TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Migraines | Nightmares. The most realistic I have ever had. They stopped when I stopped taking the Topamax. | F | 51 | 14 days | 9/5/2006 | 4 | nerve pain | Hair loss, soapy taste in mouth, tingly hands and feet. loss of words which I call my topamax moments. | I stopped topamax before because of the hair loss so this time I am taking a multi vitamin with it since the topamax robs the body of biotin and other nutrients essential for the hair. I am hoping this works since topamax really helps with my nerve pain. Other then the hair loss I can deal with the other side effects and am really pleased with the med. | F | 38 | 1 days | 9/5/2006 | 1 | Migraines | Appetite loss and weight loss (15 pounds in three weeks), facial Bell's palsy, twitching, extreme memory loss, confusion, sleeplessness, vocabulary loss, depression, nausea, apnea. | After the facial Bell's palsy began, I went back to the doctor, who removed me from the medication immediately. The symptoms persisted for about five days afterward, during which time I visited an emergency room once because of persistent apnea and twitching. The doctor did not believe any of my story about the medication; he said that it was a harmless drug. Now, I am actually too afraid of medication to try anything else--first, for fear of the drug itself, second for fear of a disbelieving doctor. | F | 49 | 4 weeks | 9/4/2006 | 4 | Grand Mal Seizures and Migraines | At the beginning: weight loss, loss of hair, vision changed every year (some times for the better, some times got worse). Currently, my dose was reduced due to experiencing halucinations, and now I am gaining weight. But, I have had NO seizures. I have had a few migraines however. The entire 5 years I have been on Topamax I have experienced a tingling sensatiion in my hands and my neck. | F | 30 | 5 years | 9/3/2006 | 4 | Chronic daily headaches | Initially tingling in feet, inability to taste carbonation...currently skin problems (rash, acne), alopecia, fatigue, weight loss/filling up quickly | I have taken this drug on and off for 7 years. Currently on it along with Depakote. Neurologist says unable to diagnose origin of headaches but continue to patch (not fix) problem. None of triptans are effective. Tried antihypertensives, antidepressants, antipsychotics, over-the-counter meds, steroids, etc. and nothing is effective. Regimine will work for approximately 2 years then my body somehow becomes immune to medication and the doc asks me what I WANT TO DO NEXT?? I believe this drug is effective in preventing my headaches for a period of time but unfortunately side effects are difficult to deal with especially in combination with the depakote. Also taking wellbutrin sr. I am just tired all the time and feel I am too young to be that way. I really cannot do much because I sleep so much. | F | 32 | 7 years | 8/29/2006 | 1 | Chronic Migraines | Aftertaste with every food and/or drink. Severe confusion. Severe agreesiveness. Suicidal thoughts (Am not a suicidal person by nature but found it very hard to fight the thoughts.) Severe memory loss, even everyday simple tasks become impossible to conduct. | I came close to committing suicide on numerous occasions. I had extremely agreessive thoughts including those of wanting to literally murder my own 8 year old son. I was arrested for not paying for items from a major chain store. I literally just forgot to pay at the checkout and walked out the door. Fortunately the chain store took my medicated state into consideration after consulting with their own pharmacy. And I almost caused the death of myself and my child when I stepped out with him infront of a car on the road because I literally forgot to look for traffic. This is when I decided enough was enough and was informed by my neurologist that discontinuing the medication would in itself cause seizures. He denied that Topamax was responsible for any of the side effects claimed above. I have since learned through research he is grossly wrong. After doing the research, I ignored his advice and weaned myself off the drug slowly to avoid any seizures. If you have a loved one whom has rec | F | 43 | 60 days | 8/28/2006 | 4 | migraines/headaches | Tiredness, soada tastes bad, at times numbness in face maybe lasts 1 to 2 minutes in forehead and nose , tingling in feet and fingers at times only last a few minutes. | I had daily head pain for 3 years. I never had a day without pain. I would get head aches that would last 2 hours then go away for an a few minutes then come right back to last another 2 several more hours. It felt like they never went away. I had a migraine at least 2 a week. I started topamax and now my pain is limited. My headaches are not yet completely gone but not every day anymore. I may get a headache that last 5 minutes and that may be the only one for a day. I have gone three weeks with out a major episode. I take 100mg daily. So far great | F | 29 | 20 days | 8/23/2006 | 5 | Bipolar II, weight / alcohol probs | First days were a nightmare. I was a complete zombie: Memory problems, confused, drowsy, insomnia, thirst, cognitive problems, concentration problems, low appetite (yippie), took alcohol craving away (yippie again). However, everything is getting MUCH better. | I take this as monotherapy. Used to be on Lamictal but I wanted to try this because I was drinking too much (approx. avg. of 30 units per week). So far mood swings are under control but maybe too early to tell. It also took my anxiety away, much to my surprise. I am SO happy about that. I DO feel a bit disabled here though - with a highly academic work requiring lots of concentration and a brain that is not quite as fast as usual. Hope it gets better. Please feel free to write me if you have any comments. I think this medicine may need some patience. I have come a LONG way the past nine days. | F | 34 | 9 days | 8/19/2006 | 2 | Bipolar | Other than the typical ones like decrease in appetite (no complaints) and making foods taste funny, it made me ITCH! the itching got worse when i went outside on a 90 degree day or horribly worse when i would get angry or upset (which would happen alot seeing as how it made me VERY moody). I developed bumps or hives i guess they were where ever i would itch and i itched EVERYWHERE, my arms, back of my legs, small of my back, my chest, my neck, my head! I consulted a pharmacist to see if i was having any kind of allergic reaction she just said itching was a side effect (yes, i read that on the pamphlet but i wouldn't be calling you if i wasn't concerned that the itching is accompanied by hives!) and i could take benedryl ..oh yay! I stopped taking the drug because the itching became so bad (got Dr.'s permission first). It also gave me a pain/ache in my hips that i never had until i started this drug. The ache/pain is still there as well as the itching even though i have been off of the | Didn't like feeling like a doped out zombie...if i wanted to feel like that i could've done some real drugs. I had the same problems with spelling and finding the right words like most have on this drug. Sometimes i made up my own words. Some people feel this is their miricle drug, well good for you i'm glad it worked. I have my own choice words for this drug! | F | 25 | 10 days | 8/19/2006 | 4 | migraine | Coke DOES taste funny (I thought it was just me!). I have difficulty playing the piano and typing/spelling. My hands and feet tingle occasionally. I get stuck on words too. | I've had migraines since 19 and this seems to work like a miracle. Only one headache in 6 weeks. The side effects are disconcerting. Will they get better over time? | F | 40 | 6 weeks | 8/15/2006 | 2 | Chronic Vertigo | Tingling in legs, calf cramps "charlie horse", mental cloudiness, clumsiness, bad taste in mouth, mood swings, irritability, suicidal thoughts after 3 weeks | At first I was happy that is stopped the vertigo completely. Unfortunately, the side effects became more unsettling than the vertigo. I can handle the tingling and bad taste in my mouth, the clumsiness was not good since I already have a balance disorder, but when I began to feel depressed and suicidal I really had no choice but to stop the Topamax. | F | 28 | 3 weeks | 8/13/2006 | 5 | MIGRAINES | SODAS TASTE FLAT, CIGARETTES REALLY TASTE NASTY, HANDS AND FEET, ARE TINGLING.SOMETIMES I FEEL A LITTLE NAUSEATED.LOSS OFF APPETTITE,NUMBNESS IN MY ARMS, DIAHEREA. | I HAVE ONLY BEEN TAKING TOPAMAX FOR A LITTLE OVER A MONTH AND THIS IS THE FIRST MEDICATION I HAVE EVER TRIED FOR MIGRAINES.THE SIDE EFFECTS DO SCARE ME A BIT BUT SO FAR SO GOOD I HAVE ONLY HAD A FEW HEADACHES AND THEY ARE NOTHING LIKE WHAT I HAD BEEN HAVING. | F | 25 | 5 weeks | 8/12/2006 | 3 | Weight Loss | In the start: hand and feet tingling, cold hands and feet, tired, or dizzy, and MAJOR HAIR LOSS!! I did lose weight (about 35 lbs in 4 months). | The medication was a great kick start to get my life back on track for healthy living (e.g. the weight loss). However my hair is STILL falling out and I've been off the Topamax for about 3 weeks. It's so bad that I would never go on this medication again for weight loss. I'll join weight watchers next time! Anyone know when my hair will grow back? | F | 33 | 4 months | 8/12/2006 | 5 | Migraine Prevention | Difficulty remembering and repeating some things, occasional brain fog, sinusitus is lasting 3 months now with (sorry) horribly sticky mucous that I feel may be related (anybody else have this?!), occasional tingling in the extremities and cheek. | Started slow, built up to 50mg 2x a day. At first I was drowsy and had occasional dizziness adjusting to topamax. In conversations, it's frustrating to not be able to find the right word and to feel like I can't always keep up on the outside but I know in my head I'm NOT DUMB! But I know it's the drug and at worst I had 17 migraines a month, now I have maybe 3? And Imitrex does the trick. Voila. DEFINITELY worth it. Tried the whole bag of tricks before, including trials. I thought I was doomed to a life of near constant pain. | F | 40 | 7 months | 8/11/2006 | 1 | migraines | memory loss and slow thinking made me too stupid to do my job! | I was having 2-3 bad migraines a week, then I started taking sudafed 12-hour for allergies and it seems to prevent me from getting migraines at all. Now I take 1/2 of a sudafed tablet every morning whether I feel allergy symptoms or not, and the only time I get a migraine is when I forget to take it. I think that some of my migraines are triggered by my allergies which explains it, but also I think the psuedophedrine somehow helps stabilize those nasty little blood vessels in my head. I only started going to dr's looking for an alternative when I read that psuedophedrine will be replaced with something else due to abuse. No doc has yet seemed to beleive the sudafed really does prevent them, and this topamax side effects are not worth it, even if it worked, which it doesn't - when I stopped my daily sudafed and started taking topamax, I started getting migraines again. For me, topamax is worse than taking nothing at all for migraines, as a computer programmer I really need to be able | F | 35 | 5 days | 8/7/2006 | 4 | Migraines | I have chronic insomnia, extreme weight loss (I now weigh 104 lbs) confusion and anxiety attacks. I cry out of the blue for no reason and am also extremely tired and can't get out of bed most of the time. I don't feel like myself as I am short with people all the time now and have a very bad temper. I was never short tempered prior to taking this medication and was always very happy and full of energy. It did get rid of my migraines so It did give me back alot of my life and am scared to go off of it for fear of getting them back but am now thinking that the trade off is not worth it. It is better to have a few days with migraines and feel normal again that feel sad all the time. | F | 43 | 1 years | 8/6/2006 | 4 | Migraines | Tingling in extremities; mood swings; irregular periods; carbonated beverages taste different; fatigue; blurry vision; light acne; changes in body chemistry/sweat; weight loss | The tingling dissipated after a month or so as did the change in taste in carbonated beverages. Fatigue is no longer a problem. The issue I am most concerned with is the mood swings which are severe. They began when I increased to 100mg. | F | 32 | 8 months | 8/2/2006 | 1 | Migraines/ Chiari Malformation | Dry mouth, nausea, tingling in hands and feet, confusion, personality change, depression, anger, involuntary movements in face, diarrhea *two hour digestion*, weight loss, memory loss, sleeplessness, shortness of breath, delusions, tracers, trouble reading aloud, trouble finding words, sinus infection, eye infection, back pain, euphoria, taste change. | After 11 days on this medication, my entire face starting twitching. It did so for 10 hours straight. My 4 year long headaches had stopped after 5 days which put me at a state of complete euphoria. It brainwashed me into thinking that the side effects were normal and would go away. I lost 10 lbs in one week from starving. The biggest meal I had was crackers with turkey and cheese. I cried every single day for two weeks. I even cried when the doctor told me to stop taking it. I am still searching for my sanity. I don't feel like myself anymore. This drug changes you. It makes you stupid that way you don't realize how bad it is affecting you. | F | 22 | 15 days | 7/30/2006 | 1 | migranes | i am writing regarding my sister and what these drugs have done to her no problems except headaches now seizues after topamax | this has been the worst nightmare to watch my 46 year old sister completly go downhill on topamax she had headaches and went to see a neurolgist she has always been healthy beside the migranes now after being on the drugs she has been having seizure which she never had in her life everyday now and alot of them | M | 44 | 1 years | 7/25/2006 | 5 | Migraines | Loss of appetite, forgetting words, saying the wrong words, confusion, getting lost in my own thoughts/sidetracked, tingling in my toes, soda tastes flat, | None of these side effects matter to me because for the first time in 5 years I have been free of constant migraines. I had 3-5 migraines a week with aura and had given up hope that they would ever go away. I was just hoping that something would be able to dull the peak pain that occured a few hours after the visual aura. I hadn't even realized how bad it had become until I started on Topamax and have only had one migraine in 3 weeks. I still sometimes have the auras but no headache! It is completely worth it. | F | 25 | 21 days | 7/21/2006 |