TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Migraines and seizures So far a little paranoia and some slight, occasional tingling in my hands and feet.... also loss of appetite (which is good for me)... So far so good.. but I am only three days in... F 26 3 days
25 mg 1X day
12/28/2011
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 1  took for migraines/sleep had opposite effect on me than was indicated. I was wired and could not sleep. Hated it and stopped immediately. F 54 2 days
1X day
12/26/2011
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 4  Migranies I love Topamax and have been on it for over 3 years. I started out at 25 mg once a day and my DR stepped me up slower than most people because I am a smaller person. I'm 4'10 and weighted 120. I lost almost 20 lbs on it and went on the depo shot which is birth control to gain weight. At first and any time my dose was upped I couldn't drink pop I later found out I can drink it as long as its caffeine free and there is no weird taste. I couldn't eat butter, or sweets but the only thing I could eat was meat. Right I went off my meds for almost two months because they thought I was pregnant turns out I'm not so I'm starting back on them at the 150 mg. I am having problems with getting dizzy, forgetting, and now when I try to eat I can only eat a little at a time and I feel like I'm going to puke after I eat. That has never happened before. As for the numbness or anything like that my hands and feet stopped after maybe 6 months on it, however my face and nose tingle and feel numb. All of the weird food things stopped within about a week every time my dose was changed and this time after going back on it I've not noticed it, only it making me sick to my stomach. But I went from having headaches that would last days or having 2 or 3 headaches a week and ending up the hospital to only having 3 to 4 a month. I believe its worth it. F 22 3 years
50 3X day
12/25/2011
 3  Siezures Weight loss Speech Memory loss F 36 4 years
500
12/22/2011
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 5  chronic daily headache a little tired, spacey, off balance, but those have gone away. I tolerate this medication very well I had been taking 75 mg topamax for migraine and chronic daily headache prevention for years and only minor breakthroughs - - UNTIL 5 weeks ago when I got raging daily headache.with neck and back pain, ringing and buzzing in ears. After one week of being on 100 mg topamax, there has been significant improvement: hardly any headache, some neck pain and minimal noise in ears. This dose works great for me! F 46 7 days
2X day
12/19/2011
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 5  Seizures and migranes I had it all. But really tired of reading post of people complaining about this awesome drug. Side effects only last 90 days after you up a dosage. People quit to fast. This medicine took away my seizures and migraines, I had a healthy baby girl taking it.. And breast feeding on it. At first tingling in hands feet,paranoia,mood swings, thought people were breaking in my house, couldnt sleep,soda tasted gross,heart palpatations,bad taste in mouth,loss of appetite once I hit 100 mg,lost 40 pounds, loss memory , sometimes couldnt remember where home was, loss words and kidney stones. Low immune system causes weird sickness too. At first this is all a nightmare, I even hillucenated when my dose was too high. I'm just a normal girl .i was freaked out. But you get through it and it goes away. No more side effects ecept some kidney stones and a few lost words are well worth zero headaches and zero seizures and weight loss. Many people wonder why they gain once there off the medicine. Well,topamax makes its own matabolism in your body so once you start brvareful stopping. You might have problems. I would just continue on a low does. Lamictal is great second choice. No side effect and aids in weight loss too. I took this as well. Awesome drug. F 33 4 years
200mg
12/7/2011
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 3  Migraine Numbness,tingling in all extremities as well as the face,serious dizziness, confusion, loss of information retention, fogginess, decreased appetite, strange taste, weight loss, ALL the G.I. lovelies, insomnia...anxiety. KIDNEY STONES. I write this after a week convalescing from passing four kidney stones,the largest 7mm. This for a kidney stone is rather large. That was my second 7mm on Topamax. Within the six months on the drug I eventually had six stones. The kicker is I have never had any indicators of kidney stones prior. Yes, I drank water from the get go. Topamax increases uric acid in the body. In a word, it was a #^@%#% awful experience. I started Topamax for migraines and it works wonderfully for that purpose. My body just says no. So, this last week I weaned myself off. Is there a withdrawal? You betcha, but I want to keep my kidneys. F 33 6 months
25mg 2X day
12/2/2011
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 1  Migraines Very forgetful. Got lost driving through the town I had lived in for 6 years going to a familiar place. Angry and irritable. Frustrated. Missed my period entirely. Felt tired and weak. F 28 2 months
50mg
11/30/2011
 2  migraines Metallic taste, vision disturbances, nausia, extreme tiredness, irritable, angry, weight loss. I was on Topiramate. At first, I only had vision disturbances, nausia, lack of appetite, and weight loss. However, after taking it for a few months, I started to get extremely irritated, angry, and depressed. I went off of it cold turkey and was actually suicidal for several weeks and I gained 5 lbs back. I am so much better now.....I do still get a migraine occassionally, but going through that hell wasn't worth it! F 40 4 months
50 mg 2xd
11/28/2011
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 2  Migraine I have had all the nasty side effects mentioned I felt like I was going crazy, sleep apnia as well as racing thoughts, brain fog, feeling detached from my body feeling like I'm not even lying next to my partner, sex drive gone!!! Dizziness! Food didn't want to eat it, drinking fizzy drinks was nasty... Pins an needles the racing brain is not fun at all it's like the speed of them is nothing I've ever felt before, I gave it a go after nothing else worked an I can't take it anymore, oh and memory loss can't spell... It's a joke, the dopamax did effect me! I see wierd things at night felt like I'm going crazy I'm lowering off now with even talking to dr or anyone as I don't get any support nor does any of my family take this medication seriously. It's been so hard to deal with on my own an I wouldn't even recommend it, I just hole my head goes back to normal, however I must say it did reduce my migraines but this does not out way the side effects for me they were just too much I have to find something else I'm like a dumb zombie on it with no emotions an I can't speak either I feel like I'm a prisoner in my own body not to mention the racing sleepless nights F 29 8 months
100 daily
11/23/2011
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 5  Migraines For a few months at the beginning, tingling fingers and feet and I still can't enjoy soda (a good thing). I lost approx 15 lbs (also a good thing). Fabulous drug. I started getting migraines at age 47 (Dad had them) and had 5 - 6 per month. Each migraine lasted a day and was awful. I travelled a lot for work and had to miss flights, stay in hotels. Once I was on my own at home with my younger child and couldn't even manage to get to the phone to say I couldn't bring him into school. I haven't had a full blown migraine since I started taking Topamax. I still get quite a few headaches including what I consider would otherwise have been migraines, but which are now dampened to a very manageable level now. I just take Rx strength ibuprofen and I'm pretty much OK. Previously I found no medication whatsoever that even started to make a dent in the migraine pain and related issues. F 51 4 years
50 MG 2X day
11/19/2011
 1  Migraines Weight loss was great and it did help migraines but the consequenses are not worth it. Tingling, taste changes, very aggravated, slurred speech, mean, ect that did not come on all at once. This is a drug that has so many side effects. After taking it for approx 3 years, I had NO thought process, could not speak at all, lift my left leg AT ALL. I could only walk with a shuffle. My headache dr said to go to the hospital and I never heard from him since. (LOL) They did EEG which was abnormal and an ammonia test which was out of this world-all because of Tapamax. I then had a seizure as they were weaning me off (a week in the hospital). I still have problems with left side tingling and thought process. I thought this was a miracle drug until the dr told me I almost died. F 46 3 years
100 3X day
11/16/2011
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 3  anxiety Spacey, feeling "high," very thirsty, not being able to sleep I have been on the generic Topiramate but MADE BY THE COMPANY TEVA. I was just given my Rx made by the company Camber. My side effects have started as if I just started this medince for the first time. Has anyone every experienced new side effects simply by switching manufacturers?!? Email me if you have!! F 34 5 years
150mg 1X day
11/14/2011
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 5  As a mood stabilizer for Bipolar Tingling in arms, hands, legs, feet, face, eyes, and lips; Hot flashes; loss of concentration and ability to spell correctly; muscle spasms; aches and pains; nausea; diarrhea; loss of appetite; these get really bad if I miss a dose! I have been on this medicine several times before now, but have had to stop taking it for one reason or another (once because I stopped sweating in the middle of a very hot summer, but usually because it stops working.). I know that this medicine helps me more than any other, but I can't take it without an antidepressant, as it causes me to have crying spells at the drop of a dime for no apparent reason. I actually feel normal when I'm on this medicine. I rated this medicine a 5 because it truly is my life saving happy pill! F 27 5 days
50mg 1X day
11/12/2011
 5  chronic migraines Tingling in fingers and toes at first a lot, now only on occasion. I still sometimes have trouble doing simple math in my head. Word-finding problems on occasion. Weight loss that evened off. From the time I was 11 I had migraines everyday, all day, nonstop. Topamax saved me from a life of living in the dark. F 24 4 years
250 1X day
11/12/2011
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 5   This is a great med.... it works great for migraines and you do lose weight.. you just have to get past the tingiling in your toes and fingers...give up anything with carbonation, and forget trying to concentrate ;) lost 45 lbs on this went from 145 lbs too 100 F 26 2 years
50 mg 2X day
11/10/2011
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 5  Epilepsy Initially, soda tasted disgusting. From time to time, I still get the pins and needles feelings in my feet. I am still waiting on the weight loss everyone else gets to experience..lol. I haven't ever really experienced the "dopamax" effect many people talk about. when I was first diagnosed, I was put on Dilantin. I hated the blood tests. It also did not completely keep my absence seizures at bay. I was placed on depakote which made me vomit in technicolors. Carbatrol made me a zombie. Topamax was the wonder drug. With provigil as a morning chaser to ward off sleep deprivation seizures, I am a happy camper! F 39 12 years
150 mg 2X day
10/30/2011
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 4  chronic migraines Tingling in hands and feet, foggy mind, tired a lot at first, memory loss, weight loss. I have been on an off of this medicine for several years. I am a writer and have to go off of it for periods to clear my mind. I feel like a veil is lifted and I see the world so clearly when I stop taking it, yet it is the only medicine that fully relieves my chronic migraines -- a bittersweet pill to be sure. The tingling in hands and feet feel strange at first but I can adjust quickly; however, the tingling becomes painful if my feet fall asleep! Also, the generic does not work for me (and my neurologist said it is made in another country and isn't surprised) so I pay the huge difference in copay. Love the weight loss side effect (which NEVER occurred with the generic for me). Good luck to all. F 50 60 days
50 mg 4X day
10/23/2011
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 5  Epilepsy tingling, numbness, some slight slurring of speech, memory loss, weight loss, exhaustion, loss of libido(?) I'm lucky, despite having similar side effects that everyone else has, they don't bother me much and I have very few issues that are problematic. I used to take Tegretol for years, but that started changing its effect. Then my doctor switched me to Topomax. I have the tingling and numbness, and have some slurring of speech, but it's not noticeable, really, just sounds like average person messing up. I do have trouble remembering things, which sucks because I feel dumber than I know I am. I lost weight, but was also trying to-- about 30 pounds, whereas with Lamictal (I took that for awhile and hated it) I gained the 30 and couldn't get rid of it no matter what. Topomax has completely done away with my anxiety, panic attacks, auras, EVERYTHING. My period has become irregular lately; I'm 41 and I am wondering if I'm perimenopausal or if it has anything to do with the Topomax. I definitely have less of a libido in the last year or so-- may be just my age. F 41 4 years
100 2X day
10/22/2011
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 4  depression, mood problems soda tasted different, insomnia While on topamax not alot of things bothered me, the dark and scary things didn't really affect me. I would be able to sit and watch tv, and not hafta get up or move around. So it decresed restlessness. In other ways, even though it seemed very good, it seemed too good to be true at times. And at low doses can change your mood, or affect it in such a way as to change your personality. Is a good drug for the short term maybe, but u wouldnt want to take a drug for short term anyways. M 26
25 mg 1X day
10/20/2011
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