TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  severe migraines Hair loss! Can't figure out if it will stop,uneducated doctor has no clue....too little data out there when I do my own research. BUT it has helped the headaches so much. Great migraine med. F 38 8 days
2/22/2007
 1  Migraines I am a chronic migraine sufferer; this means 10++/month, sometimes back to back so I cannot tell where one ends and the other begins. Topomax reduced them by maybe 10%, but Dopomax was my nickname - made me very stupid. You MUST drink plenty of water to mitigate this effect. Also, if you must take anti-biotics, you must reduce or stop Topomax. I told my gyn, but she did not know about this drug interaction, and the pharmacy did not either. My neurologist later told me that anti-biotics will cause the Topomax to incorrectly metabolize in the liver, resulting in a negative impact to cognitive function. I was very very confused the week I was on, and made critical errors at work recalling the sequencing of events. A very bad trade for only 10%. F 50 1 years
2/21/2007
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 5  Migraines (severe & frequent) Tingling in fingers & toes, carbonated beverages taste flat, weight loss (30 lbs in 3+ months), some memory loss, hard to find words, skin absolutely glows (perfectly clear), increased energy, better mood (a little calmer) Love this drug! It's working beautifully for me - no interest whatsoever in snacking, binging, or really, eating in general (only for hunger, and much less frequent then before Topamax). Headaches are gone (it's really amazing). F 42 4 months
2/20/2007
 5  prevention of migraine headaches slight tingling in fingers and toes, usually one once ot twice a day, diet coke (with caffeine) tasted very flat, occassional loss of words loss of appetiite I started with 25 mg. dosage for 1 month, increased to 50 mg for 2 weeks, but found that I go back to 25 mg and it waas fine. I have not had a migraine since 2 weeks after I started taking it. I have now completely given up caffeine, and have lost 13 lbs. in 10 weeks since I started on Topamax. Tension headaches now only come about once every 2-3 weeks, and do not develop into a migraine for me like before, and Excedrin takes care of them quickly. This drug has worked well for me at 25 mg. dose. F 45 10 months
2/17/2007
 1  Headaches tingling, buzzing sensation in my head. feelings of doom. horrible waves of nausea that lasted for 5 days when I discontinued. Absolute worst medication I have taken in my life will never take again F 48 4 weeks
2/16/2007
 2  Migraines ***Developed Kidney Stones*****Hard to concentrate and stay focused. Had lost my competive edge at work. Made me feel and act very lethargic, non emotional. Pop tasted strange. This did help reduce my headaches but the side effects outweighed the benefits. Have you ever passed a kidney stone? Not pleasing... M 42 9 months
2/15/2007
 2  migraine prevention Topamax muddied my thinking and made it difficult to find words when speaking. I had to keep increasing the dose until it became necessary to switch medications F 40 5 years
2/14/2007
 2  absence seizures, gtc seizures tingling, itchy feelings in hands and feet, pain in legs, loss of memory, insomnia, fatigue, food tastes weird, trouble finding words, sometimes use completely wrong words this drug has done very little to help my absense seizures which is my main concern as my gtc seizures occur at a frequency of about one every three years and my absence occur daily. the side effects have made my life even more difficult than not being on the drug. F 29 4 weeks
2/13/2007
 3  Bipolar I Appetite suppresant; later on, back and neck pain ( I think this was caused by Topamax). I lost 30 pounds on the drug. Kept me stable for many years, but I think my back was starting to bother me. I stopped taking the drug because it also was suppressing my appetite for so long, I didn't think that was a good idea. Am taking Depakote now. F 41 5 years
2/11/2007
 3  Borderline Personality Disorder Sexual, Drowsiness, Back Pain, I dont know what to say about this medicine.. I started on this about a few days ago and quit for a couple of days because I didnt like it and got very paranoided because well I just did and I didnt want to take any medications LoL.. But I started back on it just last night.. So I have been on it for about 5 days total minus two days.. For the first about two days I had some back pain and some terrible drowsiness, I felt so drained.. I couldnt even make it out of the house it seemed.. All I felt like doing was sleeping.. I guess my body was trying to get it in gear with the medicine.. Now I think Iam getting used to it because I dont feel as drowsy as much as I did as those couple of days and my back pain has subsided.. What Iam experiencing now is some drastic Sexual desire.. Something I have never experieinced before! I have been desiring sex for the past two days and it has been all I have been wanting and thinking about.. I dont know it is absolutly crazy, It is not like me.. But I F 23 6 days
2/11/2007
 2  Atypical Migraine Memory loss, weight loss(10 lbs in 8 days), jittery, rollercoaster appetite, night time insomnia, day time fogginess, constant UTI, and still have a headache! I use to have a sex drive, but the urge to urine every 1/2 hour kills that. My heart is racey, like I've had too much caffeine, but I'm lethargic by day. I will be thinking about something, then get distracted and completely forget what it was that I was thinking about it. I'm stil on 25mg per day. I tritrate up in another 2 days to 50, 100mg per day is the goal. I'm worried that I won't remember my name by then. This started becaused I got a constant headache that wouldn't wuit 7 week ago. My head hurts less, but hasn't completely stopped. I'm considering quitting this crap in a week and dealing with the head pain. Especially since Ive not been diagnosied with a "real" Migraine yet. F 27 5 days
2/11/2007
 4  Migraines Loss of vocabulary, train of thought; Severe knee pain, both knees (any else?); tingling in fingertips; trouble staying asleep. I was on Topamax for a year and went off it 10 months ago because I was beginning to get migraines more regularly again. Also, I was sick and tired of being stupid, I am topamax-free, a fairly sharp person! Now that I am back on it to get my headaches under control again, I notice that the severe knee pain I was suffering that mysteriously went away last Spring, is back. Has anyone ever heard of this? Otherwise, I do believe that Topamax does help the severity and regularity of my migraines. I am already seeing my intelligence slip away again, and am not sure I'm up for that challenge again. A cure would be much better! At least before my daughter starts getting them. F 42 2 months
2/10/2007
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 3  migranes and siezure disorder back pain, buttock pain, crying for no reason, anxiety, severe leg cramps to the point I'm unable to walk, irritable, loss of train of thought, spelling words wrong, can't think of the right words, diahrrea, abdominal pain, sleepiness, staying cold all the time, thirsty all the time, milk now tastes funky....some of these aren't listed as side effects or suppose to be side effects I was put on Topamax to control my migranes and seizures. To date, my family and I haven't noticed any change. My neurologist uped the dosage to 100mg last week for two weeks. If that doesn't work, I'm to increase it another 50mg in two more weeks. If anybody has had any of the unusual side effects I stated please e-mail me. F 34 8 months
2/8/2007
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 3  Migraines Tingling in hands and feet, ringing in ears-not sure if this is normal or not.loss of words, difficulty in concentrating. Haven't experienced weight loss. Maybe because my doss is not high enough. Has anyone else had the ringing in the ears??? It's beginning to drive me crazy. This would be the one reason I go off this drug. Other than that it seems to be working. F 34 2 days
2/7/2007
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 3  migraines loss of appetite, no sex drive, difficulty sleeping I was on Topamax for a year once before, it really helped and then it just stopped being effective. My doctor and I decided to give it a try again since nothing else has worked since I went off of it over 2 years ago. While my migraines have not decreased in frequency (I'm still getting 3-4 per week), the pain has been controllable by taking a Maxalt at onset. I used to have to go home and get into bed with every migraine even after taking a Maxalt. Now I can take a Maxalt and sit quietly in the dark for 15-20 minutes and then be able to function at about 75%. So, I consider that an improvement over using up all of my sick time at work and missing out on life in general. I'm a small person (5'3", 115 lbs) and a distance runner, so the 5 lbs that I have lost, plus the fact that I'm tired all of the time, is really impacting my training and running performance. I am actually forcing myself to eat and have people around me reminding me to eat. I have no solution to my sleepi F 33 3 months
2/7/2007
 1  Migraines Unconsciousness, lack of verbal skills, complete inability to walk (any motor skills), tingling in extremities. Accelerated vision loss (existing condition). This medication was very scary to take. I would be fine one minute and then unable to speak or move the next. At that point I would go completely unconscious for hours at a time. Please be very careful when considering this drug and only use it as a last resort. Liver and kidney function must also be very closely monitored. F 26 4 months
2/7/2007
 1  Migranes I was fine on Sunday night and on Monday morning I couln't see past the end of my bed. My vision is so blurry. I can still see my watch but I can't see my kids' faces. It was a scary day yesterday until the eye doctor used his palm pilot and looked up side effets of Topamax and acute myopia came up under "rare-serious" side effects. That is severe near sightedness. I am now wearing glasses and hoping my perfect 20/20 vision returns. I will never take this medicine again. If anyone else has had this condition please let me know how long it lasted and if your normal vision returned. Thak you. F 35 9 days
2/6/2007
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 5  migraines tingling extremities, soda tastes flat, headache many mornings-manageable with otc meds, word-call issues, still feel stupid often, loss of apetite, I actually feel a little calmer and more centered now after 12 weeks. Most importantly, though, at 100mg I feel like fine. Absolutely like myself. At 150mg I was completely out of control, apathetic, depressed and suicidal, where I had never had issues with depression before. F 38 12 weeks
2/5/2007
 5  Migraines "Stupemax" -- significant problems with concentration and memory, lasted about 6 weeks and then went away; tingling/prickly pain in feet occurs sporadically, lasts a few minutes; can't drink soda anymore, it tastes flat. I was started on 50 mg, then increased to 100 mg. I used to have about 2-3 migraines a month. I had one before increasing to 100 mg and one since. The most surprising part for me has been that, not only has it stopped my migraines, I now also rarely get the tension headaches I have gotten almost daily since the age of 9. This medication has completely changed the quality of my life. I was very hesitant to try it, for a long time, because of the side effects I'd read about, but it's been an amazing treatment for me. I wish I would have tried it years ago. F 35 3 months
2/4/2007
 1  severe constant head pain Breast tenderness, sexual dysfunction, rampant cavities, hair loss that continued for a year after I stopped the drug, sluggish thinking, slurred speach, bone loss...and all side affects were SEVERE. With osteoporosis practically an epidemic, I am astonished at how often drs Rx this med which has caused rapid bone loss in virtually millions of women. IT is an especially dangerous med because the side effects often do not show up for many months, and if you have stopped the drug, you may blame something else for causing these things. My hair loss began very slowly, but after 8 mo, I had lost 60 per cent of my hair. F 48 8 months
2/4/2007

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