TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  chronic migraines Had 4-5 migraines a week, and after starting topamax at 25 mg's I've never had another one. At 50 mg's was extreamly tired most of the time. Now at 75 mg's, fatigue has gone away, but now have intense mood swings and anxiety, most of the day. (Didn't have either before starting medication). During the increase I have had almost no appetite, and will sometimes confuse words. I Start 100 mg's tomarrow, and I'm hoping the mood swings and anxiety will subside, because that's my only problem, with the medication. F 16 3 weeks
4/19/2007
 5  transformed migraines, daily headac Mild tingle in hands and feet, thirst, mild loss of words Will be taking 200mg soon. No major weight loss yet. No horrible side effects like people say. Have seen more + than - for my headaches. This drug has helped! F 26 2 months
4/18/2007
 4  Seizures Total loss of words, stumbling speech, fatigue, blurry vision (inability to focus), off balance I love Topamax in the sense that my seizures have calmed. I haven't had a grand mal in 3 years, and the amount of partial and petite is less than 1/2 of what it used to be. As a runner, my run time has gone way down. My feet kick when I run. I feel completely like an idiot at work (my boss and I have talked, but not comforting still). Just out of body experiences alot. Weight loss didn't effect me too much (Type 1 diabetic), but overall things are better. F 27 4 years
4/17/2007
 1  bipolar tingle in hands and feet - soar throat - soda tasted funny, cannot speak clearly, severe clouded thoughts, blurred vision, eyes rolling in head, extremely tired, anxiety , heart palpitations, swollen tongue, dry mouth JUST FEEL STUPID I DO NOT RECOMMEND THIS MEDICINE TO ANYONE AT ALL AND I CANNOT WAIT TO GET BACK TO MY DOCTOR TO GET OFF OF THIS (50 MG) F 33 14 days
4/17/2007
 5  migraines and daily headaches tingling in fingers and toes (paresthesia), soda tastes bad, weight loss, cold hands, constipation, appetite loss, no problem falling asleep at night (used to be a problem pre-Topamax) I did not know how much migraines and my regular daily headaches were affecting my life until the pain was gone. My migraines have been caused by hormones, weather changes and stress- try to escape those triggers. Topamax has truly helped me. The first two months of taking it were rough, with mood swings (depresion, tears), fatigue, memory problems, etc. Now I'm fine- back to being sharp, happy, word retrieval is fine, memory is great, energy is back. I've lost 23 pounds that needed to be lost (nice side effect:-). I've been reading about the vision side effects, which worry me, and I'll be discussing this with my neurologist at my next appointment. I have never felt better. F 40 5 months
4/13/2007
 3  Bipolar II; PTSD Feeling like I am stoned on pot or have had only 3 hours sleep; can't get out of bed easily in AM; some flu-like symptoms (such as feeling like I've been run over by a truck)muscle weakness and fatigue; upset stomach; tingling in left pinky toe only (strange). Beginning to lose some weight. Took the sprinkle form about 1.5 years ago and had a major allergic reaction--turns out that form has a sulfa molecule in it, and I am allergic to sulfa drugs--super big thanks to the pdoc and pharmacist for paying attetion to that! The tablet form does not have sulfa in its structure, and so far, I have had no reaction. I have built to 25 per day. I just feel stoned; the PTSD has not yet calmed down too much, but I am getting a bit steadier on my feet with the BPII after a major PTSD/BP event a month ago. So we'll see if the Topamax does help as we go down the path. I am willing to stick with it a while longer, as I am not working at the moment. If I were working, I would not be taking it it. It is, as I adjust, kind of a bummer, as I am also a long-distance runner in training for a half-marathon in July, and since being on the drug, even my shortest runs suck because I feel too weak. Does this go away? F 40 1 months
4/12/2007
 4  Bipolar Tingling in finger tips, weight loss, memory loss, weird taste when drinking soda Intially the side effects of memory loss was awful because I couldnt remember anything. I was a student and I couldn't spell my own name. When the prof. called on me I couldn't remember the question she had asked to answer. I couldn't drive without running through a red light. I'm lucky I didn't kill anyone or myself. However,I stayed on topamax because my depression was so debilating I didnt have a life before it. My weight loss tappered off eventually but I changed my diet and I'm now at my target weight. I think the weight loss from topamax stop at 6 months but the other side effects was only a span of 3 months. The side effects don't last forever if you give the medication a chance. F 30 3 years
4/11/2007
 1  2 types of migraines-1 daily AWFUL!! Horrendous nightmares. Freezing cold, tingling, personality change, couldn't complete sentences, tearfully emotional. Like I was inside my body but a different person was controlling it. Didn't get bad until I reached 75 mg. daily. Would never recommed this to anyone-ever. The weight loss was great because food tasted awful, especially soda, but not worth the rest. Guess that is why they quit prescribing it for weight loss. Changed to Depakote ER and having no problems plus it is relieving the migraines where the Topamax didn't. Topamax is a very scarey drug. F 54 3 weeks
4/11/2007
 1  weight loss lost 20 lbs in a month, spelling issues, word recall, dehydration, tingling limbs, depression, nausea F 21 80 days
4/10/2007
 1  Headaches/Migraines HORRIBLE side effects. No interest in food, quick weight loss, hip and back pain, hair loss. I developed a limp and couldn't keep up with my 60 year old boss! I also was forgetting simple tasks and facts. Oh, and the headaches didn't decrease AT ALL. I've been reading more about this medication, and there are new side effects they are finding. I'm angry that I was placed on this medication because of the long term effects it could have had. F 26 2 months
4/10/2007
 1  Migraines ACUTE NARROW ANGLE GLAUCOMA!!!! If you are taking this drug (or perhaps thinking about taking it), please educate yourself on the horrible side effects. I took the medication for one week exactly. On the 7th day, I went from having 20/20 vision to being almost blind. Topamax caused acute narrow angle glaucoma. I was extremely nearsighted (-8). After having surgery in both eyes my vision is coming back. Please do a quick search on the internet - I am not the only person this has happened to. M 28 7 days
4/10/2007
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 5  Migraines, Bipolar (rapid cycler) EXTREME intestinal cramping and dirreha during first 2-3 days of menstrual period, used to be slight before taking this medication, now is HORRIBLE! Gets so bad I cannot stand up straight, and lose all appitite for 2-3 days every month. Has anyone else experienced intestinal/digestive/menstrual disruption since taking this med? If so, how have you coped? I did have the sensation of feeling 'high' a bit at first, but is now gone. Normal appetite has changed for the better, eating much smaller portions and have lost some much needed weight. Migraines a SO MUCH improved, hadsuffered terribly with them since age 18 after car accident, they were crippling, now I can actually go to work if I have one and still function-this part has been like a miracle for me, I don't know what I will do if I have to stop taking it due to the intestinal disruption, this is the first medication in 25 years (other than Demoral) that has provided any signifigant relief for me! Have noticed for Bipolar side that rapid cycling has decreased, but can still be aggrivated by extreme stress. Depressive episodes have decressed and mild manic have increased very slightly, no complaints about that here. I find that slight manic episodes are controllable now, because I have learned to recognize when I am in one and how to channel that energy into accomplishing somet F 43 5 months
4/8/2007
 4  migraines mild thought interruptions, a little more tired than usual midday, when upping my dose each week -I notice a day or 2 of of body adjustment with slower thought processes, but then fine. Sometimes, less ability to multi-task more than 2 things at a time. once in awhile mild tingling in hands. After 2 weeks, 25mg to 50mg, I've had 1 migraine each week, which is a fantastic improvement going from a constant heachache for a month straight, vomiting on a constant basis with dizziness & pounding thoughout my head & neck. M 38 2 weeks
4/8/2007
 3  migraines disrupted thoughts, change in tastes (especially carbonated beverages, weight loss, fatigue weight loss and change in tastes were immediate when starting the drug at 25 mg. have gradually increased over the past year to 150mg and while the drug has helped to decrease headaches, my brain function and overall disposition is suffering. under the care of a neurologist that is considering switching me to a different drug due to the chronic fatigue. F 35 1 years
4/6/2007
 1  Biopolar Hair Loss, Mood Swings, Anxiety Attacks, Loss of thought, Tingling in all body parts, headaches,It feels as if I am High but I know I am not it is actually unusual!! If you are on this I suggest you talk to your doctor and get a medicine that best suits your body and mind!!!! NOT TOPAMAX!!! F 15 2 days
4/5/2007
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 2  meniere's disease anxiety, brain fogginess, tingling in fingers and toes, headaches, ringing and pinging in ears, decreased appetite I wish I had known how severe the side effects of this drug could be. My brain was in such a fog that I could hardly function and I was in a constant state of anxiety. Could barely sleep at night and was exhausted during the day. I felt as if I was losing my mind. F 34 3 weeks
4/2/2007
 2  Seizures word recall, spelling issues not completely through the process of changing over from dilantin to topomax. Am on Depakote as well. has not been a smooth ride. this medicine is freaking me out a little bit but I can't seem to put my finger on it. I know I am having problems recalling words and stuttering at work (somewhat). Am a bit moody with my son as well. Don't like how I am acting. Not sure which direction I am going to go with this one. Any suggestions regarding seizure medications would be welcomed. M 40 90 days
3/30/2007
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 3  migraine Extreme thirst, drowsy, thought blocking, decreased alertness/response, much hair loss, breakthrough bleeding (post-menopausal), N/V, inflammed sclera/eye irritation, tingling feet/legs, lip twisting, depressed, apathetic. Migraine decreased, calmer, no change in wt. On tapamax 50 mg daily F 55 2 months
3/27/2007
 3  Migraines SEVERE WEIGHT LOSS(not good for me!) Hair loss too& all the other listed effects I would not recommend this drug to anyone THIN! I was at a beautiful, perfect(to me) size, and after 6 months I am down to a weight of 108 at 5'6". I hate my body now and I am doing evry protein shake possible to help me gain the weight back, but it's not working! I eat tons of carbs, too. I also hate the hair loss that has occured, I already have fine hair. I hate this drug, even if it helps my migraines! Do not take this unless you can deal with these side effects; I can't!!!!! F 29 8 months
3/27/2007
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 4  Migraine prophylaxis Mild concentration problems, severe tingling in fingers/toes, sexual side effects (libido/performance). I went from 50 mg to 200 over 2 years to try to control intractable migraines. Doctor prescribed potassium for tingling, which helps some. B-vitamins allegedly help, too, but they didn't help me. Topamax helped more than Depakote or Keppra, both of which had horrible mood-altering side effects on me. Migraines are better, but not completely controlled. M 44 2 years
3/25/2007

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