TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  migraine prophylaxis tingling; auto-immune syndrome; moderate to severe lower abdominal pain; severe skin abscesses; short-term memory loss; weight loss; moderate to severe muscle/body pain Not only ineffective as migraine prophylaxis, auto-immune syndrome was so pronounced my doctor tested me for LUPUS! I lost 10 months of my life to Topamax, and another 6 months to recover after I stopped Topamax completely! F 38 10 days
5/15/2004
 5  migraines weightloss F 35 10 months
5/5/2004
 4  Migraine Prevention During the first month only: word recall, severe short term memory loss, major Need to increase dosage - its helped, but its not working 100% yet. The first month was VERY difficult to adjust, but the side effects subsided quickly. F 29 100 days
4/30/2004
 1  migraine prevention Approx 4 days into taking the medication, I woke up in the night with severe agitation/anxiety, profuse sweating, difficulty breathing, and uncontrolled shaking. After an hour, I finally calmed down without having to visit an emergency room. It took me weeks to gain enough courage after my reaction to Topamax to try another drug for my migraines. F 36 4 days
4/21/2004
 2  Bipolar II Confusion, felt spaced out, anxious, disoriented Only took it for a week; side effects were too severe F 37 1 weeks
4/20/2004
 5  Bipolar disorder Loss of appetite, memory and speech problems, loss of balance, slight anxiety anyone who's lived through bipolar long enough knows: a little slurring of the speech is nothing compared to spending months in the hospital and putting yourselves and your loved ones through hell. I say, live through the bad effects, and start to realize there is a life worth living. this drug has worked for me. F 28 2 years
4/14/2004
 2  bipolar disorder extreme confusion, memory loss, sore throat, dry mouth, shivers this may or may not be the cause of the clenching of my leg and abdominal muscles as i am on two other medications currently. it could also be how it interacts with those other meds. F 30 40 days
4/10/2004
 4  Bi-polar At first, short-term memory loss that drove me crazy! (locked keys out 5-6 times a week, did laundry without putting in the clothes, etc....) but went away after 3 weeks. Now, spatial skills not what they were, but I'm fine with that. No weight gain side effect as with other mood stabilizers. In fact, I think it makes me less hungry. Great drug for bi-polar people. F 32 4 months
4/8/2004
 3  Migraine prophylaxis Tingling in hands and feet sometimes. Slower word recall and thought-process, especially at the beginning, when I was upping the dosage to reach my max. Strange side-effect - can't feel carbonated beverages on center of my tongue. I did have burning in a couple fingers on one hand after the first month, but it only lasted for about one month and then dissipated. I've only been on this drug for a couple months. I'm still debating whether or not I'll stay on it, but I haven't had a migraine since I've started. The great debate is, are the side effects worth not having a migraine. Some days yes. Other days..? F 34 3 months
4/5/2004
 3  migraine Tingling in hands and feet, but not objectionable. Very dry mouth. I typically feel as if I've just eaten a bag of chips. Loss of appetite. Sinus problems resulting in troubling breathing and thus sleeping at night. Low energy level. I started taking topomax three months ago and although I have not had a severe migraine since, I do not like the way I feel on a daily basis. F
3/29/2004
 1  mood stabilization, bingeing cognitive slowing -problems with speech and reading, weight loss, relapse of eating disorder If you have cognitive slowing that does not resolve within a few days discontinue the drug. I would only suggest it for weight loss if gastric bypass is your only other option. F 31 2.5 years
3/24/2004
 2  epilepsy/organic mood disorder my wallet had the first allergic rxn, I had the second. I iched in places that I didn't think a person could itch. This one did not work for me at all F 42 3 times
12/19/2003
 2  Tremors & Akithesia due to Seroquel None No effects felt at all. Titrated from 25mg up to 100mg with no response. M 25 3 weeks
9/29/2003
 1  Weight loss due to Lithium Tingling in face and feet, weight loss, abnormal lower eyelid movement, abnormal hair texture, excess hair growth, acne. Topamax worked for weight loss but the side effects were not worth it. I grew more hair everywhere and it ruined my beautiful eyelashes(tmax causes my eyelashes to grow and caused them to be 2 different colors now). I had to have laser hair removal on my entire face. Needless to say, I was one of the rare cases. Lose weight the natural way is my advice. F 24 4 months
9/19/2003
 2  progesterone induced depression terrible dry mouth-I already had an issue with this and the Topamax aggravated it to unmanageable levels. I had to discontinue. F 46 2 days
7/6/2003
 4  personality disorder rages, brief episodes of memory loss and word re-arrangement. Ill tolerence to loud noises and bright colors, pitch/tone will bother me at certain times (ie. CANNOT listen to COUNRTY or OPHRA, I will go insane}. The above does not happen all the time. The medication has been better than the other anti's I have been on,I have also been diagnosed with temperal lobe ep., but they are very closely related and i take other meds. too that I generally do not put that down as my main problem. I take 300mgs. the max. It did take abit to get used to, I was snappy and did not know it was the med. chelle F 31 1.5 years
5/27/2003
 3  bipolar II mixed i increased the dose very slowly (12.5 mg/week) to minimize cognitive side effects, but i still had them. fogginess, no memory, falling asleep while driving and everywhere else, decreased appetite, wt. loss i liked the wt. loss and decreased appetite (i was overweight to begin with) but i'm not sure it worked like i'd hoped for the bipolar. i had gotten on it because i stopped having orgasms when i got on depakote, but it continued w/ the topamax. but i also got on effexor shortly i started on the topomax, so i'm unsure abt this side effect since effexor is known for causing sexual dysfunction, altho effexor typically lowers libido and arousal, which was not the case for me. i just could not have orgasms when aroused. F 52 1 years
5/15/2003
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 1  Nuralgic Migrains Extreme side effects including: unable to think clearly, unable to understand or solve simple problems, decreased mental state to the point of resembling a severe stroke victim!!!!! Would not ever recommend this medicine to anyone for any reason F 49 3 months
4/1/2003
 4  Migranes I have had tingling in my feet and hands. Mainly my feet. My feet tingle so bad sometimes that they actually feel like they are burning. When I first heard about Topamax, I was very hesitant to try it because I had heard of so many bad side effects. I actually postponed starting it by 2 months because I was so afraid! I wish I hadn't! My migranes got so bad it finally landed me in the ER and I thought I was dying. It was the absolute worst headache of my life. They ran a bunch of tests on me, everything came out fine, it was just a migrane. I finally decided to try the Topamax. My doctor started me at 25 mg for 1 week and went up 25mg every week untill I hit 100 mg. I was still having headaches almost on a daily basis until I hit 100 mg. Now I'm still taking it and it has been a little over a month on 100 mg and so far this month I have only had 3 days with a headache and I took an over the counter medication and it went away within an hour. For that, I will live with the tingling in my feet and hands any day of the week!! I have not experienced any of the other side effects that other people write about which I am very thankful for. I hope this medication continues to work for me. F 31 3 months
3/17/2003
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 5  Bipolar Disorder Weight Loss, Tingling in Extremeties, Dehydration F 16 21 months
1/23/2003

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