TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | PGTC Epilepsy | Occasional inability to find a word, sleepiness | For past 6 years, tried 4 different drugs in every conceivable combination. PGTC seizures "grand mal" still occurred every couple of months, and for awhile they were every 3 weeks. Finally stopped monotherapy and added Topamax (300 mg/d) to existing Lamictal (300/d) dose. I've been seizure-free since 12/06. Hard to tell about concentration, mood changes, etc. because I've been through so many drugs and so many side effects- what is normal anymore? But I can definitely live with this combination if it lets me drive, work, and live normally. | M | 22 | 6 months | 7/4/2007 | 5 | migrines | dry mouth | it has made qu9ite a difference in my life | F | 40 | 1 years | 6/30/2007 | 4 | Migraines | Tingling & numbness in hands & feet; increased thirst. | I have been taking 50 mg for 4 months and have enjoyed a significant decrease in migraine attacks. I still have a couple every month but am content to handle those with Imitrex and Motrin. The tingling and numbness was very noticable in the beginning. It would come and go, but each instance would last less than one minute-not bothersome to me. I don't encounter that side effect much anymore. As for a change in appetite... I noticed a change in taste within the first week. I now prefer my food more on the bland side; I have consumed 12 oz. of Dr. Pepper daily for years, but now it doesn't taste as good. I didn't notice a decrease in appetite until I had been taking it for about 3 months. I have been using antacids more frequently (I rarely used them in the past). All in all, I will continue to take this med as long as it keeps the migraines away. Life is MUCH better now. | F | 41 | 4 months | 6/30/2007 | 5 | Bipolar II, GAD,PAD | Slight occasional tingles - much like my Multiple Sclerosis tingles, slight "off" taste of certain foods - nothing bad enough at 50 mg a day to complain of at all. | I am also taking Remeron and Abilify, so I don't know exactly how much effect the Topomax is having on my mood disorder, but I do know that I haven't felt this good in years! I feel like I have my emotions back but they are great. The best part is that I have lost 7 lbs so far and have no appetite. I feel the best I have in a long while. | F | 43 | 3 weeks | 6/29/2007 | 2 | migraine | I have only taken two 25mg.so far. I already feel awful, I can't think, I feel sick to my stomach and dizzy. I spent yesterday in tears and today I cannot seem to put a thought together. | I am a very active happy person. I have suffered with migraines and cluster headaches all my life. I have never taken anything like topamax before. Reading the side effects is one thing and experiencing them is quite another. I am scared of the long term effects and I'm not sure if I should continue this drug! | F | 45 | 2 days | 6/28/2007 | 4 | migraine prevention | sleepiness and tingling in feet which went away after a couple weeks. Lack of appetite which resulted in 20 lb weight loss. | used a pill splitter to go up 12.5 mg a day rather than 25 mg. After 2 months at 100 mg/day my chronic daily headache plus weekly migraine is gone. It was worth titrating up slowly and putting up with side effects for a time. Also suffer from PTSD. On 20 mg Prozac for years which has helped but Topamax surprised me. It seems to prevent dissociated states/triggering from stress. I had none of the cognitive side effects and flattened personality reported here. In fact I experience clearer thinking and brighter mood. Back down to 25 mg a day since I don't like taking drugs, this holds off the migraines and is a mood stabilizer for me. | F | 47 | 10 months | 6/23/2007 | 5 | Mood stabilizer/ bulimia | buzzing feeling in my face and arms sometimes, not hungry- lost weight, maybe some mixing up of my words | i started taking topamax (25g 2x a day) for bulimia and I didn't find it worked at all, but when I went up to (50 2x a day) I stopped purging all together, it seems like magic. It has made my parnate (anti-depressant) work MUCH better, I have been very successful with topamax and would recommend anyone try it before trying horrible LITHIUM!!! | F | 19 | 60 days | 6/22/2007 | 3 | Mixed state bipolar disorder | Facial tingling, tingling in toes (nothing major - just felt like they fell asleep) perhaps a slight decrease in appetite and minor weight loss. It could be coincidental that I lost weight last week (4 lbs)but I was making more of an effort to watch what I was eating (on Weight Watchers)and was deliberating drinking more water. I can't give this medicine a great rating or a poor rating either way because I haven't been on it long enough to see definitive results. I'll post again when I know it's truly working. | Ironically, I was on Lamictal last month and was one of the "lucky" ones that gets the horrible flu-like symptoms and rash and had to discontinue use after only 12 days. I have become sick this week with the same type of symptoms and am waiting to see if I am going to break out into a rash since it is possible with this med, too, since this is also an anti-convulsant, or if I am legitimately sick with bad summer cold/allergies. It's too early to tell if the meds are doing anything for me. I'm still losing my temper with the drop of a hat, but I just started 50mg 2x a day yesterday (had been on 25mg 2x a day for a week). I think I might need a much, much higher therapeutic dose to really see some stabilizing effects. And I don't think monotherapy is going to cut it - but just what drug will we partner with? Rounds with Lexapro and Wellbutrin back when I was diagnosed with PPD last summer actually made me worse and made me gain 30 lbs when they had helped me lose weight i | F | 31 | 10 days | 6/21/2007 | 1 | Migraines | Blurry vision, headache, aura of flashing lights when eyes were closed. | Acute Angle Closure Glaucoma!!! A sneeze caused blurry vision and spent 7 hours at the Ophthalmology's office trying to reduce pressure in my eyes - right eye 52/left eye 50 (should be in the 20's). Was given med's and drops. Sent to E.R. for I.V of Mannitol (pressure got down to right 32/left 28). Still blurry vision but still hopful that vision will return to normal once Topamax is out of my system. Still on med's and drops for pressure. | F | 43 | 3 weeks | 6/20/2007 | 5 | migraines, neck pain, fibromyalgia | BAD sinus problems, fatigue, dizziness, burning nasal passages, loss of appetite, difficulty breathing, anxiety, buzzing in hands and feet | I keep trying to ramp up past 2 a day because I am supposed to get to 4 a day. This drug DOES WORK for my pain, I have only had two migraines in 6 weeks and minimal neck pain and fibro, and I used to be in constant pain and get 4-5 BAD migraines a week. I go back to my neurologist on Friday though, because I am so afraid I will have to stop taking it if it is causing these sinus problems in my forehead and nose and this horrible breathing difficulty, like asthma. I feel like I can't get enough air! I don't know whether this is anxiety or an allergic reaction, and I don't know if it will go away or get worse! Has anyone else experienced this? I can handle the weight loss for at least 20 more pounds! And the pins and needles I've often had with the fibro before, so I just need to see if my fears are warranted. NOTHING else has worked this good! Tried Lyrica, Relafen, Mobic, and Axert. Nothing was this good. | F | 49 | 6 weeks | 6/17/2007 | 4 | Intracranial Hypertension | tingling in hands and feet, slight memory loss, having trouble being in the sun, eat once a day | I take 25mg a day, they upped my dose to 50mg a day and I cut that back weird, to weird for me. I couldn't remember anything before taking the medicine now it just fits in. My headaches are almost gone, I have been on it for almost 8 weeks with 3 migrains vs everyday. I haven't lost or gained any weight, I eat once a day I don't crave food anymore, I still sweat and drink diet mountain dew like crazy (forced myself). I like it, it has worked wonders for my headaches but I don't like the fact that I can't be out in the sun, I am getting like heat rashes on my legs and arms, which I hope that is normal. | F | 38 | 8 weeks | 6/17/2007 | 2 | Migraine prevention | Severe depression, including persistent suicidal thoughts | It does help with appetite. I prefer taking Imitrex, even though I end up taking it frequently. The suicidal ideation is very scary. I was unbelievably depressed and crying all the time without apparent reason. | F | 48 | 2 months | 6/13/2007 | 5 | migranes | tingly sensation, extremly thirsy,forgetfull, lose of words, 'dumbness' and the constant 'whats that word?' feeling | i will continue to take this because i would rather have the side effects then the horriable migranes. when i forget to take the med or i skip to see if i still need it, i get a horriable migrane, so i deffinitly need this med to function. it has helped me so much. at one point my first doctor wanted to take me off the med and within a week i was in the hospital for a week dealing with the pain of my migranes. | F | 19 | 4 years | 6/12/2007 | 5 | migraines | Thinning of my hair. All other side effects go away after a couple weeks. | only take 25mg at night. haven't had a migraine in 2 months. Sleep like a baby. No weight gain or loss. It's amazing to wake up without a headache. Started taking 6000mcg Biotin daily in hopes to stop the hair thinning. Going bald would not be an option.Dropped dose to 12mg a night, keeping my fingers crossed its enough to work and stop the hair thinning. | F | 43 | 2 days | 6/11/2007 | 4 | fainting weight loss | i felt high moodiness tingling in face,arms and legs nausa | it did its job i lost 20lbs in 4 weeks which isn't too healthy stopped taking it because it made me more anxious and the loss of feeling in my arms | F | 33 | 1 months | 6/11/2007 | 1 | Bulimia | Weight gsin, headaches (ironically), tingles, memory loss. | My life has changed so much since my eating disorder came into the picture 3 years ago. I tried Topomax hoping that it would help subside my bingeing/purgeing but it hasn't. I would not recommend this drug. It's actually been causing my headaches a lot and I've expericenced severe memory loss. My performance in school has slipped because I can not remember things like I used to. | F | 17 | 3 months | 6/9/2007 | 4 | Migraines | Nerve pain, drowsiness, loss of appetite, extremely vivid dreams. | All in all, I would have to say that Topamax has been good so far. My migraines have decreased significantly and I can live with the side effects of this medication as long as that continues. Two months into taking 100 mg per day (50 in the morning and 50 at night), I am still having severe nerve pain/tingling in my hands and feet...sometimes enough to wake me up in the middle of the night. That has been, by far, my worst side effect. I have been a bit more drowsy, but that has forced me to get the eight hours of sleep a night I should be getting anyway, so I can't complain. One other odd side effect is that I'm having extremely vivid dreams. I've never been one of those people who remembers dreams and now, almost every morning since my dosage has been 100 mg per day, I wake up and remember two or three dreams from the night before. I've also noticed a loss of appetite, but no real weight loss yet, only about six pounds over two months. | F | 24 | 2 months | 6/8/2007 | 4 | Migraine, chronic headaches | Occasional slight tingling in fingers and toes. Thinking one word and typing or saying another word. Diarrhea starting when dose increased in week 2 from 25 mg to 50 mg. Trouble sleeping more than 6 hours a night. Soda tastes terrible. Appetite is starting to slack off, slight nausea is starting. Side effects seem to increase as dose increases. | Have only been taking Topamax for 12 days. Headaches have decreased from daily episodes with migraines every 2-3 days to headaches every 2-3 days with only 1 migraine in 12 days. The side effects are hard to deal with, especially the diarrhea and insomnia. | F | 45 | 12 days | 6/5/2007 | 2 | Bipolar | Tingling in hands, feet, legs, and face. Loss in sex drive, loss of orgasm. Some loss of short-term memory and word retrieval. | I liked how this medicine slowed my brain down, but the side-effects (especially the sexual ones) have put me back on the quest for the better meds. | F | 33 | 21 days | 6/4/2007 | 1 | Epilepsy/OCD | confusion, forgetfullness, loss of words, fatigue | It was hell, I felt dumb all the time. I would have to write everything down so I didn't forget it. Eventually I chose to quit my job because I couldn't remember one thing to the next (very frustrating!) I have now been off of topamax for approx 1 1/2 months and I'm still not myself; I still suffer from forgetfullness and loss of words | F | 33 | 3 years | 6/3/2007 |