LUPRON Reviews (LEUPROLIDE ACETATE)Average Rating: 2.7 (853 Ratings)Filter ResultsCompare LUPRON with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 |
More on LUPRON: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR LUPRON | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Uterine fibroid | Headaches, night time hot flashes, lost weight | Have had two monthly injections. Went to Gyn today and my fibroid has decreased in size by two centimeters. I will have one more lupron shot and then have a vaginal hysterectomy in a month. The headaches are pretty annoying, the hot flashes are not so bad and my stomach is flatter due to the decrease of my fibroid. | F | 44 | 2 months | 10/31/2007 | 1 | PSA Doubled from .1 to .2 | Could not focus. Could not multi-task. Severe depression to point of suicide. Urologist and psychiatrist were not able to resolve the problem even though both knew I was taking Lupron. | Radical 94' followed by beam radiation. PSA at time of surgery, 33. Age at surgery 52. Gleason 4+3. Good margins. Very strong family history of PCA. Undetectable PSA until a year ago. .1 went to .2. Urologist I was seeing at the time suggested Lupron. Had three 4 month injections. I would be dead by now from suicide if I had not stumbled across an article in the New York Times about chemical castration by a Dr. Wassersug (not a physician). There are other ways to control your cancer besides Lupron. Do not take this drug w/o reading this article. If you wish, e-mail me and I will send you a copy of the article. I will also be glad to relate to you a more detailed description about my run in with Lupron. | M | 65 | 1 years | 10/31/2007 | 1 | endometriosis | i have been chronically ill with fibromyalgia since my second injection. i have ben ill for 10 years. i am a holistic dr in NJ and am presently writing an educational guide (book) about lupron and my experiences. in my opinion, just DONT. i used to have very good jobs but now i am on permanent disability. i suffer from chronic pain daily: severe body aches, fatigue and more. please do your research. if you want to contact me please do at [email protected] thank you phyllis | Its horrible | F | 48 | 32 days | 10/24/2007 | 3 | PCOS and Endometriosis | Hot flashes, night sweats, insane mood swings, depression, severe back pain | I began taking this drug to see if it would get rid of my constant lower right quadrant abdominal pain. WHile it has gotten rid of my period and the cramps associated with that, it hasn't touched the pain that my doctor and I were hoping to get rid of. When he was explaining the side effects to me, he only mentioned the menopausal effects (hot flashes, mood swings, etc). He made NO mention of any other effects. I've been on it for 4 1/2 months and am in more pain than ever. | F | 27 | 4.5 months | 10/23/2007 | 3 | Endometriosos and fibroid cysts | Hot flashes, mood swings, mild depression, irritability, weight gain, blurry vision, bone/joint pain, bleeding, severe cramping, migraine headaches, total loss of sex drive - you name it, I probably experienced it! | I have been unable to get pregnant in over 5 years because of my medical issues. I had surgery 3.5 years ago, and although it helped for a while, my symptoms have gotten severely worse in the past year. I finally decided to try Lupron to see if it would help the pain, if nothing else. I was desparate and looking at a hysterectomy in the next 5 years if this didn't help. I experienced all the side effects at the beginning, but figured that I could live with them if it would help. Then shortly after my third shot, I began bleeding, which lasted for over 5 weeks. During that time I received my fourth and final shot. My doctor and I decided not to continue the 6 month cycle, as the bleeding wasn't stopping. I had severe cramping, and I was unbearable to live with, so I decided it wasn't worth it. It has only been 3 weeks since that final shot, so I don't know what the long term effects are going to be and I am nervous. The bleeding has finally stopped though. I hope this drug ha | F | 30 | 4 months | 10/23/2007 | 3 | post-op shrink endo tissue | frequent hot flashes and night sweats w/ minimal sweating, vaginitis, crying fits, mood swings, severe depression | I've just received my fourth injection of six and up until last week I was doing just fine. I will not recommend nor condemn lupron but for the past couple of weeks, I've been experiencing psychological side effects that are totally new to me. I don't have a history of depression but the episodes of catatonic despair that are immediately followed by general happiness and comfort are jarring. I have anxiety at the onset of every hot flash and my moods are unpredictable and starting to frighten me. I've almost started crying at work many times for no reason and my love of life is pretty much gone and ability to bounce back from setbacks has fizzled. I was in pain before lupron and the drug is in fact working at minimizing the the tissue that is causing pain, but I'm not sure if I'm going in for my 5th injection. i don't think anyone on this forum is being dramatic when it comes to the psychological side effects; I've never experienced such a lack of control over my emotions and for me, i | F | 25 | 13 weeks | 10/22/2007 | 1 | endometriosis | weight loss, hot flashes, night sweats, fatigue, body aches, migraines. | I was on Lupron for three months over a year ago. Since then I have had ongoing problems. One neurologist thinks I have Fibromyalgia. When the doctor recommended Lupron to me he said it was safe but might cause hot flashes. When I asked if there were any risks he seemed annoyed. I would never have taken it had I known what it would do to my body. I am 32 but I feel so much older. | F | 32 | 90 days | 10/21/2007 | 3 | Endometriosos and fibroid cysta | Mood swings, hot flashes, night sweats, weight gain, mild depression, irritability, loss of energy, bone/joint pain, complete loss of sex drive, blurry vision, you name it, I experienced it. | I have endometriosis as well as fibroid cysts, which have prevented me from getting pregnant in over 5 years. I had surgery 3 years ago, which helped a little, but both problems have severely increased since then. I began having very severe periods with much more pain than usual, and I finally decided to try Lupron. I hoped that even if it didn't increase my chances of conceiving, that at least I would have some relief from the pain. The alternative was to keep trying on our own and be facing a hysterectomy within the next five years, at 35 years old. The first couple of months weren't too bad. I felt like a different person, meaning I didn't recognize myself in my behaviors. I was moody, irritable, unhappy, but I had expected some of this, so I adjusted. However, shortly after receiving my third shot, I began bleeding. I had a light to moderate but continuous flow, as well as severe cramping, for over 5 weeks straight. I did receive the fourth shot, but my doctor and I decid | F | 30 | 4 months | 10/18/2007 | 2 | endometriosis | I had it all from night sweats, weight gain, heat flashes, insomnia, and mood swings soooo bad they had to put me on antidepressants. NNOOO LIBIDO!!!!! | I was diagnosed with endometriosis at the age of 20. I had laproscopy done & then was put on Lupron for 6 months. It was the worst experience of my life besides gaining 40 lbs & not being able to lose weight. After that i was put on BCP for a year with out getting my period. Now i'm aloud to get it every three months. Even through my year of not getting my period I was still getting all my symptoms back at times. Now that I get my period every 3 months I have been having more & more episodes of pain & symptoms. Personally I have realized this medicine didn't give me great results & I would rather never go on it again. | F | 24 | 6 months | 10/13/2007 | 1 | Prostate Cancer | Total fatigue,memory loss,weight gain,hot flashes,severe chills,total loss of libido,unsteady on feet, & too many more to add...high blood pressure | DO NOT TAKE UNLESS ABSOLUTLY NECESSARY: I took after radiation & didn't research enough..Doctor's prescribe 2 yrs automatically. Some side effects they said. "What an undestatement". I finally went to Oncolgy Specialist in Prostate & Colon Cancer after 13 mos. of "hell". He immediately stopped Lupron shots. I was getting 4 mos shots. PSA 5.23/Gleason 8/T1c stage. He told me even with Gleason 8 he would have recommended only 4 mos Lupron if any at all with my numbers. His pathology report was Gleason 7...I would have had surgery. The bad part...I went to medical oncologist for 2cd opinion & asked about 2cd pathology reading...he said not needed...patholigist good who read mine. What an "idiot" i am. Everyone should get 2cd report.Please...do not take if Doctor can't prove Cancer still active. PS Daughter took for pregnency help. She told doctor she would "NOT TAKE AGAIN WITH GUN TO HER HEAD". | M | 66 | 13 months | 10/11/2007 | 2 | endometriosis | slight weight gain, bloating, irritability, anxiety (extreme at times), hot flashes, back and abdominal pain, increased sex drive | I am in my 5th month of a 6 month program. I cannot at this time determine whether the back and abdominal pain I'm experiencing are due to the Lupron, or to my body continuing to be ravaged by endometriosis. I'm guessing it's the Lupron, since it did manage to shrink my cysts before the surgery (2 1/2 months ago). Still, the pain is quite similar. I was having severe hot flashes and insomnia in the first couple months of Lupron treatment, which was alleviated by addback therapy (1 mg estrace at bedtime). The pain began after the addback started, but I don't know if that's related. Sex drive has actually increased, oddly enough, and I feel more aggressive. | F | 38 | 5 months | 10/10/2007 | 1 | Endo | Hot flashes, weight gain, mood swings, depression, trouble sleeping but always tired... | I would not recommend this drug to anyone.. It drastically changed my life. I gained 15 pounds in about 4 months, had the worst hot flashes ever. My mood swings were horrible. My life has been pretty much put on hold since I've been on it. I just got off of it last month. If you are thinking about this drug, I would rethink it!!! | F | 19 | 4 months | 10/6/2007 | 4 | Endometriosis | Weight gain (dropped right off when I went off it), Hot flashes, Severe mood swings (easily fixed with a small estrogen pill) | Lupron is the medication that has put me closest to pain-free in my 6 year battle with endo. While this medicine is not for everyone, PLEASE give it a chance. Your body is not the same as everyone else's. I have heard so many horrible things about Lupron, however I have not encountered a more effective drug to make the pain go away. The side effects were worth the RELIEF! I have taken this drug around 4-5 times for as long as 10 months at a time and only 5 months once. | F | 19 | 10 days | 10/5/2007 | 3 | Endometriosis | hot flashes, mood swings, loss of sex | Lupron works different for EVERYONE. Lupron has worked really good for me! ive been on it for 3 months, and i havent bearly gotten any side effects...its really nice not having ANY pelvic pain for once! ill take the hot flashes and mood swings over pelvic pain anyday! | F | 19 | 3 months | 10/5/2007 | 2 | Prostate Cancer | Have experienced all of the adverse side effects associated with this drug that others have mentioned, and I do not intend to continue taking this drug. | Had one 4 month injection prior to undergoing brachytherapy for intermediate stage prostate cancer in July 07. It is too early to tell if the radiation therapy was successful or not however, in spite of that my present urologist overcame my objections and I recently agreed to 2nd 4 month shot; this will be the last, and after discussing this with my radiation oncologist there is no valid reason to continue Lupron. Unless and until your primary treatment for prostact cancer (surgery, radiation etc.) is determined to be a failure, I wouldn't recommend Lupron to anyone as adjunctive treatment for PC. | M | 57 | 8 months | 10/1/2007 | 4 | Endo | Night sweats,hot flashes,some joint pain,mood swings and sleepness nights. | I have been on the Lupron shot for a little over 2 weeks.I am having night sweats and mild hot flashes.The night sweats are really bad and I do not get much sleep.I did get my period a week after my 1st shot.I did have extreme pain the first 8 days after the shot. Now I am not having much pain.So far the side effects are not bad.I did read alot of comments about Lupron before I strarted it.I was so scared to take it because of all the bad reviews.I talked to my doctor more about all the side effects and I am glad I am on it.For me it is not as bad as everyone is claiming.I do understand that it might get worse or it may not.Anyone who is thinking about taking this,dont let the bad reviews scare you off.Everyone is different and not all will have it bad.Dont get me wrong,your not the same,you will feel changes.If you can deal with some side effects then you will be alright. | F | 27 | 17 days | 9/28/2007 | 3 | Endo | Severe back pain, no sex drive, stomach pain, mood swings, Insomnia, Night sweats | I am 3 weeks into treatment. I am still on birth control so i havent had to many hot flashes but definitely have had many sleepless nights. I have no sex drive at all. I am curious to see what my next shot will bring. I have had no pelvic pain and no bleeding, but I am not sure if that has to do with the fact that i am still on birth control. Just curious to hear other peoples thoughts | F | 25 | 3 weeks | 9/26/2007 | 1 | Endometriosis | You name it! The hot flashes are miserable. It's a crazy experience to feel it come on and then be covered with sweat. It's so embarrassing. | I had a choice between the shots and surgery. I had previously had the surgery and followed up with 6 months of shots, but this was 10 years ago and I didn't remember how miserable I was. I received my last shot almost 2 months ago and I am STILL suffering from the side effects. I just want to know when it will be out of my system? | F | 35 | 6 months | 9/26/2007 | 4 | Fibroids | Hot flashes, insomnia, fatigue | I was expecting a lot worse from reading the comments on this site. But it's not as bad as I thought it would be. I do have hot flashes, and insomnia, and I am more tired than usual, but both my severe breast and abdominal pains have disappeared. Those who have said that this drug should be banned, etc., have no right to speak for others and I feel they are completely out of line to be so negative and possibly frighten others who may benefit from this drug. Everyone is different and everyone will react differently. I had the lupron injected to shrink my fibroids before hysterectomy. The person who commented that you can't have a hysterectomy in Canada unless it's cancer was either misinformed or lying. You most certainly can have a hysterectomy in Canada, even if you don't have cancer. For anyone checking this site for the first time, please don't get too stressed out because of some of the extreme and negative comments you read. I did, and I almost decided against it, which wouldn't h | F | 45 | 31 days | 9/24/2007 | 1 | Endometriosis and PCOS | Hot flashes, severe weight gain, memory loss, mood swings, exhaustion, severe depression, hair loss, headaches, insomnia and severe cramping. | I took Lupron at the suggestion of a very well respected doctor when I was sixteen. I had been dealing with debilitating cramps and periods to the point that I was passing out from pain. I couldn't move and sometimes passed out. I missed a ton of school every month cause I literally shut down during my period. I finally couldn't take it anymore and with a history of it in my family (both my mother and grandmother had it), I finally went to see an OBGYN. I was being injected twice a month for six months. The hot flashes alone were unbearable and I was still getting my period and having severe cramping. In three months I gained 45lbs. I was extremely athletic in high-school, playing on year round basketball teams, track, and soccer. The weight gain through me into an even deeper depression because I did everything I could to get it off and nothing worked. I felt sick when I took the shot. At the time I was living in Boston and in the dead winter I used to sleep with my door op | F | 24 | 2 years | 9/22/2007 |