TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  hemifacial spasm sleepiness, loss of memory, visual trails, extreme weight loss, rapid breathing, kidney stones, abdominal pain beginning titration. I would never recommend an active person try Topamax. It completely devastated my personality. It was the worst 2 years of my life and feel like I missed two years of my life. F 33 2 years
5/13/2007
 5  Migraine 3 xs a month Tingling in hands, feet and face. Can not spell. Memory loss. Not hungry ever. Pop taste nasty. I am the world's biggest motor mouth and I don't try to speak anymore, because I forget what I am saying. But it is getting better. Typing is a issue also. :) Wake up every 2 hours at night. I have had migrines since I was 9 years old. I black out with my migrines. Not fun going to the hospital all the time. I have had 1 headache not a migraine in 6 months. In my opinion that benifit out weighs all the side effects I have had on Topamax. I do have to force myself to eat I have lost 38 lbs. I am 5'5 and now weigh 112 lbs. The weight has been the hardest for me. I and now taking and staying at 200 mg a day 100 in morning and 100 at night. And HAPPY TO SAY MIGRAINE FREE!!! F 32 6 months
5/12/2007
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 1  Depression, anxiety, mood swings Confusion, memory loss, word recall issues, spelling problems, handwriting change, general cognitive changes/disfunction, dehydration. Felt stupid, dopey, and anxious. The only benefit was the slight weight loss and ability to maintain lower body fat percentage. I couldn't perform basic/core functions of my job (executive/lawyer) without assistance. Started at 25 mg, increased to 50 mg. At 50 mg, the side effects were too much, decreased to 25 mg. Doctor said there was no way the side effects were related to a relatively low dose of Topamax. Thus, I did not realize that the side effects that persisted were related to Topamax until I quit taking it under guidance of another physician. F 43 4 years
5/11/2007
 4  migraine prevention loss of appetite, taste change, tingling in hands and feet, loss or difficulty finding common words All side effects but difficulty finding words went away. Sometimes feet tingle still. Topaxax cured a six month transformed migraine. And the migraines that I do get now are much milder and respond to OTC meds. For me, worth the wait for the side effects to go away and worth living with the ones I've got still. F 37 18 months
5/8/2007
 2  migraines Gastroenteritis, severe stomach problems but Dr. never found anything. Started having severe anxiety attacks 5 months after I started taking it. Now off Topamax and dealing with crippling anxiety attacks monthly. Worst medicine on the market. Not worth the weight loss. Never had anxiety attacks in my life. Now my husband has to deal with my extreme fears and constant thought that I feel like I'm going to die. Lost 20lbs too fast. Gained it back and am trying to become healthy without any medicine F 30 6 months
5/8/2007
 1  bi polar disorder memory loss, confusion, profound loss for words, tingling sensation in the body, weight loss, muscle aches and stiffness i feel the side effects definately outweigh the benefits in this case. the memory loss and confusion drove me up a wall. the tingling sensation went away a few days after my doctor increased each dose. the weight loss was great, but the muscle aches and stiffness made it difficult to walk sometimes. this medicine did nothing to help my psychatric issues. i insisted on being taken off the medicine immediately. F 27 2 weeks
5/8/2007
 1  migraines insomnia, confusion, hearing loss, blurred vision i would not recommend taking this drug to anyone. after 4 days, i can't function and everything is in a fog. i am taking back my prescription and demanding a refund. i haven't slept in days. F 46 4 days
5/7/2007
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 5  Migraine weight-loss I started Topamax after being on a series of medications that caused weight gain, dry mouth, nausea, and fatigue. Topamax changed my life by eliminating the side effects that I had been dealing with and reducing the frequency of migraines. When I started on the medication I had a continual headache for over a year and weekly migraines. I now have 3-4 migraines a year. F 25 6 years
5/6/2007
 3  transformed migraines altered taste and feeling of food texture (beer/soda is flat, most fruit, anything acidy (red sauce, oranges), most cereals -- all bad, cucumbers taste like watermelon... the list goes on. Almost no appetite. Scarring/redness from rosacea is clear insomnia and clinical depression? Controlled classic migraines with 25mg nortriptyline for 4 years. In the fall headaches transformed into chronic daily migraines and neurologists changed to topamax 45mg/day. Not sure about the cloudy head because when I get migraines I can't find my words and can't concentrate and I was having migraines everyday. The chronic migraines have gone away, however, I had 2 classic migraines and one of them was close to the worst migraine I ever had (4 months on med). Since starting topamax, I can't sleep and have been diagnosed with clinical depression. Don't think depression is from topamax, and although insomnia is a symptom of depression, I always slept well before (although I was on nortriptyline for the past 5 years) F 27 6 months
5/6/2007
 4  frequent migraines, chronic pain no side effects, yet--hoping for weight loss, though; do have decreased appetite I feel better than I have in two years. My migraines are much less frequent, and my muscle, joint, and bone pain are LOTS better. I've been on it for almost three weeks, and will increase the dosage next week. I'm taking it with MS ER 15mg. F 35 3 weeks
5/4/2007
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 1  Weight Loss gained weight, loss of bowels, lots of BMs, yellow nails, excessive hair growth - long eye lashes Not recommended M 67 3 months
5/3/2007
 3  Weight Loss Uh.. memory loss, made a D for the first time in school, forgot which foot went on the brake pedal. Can't find words. Forget what I'm supposed to be doing. Angry and anxious and aggressive. Chewing people's head's off. Suddenly saying EVERYTHING that's on my mind if someone annoys me. Chest pains right in the center.. feels like major anxiety attacks. Weight loss. Headaches, blurred vision, nightmares. Positives are feeling of well being, weight loss, lifting of a long standing depression (I didn't even know I had) fearlessness of public speaking or social situations, more sociable, NO binge eating, can actually TURN DOWN food, even at restaurants I can watch others eat and get nothing but coffee. didn't have anxiety probs until 75 mg. I can't take it for too many days in a row or I can REALLY tell in my level of anxiety. Starts to feel like I've taken a whole sack full of Stackers. F 30 1 months
5/2/2007
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 4  MIGRAINES I only experienced slight side effects and most of them occured during the weeks I was increasing the dosage. I started at 15 mg and increased 15 mg each week until 45 mg. I am staying at 45 mg until I am on topamax 5 weeks and then we will start to increase again. I did not experience any tingling in the feet and hands. I was tired and dizzy most of the time and had no interest in food. I was also nauseated during the time I was increasing the dosage but that passede after a few days after the increase. The biggest side effect bothering me now is that I am having horrible hot flashes day and night. I am at the menopause age but take all kinds of natural supplements that have kept that problem at bay so I am thinking that topamax is affecting my female hormones. Anyone else have that problem? My migraines went from 4-5 a week to 1 a week. A huge difference! I will get through the side effects because this drug is worth taking and not having constant migraine headaches. F 52 4 weeks
5/1/2007
 3  Daily Migraines Memory loss, mild weight loss, loss of concentration, loss of focus/drive (depression?), tingling in hands/feet, alteration in taste perception (sodas and certain fatty foods taste horrible), loss of appetite I have been on 25mg dosage along with 120 mg of Inderal. I have had more relief from my daily headaches than when I was on Inderal alone. My doctor wants to get me off the Inderal entirely however my last attempt to reduce the dosage left me with increased headaches and reduced quality of life again. I'm nervous to increase the topamax because of the side effects. I worry that I might have been a serious danger on the road before I stabilized. My job also requires me to think on my feet and the fogginess and memory loss is a severe hinderance. I had forgotten how debilitating my headaches were though. I'm really between a rock and a hard place. F 28 2 months
5/1/2007
 4  eating disorder (NOS) Pins&Needles in hands & feet, ever pulled an all-nighter? that's what i feel like all day..totally out of it! Struggle to find words sometimes..wish I could snap out of it. Heartburn! No appetite, no desire to drink or smoke This is the 2nd time I've been on Topamax. The 1st time was a couple of years ago..I definitely remember the tingling sensation...but I really don't remember feeling this spacey! Maybe it's because I'm with a new doctor and this time I went from 50 mg to 150 in just two weeks..the last time I think the doctor spread upped the dose every month! I think i just need to ride it out...this drug can help you 'even' your mind out. The last time I really got focused..my binges (food and booze) all but stopped..I have had zero desire to binge since 100 mg. So that must be a good sign! Has anyone else experienced HEARTBURN!?!?! I never get it..until now...must be related, right? F 29 21 days
4/28/2007
 1  Weight Loss memory loss, depression, irritability, confusion, headache, tingling in hands and feet, blurry vision, constant thirst, taste change, constipation, bladder infection, extreme fatigue I was on 100mg Topamax for weight loss for 4 months before asking my physician to take me off of it. By this time I was crying daily (depression), had a severe bladder infection, as well as being fed up with all of the other side effects. Also - disables contraceptives, and I have a latex allergy. That didn't help with the irritability. F 26 4 months
4/28/2007
 3  Severe migraines Immediate, sustained weight loss; word loss; stupidity; loss of direction when driving; poorer vision. Migraines definately subsided, and I lost about 40 pounds, but what a trade-off. Now I know what it feels like to have Alzheimer's. When I drive, I am lost half the time. I wonder how it has contributed to my stress levels. F 54 6 days
4/27/2007
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 5  migraines loss of appetite, slight tingling in feet, very slight pain in eyes, thristy, loss of concentration/memory, hair loss. i love topamax. even with the side effects, they werent bad enough compared to how much the migraines were interrupting my life. i had migraines 3 times a week, on average, now i get them once a month or less and the actual pain is much less... about a 3 versus a 10. i dont really even notice the side effects to tell you the truth, unless i have to think about them. topamax is actually improving my grades in school, bc i can go to class more often bc im not home sick with a migraine. F 23 8 months
4/26/2007
 4  Migraines Stomach pain and diarreah daily. Nausea in morning. Dry mouth/thirsty all the time. Slight tingling in feet. This is my 2nd time taking topamax. I had less side effects the first time but had to stop taking it when I became pregnant. It totally gets rid of the headaches, but if I miss a dose they come right back. The side effects are worth it for me though. I just wish I didn't have stomach trouble now. F 24 1 months
4/23/2007
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 1  migraines Headaches worsened. Carbonated beverages taste horrible. Blurry vision. Stop taking this medication! F 29 3 months
4/23/2007

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