TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Epilepsy - JME Extreme weight loss (80 lbs), insomnia in the beginning - much better now - although I get by with less sleep than before, memory loss & difficulity understanding concepts - have not recovered this - can take me minutes to days to understand something or remember an event or figure out a way to communicate my words, cannot drink any soft drinks - tastes very funny, slow coordination sometimes. Was on Depakote for 10 yrs prior F 27 3 years
2/15/2005
 4  Migraines Started in the beginning taking the lowest dose. Then gradually went up in the dose, but felt so strange. Didn't feel like myself. Went back down to original dose. Have headaches under control. Side effects are sore scalp, burning pain in shoulders, upper back and sometimes pain in my chest. Bitter taste when I drink soda. Have lost maybe 13 pounds since starting it. So glad the headaches are gone, wish the side effects would go away also. F 52 3 months
2/14/2005
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 1  seizure/ Migraine/due to pit-tumor Major memory loss, no need for eating, communication ,school work,family, church, or ability to study for up coming LSAT. Major pain on right-side of throat. GROWN CRY BABY, IN A MATTER OF DAYS...... Topamax may be good for some, but as far as I am concerned, it will not reach my mouth again. I am in school, and last night had the thoughts of taking my life !!!! THATS TOOO FAR FOR ME.. I was fine until 30 mins or so after the med got into syst.have not been asleep as of yet!! 32 hours and counting. Did not go to class today-out of fear of not understanding... Will stick with the Imtrix-shots-pills. F 34 10 days
2/10/2005
 5  Migraines, cluster headaches weight loss, hair loss, changes in tastes of foods, increased thirst (only for water, everything else doesn't taste Topamax has changed my life. I take 200 mg twice a day, and can live fairly normally. I have gone from having headaches almost daily to 3 or fewer a month. I can live with the side effects. It has actually helped me start eating better as fruits, veggies, etc taste better than junk. F 37 1 years
2/8/2005
 4  mood stabilizer A bit of vertigo when I look in the mirror. Tingling scalp, hands, feet and sometimes lips. Spacey in regards to time and planning, a bit forgetful at times, but am able to concentrate on my job. Loss of appetite, but I must remind myself to eat and drink water or I get massive headaches. Loss of taste for soda, which is fine by me as this is leading to some weight loss. Skin sensitivity, I find that I do not like being touched softly. Change in hearing levels, I have a low ringing at all times which I guess goes along with the vertigo. I also have had a bit of change in my vision. This medicine has worked well as a mood stabilizer, my biggest problem was obsessive worrying and social anxiety. Now I am free from self imposed fear, and I am no longer obsessing and worrying about what I have said/done long after I have said or done it/abstract things... this problem was keeping me home, and thus I was prohibiting myself from making social relationships at work and at play. Basically I was a prisoner of self, I often refered to myself as a F 35 1 months
2/7/2005
 1  
2/6/2005
 4  seizure erectile dysfunction M 34 2 years
2/4/2005
 4  nerve pain in both my legs I could not control my emotions, when I first started taking it my sexual desire was stong and I was very aggressive and flirting with everyone (and I am a very shy and quiet person) I am very married and this medication got me in trouble. These side effects wore off, thank God but I still have problems with forgetfulness, can't remember words, difficulty concentrating The only reason that I continue taking it is that it DOES help the nerve pain in my legs and it has also helped my fibromyalgia, a little bonus that I was not expecting. F 46 3 years
2/2/2005
 1  Seizures Slowly, as dosage increased, I lost the ability to think, speak and walk. I was no longer able to care for myself, couldn't comprend what was said to me.Hairloss, tingling and numbness but nothing compared to the profoundcognitive effect. Incontinent. I guessmy experiencewas unusual. This drug came close to killing me (Neurologist). The experience was dreadful for my family, they thought I was dying. I am not sure if my seizures were less because I was not capable of knowing. F 52 90 days
2/2/2005
 4  Migraines Occasional tingling in my feet in the morning. Was VERY lethargic when I first started taking it, but have gotten used to it - still need to sleep a bit more than before, but functioning nearly normally now. Sodas and sweets tast funny, kind of metallic. I lose the desire to eat VERY fast, have lost a little weight, about 5 lbs. Haven't had problem with hair loss, but do have dry eyes, and need to wear reading glasses now that I didn't need at my eye exam one month before starting the drug. Uncertain if sexual side effects noted by another person posting to this forum (that I've also noticed) are really from this medication or from the hormones my doctor is also trying since my migraines always followed my PMS and menstrual cycle, and I seem to remember complaining about those effects on the hormones, before starting the Topamax. For about 2 years I was having 2 bouts of recurrent migraines that lasted between 3 and 7 days each, more recently they had started lasting 7 to 12 days each episode. Zomig, Relpax, Imitrex, etc. didn't touch them. Since reaching 75 mg of Topamax in last 2 months have only had 4 total episodes of migraines lasting 1-2 days each, Imitrex or Zomig helped with 3 of those episodes, but not with one of them. The doctor plans to keep me at this dose another month, then may raise it a bit. F 43 3 months
2/1/2005
 4  Seizures/epilepsy Dizziness approx 2-4 times a week, needles in arms/feet every once in a while, SHRINKING FEELING. Cognitive issues; can't think of right word to use in sentence. I am extremely torn about this medicine. I am taking it in conjuntion with Keppra and Lamicital. This medicine stopped seizures almost instantly, but the cognitive side effects are extremely frustrating. Both the dizziness and the issues of thinking of the right word. The shrinking feeling is a side effect I have not heard about with anyone else, and I am interested to see if someone else is having. I hate it, but have gotten use to it. It usually occurs about 2-4 times a week. It lasts about 5-7 minutes, and everything around me seems to become very small; almost Alice in Wonderland like? It only started when I started the Topamax. I was slammed onto Topamax -400mg starting the first day- due to a sudden increase in seizures, and this caused a crazy M 29 2 months
1/29/2005
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 4  Seizures/epilepsy Dizziness approx 2-4 times a week, needles in arms/feet every once in a while, SHRINKING FEELING. Cognitive issues; can't think of right word to use in sentence. I am extremely torn about this medicine. I am taking it in conjuntion with Keppra and Lamicital. This medicine stopped seizures almost instantly, but the cognitive side effects are extremely frustrating. Both the dizziness and the issues of thinking of the right word. The shrinking feeling is a side effect I have not heard about with anyone else, and I am interested to see if someone else is having. I hate it, but have gotten use to it. It usually occurs about 2-4 times a week. It lasts about 5-7 minutes, and everything around me seems to become very small; almost Alice in Wonderland like? It only started when I started the Topamax. I was slammed onto Topamax -400mg starting the first day- due to a sudden increase in seizures, and this caused a crazy M 29 2 months
1/29/2005
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 4  migraine prevention speech disturbances, trouble finding words added effect of weight loss was/is GREAT F 35 1 years
1/27/2005
 3  Migraines Fatigue. I used to work out about an hour a day, and am now lucky if I can make it to 20 minutes. Insomnia. Has helped somewhat for my headaches. F 34 4 weeks
1/25/2005
 2  Migraine Insomnia, hair loss, facial ticks, fatigue, weight loss, dry eyes My headaches actually increased in frequency, although they weren't nearly as severe. I know it had something to do with the Topamax because as the dosage went up, so did the number of headaches. When I started, I had two headaches a month that lasted 2-3 days. Now I have two a week that last only a few hours. I like the weight loss because at 44, I was gaining a few, but combined with the insomnia and hair loss, the net result is far from a healthier looking me. I am starting to look like a concentration camp survior. F 44 75 days
1/25/2005
 3  Chronic Headaches Tingling extremities, mood swings, speach problems, loss of balance. So far I have had not had to take additional medicine for headaches since taking Topamax now for 3 weeks. This is a miracle since I have had a headache every day for 10 years. I was getting a migrane about 3 times a year and had a brain aneurysm in 7/04. I was about to ask the Dr. to take me off of Topamax though because the side effects seemed to much to handle. I was crying becaue I could not find a sock. I could not spell to save my life. I would go to work and stare at the computer for 6 out of the 8 hours. I tripped and bumped into every thing. I would not fall asleep until 4:00 am and then wake up at 6:00 am. The tingling in my hands and feet has somewhat subsided but I now notice it is only when I get cold. I have not experienced the weightloss like I wanted (and secretly motivated me to go on the drug) but I am only at 100 mgs. My doctor wants me to go up to 200. I am scared though. I dont want to lose my hair. My symptoms seem to be subsiding and I just cannot imagine them getting worse. If I increase the dosage, will I go through another 3 weeks of turmoil? F 37 3 weeks
1/24/2005
 4  Severe Migraine Headaches I now take 50mg. in the morning and 75 mg. in the night, and eachtime I had to increase my dosage by 25 mg. I would feel dizzy and lightheaded for about a week, but then that would go away and I would feel back to my normal self. I have been on the medicine for 4 months and I lost 11 pounds, which is great! My migraine headaches, which I started getting after 2 car accidents and 2 failed back surgeries, came as frequently as 3-4 days a week and were a 7/10 to 10/10 on a pain scale. In 4 months, that number has been reduced to 1 to 2 migraines a week with a 3/10 on a pain scale. I just take my 5 mg. Zomig when I get my little migraine now, and the headache goes away within an hour. Topamax has given me my life back. Before Topamax, I used to spend 3 to 4 days a week in bed. Now I spend 1 to 2 hours a week in bed at the most waiting for my very small 3/10 pain level migraines to go away. I reccomend Topamax to anyone who is having severe migraines.It is truely the miracle drug! F 25 4 months
1/22/2005
 5  Epilepsy Memory loss. Slowing down. Drug is very good for controlling seisures. Since i started using Topamax 200 mg twice daily in combination with Tagretol my seisures got under control. Problem with topamax is memory loss; it shows when talking, reading, listening music, watching tv. Processing speed is slower its hard to keep up with world around. M 29 5 years
1/21/2005
 1  Seizures Shocking Pains that started in my head and ran through my entire body, dizzyness, paranoia, aniety, and panic attacks. It was the worst experience I have ever had with a medication. M 25 4 weeks
1/19/2005
 1  Migranes Confusion, paranoia, insomnia, panic attacks, dizzyness, tingling that was unbearable, innability to complete the most simple task (probably would have been fired from my job had I stayed on Topamax). It was absolutely horrible. My doctor told me that the side effects I was experiencing were not a result of the medication, but they dissapeared as soon as I discontinued it. I actually thought I had had a mini stroke I was so disoriented. It was hell. M 26 1 months
1/19/2005

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