TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  For migraine's I have experienced the following: Tingling in my arms and legs, hot flashes, loss of appetite, loss of hair, food tastes different, frequent urination, irritated bladder, sleeplessness, fatigue, confussion, unable to form a sentence, unusual menstral cramps, imparred vission. I am trying very hard to stay with this drug. This is my second attempt to get to 100mg. I have been at 100mg now for 10 days. I go from nights without sleep to days not being able to drag myself out of bed. I am very fortunate to have a understanding boss or I would not have my job! F 49 1 days
5/23/2006
 1  Temporal Lobe Seizure Where to start. One week on Topamax I lost 10lbs. For me that is alot considering I'm 5'1" and was 115lbs to begin with. All food and beverages tastedawful. I would lose my appetite for days and I have to force myself to eat. When my appetite would return I would be able to eat all day nonstop. I get tingling throughout my leg, feet and hands, twitching of the face, major hairloss. By major I mean I have lost half my hair and am still losing it by the hand fulls. No matter how much sleep I get when I finally am able to go to bed I am still tired all day long. I have mood swings daily, chest and stomach pain. I experience headaches almost daily now, hot and cold flashes, memory loss, dry skin, no sex drive and dejavu all the time. I've never been sick in my life since I've been on Topamax I've be sick quite often and had more wrong with on this drug than in my life time. I have probably forgot some of my side effects but these are the most important ones. For those of you that Topamax is working good luck. I've been on it for 3 1/2yrs and the side effects have not gone away yet, they just keep getting worse. I finally got my Nuero to start taking me off it by the end of June I should be off it completely and starting to get back to normal. For those of you taking this for wake loss its not worth it. Its pretty bad when I have my Nuero asking what side effects I am having because people are going to him with side effects that he has not heard of and he knows I have so many. I wouldn't recommend this to anyone. F 26 3 days
5/22/2006
 5  Bipolar, Depression, Anxiety Weight Loss,Hair Loss,Tingling hands/feet, memmory/word loss in the beginning which is now better clarity than ever! Dull sttomach ache. This is a wonder drug for me. I gained 150 lbs while taking Depakote because I was constantly hungry. I have lost 81 lbs since taking Topomax and I feel mentally better with this drug that any other I have ever taken. I have been mentally ill for over 30 years and for the first time I feel "free" :) F 58 8 months
5/18/2006
 4  Bipolar II Tingling in toes and hands So far this med has been good for me. the tingling is nothing I cant deal with. I am at 125mg no real app loss and no cognitive problems. I have been off and on meds 15 years and so far (fingers crossed and tingling:) this looks to be the one. My moods are better my engry level has encreased. No one ever know until they try. F 35 4 weeks
5/17/2006
 5  complex migraine tingling in fingers and chin, can't detect carbonation unless very potent, loss of appetite, minor weightloss (only as much as you can afford-I think), I used to workout for 2 hours a day--running for at least an hour now I can't get through 20 minutes without stopping, but I can do everything else. I am migraine free and know what it is like to wake up in the morning without the fear of getting one, a freedom that I haven't known for sometime. I really got on this site to read about other peoples experiences, I was really apprehensive after I read about some of the side effects. I came to let others know, that I have had nothing but a positive experience, that there are a few very minor side effect for me, but I now can live my life. I have not had one migraine since I began taking it over a month ago. Over the years, I have tried Imitrex, Maxalt, Crainosacral treatments and Chiropractics, dietary changes, vitamins and other supplements, nothing worked, not even temporarily. F 28 6 weeks
5/15/2006
 4  Chronic Daily/Menstrual Migraine Fatigue (NO interest in exercise), Complete loss of libido, almost to the point of AVERSION, as well as difficulty reaching and significant dimishment of orgasm, flakier than usual, more switching and grasping for words than usual I have only been taking 25 mg at night, and for only a month, and have felt the side effects to be very mild and tolerable, with the exception of the sexual side effects. They were immediate, and WITHOUT other explanation (to refute a dismissive comment by my neurologist regarding the "complexity" of female orgasm). I was delighted to find such a small dose almost immediately effective for interrupting the chronic migraines (where triptans were failing with alarming frequency). I was disappointed to have two menstrual migraines in the last couple of days, but they also seem less severe and more responsive to triptans than had been the case prior to starting Topomax. This is still very early, and hopefully these SEs will lessen, even if I have to (probably) up the dose. Just wanted to corroborate the negative sexual effects. What a sad day when we have to choose between welcoming intimacy with our husband and an otherwise blessedly pain-free existence. F 29 1 months
5/15/2006
 1  Daily Migraines Unable to think straight, giddy, memory problems When my daughter (age 12) was on this medicine (25 mg for four days, 50 mg for one day), she kept saying she felt weird and couldn't think. She was goofy and silly and laughing and said yes she had a migraine and yes it hurt but she didn't care! She tried to do her language arts sentences, simply combining one subject with two verbs, and cried because she couldn't do it. The neurologist said these side effects may get better over time or they may not. We stopped the meds that day! A ray of hope: Lately every time she goes to the chiropractor her migraine goes away! F 40 5 days
5/13/2006
 4  Pseudotumor cerebri Tingling, some language disorders, loss of 20% of my body weight Mostly I experienced an extreme weigt loss. I started the drug at 125 lbs and fell to 100 or so in 1.5 months. It became so extreme I was diagnosed with amenorrhea, and when I discontined the drug and had some weight rebound, I had tendencies toward anorexia and bulemia, weighing only 110 lbs. For someone who's never had a body image issue, this drug caused me to feel fat although a size 0 is often too big. But the headaches were gone. F 20 8 months
5/10/2006
 1  mood stabilizer for bi-polar Severe memory loss and other cognitive impairments. Major weight loss. I know others who are quite satisfied with this medication but for me the side effects were terrifying. I was a menace on the roads (couldn't correlate red light with "stop")and would get lost. Couldn't recall words. I would frequently lose track of what I was talking about, what I was supposed to be doing, or why I was where I was. A nightmare that cleared as soon as my doctor switched medications at my request. F 55 6 months
5/10/2006
 1  Migraine Prevention I had itchyness, mainly of the upper body, lost the taste of carbination after just 1 pill. I was really hot, like I felt like I was going to explode from being so hot, and I was in like 65 degree temp. It also made me feel very..emotional..I wanted to cry and hurt something at the same time. I have severe migraines, but I could not tolerate the drugs, probably not even if it promised to never give me another migraine EVER again. I'm going back to my nortriptyline and will deal with my migraine here and there. I was also worried about being able to drink enough water to help prevent kidney stones which it increases the risk of. F 19 1 days
5/6/2006
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 5  migraines tingling(feet,hands,face,scalp)dry mouth,change in taste, loss of appetite, dizzy when getting up quickly, change in menstrual cycle This is my second try with topamax, the first time the doc put me all the way up to the full dosage, and this time he is keeping me at 25mg only. I love this medicine at a low dose. It works great for migraines, i have been pretty much migraine free since i have been on it, and i was getting them every day. i have to be careful of the weightloss though, i am a very thin person to begin with and the doc said that he will take me off if i lose any weight, so i force myself to eat. F 38 13 days
5/4/2006
 5  Bipolar 1, migraines Initially,tingling in hands and feet. Initially, SEVERE nausea. I lost my appetite when I started on this drug. I have to force myself to eat most of the time because my stomach is always full, and food just doesn't taste good. I lost twenty-four pounds 140 pounds - 118 pounds in three months on this drug. Now I'm back up to 125, but it takes effort. Despite the weight loss problems, I am loyal to Topamax. It has saved my life. I've heard many Dr.'s slam this med, saying it has no use in the treatment of bipolar disorder, and that frankly, makes me very angry b/c they are the same dr's saying Lamictal works great (Lamictal didn't work for me). Perhaps that's why Topamax isn't FDA approved for Bipolar. I'm glad I'm not on Medicaid. Then it wouldn't be covered. I didn't respond well to most of the typical bipolar medications, but my response to Topamax was wonderful. It worked on both my depressions and my manias (mostly the manias). I'm on 300mg. My doc tried to reduce it to 250mg to help with the appetite, but I got hypomanic. I stopped getting migraines, which I've had since 18, when I reached 100mg, and I asked my Dr. if there was any correlation!! So I have an added benefit. F 27 2 years
5/4/2006
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 4  Migraines Pins and needles feeling, BAAAAAD loss of memory- severe "Blonde Moments" loss of appetite No headaches AT ALL...its worth not being able to feel my feet most of the time F 20 2 months
5/3/2006
 5  chronic migraines, basilar migraine difficulty finding words, dizziness, soda tases funny--not a problem, I live in the South and drink tea instead :D I've had migraines since I was 5; over the last two years they became pretty much constant, I'd usually go blind in one eye, sometimes have stroke symptoms. I've been taking 50mg Zoloft and an aspirin a day (got rid of the auras, but still daily migraines). Since I started taking 50mg Topamax a day (in addition to the Zoloft), I haven't had a single migraine or anything. I had forgotten what it was like to be able to just go to class and walk around without worrying about getting sick. The side effects are NOTHING compared to what I was dealing with daily. (Drawing a blank << Aphasia) Hooray Topamax! F 20 14 days
5/1/2006
 4  Bipolar Weakness, feeling dumb, unmotivated, lost weight it works ... maybe too well !!! F 20 7 years
4/27/2006
 4  Migraine facial twitches, recall memory trouble eliminitated migraines in one calendar year. twitches were due to missing a dose when i could not get to the pharmacy on my refill date. If my prescription plan allowed some flexibility, that would not have happened. the memory troubles subsided in a month, but popped up again a year later. could be reaction with another medication i take for my seasonal allergies? This drug seems to fix neurological problems by re-mapping the synapses in your brain. Unfortunately, it doesn't discriminate between the synapses causing siezures, migraines, and other problems, and the ones storing memory and emotions. F 33 1.5 years
4/27/2006
 5  chronic daily headaches, migraines soda tasting flat, weight loss, decrease in appetite, fatigue, difficulty concentrating, tingling in hands and feet, difficulty finding words. I rarely eat 3 meals a day and this just started when I started taking Topamax. My doctor never told me any of these side effects before I started taking Topamax, but when I started - my headaches were absolutely awful, so living with these side effects (now that I know what they are) is fine with me...I can function like a normal person. The weight loss wasn't much, but it was a nice benefit! F 23 3 months
4/26/2006
 4  Migrane Carbonation taste awful, kidney stones, during titration period experienced meoments of memory loss but after adjust this went away, feel fatigued at times, hard to concentrate, weight loss, thrist. Up to 200 mg now, migranes are gone! Wonder medication F 29 1.5 years
4/26/2006
 5  Headaches due to brain tumor Hands and feet painfully tingle. Forget things, words, events. Hard to pay attention. Soda, especially colas taste flat, kinda soapy. Some foods taste different. Increased thirst. Weight loss. I can be fine one minute, then space out, forget what I'm doing the next. I forget where letters are on keyboard in the middle of typing. Balance is off. Lost more eye site since starting Topamax (not sure if due to med or tumor)I'm cold more, needing a sweatshirt often. (I usually wear shorts year round!) I didn't realize how much pain I was putting up with until starting this drug. I'm feeling better than I have in over 3 years. I've got a benign, inoperable brain tumor and it got to the point that I was living with constant, severe pain in my head for over a year. I was at 100 mgs a day, but am going up (now 125mg/day) due to some pain coming back. The side effects are nothing compared to the headaches I had before! I would trade "pain" for "stupid" anyday!! (as long as my family is around to make sure I'm OK) F 37 4 months
4/25/2006
 3  Epilepsy Weight Loss, broken out in pimples I am happy with the weight loss but not pleased about the pimple break out as my skin was very clear prior to the increase in Topamax. F 34 4 months
4/22/2006

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