TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | migraines | hand, feet and leg tingling that can be maddening at times, been on topamax for a month now at 75 mg (titrated up from 25 slowly, on 75 mg for 2 weeks now). Tingling hasnt stopped but am used to it now, but still rather annoying. Weight loss and appetite loss. Taste issue with certain foods and/or drinks -sweets dont taste the same and certain foods dont taste the same. Brain fog - simplest things I forget even though I'm staring right at it (i.e., thats a button but I cant remember what it is) - STRANGEST SIDE EFFECT is that I get a sensation for about an hour or so every now and again (just happend yesterday again) that my head, hands, jaw etc. feel HUGE - and my mouth feels teeny tiny. Example: I was talking to my hubby on my cell phone and all of a sudden the cell phone felt like it was the size of a building in my hand against my head but my head felt that size too. I cant describe it but let me tell you if you have panic disorder, it will flip you the hell out faster than | With all that said - my headaches have been reduced by about 75% so I'm going to say its a success for me. I've had migraines all my life but these past 2 years I've had a headache every single day and then I've been getting migraines more frequently on top of a constant headache. I'm 36 years old (soon to be 37), married, mother of 2 (eh..enough to give anyone a headache right?!). I have migrainal for the migraines but luckily I havent had to use it since being on the topamax. Weight loss has been great (as a woman, we all complain about our weight) about 8 lbs so far but I find that I'm forcing myself to eat because I dont want to drop 20 or 30 lbs (as my doc said that is the norm for most and I cant afford to lose that much), so I'm eating even though I"m not hungry. The biggest thing is the forgetfulness and that very strange "something is bigger than..." sensation - its enough to drive you insane - and I'm already bipolar as it is so anything that drives you nut | F | 36 | 1 months | 10/4/2006 | 5 | Migraines | Tingling toes, have a hard time concentrating and finding words, no weight loss here (unfortuately), and very large increase in how tired I am. | I started at a very low dose of Topamax and it was a miracle. I went from having 1-3 migraines in a day for weeks at a time to only a couple a year. At first, I had no side effects. However, as my dosage has had to be increased, (I am still only at 100 mg/day) I have started to notice a drastic change in how it effects me. However, I will take those side effects any day over another migraine. I have tried so many other medications and this is the ONLY thing that has worked. | F | 25 | 3 years | 10/4/2006 | 4 | migraines | hand, feet and leg tingling that can be maddening at times, been on topamax for a month now at 75 mg (titrated up from 25 slowly, on 75 mg for 2 weeks now). Tingling hasnt stopped but am used to it now, but still rather annoying. Weight loss and appetite loss. Taste issue with certain foods and/or drinks -sweets dont taste the same and certain foods dont taste the same. Brain fog - simplest things I forget even though I'm staring right at it (i.e., thats a button but I cant remember what it is) - STRANGEST SIDE EFFECT is that I get a sensation for about an hour or so every now and again (just happend yesterday again) that my head, hands, jaw etc. feel HUGE - and my mouth feels teeny tiny. Example: I was talking to my hubby on my cell phone and all of a sudden the cell phone felt like it was the size of a building in my hand against my head but my head felt that size too. I cant describe it but let me tell you if you have panic disorder, it will flip you the hell out faster than | With all that said - my headaches have been reduced by about 75% so I'm going to say its a success for me. I've had migraines all my life but these past 2 years I've had a headache every single day and then I've been getting migraines more frequently on top of a constant headache. I'm 36 years old (soon to be 37), married, mother of 2 (eh..enough to give anyone a headache right?!). I have migrainal for the migraines but luckily I havent had to use it since being on the topamax. Weight loss has been great (as a woman, we all complain about our weight) about 8 lbs so far but I find that I'm forcing myself to eat because I dont want to drop 20 or 30 lbs (as my doc said that is the norm for most and I cant afford to lose that much), so I'm eating even though I"m not hungry. The biggest thing is the forgetfulness and that very strange "something is bigger than..." sensation - its enough to drive you insane - and I'm already bipolar as it is so anything that drives you nut | F | 36 | 1 months | 10/4/2006 | 3 | Migraines and daily visual auras | ITCHING?! Did anyone else experience itching!! Other than that i agree with everyone else. I was on a low dose but I still felt some of the mind numbing, insomnia, and "gently upset stomach. | F | 25 | 16 days | 10/3/2006 | 5 | migraines | tingling in feet, legs, hands. "soap-box" effect, tiredness that went away after I got used to the medicine, dry-mouth, soda tastes funny. | my migraines have almost completely disappeared. and just about right away. I've had one since I started taking the medicine. I started with 25mg and have worked up to 100mg once a day at bed time. I sleep great. the tingling does not bother me at all. at first, I was on a "soap-box" as my husband calls it, but I've calmed down quite a bit now. I haven't lost an ounce. I have heard all these others losing weight on this drug, but I haven't lost one ounce on it and I've been on it almost 2 months and Not one ounce has left my body. I haven't lost my appetite very much at all. maybe, I have cut down on snacking and I still work out. I do get very thirsty. I guess I'm in that 1% of people that don't lose weight while they're on the drug. But the great thing is that it has relieved my migraine pain and that is why I take it in the first place. Life is great with topamax. | F | 46 | 2 months | 10/2/2006 | 1 | bi-polar disorde | difficulty with vision,extreme difficulty concentrating and focusing,word finding problems. when I attempted to wean myself off,my concentration was totally worsened,perhaps I weaned too quickly,I did do it over a period of weeks. | F | 49 | 2 years | 10/2/2006 | 1 | migranes | MAJOR bone sensitivity. Couldn't even move in the morning. Had to have assistance taking a shower and getting dressed in the morning. I did, however, have a much needed break from the migranes that plague me about once a week. But I decided it wasn't worth the pain I was going through with the severe arthritis I was experiencing. I'll take the migranes, thank you. At least there is Excedrine Migrane. I don't recommend this medication to anyone with arthritic bones, or unusual side effects to certain medications. | For those of you it works for, without severe side effects. I'm happy for you. ROCK ON!!!! | F | 23 | 2 months | 9/28/2006 | 5 | Back/Buttock Pain | First month had "brain fog". Slow to react, would say wrong words, not attentive, walk out of store without of my changeetc. This went away after my system got used to the meds though. Get some tingling in my toes and face once in awhile, does not bother me though. Have lost 15 pounds in 2 months! This is without much exercise (wish I had time). Has really decrease my appetite like Dr said it would. Can't drink sodas anymore - don't miss them anymore though. | I take it at bed time for my back pain and it helps a lot (also get steroid injection). Really helps me sleep better too. I have fibromyalgia so haven't got a good sleep in 7 years. | F | 38 | 3 months | 9/26/2006 | 5 | Bipolar | Tingling in heels, feet, hands, and am now wondering if this is why school (college) is so hard for me this semester! | Just started taking this about 1.5 months ago, and it is like a miracle! I feel like a new person! I get aggravated on occasion when I have to climb into the shower with both heels asleep, but it is worth it! I'm dropping my chemistry class this week as I have no clue what is going on in there, and I thought I was just stupid (have run off to the bathroom and hidden in a stall crying like a baby, and I'm 35 years old!) because all the other people understand it and I have no clue!!! I think after reading all this it might be due to the medication? But hey, I'm okay with that if I have to give that up to feel better!!! :-) And I'm starting to loose some weight, too! I will never ever go back to the way I was before Topamax by choice! My daughter is also bipolar and we are trying to get the doctor to try Topamax for her, too! FEEL FREE TO EMAIL ME AND CHAT!!! OR ADD ME AS A MYSPACE FRIEND!!! www.myspace.com/teachertobe | F | 35 | 1.5 months | 9/25/2006 | 4 | Partial seizures, Mood Stabilizer | Slight nausea in the beginning, Word finding difficulty, No effort minor weight loss, Depersonalization, Difficulty focusing, Minor weight loss due to appetite loss, Mild short term memory loss, Stronger long term memory loss, Kidney stones (my own fault), Mood Swings IF not combined with an anti-depr. | Orig., I was prescribed Topamax for seizures and mood stabilization (going through divorce at time-this stress worsened my seizures). It worked very well for me, if you can get through the side effects. Dosage should be started very low and increased at an extremely slow rate. It takes time and is not for everyone. My Dr. was very forthcoming about the poss. side effects, especially in continuing my education. Against his presumption, I completed my college, with honors. When I stopped taking it, I was at 100mg daily. That was a couple years ago. I did get kidney stones, thankfully, tiny ones that did pass-pain free. My own fault as I NEVER drank water. Caff. free Diet Coke (even on the Topamax-still taste yummy to me) Until a few days ago, was on Lamictal for only a month and the migraines and nausea were killing me. The severity so bad, was inducing my seizures. Began Topamax again, 2 days ago, after being off of it for a couple years. I get the brain foggies, but can deal w | F | 36 | 1 years | 9/21/2006 | 3 | seizures | weight loss [10 pounds in the first week], i don't eat as frequently, tingling in my feet+hands, nerves in my left hand would spasm and freeze up for a few minutes, words don't come as quickly to me in daily conversations, i forget things here and there, i smell cat pee all the time[?], i've had my menstrual cycle now three times within the past two months, and once my doctor upped my dosage my skin started to break out. | we'll see what happens... | F | 4 months | 9/21/2006 | 1 | migraines | greatly increased migraines (from 3-4x a week to every day and very intense), nausea, tingling, anxiety, depression, dizziness and I lost 13 pounds in 3 weeks | I could take all the side effects except the increased migraines-- it was so intense, I couldn't function at all. The dizziness got better once I got above 25 mgs. The migraines got worse with every increase in the dosage. | F | 28 | 21 days | 9/21/2006 | 3 | Migraines | Constant bladder infections (3rd infection in 5 weeks)! Tingling in hands and feet. Mood swings. Reduced libido. Stomach cramps. Taste change (especially soda - doesn't taste as good as it used to). Some weight loss. | Working well for my migraines, but adverse side effects are starting to outweigh the benefits. | F | 38 | 5 weeks | 9/20/2006 | 4 | combined migraine/tension headaches | At 100 mg daily- tingling in hands, slight dizziness, temporarily feeling in a "fog" or out of it, difficulty finding the right word, extreme appetite decrease. After 4 months I lost 20lbs, then slowly appetite increased and weight came back to normal level, all other side effects ceased after a few weeks. | After ten months, increased dose to 125mg because headaches came back, and I became nauseated, soda tasted flat, felt very out of it and mentally incompetant, didn't want to trust myself driving my car, and I was shaking a lot. I am able to go to school (college), and function, but I am hoping these effects normalize soon. | F | 21 | 10 months | 9/14/2006 | 1 | Chronic Headache | A complete Psychotic Break!!!!!! I think I know what its like to be a schizophrenic. My personality changed, blurry vision, dream like state, terrified to be outside, paranoid, sleepiness, diahrea, stomache cramps, I was dislexic and had mood swings. Decided to get some guts and go to the gym and I couldn't even leg press 25 lbs. Got on the stationary bike and I thought the bike was going to come loose and take me on a ride. I felt over medicated and I left like an unwitting participant on a really bad acid trip. I am on no other meds for anything else. For 2 days I should have been locked up. That was only on 50 mg. I would rather have the headached then lose my life | F | 34 | 30 days | 9/13/2006 | 3 | mood stabalizer | I noticed right away that I studder, I am always having a hard time getting words out, which is very embarrassing. always have dry mouth. | I have been on lithium before and I would say this is much better as far as weight gain. I also think by taking this I never can feel really happy or excited. | M | 27 | 2 years | 9/10/2006 | 5 | migraine prophylaxis | altered taste with carbonated drinks, easily lose train of thought (kind of spacy?), tingling in nose and hands when first started med and occ. now, my eye twitches sometimes | this medication is wonderful. i used to have very dabilitating migraines several times a week and had tried everything. within a week of starting topamax, they went away. i have had 6-7 migraines in the last 2 1/2 years. the tingling is a little annoying, and soda is pretty gross, and i don't like feeling lost in my own mind feeling like i know what to say but i can't find it, but i'd take that over another horrible migraine any day!! | F | 23 | 2 years | 9/7/2006 | 5 | BiPolar II, Severe Headaches | This is te second time that I have attempted to take Topamax. I have been on it for about a month now and have been in bed constantly. My face is constantly numb and tingling, I am in a fog so bad that I can hardly concentrate, I will find out Monday how much weight I have lost but I know it ust be a great deal because I cannot eat hardly anything, I stay so nauseated. Nothing sounds good to eat and everything hurts my stomach. Carbonated drinks are OUT!!!. It has caused my heart rhythm to really act up, and worst of all, my headaches have not improved but have only gotten worse in a different way. They are hard to describe now but much worse. But, I want to stay on the medicine becuase everything else that I have taken for my BiPolar has made me gain wieght and if this will help me lose it, it will be worth it. I just can't sleep at night, but I sure do fine during the day, sleep like a baby. I am currently on 50 mg twice a day now. | F | 53 | 1 months | 9/7/2006 | 1 | Partial Seizures (epilepsy) | On a starter dose I experienced mental confusion, aphasia, stuttering, the feeling of shrinking, almost constant, painful prickling in feet and hands, thirst, fatigue, insomnia, weird dreams, weeping, rage, and panic. | On day nine, I was in such bad shape that I didn't realize what bad shape I was in. Despite all of these symptoms, I had the idea that I should hold out. My husband and daughter made me stop taking it, and as it left my body, I realized how incapable I was of making that decision while on it. I have heard this drug referred to as Stupimax and Dopamax. It was like a long, bad acid trip. I think a better name is Maxidope. I am going to try a higher dose of Lamictal instead. I am glad that some people do not have such a harsh reaction, but I cannot imagine trying this drug again, and I would only recommend it as a last resort. | F | 41 | 9 days | 9/6/2006 | 1 | Partial Seizures (epilepsy) | On a starter dose I experienced mental confusion, aphasia, stuttering, the feeling of shrinking, almost constant, painful prickling in feet and hands, thirst, fatigue, insomnia, weird dreams, weeping, rage, and panic. | On day nine, I was in such bad shape that I didn't realize what bad shape I was in. Despite all of these symptoms, I had the idea that I should hold out. My husband and daughter made me stop taking it, and as it left my body, I realized how incapable I was of making that decision while on it. I have heard this drug referred to as Stupimax and Dopamax. It was like a long, bad acid trip. I think a better name is Maxidope. I am going to try a higher dose of Lamictal instead. I am glad that some people do not have such a harsh reaction, but I cannot imagine trying this drug again, and I would only recommend it as a last resort. | F | 41 | 9 days | 9/6/2006 |