TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Migraines/Chronic Daily Headache Extreme weight loss about 25 pounds (am 5'8 went from approx 145 to 120), loss of appetite, tingling of feet and around mouth, I think I'm having some minor memory loss and "what's the word" but I can't tell because I can't remember, drowsiness. The topamax helped with the migraines a lot. I tried many different drugs. Before topamax I had headaches/migraines every day. Now the migraines are essentially gone. I still get headaches pretty often though. F 16 1 years
2/20/2009
 5  Migraines weight loss, dry mouth, skin and hair I was experiencing migraines at least once a week and was having daily headaches. I took topamax for 18months and after the first 3 months they controlled my migraines to the point where I was getting about 1 a month. I was able to identify my triggers and now I'm off the medication and my migraines have not increased in frequency, still only 1 a month but I can now control it with regular analgesia. F 38 18 months
2/18/2009
 5  valium withdrawal absolutely none-maybe a bit of tingling in my hands, but that also could have been from the valium withdrawal i was tapering off of valium and having a terrible time. my dr. prescribed topamax 25mg 3x a day. i began with 25mg 2x a day, and felt immediate relief the first day. i went up to 75mg on the third day. this drug has been a lifesaver for me. i have been at this dose for about 2 years now, and i am about to increase my dose. after reading some of the negative reports on here, i am now going to do it more cautiously. i have been off the valium for 18 months, but have a seizure disorder, and the topamax dose isn't high enough. however, i am very glad i have this medication. F 45 2 years
2/18/2009
 2  Dizziness/vestibular problems TERRIBLE heartburn after 2 days of taking it. Can't sleep from the heartburn. Food hurts to swallow. Also itching all over and depressive thoughts. Can't spell for crap!! Am calling today to ask for something different. There is no generic for Topamax (a nurse fiend told me it's known as "stupormax") so I had to pay $30 for that bottle!! F 47 3 days
2/18/2009
 3  Bipolar II Tingling in hands, fatigue, depression, decreased appitite I've only gotten up to 50mg but so far I don't like how this medcine is making me feel. My depression has been worse since switching. I've been extremely tired and feeling really weak... I don't think these side effects are worth it. And it's not a very good mood stabilizer. 25 3 months
2/17/2009
 3  MIGRAINE TINGLING IN FEET AND HANDS, LETHARGY, FOGGY THINKING, LACK OF MOTIVATION I'M NOT SORRY I TOOK TOPAMAX. IT HELPED ME SOME, BUT THE SIDE EFFECTS WERE NOT WORTH IT AFTER 3 YRS OF ONLY SLIGHT RELIEF. WHEN I STOPPED TAKING TOPAMAX, I REALIZED THE TOLL IT HAD TAKEN ON MY LIFE. I COULDN'T BELIEVE HOW MUCH BETTER OVERALL I FELT WITHOUT IT. I AM NOW TAKING KEPPRA FOR MY MIGRAINES WITH MUCH BETTER RESULTS AND FEWER SIDE EFFECTS. F 57 3 years
2/13/2009
 5  migraine dyslexic, acne, sinus irritation. ...too much for me at the higher dose but just right at 1/2. Went from 18 migraine a month to maybe once a month. Lost 10lbs in 4 months doing nothing. M 50 4 months
2/10/2009
 5  Migraine prevention Mild fatigue, tingling in heels, indigestion, all carbonated beverages taste flat I am taking 100mg per day and this drug has been a godsend for me. I was having approx. 6-8 migraines a month and have only had 2-3 very small ones since I began taking this medication. The side effects are very minor and occasional and are all things I can live with, although I will admit the carbonation thing is VERY strange. I miss beer and champagne and real Coke, but it is a very small price to pay and totally worth it. F 44 4 months
2/10/2009
 5  Migraines Weight loss:-), paresthesia (tingling toes and fingers), carbonation used to taste bad, slight thinning of hair, odor (combat with 3 types of deodorant)- first three months, very difficult adjustment period (fuzziness, depression, weepiness)- but since then, great! Used to get migraines 2-3x/week, headaches EVERY day- since starting Topamax 26 months ago, had only 9 total and Tylenol knocked most of them out. My migraines were caused by hormones, barometric pressure and stress. Can't get away from those triggers! It has been a life saver! I take 100 mg/day, 50 a.m. and 50 p.m. F 42 26 months
2/9/2009
 3  Migraines, Intracranial Hypertensio Metallic taste for carbonated beverages, confusion, "out of sorts" feeling, slurred speech, headaches, eye pain, forgetfulness, tiredness, can't spell, took away my speed, trouble remembering, blurry vision, floaty things in my vision, constipation, lack of appetite, lost of interest in just about anything actually... I started taking this after coming off Diamox for IH. At first it made my headaches worst, so I stopped taking it. Then a few months later and alot of headaches/flare-ups I decided to give it another try. I have been on it for a year now and I am trying to figure out if I should stay on it or ask to find another migraine med. (aside from imitrex and high dose of naproxen) I do like not having headaches everyday but is it worth having all these other side effects that interfere with your life as well? What to do? F 29 1 years
2/4/2009
 2  Migraine Prophylaxis Loss of appetite, nausea, vomiting, parathesia, "lump in the throat" feeling, gagging, stomach pain, loss of words, vision blurring Starting out on Topamax was additionally problem free. A few weeks after going on 50mg I started experiencing a "lump in the throat" feeling which caused me to gag a lot. I began getting more nauseous every day and gagging led to vomiting. At the time I was my sickest I was on 75mg. The vomiting escalated to a daily episode, multiple times a day. Tightening in my throat got worse as well. When the doctor took me down to 25mg, I was feeling even worse. Once I did a bunch of tests, it was determined the medicine was definitely making me ill and I was immediately removed from it. Since then I have felt the best I have in the last three months. Although I didn't tolerate the drug, I would recommend it. During the entire time I never had any migraine problems whatsoever. Just be careful because this drug is not well tolerated by a lot of people and it is usually hell to start on it for most people. If you can tolerate it and get past the first several months then it's F 24 3 months
1/31/2009
 1  migraines severe stomach problems- I began vomiting after the first couple of days, couldn't keep anything down. It was not really nausea, more of severe stomach pain. I ended up in the hospital. F 35 3 weeks
1/30/2009
 5  Headaches Tingling in fingers, some weight loss I began Topamax almost a year ago for headaches(4-5 times a week) that lasted longer than 24 hours and usually ended with me vomitting. I was started on 25 mg and it worked immediately so I stayed with the 25 mg dosage not wanting to take excess medication. Never had any extreme side effects but I have been on a low dosage. Also, I still got the occasional headache once or twice a month and have yet to find something to get rid of it. The past two months my headaches have been increasing but still less extreme than what they were. Overall I think Topamax is a great preventative drug. F 21 1 years
1/29/2009
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 3  Migraines Main problem for me is muscle twitching/fasiculations especially in arms. Goes away when topamax is stopped and starts up again when I restart med. Also carbonated beverages have a protracted zing to them. Some mild depression perhaps, hard to say for sure at this point. Bad headaches have stopped and I've been able to break my triptan habit and rebound headaches. At this point I'm having periodic mild headaches. Topamax dose still low but not sure I can tolerate higher dose. Also on propranolol which may be helping as much as topamax. M 54 21 days
1/27/2009
 2  Migraines/ Daily Headaches Anxiety attacks, nausea , still have headaches, sharp pins needles pains in feet & hands, burning in hands & feet, irritability, constant crying. I am quiting not worth all the side effects Took 100mg at night F 36 2 months
1/27/2009
 4  Chronic Headaches / Migraines Tingliness in nerve endings, i.e. fingertips. I felt like if I could only focus enough, I could shoot electricity out of my fingertips at times. Loss of appetite, sleepiness, some fogginess, "trails" off objects (pretty major ones, at that). Also, I haven't read through all 10 pages, but it doesn't seem that anyone has mentioned problems with Topamax affecting their menstruation at all. I believe it has affected mine. I have experienced far heavier bleeding and much more intense / severe cramping throughout the entirety of my period, which is not at ALL normal for me. I have also experienced severe nausea throughout it- another irregularity for me. I have never been so sick from my period until this. However, with the exception of the past week, my everyday headaches are pretty much gone now, and the only time I have gotten any migraines in the last 2 weeks were during my period. So about 1 week of suffering vs. suffering everyday like I was? I think I'll take it. F 32 26 days
1/26/2009
 5  migraines tinglining in hands/ flat taste of drinks my headaches have went away I can deal with the tingles and can go with out sodas its way better than the head aches. I haven't noticed any major side effects besides feeling a bit dingy every now and then but cant really tell if its the meds or just me. Lost 12 pounds F 36 3 months
1/19/2009
 4  migraines joint pain (knees) been on 100mg for about a year and for the last 4 months or so my right knee started with severe pain. thought maybe i hurt it at the gym or pulled something at work lifting a patient. there was no swelling or redness, it was more like under my kneecap. this has been going on for about 4 months nurses are the worst patients so i have not gone to the dr. yet, just taking aleve and using icy hot. two weeks ago my left knee started doing the same thing, so then i knew something was going on. take no other meds except imitrex as needed about 3x a month. started researching and found this site. this is the only side effect i have had. worked great for migraines went from 16 or so a month to 3. F 38 1 years
1/17/2009
 5  migrain prophylaxis Electric tingling in hands and face with a trailing sensation. Great appetite controll. Soda tastes flat. Apples taste like burnt plastic. Cardamon tastes like moth balls. Went from having 5 migrains a week to having one in 14 days and I haven't finished titraiting up the dose. Started at 25 mg twice a day for 1 week, and will end up at 50 mg twice a day. Tingling dissapears after 2nd dose each time I increase dose. F 35 14 days
1/16/2009
 2  Migraines Initially, loss of appetite, carbonated beverages tasted weird, hard to find words, memory loss I am desperate - it seems like the longer I am on topamax the worse my memory becomes. I have tried unsuccessfully 3 times to wean myself off. I'm taking 200mg every other day now. During weaning period the return of headaches and of aura were horrible. I've got to get off this drug because I can't remember things such as events in my children's lives and have difficulty writing a simple letter because I can't remember how to spell a word. SOMEONE PLEASE HELP!!!!!!! F 46 6 years
1/15/2009
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