. This drug is CRAZY! I took this medication for Epilepsy and holy crap this medication is one hell of a drug..and not really in a good way. The ONLY good thing about this medication was that I lost 30 pounds...but i lost it too fast in only a month in a half (though i worked out vigorously as well). Granted, it WAS my 'genius plan' to switch my seizure meds to the one that would make me lose weight but...not at the expense of my sanity! I was SO sensitive to this medication at even 25 mg it was insane. Rage, annoyance, crying spells, depression...i was a MESS. The last straw was when I last had my Period and i had HORRIBLE shooting pains through my Uterus and up to my breast and chest tightening with left arm pains...i thought i was going to have a heart attack or something. Don't take this med just for weight loss and if you do drink LOTS of Cranberry Juice and water! F 20 8 months
12/19/2007
 1  migraines tingly in fingers, diarrhea, weight loss, hair loss It didn't decrease the number of migraines I had F 55 21 months
12/19/2007
 5  Migraines Insomnia is the biggest side effect for me. Tingling in toes and fingers, mild hair loss which stopped *AFTER INCREASING VITAMIN B INTAKE*, occasional diarrhea, trouble coming up with the "right words", cognitive difficulties. I get hormonal migraines, and Topamax has made a world of difference for me! I used to get severe migraines, and now I might get one once every other month, and they're less intense. The biggest issue I have now is the insomnia. I take 100 mg in the a.m. to avoid sleeping issues, which has worked for over a year. But due to increased headaches my doctor just increased the dose by 25 mg which I have to take in the afternoon, and now I'm averaging 3 hours sleep a night... other than that, I love Topamax! F 48 14 months
12/18/2007
 1  seizures Major Major depression!!! I just wanted to die. All I would do is sit in the window and look out and cry. I was mean to my family and did not want to do a thing. Once I was off of it for a few days my depression subsided, Thank God! I couldn't take that anymore. F 47 1 months
12/18/2007
 3  Binge Eating Disorder Acne, rash, some tingling in the extremeties. This is like a miracle drug for binge eating disorder. It influences taste and helps you to realize when you are full. For example, I was eating sweets such as ice cream every day, and within a week I was no longer craving carbs and sugar, but apples and salads. It also helped me sleep, stabilized my moods, and I stopped having thoughts about hurting myself, even if I happened to binge or eat alot one day. I've been on and off it for a year because within a week of taking it I would have small breakouts on my face, which would get progressively worse until after about 16 weeks I would develop a red, itchy rash. The second time I was on it, I had to go on antibiotics to get rid of the rash on my face, which was irritated by heat and radiation. If you're not allergic to anticonvulsants, this drug is very helpful for binge eating and bulimia. F 21 1 years
12/17/2007
 1  MIGRAINES Terrible hair loss. Could never find the right word I was looking for. Started on 25mg for about one year but headaches were still coming. My neurologist increased me to 100 mg gradually. Only 2 days on 100mg when my hair on the right side was pouring out. Immediately stopped all meds. Only had 2 migraines in 6 weeks. My Dr. said it would have taken him hours to tell me of all, the side effects but only me and one other person in hundreds had hair loss problems. I would bet there were more people. It was enough hair loss that I purchased a hair piece and have spect hundreds of dollars on persciption shampoos and sprays plus solumedral scalp injections. Now I am ready to start a class action law suit against the drug company. Email me if you want to be in on it! F 60 1 days
12/13/2007
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 4  Severe Migraines Tingling in Hands, and face, Soda tasted strange. Side effects dissipated after a few weeks. Before taking topamax i would get 4 migraines a week lasting 12-18 hours even sometimes even with imitrex injections. Now during a bad month i'll get 4-6 total. I was on the lowest dose 50mg 2x a day, but i have now been moved to 100mg 2x a day. there are other drugs out there but this has been extremely effective for me. M 25 2 years
12/12/2007
 3  Weight loss & blood pressure Blurred vision, dry eyes, and worse of all my wife says every single day "you need a shower! " even though I just took a shower. It's the metalic aroma permeating thru my body. I work in a office and have to spray Lysol before someone comes in because I stink so bad from the Topamax, but I am loosing weight and my blood presure is under control. Peeeyooo, what a way to have to do it though!!! My skin stinks metalic. Went to an eye doctor for the blurred vision. He said eyes are ok, no Glaucoma, no Macular degeneration. Advised me to use Liquid Tears. Made no connection to Topamax! Your medical dollar$ at work!! Go figure. I think this is a good drug. but wow, what side effects. Regular blood pressure medications didn't work very well on me, but this seems to work fine, but oh, the smell. I now have a lot of respect for the East Indians who eat curry and work in the enclosed offices. M 68 30 days
12/8/2007
 4  migraines nausea, diarreaha, tingling in toes, weight loss, depression, food and soda taste weird, I have been on this drug for about 6 months. I was 174 and I am down to 152 which is good, the side effects were not too bad but I feel it caused my severe depression. I am thinking of taking myself off the drug..my doctor has put me on lexapro for depression and wants me to stay on the topamax as well but for some reason I dont have a good feeling about it. I feel there will be something unbalanced. Worked wonders for my migraines though! F 26 6 months
12/7/2007
 1  migranes & mood swings numbness in hands & feet, changed taste of things Initially I noticed that I could not drink anything carbonated because it tasted like poison. Then I could not feel my hands or feet for 20 minutes at a time. I d/c'd this medication. F 27 1 months
12/2/2007
 2  migraines and daily headaches Brain fog. Severe mood swings leading to scary rages. Acute depression. Suicidal thoughts. Food tastes weird. Paranoia. Detachment from any and all sources of joy. I took my 50mg dose as directed by my doctor at night. I've always been a very well-adjusted, even-tempered, optimistic, happy-go-lucky individual. I've never had any psychological or emotional problems, other than a little bit of depression when I lost a loved one. I get a little moody during PMS, but really, I'm very mellow in demeanor. Topamax flipped some switch in my personality overnight, and it was very scary. I couldn't stop crying. I felt that I had nothing to live for. I felt detached from everything, and I didn't know who I was. I wanted everything to stop, and I had no idea why. I wanted to die. I've never felt anything like that before. I also experienced some very scary rages, screaming at strangers, almost causing bodily harm to someone who cut me off in traffic. I'm not a very violent person. I've never been so out of control angry before. I became increasingly paranoid, worrying, and fretting over every little detail, unable to stop fixating on the dumbest of things. I F 31 1 days
11/30/2007
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 4  Migraine fatigue, confusion, memory loss I have been on topamax for about two years now. I was gradually ramped up to 100 mg a day and had to take them at night b/c they made me so sleepy. I have to complain only about the memory loss and confusion. I feel like a complete air head, and it has affected my work performance in a serious way. I have been "written up" for forgetting to do basic daily tasks that are the basis of my job, and extremely important. I just space out and stare off into space. My boss says my eyes "glaze over" when he's talking to me and it makes him crazy. I've tried to explain to him that these are side effects of my medication, but, he doesn't want excuses. He wants me to do my job, and I want to be able to do my job. My self esteem is suffering a great deal, and I have gone back to some self harm behaviors and depression that were being controlled by Cymbalta. I am going back to my doctor as soon as I can to see if we can adjust dosage to get me out of my stupor, b/c the F 37 2 years
11/28/2007
 1  seizure disorder depression, apathy, confusion, mixing up words or parts of words, extreme forgetfulness, wild mood swings (yelling at someone and sobbing the next), weight loss, insomnia, sweating way less, body odor(gross!). I've only had a handful of seizures ever, and I had 2 on this med. 40 pounds of depakote weight: gone! After being depressed, apathy set in. I couldn't be bothered to eat, sleep, do homework, or socialize. Then came forgetfulness. I couldn't remember when I had class, quizzes, why I was getting up at 7am, or what day it was. Then I started to smell funny. Then I was just pissed at everyone. It didn't work for me, but I know it has for other people. Good luck! F 21 9 months
11/28/2007
 4  bipolar II disorder/ mixed episodes weight loss (20 lbs), loss of taste of carbonated drinks, occasional slight tingling feeling in my hands and feet (especially if I've had a drink), no tolerance to alcohol topamax has really helped control my mood changes. i think it is also a good drug for people with trouble controlling their appetite for food and alcohol. F 21 8 months
11/27/2007
 4  Epilepsy,Migraines Tingling and pins and needles in my feet ( Severe), tingling in my finger tips. extreme exhaustion, inability to concentrate, horrible gas cramps, constant diarhea. My doctor put me on topomax the minute i was diagnosed with Epilepsy, as it was a multi purpose drug not only is it an anti-convulsant but it is also a migraine medication. I find i get less Migraines and feel safer in public with my epilepsy however with my energy so low some days i wonder if the pro's really do out way the cons?? I find i use Immodium alot, and am hunched over in pain from the gas cramps it really depends on the day as to how greatful I am. So far all in all i suppose its not that bad the alternative was a drug that would potentially make me gain weight and I really don't need help in that department. I also find getting motivated is very hard, and once i do keeping myself focused on that certain task is extremely difficult. Hopefully it will get better. F 23 6 weeks
11/23/2007
 3  Migraine Blurry vision - near and far, extreme drowziness, difficulty concentrating. The Topamax seemed to help my migraine. 11 months ago I had lasik surgery and have been enjoying the pleasures of clear, sharp vision for the first time in decades. After one 25mg dose of Topamax, that all went away. I could not read street signs, the numbers on the clock, and barely enough to type this comment. It's affected my vision near and far. I'm hoping it will wear off and I will completely recover my eyesight. I am a chronic insomniac and have been since a small boy. I average 1-3 hours sleep per night and often have several consecutive days of no sleep at all. The Topamax completely knocks me out and gives me 6-8 hours of sleep, but I wake up sluggish, disoriented, and this will last for most of the day. Losing my train of thought and the inability to focus makes my job almost impossible to manage. Having said all this though... it has helped my migraines. I went from the Emergency Room "Please somebody just kill me" headache, to the "There may be a cure after M 54 5 days
11/21/2007
 5  severe frequent migraines weight loss, which is ok since I gained weight on other migraine preventives, soda tastes funny, but that's ok, who needs it? I don't know if I have any cognitive side effects because I already have them from hypothyroidism, so it's hard to tell if I've gotten worse. I love this drug. I'm so glad I don't have any major side effects because so far there has been no other preventive that works for my migraines, and in some years I have had them daily. Once, on depakote I was gaining 10 lbs a month, and still getting migraines several times a week. I get menstrual migraines in addition to 'regular' migraines the rest of the month, and I'm too old to use the year round birth control pill to prevent those. So far, topamax is my best option. F 45 1 years
11/18/2007
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