TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Chronic Migraines loss of appetite, nausea, extreme anxiety, suicidal thoughts. Topamax worked to stop my chronic, daily head pain but it nearly killed me due to the suicidal thoughts I developed while taking it. Not worth it for me. F 26 60 days
50 mg 2X day
8/26/2011
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 3  Migraines Word loss, confusion, anxiety, anhedonia, a few panic attacks, a few episodes of nerve pain. I have had chronic daily migraines for over six years. I have tried just about everything to heal myself from traditional to alternative medicine without success. I was reluctant to use Topamax because of its side effects and also its cost, but now that it is generic I can afford it. So far, it has not been helpful. I have had to gradually increase my dosage by 25 mg per 4-6 weeks or so because of the side effects. Although I must say, I have a very close friend who also had daily migraines after contracting viral meningitis and she was on 400 mg/day a day and had no side effects and no migraines for years. She stopped taking it thinking she didn't need it any longer. Her migraines came back, and she had a small stroke because of them. Her doctors have tried to put her back on topamax, but she can't tolerate even 25 mg a day. Everyone's body is different, and everyone's body changes over time. I hope topamax works for me eventually. F 41 4 months
25 Mg 3X day
8/25/2011
 4  migraines!!!! not much weight loss and bad memory. I was takiing topamax for four years and receently went off (2 yeasr) on my own thinking I didn't need it anymore. I was WRONG!!! Migraines are back 3 times a week and as bad as before. Im wondering if i go back will it have the same effect on my migraines???? F 36 4 years
150 mg 1X day
8/22/2011
 1  migraine approx 3x or more a month Constant tingling in legs, feet, arms, and hands. Lost any appetite, nothing tastes good anymore. The side effect of weight loss would have been nice, but even though I'm hardly eating I have not lost any weight. I feel nauseous when I do eat. Having chest pains, stomach pains, my neck hurts. I'm seeing things that aren't there. Dizzy, clumsy, and forgetful. I stay tired all the time, and no matter how much sleep I get I am sleepy throughout the day. I've probably missed some but actually the main thing about the topamax is that it has done nothing to help with the migraine. In fact since starting it I have still gotten migraines, the only difference is now my Zomig doesn't work to ease them like it use to. When my doctor prescribed this I listened and agreed to give it a try. I was really hoping it was going to be the answer. I've been living with migraines for 27 years! So I started taking it. After the third month I decided to look it up online and then read the paper that the pharmacy includes with it. As I'm looking these over I come to the side effects part. Going down the list I was amazed at how many I was having and didn't even realize it was because of this medicine. Needless to say I will not be continuing this medication. And to the person whose comment was to say they believe people are exaggerating the side effects. . . your ignorance is showing! EVERYONE is different, you just get to be one of the lucky ones. F 52 3 months
25 MG 1X day
8/22/2011
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 3  mood stabilizer hair loss, flat moods I took this for quite a while as a mood stabilizer. It didn't give me any side effects that were noticable on a day today basis, but over time I did see my hair thinning and my husband noticed that my personality was almost robotic. On the other hand, it absolutely did a great job "stabilizing". F 30 1.5 years
50 2X day
8/17/2011
 5  migraines weight loss, tingling of hands and feet This pill has given me a new life. I had chronic migraines and it has reduced them completely. I barely have any side effects, can work and study with no problems whatsoever. F 22 4 months
50mg 1X day
8/10/2011
 1  chronic migraines simple stupid side effects, all of them- didn't care about that, but the big ones, I do care about those. It ALMOST KILLED ME!! repeated small bp drops, then, Severe blood pressure drop! also, acted psycho during pms times according to family. Very dangerous!!!! I took it as a last resort and now I am trying to stop I'm weaning myself off. It has been 4 days, my Bp is still not back up to normal. I almost died from 80 point drop. also, it does make you dumber, it does make you act crazy,mean, and depressed, but it does work for lowering migraine number and strength.:-( F 45 6 months
50 mg 2X day
8/7/2011
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 4  Alcohol Dependence Tingling in hands and feet. Loss of sexual desire. Forgetting owrds and a general spacey feeling. This was an amazing drug for me. It helped me to quit drinking were before it was impossible. I would recommend this drug. Highly. Had to go off of it because of the sexual side effects that husband did not like. Other than that, GREAT! F 36 2 months
50 mg 2X day
8/6/2011
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 4  Hand Tremors Topamax and sugar are not a good combination. I have been on it for a year and it took me several months to figure out that whenever I have anything that contains sugar I will have stomach pain and if the amount of sugar is alot, i.e. ice cream, I might even get diarrhea. The only thing that will reduce pain is fresh made LIME juice, not pepto, or anything else over the counter. I lost 70lbs in 3 months. M 28 1 years
50 MG 2X day
8/3/2011
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 5  PTSD I have lost weight and had the fogginess people talked about, but that passed. Overall this drug has helped me overcome my panic attacks and other things that come with PTSD. It's been a miracle, really. It's also great for migraines (which I have and it's also prescribed for.) I take it at night, but it doesn't make me drowsy. I have heard that it does make people drowsy, but not me it sometimes made me tingle in the mornings - so I now take it at night. I do notice if I miss a dose, I get tingly hands and things.. that's one disadvantage, but certainly not enough to make me want to stop it. If you notice any hair loss, ask your doctor about Biotin. I started taking that and it's helped a lot. I noticed more hair breakage than anything, but my hair is really thick. This drug is one drug that has helped me face my trauma and get through the days. I fought through the tingles and the fogginess for a few weeks and now it's great! I'd say that lasted 4-6 weeks or so, in the end.. totall F 26 10 months
300 mg 1X day
7/31/2011
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 4  Migraine Tingling in Hands and Feet (first two months), Forgetting words (still suffer that effect sometimes), Feel the heat more intensely in summer As a menstrual migraineur who was bedridden twice each month with the most shocking migraines imagineable, I did not think anything was going to help me. Topamax has quite literally given me my life back. I think the side effects of this drug are exaggerated by many people and once you get over the first month, it's quite easy to tolerate. Every other migraine drug did absolutely nothing for my migraines, but Topamax makes them like a mild headache and I can fully function throughout them. F 45 2 years
50 2X day
7/31/2011
 5  Daily migraines Initially I had a difficult time finding the right word or saying the wrong word, but this went away over time. Weight loss, appetite loss, hair loss, feeling "spacey" or "out of it" or like I was really tired or had low blood sugar even when I had slept well or just eaten, this also tends to improve with time. Soda tastes strange, other foods sometimes taste odd. Tingling in hands and feet. I was scared to death to take this medication because I had heard so many horror stories about it and finally gave in because nothing else had worked so far to prevent my chronic migraines. I wish I had not waited so long!!!! Yes, there are some strange and honestly a little scary at first side effects. They don't call it "Dopamax" for nothing. You feel really out of it, but its managable. I honestly felt just as dumb after a really bad migraine and it works really well for me in preventing them. I can see if it didn't work for you why it wouldn't be worth it, but the benefits SO far outweigh the funny side effects. and they really do wear off after a few weeks. Also an added bonus I found is I I tend to have an addictive personality. But on Topamax, I could care less about playing video games, eating junk food, having a drink etc. That is just something I found interesting... F 32 1 years
50 mg 2X day
7/28/2011
 5  severe migraines 2+ years Tingling in hands, feet, scalp, face. Initially much worse, has lessened dramatically with time. This medication has made my life so much better! Yes, it has caused some daze, and fog. There are times when I do feel like I am at a loss for words, but they are few and far between. I am working full time, a full time mother and doing very well. I know with out this medication I would be completely homebound. For me, the benefits FAR OUTWEIGH the side effects!!! F 42 2 years
150 MG 2X day
7/27/2011
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 3  Bi-Polar Disorder After reading this, I know now WHY ALL MY HAIR WAS FALLING OUT 3 years ago!. I cut all my hair off thiking I had some hair disease, and it was the topamax from reading this forum! Happily, all my hair has returned, in all it's glory. I can't really say I have any side effects anymore. Initially I had memory problems, BUT I also was in a severe car accident at the same time and had a concussion so I wrote it up to the concussion. I might have lost about 8 pounds. I had serious dry mouth. But all the side effects are gone now. I love my Topamax and get real nervous if refill time rolls around and I don't have any! This site have been very informative. F 38 3.5 years
400mg per 1X day
7/26/2011
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 3  Dizzy spells hand and foot tingling - going to "sleep" - numbness - decreased over time, but never went away. spend alot of time searching for the right word - quite severe, actually. dizzy spells did decrease - i could function again, drive, walk, didn't fall out of bed anymore (yes, they were that severe). and they did decrease the SEVERITY of the migraines i experienced - but actually (i think) increased the number of them. i actually set an appointment today with my neuroligist to discuss getting off topomax. it is making me so forgetful that i am getting worried about alzeheimers symptoms. I can't spell anymore (and can barely type) and i used to win spelling bees. i can't do my job properly. i am a salesman and the other day, i literally had to go and look up the last four digits of my social security number to activate a debit card. i couldn't remember them. how can i sell anything when i am tongue tied? this is misery F 45 1 years
50 mg 2X day
7/25/2011
 2  Migraines - Atypical Agitation, mental fog, unable to find words, lack of concentration, thirst. I am not sure if I can continue on this med or not. My job is in healthcare and requires me to be very detailed oriented and have fast reactions. I do not feel I have those with this medicine. I will wait it out to see if I feel better. F 42 4 days
25 1X day
7/25/2011
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 5  Mood Stabilizer weight loss, insomnia, energy, feeling positive "up" "good" out of my depression. If anything that is close to negative about Topamax is that it keeps me awake for all hours.. I can get a max of 3 hours of sleep at night, BUT when I wake up the next day I will STILL have all this energy as if I slept for 9 hours. AND not get tired all day. I read as many reviews as I could about Topamax, and all/most of the reviews were negative. I have not yet experienced ANY of the side effects except for the weight loss. I have NOT experienced brain fog, "dopey" feeling, tingle feeling, hair loss, loss of energy/tiredness. F 35 2 months
50 mg 2X day
7/23/2011
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 3  anxiety/mood stabler foggy head, difficulty spelling, reading. General "dumb" feeling...SERIOUS memory loss, confusing words with other words. Dizzy, nausea, slow feeling, like some feelings of weird "like what's going on?". Slight hallucinations...(ordinary things seem distorted for a brief second or two) its weird/startling. I feel confused at times. I wanted to say the word parrot, but instead i said pirate, and i was serious, things like that are happening to me. The most frustrating thing about this drug is the memory loss!!! I feel like "what the...ehh.. nevermind....." when I'm talking to people. Its only been a few days,not even a week since Ive started the medication, so I hope this starts to fade away some after a while. I feel like a dummy! Not much appetite loss yet, well see, i need to loose about 40 lbs. Im not surprized how im reacting, i sometimes react strongly to new meds. It takes time for my body to get used to them. Same with Zoloft. i was sooo sick! Starting and stopping. F 22 4 days
15 2X day
7/22/2011
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 1  Nerve damage due to car accident This stuff was terrible for me. It was like speed! I couldn't even take it after 4 days. I couldn't drive, work or concentrate on anything. I just felt like I was speeding my brains out and couldn't sleep at all! F 43 4 days
50 MG 1X day
7/13/2011
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 5  migraines moods Yes some forgetfulness, I miss my Diet Pepsi. Can't stand the taste of sodas and some foods tase funny. It has worked well for me, I can tell when I let my precription run out and don't take it for a couple days. F 40 90 days
50MG 2X day
7/9/2011

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