TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | daily chronic headache | weightloss, loss of appetite, picky eating, dull feeling like i was slow and couldn't comprehend things correctly. elbow pain | has made me slightly tired i used to go to bed at 10 30 now it is 9 30. lost 20 lbs after 3.5 months on this drug and everything that i want to eat just doesnt sound good even when i feel hungry, it's weird. no bad headaches even though i still get little normal headaches but i can still function, unlike before. i would like to feel more alert but i resently switched from 25mg to 50mg so it might take time for my body to adjust. all in all i would say topamax is a good thing so far. | M | 17 | 4 months | 10/22/2008 | 2 | Migraine Headaches | Muscle fatigue, Severe anxiety, paranoia, nervousness, worsening depression, aggressive behavior, word drop, horrible taste in my mouth, dry mouth, hair loss, loss of appetite, numbness in my hands and feet, loss of sex drive and inability to achieve an orgasm | Topamax did help relieve my migraines, but the side effects were not worth staying on the medication. When I finally reached my maintenance dose of 50mg in the A.M. and 50mg at night, I felt horrible! I normally worked out for 2 hours every day, but I experinced such severe muscle pain and fatigue that I could not get through a 15 minute workout. It also made my depression worse and added paranoia, anxiety, and horrible nervousness. I was so paranoid that I was accusing my BF of doing things he was not and I would not believe a word that he told me. I don't know if our 2 year relationship is going to make it through this. I could not drink enough water, and everything I ate, when I could eat anything tasted horrible. I constanly felt the "prickly" feeling in my hands and feet. I would wash my hair and clumps would fall out. I know from experience of 6 to 7 migraines a month that they really suck, but there has to be other medications out there that can help control migraines | F | 31 | 3 months | 10/22/2008 | 4 | migraine | tingling in toes and fingers | F | 45 | 4 months | 10/21/2008 | 3 | Bi-polar / ADHD | I take Strattera in addition to Topamax. Initially tingling of hands and feet and soda tasted funny but subsided after a year. Positives: Initially worked for mood stabalization and no more seasonal depression. OCD lessened. Negatives: Constant word, weight and hair loss. Internal word repetition increased and rage with missed dosage. Much worse than original moods. | This is a very powerful drug and I appreciated the help it offered at first. I am moving to Tegeratol and Geodon at the advise of my psychiatrist and hope to find some relief. Decreasing the dosage and weaning off has been a nightmare. The 65 pound weight loss was not worth the hair loss, low blood pressure, arrhythmias, kidney stone, word loss, uncontrollable rage, suicidal thoughts etc. There must be better drugs out there. How this one got past the FDA is beyond me. | F | 44 | 3 years | 10/20/2008 | 3 | Migraines | Tingling hands and feet, fogginess, feeling dumb, extreme extreme fatigue, feeling in my own world, dizziness, loss of appetite, all soda taste horrible, | My biggest concern is the fatigue. I cannot go a day without taking a nap after work. It scares me to drive when I feel like this. I cannot concentrate and I feel "out there" and in my own little world. I do not pay attention to things like a should. The memory loss, specifically short term can be funny but at the same time I hate to feel stupid and that is exactly how this drug makes you feel. A little bit dumb and a little bit dopey. I mean the weight loss is extremely significant, you lose your appetite right away, many things taste different or you just aren't hungry AT ALL! One thing though...no migraines yet and I am used to having at least one a week. Ahhhhh...I am still trying to decide what to do. Weighing out the pros and cons... | F | 24 | 1.5 weeks | 10/20/2008 | 1 | migraine headaches | Topamax was initially a life saving drug for me. I suffered with cluster migraine headaches and was losing my job. Started out taking 25 mg twice a day and ended taking max dosage 400mg daily. I experienced tingling in my hands and feet, ringing in my ears (that now won't go away), gastroentestinal problems, lost 100lbs in one year, forgetfulness, inability to concentrate, lightheaded, sleeplessnes and so many other things! | I think this medication should be band from the market. My life changed so dramatically. It took me three months to wean off this medication. Ten months later and I have gained 50lbs, ringing in ears continues, circulation problems in legs and hands, continued gastroinstestinal problems. Now taking vitamin B-2 400mg daily and B-6 200mg daily. Migraines dissapated but now I was recently diagnosed with chiari malformation. Need help. | F | 45 | 5 years | 10/20/2008 | 4 | mood stabilization, weight mgmt | my precious diet coke tastes like FLAT battery acid, yuck! Also some short term memory loss, writers/speakers block, thinking and moving at a slower pace, weight loss (woohoo!), sleepy | This is my second time on Topamax and for the most part I am very happy with it. It seems to "boost" the effectiveness of my antidepressant (zoloft), as well as offset its weight gain side effect. The yucky tasting soda is a blessing in disguise as I find myself drinking more water. My headaches are very few and far between. The worst part for me is the "foggy" mind and the writers/speakers block. I have not had tingling, numbness, or vision issues. | F | 30 | | 10/19/2008 | 3 | Bipolar II | So far I don't really mind it. I was so scared to start it. I have increased sex drive, increased appitite, can't sleep much, and am a little anxious. It helps me sit still. I forget words and spell things wrong sometimes. I kind of feel stoned or something. I also feel nauseous. | I am still sort of scared of this medication. I don't really want to lose any weight. And I don't want it to make me an air head either. | 1 weeks | 10/19/2008 | 1 | Migraines | Weight Loss, loss of concentration, inability to function daily. HAIR LOSS!!! and horrible mood swings | At first, I thought I had found a wonder pill. No headaches, was a little forgetful. But and I increased the dose, 25mg a week, the symptoms became worse. My hair was coming out in hand fills. I was on an emotional roller coaster. One minute I was crying and 5 minutes later I was laughing. I"m a teacher and on the first day of school, I called my DR and told her this was it. I wanted off this medication as fast as possible. I just about burst into tears while I had a class full for HS teens. Taking Effexor XR and seems to be working, headaches have decreased. | F | 36 | 8 weeks | 10/19/2008 | 1 | Physical pain | WHERE TO BEGIN?! Severe memory loss... wait, what was I writing about? Oh, yes, the beloved Dopamax. Speech problems (slurring, word recall issues), loss of libido, loss of appetite, feeling completely emotionally dissociated from my life and world, depression, procrastination, insomnia, lethargy, mood swings -- all over the spectrum... | I CANNOT believe my doctor prescribed this drug for me. It is a DISASTER. Getting off the drug is even worse -- if you do it too fast, you'll get SEIZURES. STAY AWAY from this drug. It's like taking every sensation you have and deadening it to the max, and yes, that includes brain sensations. But if you like living like a vegetable, then by all means, partake! | F | 32 | 2 months | 10/16/2008 | 1 | migraines | soda tasted flat and all food i ate had to be highly seasoned or spicy. I lost my appetite and started losing weight. | F | 18 | 20 days | 10/11/2008 | 4 | | 10/9/2008 | 4 | MIGRAINE/WEIGHT LOSS/ BIPOLAR | TINGLING IN FACE HANDS AND FEET, TASTE PERVERSION (CARBONATED BEVERAGES TASTE FLAT), LOSS OF APPEITITE, WEIGHT LOSS, IRRATATED GUMS AND BURNING SENSATION IN MY MOUTH | THE ONLY SIDE EFFECT THAT BOTHERS ME IS THE BURNIG SENSATION IN MY MOUTH. HAS ANYONE HAD THIS? DOES IT EVER GO AWAY? PLEASE EMAIL ME IF YOU HAVE. THANKS. OTHER THAN THAT I CAN LIVE WITH ALL THE OTHER SIDE EFFECTS, BECAUSE I FEEL TOTALLY BETTER, MENTALLY AND NO MIGRAINE! | F | 32 | 16 days | 10/8/2008 | 1 | treatment resistant depression | brief increase in depressive symptoms, SEVERE lethargy, loss of appetite | the loss of appetite was the main reason i went on it--after being on seroquel for two years, i had gained about 30 pounds. but it really made it so i could hardly get out of bed. not depressed, just not able to really do anything/not interested in anything. | F | 34 | 75 days | 10/6/2008 | 4 | chronic abdominal nerve damage pain | I have some slight tingling in my hands and feet. I lost 10 lbs. in the first month (Great!) The most annoying is I have a swollen tongue and a burning sensation in my mouth which is painful at times, and yes, that icky mettalic taste. | This drug truly is like a miracle for me. I've been in pain for about 3 yrs. from this nerve damage. I've been using strong narcotic pain meds. and still not getting pain relief. I went to a chronic pain specialist and he started me on the Topomax along with Amytriptyline and some cortisone/long acting anasthetic injections in my spine. After 3 shots, I won't need those anymore as the Topomax should be enough. It's working so well for me, and well worth putting up with side effects I have. I was told the side effects can take a few months to go away, but will eventually. I am sorry for those of you who couldn't tolerate this drug. It has given me a hope for a future, which I had lost. | F | 59 | 2 months | 10/5/2008 | 4 | Depression, Weight Loss | After taking Topamax with great results for almost 2 years, the past 2 months I've been having terrible side effects: Double vision and extreme fatigue. I recently was on a vegan diet for a few months but went off that thinking it was that. It didn't seem to be the diet. I went to my primary Dr who did bloodwork on me to rule out basic problems and there were none. The only thing I could figure out was my medications. I contacted my Dr who prescribed the Topamax and he reduced my dosage from 100mg to 50 immediately. | Topamax has worked well along with my anti-depressants for over 2 years. My moods are stabilized and most of my not so harmful but annoying obsessions are in control! Weight loss is an added benefit. However, the fogginess and loss of words makes me think that I am not 44 years old but more like 74!!!! My husband has to help me remember names. This shouldn't be the way to live. I hope that by reducing this Topamax and eventually getting off I'll get rid of this double vision.....as Topamax may NOT be the cause. If it's not, then I'll have to look for answers else where. I mean, after 2 years, how could I all of a sudden have double vision? Email me if you have any ideas or help. | F | 44 | 2 years | 10/3/2008 | 4 | Migraine and Tension Headaches | Fatigue, tingles for the first week at 25mg, no other side effects so far. | I am on week four, I am at my 1st day at 100mg. I have had little side effects so far. I am currently on Nuvaring. Has anyone ever stopped their BC while on Topamax? I am VERY nervous of hairloss. I have read so many horrid things about this. I do not think I have had much if any so far and do not want to start, but know that stopping a BC can cause hairloss as well. I do not want TWO strike against me! Please email if you have any info. I am currently takin Omega 3's, Evening Primrose Oil, B12, Biotin and GNC multi Vitamin for women to combat any of that that *may* happen. I just really hope that it will not. I'd really like to hear via email from anyone that has stopped BC and went to something non-hormonal like Paragard IUD and not had hair loss or stopped or prevented hairloss from Topamax with vitamins as stated above? Thanks! | F | 31 | 21 days | 10/1/2008 | 4 | migraines/ neck shoulder arm pain | anxiety went skyrocketing. occasional tingling/ burning in legs, feet, and fingers. confusion of date roads and whether i took medicines or not. | after 2 months it's settled in and ive went from having 2 migraines a week to not really having any recently. it completely blew my anxiety to panic level i had to readjust up lexapro from 5 mg to 20mg / day. this medicine also seems to provide some relief from severe pain in my neck, shoulder, and arm that percocet or OTC pain meds did not give any relief from, so i am very pleased but considering consulting a pain clinic in future instead as a different option than this medicine. | F | 35 | 2.5 months | 9/30/2008 | 4 | daily headaches, nerve pain | intermittent tingling in hands and feet, especially the heels; numb nose, eyebrows and around my lips about an hour after taking (that feels really weird!); slight loss of appetite; trouble sleeping at first but that went away after the first week; a little bit of trouble with forgetting words | Wow! not a single headache since I started this medication, and I had gone for years with headaches every day. Topamax is awesome for headaches. The weird part, is that its prescribed also for the nerve pain in my arm, but is causing similar tingling in my other arm and feet now, but I'll take that over headaches any day. I haven't had any weight loss yet, but I hope it happens! I've definitely lost some of my appetite. That would be a nice..uh..I can't think of the word I want to write here...haha...oh well. | F | 31 | 16 days | 9/30/2008 | 2 | Preventative Migraine/Headaches | No effect at all on headaches...didn't touch them even after a month of 100 mg - bad acne? Anyone else, and just same "jolts" or "tingles" as everyone else calls them. I'm sure these go away though. | Hopefully helpful; I used for preventative pain and am now on a new med treatment which works better....but I think I was misdiagnosed with migraines. Anyway, was on Lamictal, which is similiar and the side effects of this drug are far less that that if having a choice between the two for an off-label use. I.e. Bi-polar, cyclothymia, etc... | F | 27 | 30 days | 9/29/2008 |