TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  taking paxil, topamax for headaches i am finding the topamax to make me feel really good. i am experiencing a very bad taste in my mouth though. I am not likeing that much. I have had a lot of muscle spasms going on in my neck too. Other then that i'm pretty happy so far. I take 5o in the morning and 50 at nite so far. F 36 1 months
9/30/2004
 3  Migraine tingling fingers & toes; soda tastes terrible; zero sexual arousal; some weight loss; have an occasional loss of words I'm taking 75mg/day... it has eliminated the constant mild daily headaches I was having, but I still get the whopper monthly headache (hormone related). I have to take Zomig for those... I'm holding out hope that they'll eventually cease, too. The tingling eventually went away, I'm enjoying the weight loss, don't miss the soda (maybe that's why I'm losing weight - I was drinking an awful lot of sugar), but I sure would like to enjoy sex again. I didn't realize the loss of words could be related until I saw others report the same... it comes and goes. None of these are enough of a bother yet to stop taking the drug, I'll decide in a couple of months if the whopper headaches ever go away. F 35 2.5 months
9/22/2004
 1  tremors, migraines, chronic pain Weight gain (20lbs in 5 weeks)hair loss, eye pressure increased, double vision, brain created myths of people and conversations, events, became agitated and beligerent, bruised and broken out skin, sinus, It's a wonder I stayed on it so long, and that I didn't kill myself while on it (closely watched by doctors, though... nasty drug. Did not help my pain one iota but did reduce vertigo, tremors and migraines! One wacko drug. F 52 5 weeks
9/19/2004
 4  migraines tingling feet and hands and extremities went away after 8 weeks or so loss of appetite- a good thing! lost 10-12 lbs~ been on Topamax 200mg for 1 1/2 yrs along with Zoloft 100mg for chronic migraines and chronic daily headaches. It helps immensly- except for the hormonal ones- I use Axert for those monthly monsters. After trying several migrain preventors from cardio-alpha blockers to every anti-depressant on the market this combination has seemed to work for the past year or so... F 37 1 years
9/14/2004
 2  seizure severe hair loss, insomnia, memory loss, no motivation I have memory loss, I have never slept through the night once since I have been on it. I have been on it for 2 years 6 months and the reason I haven't switched to another medication is because I am allergic to several other ones I have tried. I haven't had any more seizures though. F 49 2 years
8/18/2004
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 4  migraines Side effects include brain fog which ranges from the loss of words to slight memory lapses, tingling in extremities (pins and needles), extreme thirst, weight loss, insomnia at higher doses, lethargy at lower doses, interference with oral birth control. Overall, topamax has been a blessing to my chronic migraines. They have reduced the frequency and intensity of them, except for the hormonal migraines, which they haven't helped with. Worst side effects? Brain fog and birth control problems...but, I'm still with the drug, stand by it and take the side effects over the pain! F 31 1 years
8/13/2004
 4  bulimia-bingeing 2 months of horrible taste in carbonated drinks, sitting still i felt as if i was tilting sideways sometimes, first few weeks some drowsiness, fatigued easily esp. at end of day. made me feel very full after eating a small amt, esp. after doseage being doubled, which was the goal, to stop the binges. However, as far as purging, actually made me want to more after eating even small amount b/c of the over-full feeling, but am better able to resist b/c that part of the brain is better regulated now due to the drug, and, b/c i am receiving counseling along with the drug. Am still not 100% but bulimia is a mental disorder and a drug cannot cure it alone, so this is pretty much as good as it gets, as far as the Topamax gets. I do hate taking 4 pills a day tho. Why not make an inbetween doseage instead of going from 2 pills a day to 4? Why not 2 low dose to 2 higher dose?? The price is twice as high now due to buying twice as many pills! F 27 3 months
8/12/2004
 2  Migraine Prophylaxis Severe language disorder. Loss of words although the picture was in my mind. Confussion and loss of organization to the point of routine tasks now completely undoable. Over sleeping and depressed motor activity yet loss of huge amount of weight. Going on Topamax was a nightmare. I outside my body and watching myself. I started at 25 mg and that dosage was enough initially to rid my migraines for three months. I went up to 50 mg; same effect and migraines disappered for about 2 months. I went up to 75 mg, no strange effects and migraines disappeared for about 5 months. However, now the migraines are back worse than ever - 1 or 2 a week and some lasting 3 to 4 days. Imitrix and its cousins have no effect. My chloride level in my blood is slightly high and my GP wants me to increase to 100 mgs. I am resisting until a memory/cognitive testing is complete. I am on other drugs for other neurological conditions. F 43 18 months
8/2/2004
 4  migraines spaciness, loss of memory, ammonia urine, sinus problems - and only on 25 mg per day! cut back because of concentration problems and although it does seem to help the migraines, am re-thinking the side-effects seems to mask the migraines - still some break-through episodes where Imitrex is the life-saver F 54 60 days
7/31/2004
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 4  migraines Tingling in hands and feet - worse in feet; hair loss;lost 22 pounds; significant word finding difficulties; mild agitation at times; and bleeding gums now. Carbonated beverages taste like crap. started out with 25mg daily worked up to 130mg. At top dose, I think is when I started losing my hair & now my gums are bleeding. Has significantly helped my migraines though. Went from12 migraines/month to 2/month. But, not sure if I can live with the no hair! So, the drug works but the side effects are beginning to be bothersome. F 33 7 months
7/28/2004
 5  Migraines Minor Dizzyness and some minor speech problems (I have learned to slow down and think a few more nanoseconds before speaking)but none of the other major side-effects posted with the drug I've been taking Topamax for for 1.5 months. My average Imitrex injection rate was 12 per month. Since starting the Topamax, I have had three Imitrex injections, one when I had just started taking the medicine, one after driving for about 12 hours, and the last one after a 17 hour flight. I am feeling better now than I have felt in years. I started at 25Mg/day for 2 weeks and am up to 25Mg 3 times per day. I will stay at this rate for a while to see what happens. I am very happy with Topamax and would recommend it to anyone with migraines. Just don't ever start right in with a high doseage! M 39 45 days
7/14/2004
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 5  seizures weight loss, tingling in hands and feet, hair loss Benefits of the drug far outweigh the side effects. The only drug I have taken so far to that has controlled my seizures. F 44 4 months
7/13/2004
 2  Basal Ganglia Calcifications/Shakes More tremors. Dry mouth. Slurred speech. Loss of memory- which I already had- now it is worse. Short term and long term. I also get dysphasia after eating and have sharp pains in my stomach which I also had before due to a surgery and now the symptoms have spiked. I would only recommend Topamax if you have tried everything else and your doctor has great faith that this will truly help your symptoms. Feel free to e-mail me for more information or comments. M 22 3 days
7/13/2004
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 5  back injury resulting in severe ner at first, unbelievable detachment and spaciness, but very shortlived, occassional forgetfulness, however the pain relief trade-off and hyper sensitivity relief I have gotten is well worth it. Yes, appetite is down but that's a good thing. weight loss did occur, but ok...cool with that too...it helped to take pressure off of the back. I was warned by my neurosurgeon to have a baseline eye examine prior to beginning topamax and I did and was not at risk ... I have 6 mo. prevention checks to assure he and myself that all is cpoasetic(?) w/ eye situation , altho I find when I am exceptionally fatigued , I do notice trailing and never did prior to taking this medicine. F 42 1 days
7/11/2004
 5  Fibromyalgia-related chronic pain I had pins and needles side effects sometimes, but if I took vitamin B-6, it went away. I also lost 40 lbs. over 6 months, which was great because I needed to lose it, plus a lot more. The only bad side effect I've noticed is that I've been unable to have an orgasm. Now I am ready to come off of this medicine, but only for that reason. Will discuss this with my doctor on next visit. It greatly diminished my chronic pain from fibromyalgia. Also made my muscle cramps and spasms go away totally. All this on a somewhat F 45 10 months
6/14/2004
 1  mood swings Loss of taste (couldn't drink carbinated beverages, sweets), agitation, forgot common words and phrases, hair loss. KIDNEY STONES which landed me in the hospital for 10 days. I kept putting up with the side effects because it did help my mood. However, after the hospital stays which were directly related to the drug, it is apparent that this drug is NOT WORTH IT! F 41 10 months
6/9/2004
 5  Acute Migraines Pins & needles in extremities and nose would be numb. Couldn't drink soda- tasted metallic. Before Topamax, was getting Migraines 2-3x per week. Now get migraine 1-2x per month. And when I do get one- it is not as severe. The side effects of the drug do go away after about 2-3 months. I am taking 200mg twice a day. I started at 50mg 2x per day and worked my way up over 2 months. 40 3 months
5/25/2004
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 2  Migranes Tingling in my hands and feet which was almost painful it was so strong. My ability to think and problem solve was slowed, plus it did nothing for my headaches. F 27 2 weeks
5/25/2004
 2  Bipolar disorder Memory loss, serious cognitive impairment, speech problems The brief period of weight loss on this medication was not worth the other side effects. And it did nothing to help with the bipolar disorder. F 51 5 months
5/19/2004
 1  
5/18/2004

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