TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Mirgraine foot numbness in the first few weeks, difficulty concentrating (when on higher dose of 200 mg but subsided after first month), alcohol intolerance, food taste changes (now able to drink carbonated drinks again had to wait out the one to two month time laps), weight loss (15 lbs but still dropping and not trying ), reduced sweating/frequent overheating when exercising (just discovered this is a side effect this summer when running outside as others have stated and I found this out the hard way I was not warned that this was a side effect and I almost passed out several times when exercising. TAKE NOTE BECARE OF OVER HEATING) constipation, lack of motivation, upset stomach, lethargic, and frequently tired. IF you are taking this drug only because you want to loose weight you are crazy. TOO many side effects. I have been taking Topamax for 10 months and at the beginning I have very happy. I started off with 50 mg and had great results. It was controlling my migraines and daily “cluster” headaches. Now 10 months later I am taking 200 mg and I am having daily “cluster” headaches again and about 6-8 migraines a month. I am not sure why over the ten month time period this medicine has become less effective, however, at first it was wonderful. Now I am back to square one. Anyone else have this happen? F 35 10 months
8/27/2007
 1  headaches depression,joint pain ,hair loss,leg cramps,weight loss,fatigue,acne,back pain,agressivness,periods changed I'm sure that Topamax has help a lot of people. It was just not the drug for me. I did lose 25 pounds but my headaches did'nt go away and the other side effects were very difficult. I stopped taking the drug gained the weight back and continue to live with the headaches. It just did'nt work for me. F 44 9 months
8/27/2007
 1  depression, wiehgt loss SEVERE HAIR LOSS AND HORRIBLE CHANGE OF HAIR TEXTURE!!! Everything tasted bad. Depression increased, got irritated and impatient at the smallest things. HORRIBLE, HORRIBLE DRUG!!! STOPPED IT 2 MONTHS AGO AND MY HAIR IS STILL FALLING OUT! THIS IS NOT MENTIONED ANYWHERE ON THE PI SHEET. Doctors need to STOP prescribing it to anyone who asks for it because they heard it is a weight loss drug, I only lost 4 pounds, and a LOT of hair, and believe me, it was NOT worth it!!! F 50 8 months
8/26/2007
 2  Biploar & Migraines Tingling (pins and needles) in extremities (especially feet). Very Lethargic and listless. ACNE. Dr. started me at 25mg/week increasing 25mg each week final 150mg. The first two months were VERY difficult. I could barely stay awake. *note - I still had 3 migraines in this time period* I decided to wait until I was at target dosage before I judged. I've been at 150mg for over two months. I used to get 1 migraine/week. Now I get approx 2/month. I am still more tired then normal, have the "tingles", and folks...has this come up for anyone....serious acne??? I'm in my late 20's and never had acne. I am recently engaged and was mistaken for a teenager looking for a prom dress at a bridal shop! YIKES! Long story short...NOT a fan! F 29 4 months
8/24/2007
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 1  Migraine Decreased appitite, weight loss, tingling in fingers and toes, nausia, trouble finding words, confusion, took longer to figure out things at work, argumentative anger, became a mad person, got mad a little things and would argue for at least 30 minutes, would do this to boyfriend, magazine articles, tv, movies, and checkout clerks when things went wrong. My patience went to zero - so not like me. I started out on the free trial plan to get started, then moved to 50mg twice a day. My migraines were at 4-5 a month. They increased to 7-8 a month. The sevierity of the pain was the same. After taking this horrible drug for 5 months, my dr agreed to take me off. I didn't mind the weight loss (13 pounds) or tingling sensations. But the rest of the side effects were too much. I was eating too much Zofran for nausia, I could barely function at work, and my relationship with my boyfriend was suffering. F 31 5 months
8/22/2007
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 4  migraines for 23 yrs When I first started taking topamax (topirmate) at 50 mil a day I felt the tingling and the had a blurry vision with huge amount of visual disturbances night and day.(ALSO WHILE DRIVING SCARY!) I also have had 60 over pounds of weight loss from 210 to 140 and I'm 5'9 now that I'm up to 150 mil a day, I never feel like eating and nothing really sounds good to eat. I'm completely tired all the time and don't feel like doing anything at all. My migraines have not subsided completely I decided trying botox injections, which have helped so far. I do have the nasuea and very dizzy all the time. My hair has thinned and I have had a loss of short term memory, and will be quick to snap because my demeanor has changed...I'm not the same active friendly person I used to be. You'll know after like 3 weeks or a month of taking this medicine whether or not it fits you...if the benefits out weigh the side effects then continue if not stop now....I've taken it for over a year and a half almost two years can't really remember lol not so funny actually...but Ya thats all folks F 25 2 years
8/21/2007
 5  MIGRAINES I have had tingling in my hands. Sometimes my hands feel as if they are numb. I also for the first two weeks got CRAZY dreams! This med has really stopped my migraines F 22 60 days
8/20/2007
 2  Migraines Impaired my speech, made me stutter and forget words. Felt Dumb! Wanted to sleep all day long. Couldn't increase dose because side effects worsened. Didn't help headaches F 34 2 years
8/20/2007
 2  Constant Migraines No energy, no appetite, severe kidney bleeding (history of stones) constipated, (cramps) memory loss, failure to focus and form words, didn't care to, slight occasional dizziness but never the tingling I'm reading about here. Headaches still come, but not as severe. Oh and constant heartburn. 25mg twice a day. Toprol-XL 1 a day, took a steriod for a week to break the tylenol habit. Only been on the new meds 10 days, since then I have felt worse from the side effects than I did with the headaches. At least I could manages them. I can't function when my brain is asleep and my core is in pain. I have been told it only took a week for the sides effects. I'm beginning to get worried. M 52 10 days
8/20/2007
 1  misdiagnosed bipolar tingling hands/feet, disorientation, weight gain (10 lbs in 45 days), loss of effervesense sensation on my tongue, word substitution and inability to put together coherent thoughts, inability to problem solve effectively, lack of motivation, severe mood swings, mild psychosis, lack of physical balance, I was on 100 mg a day. Decided to ween myself off of the drug due to all of the negative side effects and the withdrawl just from tappering off feels somewhat like early pregnancy. I'll never take anything like that again. The doctor only put me on it because he didn't like the weight I gained after pregnancy and said it would stop the anxiety when I asked for something to help me sleep at night. F 29 60 days
8/20/2007
 1  epilepsy Dumb as a doornail, memory problems got worse in time, speech problems, insomnia, chronic headaches, skin discoloration, eye pain, leg cramps, pins and needles sensation in my feet, eye twitch, anxiety, depression This drug made me so stupid I lost my job when my boss left and somebody new came in. I also sat in job interviews inable to answer questions. I would get topamax for free from my neurologist which is the ONLY reason i continued to take it. I needed an anti epilepsy drug. I begged her incessantly to help me get another one on another patient assistant program but she was very PROtopamax. she also gave me exelon for cognitive side effects which I couldn't afford to take much of so it didn't help much, also lorazapam because i had major anxiety which i ended up becoming addicted to. downward spiral ended with me leaving home state and moving home with my mother to find help. Am no weaning off topamax. TAKES FOREVER, have ringing in ears and severe joint pain. For me Topamax was pharmaceutical from hell F 40 2 years
8/19/2007
 5  migraine tingling in hands and feet, small periods confusions, pop taste nasty, some foods taste nasty, I was having migraines weekly. I am up to my maximum dosage which is 50mg in the morning and 50mg in the evening. I have been on it for 4 weeks now and have not had any migraines. It have been amazing. I have been throught the most stressful time of my life when my migraines would of put me in the hospital and I have had none. Now the side effects have seemed to be a little more noticeable but that is ok with me. Becuase I can continue working and living. F 25 4 weeks
8/18/2007
 4  Migraines Weight loss, some hair thinning, loss of appetite, night sweats I have been on Topamax for about 4 months now. My migraines went from 3-4 a week to about 1 a month which for me is a miracle. I have lost quite a bit of weight without trying which is a little scary for me. I was trying to for years before, but now I have to eat in order to stay where I am and not lose more. My hair just started thinning so I am going to try extra vitamins for that. I had some of the brain fog in the beginning, but it seems to be gone now. I occasionally have a loss for words or type the wrong thing. My biggest concern right now is that I have been getting these unbelievable night sweats for the past 6 weeks - like after you have a baby. I should also mention that I am on Synthroid and have been for 12 years because I had my thyroid out, but my doc says my thyroid levels are normal. Has anyone else heard that Topamax can cause night sweats and do they ever go away? Getting a little tired of washing sheets every day. F 43 120 days
8/18/2007
 1  migraines Made me paranoid. Could not think, sounded like bees in my ears. Afraid I was going to die. Did not eat for 5 solid days. This drug should be removed from the market for migraines. I only took it for 5 days, at the smallest dose. Any longer and I fully believe I would have committed suicide, and normally I am a very stable person. Of course my doctor thinks I made it all up, despite the fact that I visited her office 4 times in 5 days, and called 3 times in one day when normally I visit once or twice a year. We call this the crazy medicine. F 42 5 days
8/18/2007
 2  Mood Disorder Sudden irritability. Slight lethargy. Jumbled thoughts, signifigantly decreased appetite and insomnia. I've only been on this med for 7 days. Previously tried Depakote, but didn't like the associated weight gain and frightening depression. My profession does not allow for sluggish thought processes. I'll give it more time, but am a bit discouraged by the feedback of others. F 35 7 days
8/17/2007
 1  migraine prevention tingling in feet and hands, around mouth, initially; NO APPETITE but no weight loss either. After 3 months, extreme anxiety; suicidal thoughts.Word-searching; no memory. Depression; no concentration. I take Effexor Wellbutrin and Xanax when my brilliant Dr. decided to add T-Max to the potion for my migraines. Started on 25 mg and worked up to 100 a day. As of this moment (I am seeing him tomorrow to GET OFF OF THIS IMMEDIATELY) over this 3-month period I have slowly become a zombie with horrible anxiety that the Xanax can't even touch. I have had migraines and depression since I was 19 and PLEASE all of you out there...before you put any chemicals into your body...THINK ABOUT IT! Go to www.theroadback.org and read the horror stories about going on ANY of these drugs. Especially you kids. It isn't worth it unless your migraines or seizures are REALLY controlling your life. Like that other person said, PLEASE don't use this as a weight loss drug...you will regret it for the rest of your life. This stuff is poison. F 45 90 days
8/16/2007
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 3  Migraine Prevention Slight weight loss, besides that no side effects I have been lucky enough not to experience any side effects but the drug hasn't done that much in terms of my migraines. I have now been on 100 mg for two weeks. I still wake up every morning with daily migraines. The migraines are slightly less intense than they previously were but still pretty debilitating. I have had problems with bipolar disorder in the past so I have noticed an improvement in my mood so that is positive. I am seeing my neurologist in a couple days and perhaps another anticonvulsant may work better for me. I am lucky enough not to have any side effects though and perhaps a higher dose would do the trick so I will see what my neurologist thinks. I just know these drugs can have nasty side effects so I am worried I will try another drug that will give me some. F 19 6 weeks
8/13/2007
 2  Migraine Tingling in legs, arms, face. Nausea,tired, no appetite, soda tastes awful, the first two weeks I was really irritable. I have been sleeping better. Can't think of obvious words (that's frustrating). Somebody said dry skin, I don't think I have dry skin, but I have been itchy which could be related to the tingling. All of these symptoms get better as I am on the dose for a while. I just went up to 100mg two days ago, so I am going through it all again, it's annoying. I know this has changed some peoples lives when it comes to migraines. So far I haven't noticed a big difference, I have only been on it for a month, started on 25 and worked up to 100mg. I have many of the "common" side effects. Probably why my headaches are still lingering. Maybe when side effect subside things will get better. It's the tingling that's driving me crazy. F 22
8/12/2007
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 5  migraine helped reduce incidence and strength of migraine F 47 1 years
8/3/2007
 5  migraines tingling in feet, brief periods of confusion, dry mouth I have been on topamax for 2 weeks now and I have not had a migraine since. I know some of the side effects were awful to start but some of them did get better. The first three days I felt totally high but I fell fine now. Every once in a while I will get a brief moment of confusion but that is all. I love this med. I was getting migraines 3 or 4 times a week. Now I am not getting any at all. F 25 2 weeks
8/2/2007

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