TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | GAD, depression | loss of appetite, auditory hallucinations, blurred vision, enhanced sense of smell, shaking, anxiety, depression, the spins, insomnia, night terrors | My psych prescribed this in combination with Pamelor. I had been on Klonopin and Xanax for several years, and was beginning to have depression along with my anxiety. It turns out, the depression was caused by too much Klonopin. Anyway, I had been taking the Pamelor for a few months before starting the Topamax, so these side effects are definitely from the latter. I tried to ride out the side effects, but after a week, I tapered off. It took 2 more weeks until the side effects completely subsided. Awful stuff! | F | 34 | 7 days | 5/10/2009 | 5 | Pain | When I began taking my Topamax and Tramadol mix I felt dizzy and light headed. I felt like I was watching someone else’s life happening. Very tingly hands, feet and face. Also very thirsty. No appetite at all. | I was prescribed Topamax (100 mg) and Tramadol (50 mg) after having three epidurals in my spine for pain. I have to say that after about 6 weeks I started to relax and the combination of the two drugs had done the trick. It was a rocky start. I have lost about 40 pounds in the last 8 months. I have also stopped the Tramadol as I do not need that any longer but still take the Topamax. Still occasionally have the tingly hands, feet and face. The new generic Topiramate causes very weird dreams so I may go back to Topamax and pay the higher fee myself. Not sure yet. | F | 52 | 8 months | 5/8/2009 | 1 | Nerve Pain & Migraines | Bad pins and needles in feet and hands,sickness,awful mood swings, tearful,depression,anxiety,fatigue, lethargy, unable to think straight and spell!, HAIRLOSS! | At first i started on 25mg and increased over a month to 100mg, i took topamax for neuropathic pain in my legs and also migraines. It helped considerably with the migraines only had 1 whilst on the meds although it never helped with the aches in my legs. Would not recommend this med at all, as soon as it kicked in which was a couple of days i felt very sick, dizzy, confused and generally unwell and constantly like i was having an out of body experience 24/7! I have been on this med for 6 weeks now and am dwindling of it i am now down to 50mg a day, i decided to come off it for a number of reasons but mainly because of the severe depression i have gone into, i am now on 20mg of prozac a day and feel that this med has had alot to do with my downward spiral! Also the other main reason is the constant Hairloss, its so scary...after a shower and have washed my hair, the amount of strands that fall out is unreal, after blow drying i am left with atleast 35 hairs on the bed, they are on my pillow in the morning, on my clothes through out the day and even on my plate at meal times!! This is so worrying as you can imagine, luckily i have long thick hair so its not really noticeable....YET!,but its nowhere near in the same glossy shiny condition as it was 6 weeks prior to taking Topamax. My advice would be to try other medications first before trying this, the side effects of weight loss all sounds nice in the beginning but hence to say i have only lost 3 pounds since being on it!!! | F | 30 | 6 weeks | 5/6/2009 | 3 | Migraines | Nausea, stomach cramps, loss of appetite, coke and pepsi taste flat, my spelling could be better,severe gastrointestinal issues, almost to the point where I thought I would be better of dead. | My neurologist started me off at 25 mg and built me up to 250 mg BID, I have spent the past three weeks in bed, unable to move, unable to leave the house. | M | 46 | 6 months | 5/2/2009 | 4 | Migraine | Decreased appetite, weight loss, tingling in feet, cognitive side effects | Has anyone noticed a difference with the generic? I just started taking it and notice that it doesn't decrease my appetite as much. | F | 31 | 60 days | 4/30/2009 | 4 | migraines | tingling in hands and feet, awful taste if I try to drink soda, tongue feels like I burnt on hot coffee all the time, aggressive, weight loss | started at 25 mg and built up to 100mg. After 1st week headaches were gone. It was pretty amazing. Lost 13 lbs first 2 weeks. Some of the side effects are really frustrating but to go from constant, severe headaches to none for 3 weeks I can live with the side effects so far | F | 36 | 30 days | 4/30/2009 | 2 | Migraine with Aura | Initially depression, followed by Blurred Vision, Polyopia, tracers and trails in vision, constant lump in throat and gagging. | Started at 25 milligrams a day, and was increased in 25 mil increments until I reached 100. The depressed subsided at 75 milligrams - but when I reach 100 I developed severe polyopia (multiple vision) which is really prominent at night and upon awakening. It is very scary. I have tracers and trails in my vision, and I am unable to go out or drive at night. I also have developed a constant lump in my throat and have started to gag almost all day long. The side effects are terrible. My doc side the Topomax shouldn't be causing this, but I know it is. I have asked her to decrease my dosage to 75, but the side effects have not decreased. I want to wean off of it all together. And by the way, I have lost only 3 pounds, but didn't have a weight issue anyway. | F | 40 | 5 weeks | 4/25/2009 | 4 | Mood Stabilizer/Impulse Control | Hands but mostly severe feet tingling in the beginning, went away after a few weeks, even after the dosage was ^. Silly, mush brain in the beginning was worse, and still have it occasionally; like will drive pass my street, forget simple words etc. Wanted desperately for the WEIGHT LOSS s/e, but no such luck, infact, I've gained weight, but can't necessarily atttribute to Topamax. Never knew about the funny tasting diet soda, and luckily never experienced that! Never had a problem with the fatigue either, but sleep can be on and off at times. | I take 200mg BID, and I feel like I function really well. Nice and even keeled. I don't have severe mania or depression..my thing is impulse control. My psych did just add Abilify which I'm not too happy about, but we'll see. I just wish I could lose some weight!! | F | 46 | 7 months | 4/23/2009 | 5 | OCD | slight tingling in feet/hands that disappeared over time. I might get it on occassion but I don't think its often enough for me to notice it bothering me | It has helped me VERY much. I originally took it for migraines, but I noticed that I didn't have the OCD issues anymore. At first it took away my appetite, but I quickly adjusted and that wasn't a side effect,unfortunately. I think its been wonderful for me. Recently my RX plan had me switch to generic and I had to switch back even though it cost me more because I was not getting the proper effects from the generic drug. | M | 53 | 2 years | 4/22/2009 | 4 | migraines | Forgetfulness, angry outbursts, fatigue, loss of desire to get out and do anything, spelling problems, loss for words | After suffering for ten years with migraines of at least once a week and all kinds of meds to treat symptoms that didn't work, this is the first med that has given me ANY relief whatsoever, so I'm willing to try to deal with the side effects and hope I can work through them; maybe after time they'll dissapate. However, my job as administrator is suffering somewhat in two ways: I HAVE to be able to think on my feet quickly, this drug definitely hinders that ability. In addition, the out of nowhere, angry outburst can be a real problem......not very professional, so be careful and aware of this. Learn to see the signs of an onset, lest you make a complete fool of yourself in front of your coworkers like I have a couple of times. Additionally, I cussed out my best friend in front of someone else over a Tupperware dish, which really hurt our relationship (and strangely enough, I barely remember the conversation). I'm working hard to mend the damage that was done there but don't know if it's repairable yet. The first couple of weeks were the worst as far as forgetfulness is concerned........got lost for a short time on the way home for work twice, which was really scary. Don't know if I can hang on to Topomax but will try for a little longer because of relief of horrible migraines. Feel free to email me if you have questions, I'd be happy to discuss. | F | 48 | 7 weeks | 4/20/2009 | 1 | Intercranial Hypertension Headaches | Terrible pins and needles,made my moods very bad,felt like harming my loved ones!Turned me in a zombie,sickness and stomache pains. | Was put on these after taking Diamox for IIH,Diamox is a bad drug as well but had got rid of the tingles ages ago,after 3 days my hands and feet felt like I could shoot electric out of them,I was like a zombie and I felt angry all the time,added to that I couldn`t eat anything as I`d eat and then throw up within a few hours.It did help my daily headaches down from a 8 to about 4 but the side effects are not worth it,I thought Diamox was a bad drug until my neuro tried me on these,oh and I can`t spell or talk properly thanks to these,they should be banned! | M | 42 | 5 months | 4/20/2009 | 4 | Migraines | Tingling in fingers, feet and face. Lethargic for a few days when I first increase my dosage. | I have always had tension type headaches and headaches in general and have dealt with them with OTC meds, however, I have never had migraines until about three months ago and I am 42 years old. They struck me with a vengence and were occurring every 2-3 days and incapacatating me and I am normally a very upbeat and active person. Treximet helped some when I got them, but made me look and act like I was in la-la land. I then switched to Maxalt which also helps an active one some, but does not space me out. However, I was still continuing to get them frequently and was having to leave work, miss my daughter's soccer games and was just not able to be me. My regular doc didnt have a clue, so I asked to be referred to a neurologist and he did so. I saw a PA at a local neurologist and she was awesome and spent time with me asking about triggers and etc. She is the one who started me on Topamax and I thank God for that! I have only been on it for two weeks, but in those two weeks I have not had one single migrraine. Yes, soft drinks taste a lil flat and I have some tingling in my extremities, but compared to a migraine that made me curl up in a fetal position and literall wish I was dead...does seem like much of a trade off to me! It stinks that it did not work for some people, but as for me, it was a lifesaver! | F | 42 | 1 months | 4/17/2009 | 1 | Migraines | taste change with soft drinks, dizziness, tingling in hands and forearms, SHORTNESS OF BREATH | I was only on Topamax for 7 days and had to stop because of the breathless feeling. It's been 6 days since my last dose and I'm still struggling to fill my lungs with air. Does anyone know how long side effects persist after treatment has ended? | F | 38 | 7 days | 4/16/2009 | 2 | Hand and feet tingling all the time. Instant total joint and muscle pain over entire body. I thought I was going to die. Eye twitching. | I went on Tomamax 50 mg 10 days ago for Migraine and tension headaches. Within two days, my entire body hurt with muscle and joint pain. I could barely walk. Having painted for 21 hours the weekend before, I thought it was leftover pain from painting. I finally realized it was the topamax and stopped taking it 2 nights ago. The headache got worse immediately the next morning and I am still in terrible pain but I believe it is getting better. The side effects are far worse than the migrains that are 3 times a week and the tension headache that is constant. | F | 46 | 10 days | 4/15/2009 | 4 | bipolar II | UPDATE: Previously reported prolonged bleeding during period; retracting this. Still experiencing word-dropping/misspellings, soda still tastes flat; no more cramps & diarrhea or dry mouth; appetite still quashed: LOST A SOLID 14 POUNDS!! Accidentally skipped one dose, moderate flu-like body aches occurred 12 hours later, but I cannot honestly attribute this to the Topamax. | Couldn't be happier about the weight loss! If this trend keeps up, my 60lb weight loss goal will be realistically reached very early next year, if not a bit sooner. No longer on antidepressants due to horrifying experience with overlapping of getting off Cymbalta and getting on Wellbutrin (Cymbalta more than likely the culprit). Currently sticking with my long time love Lamictal and low dose Topamax (50mg). Keeping my fingers crossed that I do not slide into a deep depression - so I can keep losing weight! | F | 40 | 56 days | 4/14/2009 | 4 | Migraines | Fatigue, Memory loss, Tingling in hands and feet, flat tastes in sodas, dry mouth, upset stomach, loss of appetite | Had about 3 migraines a week and now down to about 2-3 a month. I will continue dealing with the side effects over the migraines. Started out with 25mg now currently taking 100 mg. | F | 34 | 1 months | 4/13/2009 | 4 | Migraines | Tingling in the hands and feet, memory loss, change in taste buds | I've been on Topamax for over a year now and I've gone from having 5 migraines a week down to 1-2 a month. I went from 100 mg down to 75 to try and lower the side effects and I'm back to drinking Coke and it tastes fine now. I had been sleeping better than I have in years but this last week or so they came out with the generic and I wonder if it is causing strange dreams and paranoia. I have to say I feel different than I did previously. My dreams have been crazy since switching. I'll give it a few more days but if it doesn't get better, I won't be taking the generic anymore. | F | 38 | 1 years | 4/11/2009 | 5 | Bipolar II - Weight loss | Weight loss, severe tingling toes, loss for words, fatigue in begining, carbonated beverages taste flat | I am taking 200 mg a day and I am taking it since February 2008. My doctor prefered trying on me Topamax over Lithium since I was already overweight and had a binge eating problem. At first, I was only taking Topamax and experienced a mild depression period. Since then, I am taking Wellbutrin with it and it is working great ! Now, every side effects have are gone (be patient and don't worry, the fatigue and the memory loss won't be permanent) but I am keeping the weight that I have loss (50 pound in 1 year) and no more binge eating ! As for the tingling... the solution is to take a supplement of potassium and I garantee that you will be free of it ! | F | 36 | 13 months | 4/8/2009 | 5 | Migraines | Weight loss, tingling, cognative functioning diminished at first, loss of appetite | TAKE VITAMIN B SUPPLEMENTS. Specifically FOLIC ACID. Topamirate depletes folic acid, & if you look up symptoms of low folic acid they are nearly identical to Topamax - fatigue, tingling, congative problems. But the weight loss is still a side effect even if you take B. Once I upped my folic acid intake, I eliminated most of the negative side effects. I went from 3 migraignes a week to at most 3 a month. Love it. | F | 27 | 3 years | 4/8/2009 | 3 | Migraines | Numb and Tingling fingers | I've just begun taking Topamax & find that I have numb and tingly fingers, my temper seems to be raging and I have to control it, it's really strange. I did notice that I started to get a migraine, but it never became full blown today, it actually went away before it became full blown which I was thankful for. I have noticed some nausea and not a great appetite..which is fine, I have lost about 5 lbs in 7 days, which I am also not complaining about. I hope it works for my headaches, but the tingly fingers are really annoying. | F | 41 | 7 days | 4/7/2009 |