TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  purging disorder/OCD food related tingling in hands/feet, nosebleeds/sinusitis, sinus infection, mild weight loss, memory lapses, fatigue, difficulty with words, trouble concentrating, general feeling of weakness, some dizziness total cessation of all purging. OCD behaviors almost stabilized. despite really irritating side effects, this drug has really worked with compulsivity where no other drug has worked for me. F 30 2 months
1/23/2008
 5  Addiction to Crystal Meth Tingling sensation in hands/feet/face and slurred speech. After many attempts to quit meth on my own, my mom took me to a psychiatrist and he put me on Topamax + Provigil. The Topamax was remarkably effective at reducing my obsessive cravings and compulsive drive to use meth. The Provigil greatly reduced the withdrawal symptoms. If you or a loved one wants to quit meth, this combination of medications will dramatically improve your chances for a successful outcome. M 26 4 months
1/22/2008
 5  MIGRAINES tingling at first, brain fog, mixed up words, weight loss, nausea with increased dose, carbonated beverages tasted bad in beginning I started off with 25mg about 2 years ago and gradually increased to 50 and Im now up to 100mg in the morning and 200mg at night. It has been a wonder drug for me! I occassionally have a migraine about once or twice every month or two...usually due too something beyond my control (weather). Topamax has been my lifesaver. Yes, it has a few side effects at first but they subside. I do have my moments where I feel like I cant get out what Im trying to say, but thats pretty much it. I only lost like 7 or 8 lbs. Went from 135 to 128. It has helped me SO MUCH! I went from having a migraine everyday of my life to once or twice a month. It has helped me have a "normal" life. I thought at one time I was gonna have to quit my job bc of my migraines and topamax has helped me to get through my everyday life!!! F 28 2 years
1/21/2008
 4  Chronic Migraines Anxiety/Depression, IBS, Nausea, Random torso pain, Excema, Paresthesia—all over, Overheating, Dryness, Mental and physical fatigue—General “out-of-it” feeling, Roof of mouth is "rough", Break-through bleeding, Decreased appetite, Eye/vision annoyances, Overheating, Rapid heart rate increase when exercising, Carbonated beverages taste bad Topamax has gotten rid of my migraines, but has given me a whole new set of reasons to be miserable. It's a bitter sweet relationship. I am on 100 mg (50 mg 2x per day). F 28 3 days
1/15/2008
 1  Daily Migeaines confussion, sore throat, depression,dizzy, vision,dry mouth, cough F 59 7 months
1/15/2008
 5  Migraine Soda tastes flat. Weight loss (40 lbs). Occasional tingling in my hands and in feet. Memory Loss - hard to recall words... always on the tip of the tongue. This medicine changed my life! I used to get 2-3 migraines a week. I am now down to 1-2 a month and even they aren't debilitating anymore. I am a totally new person. F 33 1 years
1/14/2008
 4  Migraine I took Topamax for almost a year. It eliminated 5-day migraine headaches. Any headaches I had were very mild. I experienced hairloss, tingling sensations, very bitter taste in mouth and soda pop tasted aweful. My dose was 50 to 75 mg. at night. This helped eliminate the bad taste in my mouth. I had lots of weird side effects when I first started on the medication. I believe the titration schedule for this drug is too fast. I think people should take a few weeks before increasing their dosage. I am going off the drug since I developed lichen planus, a skin rash and oral rash. It started out very mild and escalated. I don't know if the Topamax caused the "lichenoid drug reaction" or not. To be determined. F 48 12 months
1/14/2008
 1  Migraines confusion, forgetting words, forgetting how to do ordinary things, outbursts of anger I've had migraines since I was 14. At 24, it turned into a daily battle of avoiding anything that might trigger one and it caused me to lose jobs. The side effects were unreal. I almost had to learn everything over again. Simple things like doing laundry became confusing to the point I cried because I couldn't remember what to do. I'd forget how to speak, how to say words, how to put a sentence together. I was always the type of person that could pick up on any task and complete it before taking this. I stopped taking Topamax in 2002 and I still haven't recovered from it. I have slowly gotten better at things, but I still have to constantly ask for help. I still have trouble speaking and remembering things. I once had trouble finding my house which I had lived at for 21 years. While on the medication, it never eased my migraines either. I really *have* known people that this medicine worked miracles for. But for me, it's ruined my life. I don't think I'll ever be the same. Though it's F 31 4 months
1/12/2008
 4  Complex Partial Seizures Insomia, restless legs, anxiousness, tingly hands, weight loss (not a bad thing), word finding difficulty It didn't completely control seizures, so I had to stop taking it. But it was great while it lasted. I lost 20 pounds in a year, I felt awake and energetic (but I couldn't sleep too well). After a year my thoughts became a little foggier though. F 22 1 years
1/11/2008
 4  Chronic migraines Loss for words, problems concentrating, memory loss, mood swings and almost depressed (I'm a happy person!), loss of energy. Why give a rating of "4-Satisfied" with all those side I effects listed? I used to have about 5 migraines a week of various levels. Now I get 4 a month. I'll take the loss of concentration over the loss of time I used to spend in bed, with severe pain, taking Relpax or Imitrex. To me this preventitive drug is a miracle F 39 5 times
1/9/2008
 5  alcohol abuse tingling in feet and hands, very tired for first few weeks, strange taste in mouth, slight mental confusion that I noticed a few times. This was a miracle drug for me. Started at 25mg and slowly dosed up to 150mg and then back down over a 12 week period. Almost from the first day, my desire to drink (and smoke) completely disappeared. No cravings or thoughts about drinking. It just went out of my brain.... At the end of the day I wanted a cup of tea instead of a bottle of wine. The only thing better would have been weight loss...but I didn't have any. oh well. F 50 12 days
1/8/2008
 5  Partial seizures Continuous thirst. Heat intolerance. Eye strain. May need to consider changing job, but as the drug at lowest dose of 15 mg sprinkle formulation controls my seizures, I am happy to make those changes. I can still compete in road running/cross country At lowest dose possible, I am pleased with this. Concerns if having to up the dose......would rather make other life changes than do this. F 50 3 months
1/7/2008
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 4  Migraines Tingling in hands and face. Feel "loopy" sometimes. Weight loss of 10 lbs. so far. Have not had a full-blown migraine since starting this medication. I can stand the side effects without having to worry about the next migraine. F 38 3 months
1/7/2008
 5  Sexual Addiction tingling, mild confusion (but not too bad), mixed-up words, some paranoia, bad tasting carbonated beverages, weight loss. Really helped control the addictive cravings. Ramp up very, very slowly. I did 25mg week for 2 wks, then increased by 25mg per week stopping staying at the same level for an additional week until stable. It is not a race. M 41 3 months
1/3/2008
 5  Chronic Daily Migraines Tingling in hands and feet. Slight drowsiness. Both of these symptoms subsided after a couple weeks. I started Topamax at 25mg and was increased to 50mg, then to 75mg, finally to 100mg (50 in morning/50 in evening). When I was taking 75mg all at once in the evening...the next morning I would wake up with pins and needles in my hands and feet. Once my dose was adjusted again, this went away. Topamax has changed my life. I went from having a constant daily migraine to only having one every several months, and it's always triggered by something I can't control (usually weather). I say that's a TREMENDOUS improvement! :) F 25 18 months
1/2/2008
 4  Bulimia Tingling in fingers and toes, inability to concentrate, spell simple words or articlate my thoughts. Lost 11 pounds in the first two weeks, carbonated beverages have a horrible taste, but bulimia (binging and purging) stopped completely (from once or twice a day before taking the med). I had to stop taking it because of the spaciness but will resume when there are less mental demands (Im a college student). This medication (250mg/day) worked wonders for the bulimia, although the cognitive side effects are pretty intolerable. I tried to take the dose all at night but found it was not longer effective (bulimia comes back), so I think blood levels have to stay pretty constant (it has a short half life) to be effective for appetite control. I am off of it right now...feel very bright but am binging and purging up to twice a day. As an aside, I found it helped stabilize my mood. Ive been on antidepressants which seem to deaden the emotions...this doesnt but helped with mood swings and depression. Will go back on it as soon as I can take a "mental holiday" from life, work and school. F 28 60 days
1/1/2008
 3  bi-polar w/ extreme anxiety Thirsty! still hard to fall and stay asleep, briefs periods of irritability, upset stomach I started Topamax as a last resort, it was either this or Lithium. The insurance company would not pay for Topamax but they would for Lithium. Well, I did a some research, and when I heard Topamax can help you lose weight, I did a happy dance! I have tried 15 other meds over the last 10 yrs. and am up to 235lbs. Over the last year, the weight gain has made me suicidal. It may sound shallow but we live in a horribly visual society that has unrealistic weight goals set for women. I got so sick of the disgusted looks and the snicking that I got out in public that I have become a recluse, now I only go out when absolutely necessary. Anyways, I started at 25mg a week ago and that was ok, of course the first night was hard. My anxiety is all health related,(every ache or pain is impending death) I have bad panic attacks and used to drink to keep them at bay so I had my husband stay up late to check on me. I kept thinking my blood was going to become acidic or I'd get a bad eye pain. F 34 8 days
1/1/2008
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 5  Migraine Headaches Dry mouth, so I just make sure I drink more water. Occasional tingling in feet. I am really glad to be on Topaxmax. I take 25 mg 3x a day. I had tried practically every prescription drug out there for migraines and nothing helped and I was getting them more frequently (3-4 a month)and missing a lot of work. When I get migraines, they start with blind spots, in one eye (TERRIBLE pain), then my head feels like it is ready to explode, then comes nausea, etc. At my insistence, I had an MRI which revealed that I had six small white spots on my brain (equivalent to small mini strokes)which was a big surprise to both me & my doctor. Fortunately there has been no previous/permanent damage done to my brain. Doctor said that I will be on Topaxma for the rest of my life. That is fine with me. A friend of mine became permanently blind in one eye after she had a migraine. Of course, I would not want to take that chance of becoming permanently blind, since I do get the blind spots and the intense pain with my migraines and also the possibility that one more migraine could h F 52 3 months
12/30/2007
 2  Epilepsy Itching, tremors, muscle cramps, tingling in extremities, disruption of taste for carbonated beverages, visual changes. I have temporal lobe epilepsy (complex partial seizures with secondary generalization) and was switched to Topamax by my neurologist after I had a bad side effect on another medication. I took 100 mg in the morning and 100 mg in the evening (gradually increased by 25 mg a week over eight weeks). I did not have any seizures while on Topamax but had to discontinue it because of the side effects. (1) I had excruciatingly painful muscle cramps in my legs, although those gradually faded as the dose increased. (2) I had mild tingling in my extremities and moderate tremors in my hands, both intermittent. (3) I had to stop drinking carbonated beverages, as all of them they tasted indescribably bad. (4) Occasionally moving objects would leave a visual trail, especially when moving from darkness into light. (5) Once the dose reached 150mg, I started itching from head to foot. After two weeks (at which point the dose was at 200mg), the itching was unbearable. I saw my family physician who confirm F 31 3 months
12/30/2007
 3  Bi-polar Severe acne on face and body-- Hair Loss M 27 7 months
12/29/2007

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