TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  seizures Started switching over from Keppra to Topamax 4 weeks ago. I am unable to function. I am psychotic. I am hallucinating. I cannot have a conversation with anyone, I can't remember what I have said. I can't think straight. I cannot function physically. No sex drive what so ever. Thank you all for posting your experience here. I am so glad to find out that I am not going insane and that I am not alone. I am calling the doctor tomorrow and getting off this drug. F 43 5 weeks
6/28/2005
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 1  peripheral neuropathy severe headaches, joint and muscle aches, ringing in ears, swelling feet, appetite loss and weight loss, sleepiness titration: 25mg for 4 wks then incr 25mg each 2 wk interval up to 75 mg - then ceased M 44 6 weeks
6/28/2005
 3  epilepsy weight loss, HAIR LOSS, Memory and language problems, tingling in arms, hands, legs, and face (especially after excersize), and I've lost the ability to sweat. I've been a topamax for a year for seizures and I've experienced some interesting side effects. If you're considering taking topamax because of its positive side effects like losing weight I suggest rethink it and join gym. You see once you go on topamax you may look better however you just can't remember anything or speak. :) F 18 1 years
6/25/2005
 5  Epilepsy Slow comprehension, memory loss, weight loss, and daily headaches I take 200 mg twice a day and that, combined with Lamictal, has controlled my seizures. I always have to write things down to remember them otherwise I'll forget the next minute. That's how slow the Topamax has made me. Otherwise, I'm not dissatisfied b/c I've lost about 50 lbs. F 20 2 years
6/23/2005
 1  Severe Migraines Extreme tiredness, change of mood, crying, anxiety,weight loss and nightmares. Where do I start - I tired this drug a few years ago but the migranes started up again and were severe so I was desperate. I thought that I could handle this drug - I was wrong. I have lost weight - I guess that is the only plus. I have fits of anger, can't think or work out simple problems, extreme fatigue, paranoid thinking, word finding problems and the list goes on. I was hosptilized recently for dehydration - I drink 4 liters of water a day and I was dehydrated? I have had a UTI and kidney infection. I see my Neurologist next week - am asking to be taken off this drug and given something else. If anyone has an answer to this nightmare please let me know - thanks in advance... F 48 6 weeks
6/22/2005
 5  post stroke headache & pressure weight loss (50+ in 16 months), confusion, blurting out the wrong word all the time, definite fatigue as I am always tired, increased thirst, kidney stones & hematuria but no problems with carbonated beverages as I ONLY drink seltzer water. this is a great drug as i tried many different combinations to help with the side effects that were caused from the stroke that I had. After 2 days of taking this drug, the headaches were gone and I finally after 2 years felt normal and could function on a level that i was used to before i got sick. Yes there are side effects but this drug has given me back my life - the weight loss i guess was a bonus?? as i did not know topamax caused it and actually went back to the dr thinking something was wrong again. F 31 16 months
6/20/2005
 3  Epilepsy Tingling in the hands, feet and face. Soda is no longer a part of my diet. Hair loss, my hair texture has also changed (which wasn't exactly bad, it went from frizzy to smooth, haha). I also get a really bad antsy feeling in my legs at night making it hard to sleep. Moodiness, weightloss, loss of memory and often have a feeling of dizzyness and I also have frequent problems with depth perception. To me, this drug isnt really worth it considering my stage of epilepsy. I only have seizures once every couple of years and it only became a problem in 7th grade (My last known seizure) when my mom decided we had to start looking at options. Considering here in Minnesota you have to be seizure free for a year before you can get your license back after an episode, I'd basically only have my license every other year or so, so thats why I was put on the drug, and it was the only one that really didn't effect weight negatively, me being less than the perfect body weight already. I'm happy it's effected you all so positively though, good luck! F 17 4 years
6/17/2005
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 1  migraines / cluster headaches tingling feet, extreme sleepyness, confusion, unable to drive, extreme increase in intensity of headaches (scary stuff)(migraines are bad enough), pressure in ears and head like an airplane landing really quickly, generally felt like crap. i held out 10 days hoping for the best, but the side effects got the best of me. the drug was just too much. i couldn't work or drive. my headaches worsened. within the 10 days other than daily headaches, 4 of them were full blown migraines lasting more than 8 hours and were really intense. my normal migraines i can grab before they blow and stop them, these i could not. very out of control. my normal migraines and clusters are about 10-15 per month and of the migraines about 3 of them are full blown. i will take my noraml headache patterns over topamax anyday. at least i have control! and less pain!! F 41 10 days
6/16/2005
 5  Migraines I have allot of confusion and trouble placing words. Feel hungry but couldn't eat, loss of wieght (didn't mind that), I felt off balance the first 2 weeks but that went away, and I am tired all the time. I felt that it worked miracles for my migraines but with the side effects being confusion and sleepyness, it made my school mark drop dramatically because i couldn't focus. F 18 6 months
6/15/2005
 3  migraine carbonated soft drinks tasting flat was first but that went away. Becoming I am supposed to take 200 mg per day, I take 40mg and still have the F 57 3 years
6/9/2005
 2  Daily Headaches; Migraines Daily nausea; Vomiting; Tiredness; Irritability; Still having daily head pain. I started on 25 mg. w/ side effects. Still the same at 50 mg. I just started 75 mg. 2 days ago and still no change. My doctor hopes that when I get to 100 mg. the side effects will cease and the headaches will be prevented. Hard dealing with nausea and head pain on a daily basis - starting to consider going off. When I fell asleep one night with out taking my Topamax, I awoke the next morning without any nausea or head discomfort at all. F 32 3 weeks
6/7/2005
 3  depression/mood stabilizer tingling in fingers and toes, loss of appetite, fatigue, diarrhea, nausea i'm now taking 200mg a day and i have to make myself eat because if i don't eat at all i get too weak and i don't have enough energy to do anything. i wanna lose weight but running to the bathroom to have diarrhea all the time and feeling sick all the time hinders you from living normally sometimes. i try to make myself eat atleast two small meals a day F 20 6 weeks
6/3/2005
 4  Cluster Headaches I'm very Thirsty all the time, Insomnia, Spaced out. So far so good. I've only gotten slight 'shadows' this episode but they seem to remain only shadows since I started the topamax. I do miss my beer though :(. M 26 21 days
6/2/2005
 1  seisures It slowed my cognitve function as compared to dilantin and it made me very sleepy. Also, it made me feel hot and sweaty all the time so that I was always thirsty or struggling to go to sleep at night. It makes you dumb and sleepy; don't use it; use dilantin instead. 2 months
6/2/2005
 1  migraine Memory loss. I could not remember what day it was ever.speech slurred. difficulty finding my words. lossed interest in food F 47 3 months
6/1/2005
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 3  Migraines Headaches are better - but not gone. Hormonal headaches still a problem. Tingling in extremities for first 2 months (made worse by cold weather) as I worked up to 200mg per day (increased by 25mg per week), soda/carbonation/metallic taste problem stated by so many, worsening vision, hair loss which I originally thought was b/c I had a baby several months before starting but am realizing is b/c of the Topamax, loss of appetite in the beginning resulting in a 12 lb weight loss the first 2 months (actually not a lot considering I weighed 236 when I started), appetite has returned and weight loss has ceased (weight loss was one of the most attractive effects of this drug). Also, I have had ZERO sex drive – to the point where it is starting to affect my marriage. I thought that might have been from the Wellbutrin I also take, but I have cut it from 450mg to 150mg and have seen no change. Also, I do not remember having this problem with Wellbutrin before I got pregnant and quit taking it. I MISS DIET COKE... but not nearly as much as I miss sex. The lossof libido will cause me to come off of this med. I would rather live with headaches than lose my marriage - and it is coming to that point. I did not realise that Topamax could have this effect. F 28 5 months
5/31/2005
 1  Bipolar Disorder Topamax literally made me dumber than a box of rocks. Everyday I was on it I felt confused, disoriented, spaced out, and I couldn't concentrate on anything I put my mind to. I have been off of it, however, for 5 days, and my mind is a thousand times quicker and clearer. I don't recommend Topamax for people diagnosed with Bipolar disorder. This drug will literally make you an idiot. F 19 3 months
5/30/2005
 1  migraines Extreme, very extreme fatique to the point I just wanted to sit down and cry after taking it for only a few days. I immediately stopped the medicine and hope these side effects will be eliminated. I hate it! F 63 5 days
5/23/2005
 4  Migraine Tingling in extremities (but, had that problem before, but worsened) can get HOT (again, had that problem before, but worsened a LOT) gained weight (did NOT need that) metallic taste in mouth (again had that problem before, but has worsened a LOT) and I call these my Has helped on migraines, but am only on 25 2x a day, so I will probably talk to Dr to increase dosage soon. But, thankfully, when I do get them, over the counter stuff now pretty well cuts them, or at least makes me livable (poor family) where as Zomig was beginning to not do the trick anymore (my body gets used to pain meds and I have to switch them around to F 28 1.5 months
5/22/2005
 3  Migraines, headaches every day speech disorders, hard time thinking of words i wanted to say, forgetting names, bad confusion, tingly feelings, weight loss, difficulty contrating, loss of personality, menstrual disorders, depression i don't like the migraines but i think i'd rather have a migraine twice a week and be myself for the rest of the time. it's expensive medicine. i lost 20 pounds in the first 3 weeks of taking the drug and half of that in the first week. it has made me lose a lot of my personality, i don't act the same. i failed two classes this semester because of confusion / concentration problems - i sat there thinking i was stupid and it was my fault that i didn't understand. one month i had two periods. i would like to try changing my diet and exercising more than i do and see if that helps instead. F 20 4 months
5/18/2005

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