TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Migraine Headaches Initial tingling/numbness in hands and feet, forgetfulness, memory loss, overall 'ditzy' feeling This drug REALLY works for migraines. I was having migraines nearly every day. Couldn't get out of bed, go to work, school or anything. I take 100mg twice a day. The only down side for me has been the forgetfulness. It's a bit of a problem with school/work. Considering asking my neurologist to decrease my dose for a while to see if it helps. F 28 25 months
1/13/2009
 3  migraines, severe pain hair loss, tingling, aversion to soda, word drop, fuzziness does anyone know if there are any vitamins or something to take to combat the hair loss from topamax? i am on birth control pills and can't go on a non hormone contraceptive such as an IUD. please let me know cause mine keeps getting thinner and thinner!! :( it works so well for migraine aversion but oh! the side effects!THANKS! -juli email: [email protected] F 27 3 years
1/10/2009
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 3  Migraines Nausea, stomach cramps, loss of appetite, coke and pepsi taste flat, my spelling could be better, gastrointestinal issues I'm currently up to 100mg a day and have been on Topamax for a month now. I didn't realize that the stomach cramps and gastrointestinal issues were side effects from this medication until I came here and saw others were having the same problems. The naseau has pretty much gone away, it was really only the 1st couple of weeks, especially if I forgot to eat, which would happen because I didn't have much of an appetite. Anyhow, my husband and I just decided to try for our second baby so I'm going off of this med... which by the sound of it I probably should anyway with all these bad side effects. I certainly don't want my hair falling out. I noticed it a little so far and I don't want to lose anymore. F 30 30 days
1/9/2009
 1  migraines eye pain, memory loss, decresed mobility in hips, knees and ALL joints, aggitated started at 25mg for 2 weeks, have been on ONLY 50mg for 6 weeks last week I couldnt get out of bed for 4 days straight, found out that i may have lost some bone density at the age of 27 from this med. Have had a continued nagging headache ever since being on this. Very aggitated... please be careful when going on this med.. didnt touch weight, diet pop tasted bad for a week then went back to normal, be very cautious! F 27 8 weeks
1/9/2009
 5  migraines Weight loss, strange taste w/soft drinks Medication has saved my life! F 40 5 years
1/8/2009
 3  Seizure disorder Diarrhea, nausea, stomach cramps, tingling of fingers, double vision, weight loss I didn't have any seizures with Topamax, but the side effects, especially the diarrhea, were really bad, and I was taking a low dose. I woke up every morning with stomach cramps and had to run to the bathroom with diarrhea, then was nauseous all day. The double vision decreased when I decreased the dosage, but was scary. F 42 3 months
1/8/2009
 5  Migraines Tingling, confusion, loss of appetite, can't drink sodas. All of these side effects went away. Took Topomax for 3 months, separated from my husband and he took me off of his ins. Just got ins back and the first thing I did was went back to the doc to get my Topamax. This is the best med that I've ever taken. It stopped my migraines from 3 to 4 times a week to just 1 or 2 a month mainly around my mentrual. I've lost weight. Can't spell, can't drink sodas, but that helped my weight loss. F 31 1 years
1/7/2009
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 4  migraine headache tingling fingers,blurred vision,lack of concentration. Helped migraine. F 50 17 months
1/2/2009
 4  Migraines Weight loss. Lost 20 lbs. First few weeks experienced confusion and memory loss but that went away. Low blood pressure. My blood pressure was already on the low side but now I have to be really careful as Topamax has lowered it even more so I do have pass out occasionally Topamax has SIGNIFICANTLY helped my migraines. I was suffering from around 3 severe migraines per week and now I only get maybe max 3 per month. M 53 8 months
1/2/2009
 1  Migraines Tingling, HAIR LOSS!!!! Mood Swings, Irritability, Loss of words, Loss of sex drive, Paranoia, Anemia, Low ferritin levels, weight loss This drug should be banned!!! It was the worst 1-1/2 years of my life!!! The Hair loss was horrible, especially on the right side of my head. The texture of my hair also changed and felt and looked like straw. I thought this was all due to the birth of my twins. NOT. It also led to extreme anemia and low ferritin levels. I cannot believe that doctors are allowed to dispense this medication! I have since stopped taking it and finally after almost a year my hair is growing back and my anemia is gone!!!! Don't let the few good things said about this drug continue to give you false hope - it is extremely dangerous! I feel so bad for those of you who are still on it. GET OFF IT IF YOU CAN! F 42 2 years
1/1/2009
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 4  migraines i lost 25 pounds which i didn't totally mind but it happenned really fast. sometimes i have weird tingly feelings in my face and hands it helped a lot with my almost daily migraines now i usually only get one or two a month F 17 7 months
12/28/2008
 3  migraines I've had tingling and numbness in both of my hands and a few times on my heels. I cannot drink any carbonated drinks such as coke or pepsi because they have a very bland taste then followed by a sharp, painful taste. I lost about 5lbs. so far. I still have migraines but I do not experience the side effects of my migraine medicine, zomig since I have been on topomax. I am taking the smallest dosage every night. F 35 20 days
12/26/2008
 4  to prevent miagraine headaches I have been on Topamax for 3 years. only take 50mg. Higher dose doesn't work for me. I did drop 50 lbs. after being on it 2 years. Weight loss didn't happen fast. The really bad feelings have gone away. at first I couldn't think, sleep, talk, feel...it was pure hell. But guess what....so were the the daily headaches I had for 35 years. Now I might have 2 a month. This medicine isn't for everybody, you just have to decide how bad you want you head to stop hurting.....what you are willing to do. F 51 3 years
12/25/2008
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 3  Migrane headaches Just as everyone else here has said, the awful taste of soda now. Only a small weight loss noticed. Still have migraines occassionally. Take Imitrex when those pop up. Does anyone have any problems with blood in their stool when having a bowel movement? Curious. F 39 4 months
12/13/2008
 5  Binge Eating Disorder Decreased sex drive, difficulty with spelling, diet soda tastes like gasoline, tired but can be prevented with "alertec" Great for binge eaters or anyone with complusive eating disorder, it is a tough and secret and lonely place, this drug will make you loose interest in your addictive foods - it is brilliant, it changes your brain chemistry, it will make you sleepy, you can overcome this horrible disease, email me: F 36 1 years
12/11/2008
 5  Migraines Carbonated drinks taste like crap!! Some weight loss. Mild extremity tingles. Worked up from 25 mg a day to 100mg a day have had no migrained since. LOVE it highly recommend it!!! Have had no depression foggy mind nothing like that at all. I suffered horribly with migraines before I found this. Plus I have lost 7lbs! F 34 8 weeks
12/11/2008
 1  bulimia very bad hair loss. swollen hands. vision changes. gave a general flat feeling and this increased overeating behavior. gained lots of water weight upon stopping. F 27 60 days
12/10/2008
 4  Bipolar/Migraines Food after taste. Blurred vision Prior to going on Topamax I had ECT. It had a reverse effect on me, because I couldn't get any stupider F 51 4 months
12/7/2008
 1  Neuropathy, Chronic Pain Terrible taste in mouth. Crazy excessive thirst. Brain fog, weird gait, heart palpitations, tingling in fingers and heels, fatigue, but can't sleep, bronchitis, wheezing, blurry vision, dopey feeling, irritated sinuses. I was put on 25mg a day at night time almost two weeks ago, to add 25mg per day each week until I got to 200mg/day. I called the pain management pharmacist and told her about the thirst and she said she had never heard of that before. The more severe symptoms I have just gotten the last couple of days since increasing to 50 mgs/day. They are hot to get me off of the opiate painkillers I have been taking that do not cause side effects and do manage my pain and seem not to care about these side effects. So it has been helpful reading everyone's input here. I took only one tonight and am calling her on Monday with the entire list of symptoms and asking if they really want me to continue this. IF so, I will say I don't. I believe they have Celexa in mind next if this one doesn't work - or rather if I refuse to allow it, which I won't. Horrible experience! F 48 12 days
12/6/2008
 5  Bulimia The only side effects I have experienced are spelling errors (a lot of them. I used to pride myself on my ability to spell, and now I can't worth a hill of beans.) and the whole "what's the word?" thing. Maybe a little drowsiness but nothing major. I love this. Seriously this has been a miracle for me. Binging and purging disappeared practically overnight. It's like the urge just isn't there anymore. It's amazing, it has given me some semblance of a life back. I'll take "the stupids" over the hell of bulimia anyday! F 17 2 months
12/5/2008

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