LUPRON Reviews (LEUPROLIDE ACETATE)Average Rating: 2.7 (853 Ratings)Filter ResultsCompare LUPRON with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 |
More on LUPRON: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR LUPRON | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | endometriosis | Severe mood swings, hot flashes, hair loss, weight gain, depression | Happy the pain is gone but I turned into a different person with the mood swings and depression. I am a very out going and happy person prior to the shot. The medicine effected my job I was on short term because of the mood swings and crying outbursts from no where. I can wait to be off this drug!! However this drug is like all others and it effects everyone differently and no everyone has effects so don't be scared to try it. I know someone who had no side effects. | F | 29 | 5 months 3.75 1X M | 5/14/2010 | 3 | Endometriosis/Cysts | weight loss, depression, hot flashes, dizziness, night sweats, COMPLETE LOSS OF SEX DRIVE | The first month, this drug seems like a miracle to me, I wasn't in pain for a whole month!! I usually had two or more episodes of cysts bursting and HORRIBLE pelvic pains that would last for weeks- to where I would have to take vicodin every time I ate because just the movement of my bowels would start heavy cramps. I was happy with not being in pain, and barely had any side effects for a month... now I have a lot, and they seem to be getting worse. I have ZERO sex drive, even kissing my boyfriend of a year is a turn off. I don't want him to hold me, or touch me, and I am just grossed out by the idea of sex. I used to LOVVVEEE making love, so it's very depressing. I have been crying to him about it constantly. I also wake up in sweats, and either feel FREEZING COLD or have a hot flash every day. I am dizzy, and I have very little appetite. I have also LOST 13 lbs, which has brought me down to 96 lbs!!! I have always had mild depression, but it's been RIDICULOUS lately how down I am. I am pretty sure I am going to reject taking this shot again. I'd rather have a laproscopic surgery or something, I can't take what this is doing to my life. It works GREAT for not having pain, but I personally can't deal with the side effects. If you think you can, then you will be happy with how it helps your pain. I do appreciate not being in any pain anymore... I'm just too young not to have a sex drive and I fear it's ruining my relationship. | F | 21 | 2 months 1X day | 5/13/2010 | 4 | Endometriosis | Dizziness, headaches, lost of appetite. | I have Endo and my Dr. Recommended Lupron Depot 3.75 mg once a month for 6 months. When I started reading the side effects I was scared to death, to be honest and I was going to refuse the shot. Than I decided to try it and I had my first IM dose on Monday 5/3/10 and had my period the exact same day. First I had the worst cramps ever during my period in my first 3 days after the shot that usually last 7 to 8 days plus another 5 days spotting (almost have of the month) and after the day 4 my bleeding was reduced considerably (almost to none), I have no more cramps, side effects has been minimal just a little dizzy and nauseated and a daily light headache that goes away with Tylenol, also I have experienced some appetite lost. I have to admit that I feel a lot better in those few days and I am very positive now about this medication. I hope it continues working for me and for those on it :). Good luck!! | F | 32 | 6 days 3.75 1X M | 5/7/2010 | 5 | endometriosis | I was diagnosed with Endo when I was 16, and underwent 2 laps for Endo removal, cysts and adhesions...I was able to conceive and now have an 8 year old. After the past year of suffering, hemmorrhaging and dealing with Depo Provera side affects, it was suggested to me that I try Lupron. After reading this site in the few weeks leading up to my first injection, I was scared to death that I would suddenly be thrown into menopause with devastating side affects...I've been on it now for a month, to get my next shot tomorrow, and I have not had one single problem, if there has been a side affect, it's been too minimal to notice. I feel 110% better! No more cramping, my mood is actually back to normal, happy and positive and the spotting/bleeding I was enduring for 7 weeks straight stopped within 2 days of the shot. I urge those considering to start Lupron to read and read again, however...don't be terrified of itand how it is affecting others, you may be among the lucky ones that have minimal/no side affects, and you might be back to your old self as I am. :) | F | 34 | 1 months 1X M | 4/18/2010 | 1 | Prostate Cancer | Mood swings, suicidal thoughts, joint pain, poor memory, poor concentration, insomnia, loss of libido, weight gain, increased blood pressure, lethargy | I was diagnosed with stage 1 prostate cancer about a year ago. Lupron was used to reduce the size of my prostate so that I could undergo external radiation, followed by implanting seeds. Due to the size of my prostate, if Lupron was not used, I would have been required to undergo three more weeks of external radiation. In retrospect, this was a bad judgment call on the part of my urologist and radiation oncologist. I already had high, and difficult to control hypertension. The Lupron is known to cause weight gain and insomnia. Both of these are factors in hypertension and increase the risk of stroke. I don't think the small improvement in cancer treatment was offset by the danger in increasing my blood pressure. I received two three-month injections of Lupron. The last one was five months ago. I continue to have insomnia and joint pain. Because I am sleep deprived I am unable to lose weight and thus my blood pressure remains very high. Sleep medications have been doing a poor job improving my sleep. Had I been better educated about this drug and the inherent risks I would have likely refused to take it would have instead elected to have only external radiation therapy. Lupron is a horrible drug and I will never take it again. I would strongly recommend that anyone considering treatment with Lupron explore alternatives. | M | 60 | 6 months 22.5 1X O | 4/17/2010 | 4 | Infertility Treatment/IUI | None | I was nervous about taking Lupron, but it's been fine. | F | 43 | 2 weeks 10 then 5 1X day | 4/11/2010 | 3 | stage 4 endometriosis and pre-IVF | headaches 1st month, hot flashes and night sweats. insomnia, gained about 10 lbs in 1st month that has maintained the same throughout. worked great to take away pain and love haveing no period!!! some spotting first 2 weeks. muscle and bone aches on and off. but most disturbing was blurred vision and double vision towards end of 2nd shot just before 3rd. this caused nausia and motion sickness. not sure if starting estrogen at beginning of 2nd shot caused this! definately exhaustion and memory loss/gaps too! mood swings occasionaly. /loss of appetite and dehydration | for the pain of endometriosis this is great! i am 33 years old and i have stage 4 endometriosis. i had surgery in january 2010 in which my tubes were removed. i had my 1st lupron injection on1/18/10, 2nd on 2/18/10, and 3rd on 3/22/10. i started estrogen on 2/23/10. insomnia started after 2nd shot and blured/double vision just before 3rd shot. i am going on 25 days of vision disturbance! i have even seen and ENT doc, optomologis, and neurologist. they have tested me for EVERYTHING, and are finally coming to the conclusion that it may be these meds! i am getting ready for IVF, so worth it...i hope so! But so disturbing that doctors are so ready to give these meds and so reluctant to admit the good with the bad! i hope this passes....anyone else have these problems? if so....did it ever go away? | F | 33 | 3 months 1X M | 4/8/2010 | 3 | Edenomyosis with polysitic ovaries | Hi i am diagnosed with edenomyosis and polysistic ovaries. My dr. had given me 2 options as my bleeding was heavy with hugh clots and it last for months and months .. now its been two years that i am having this edenomyosis and polisystic ovaries.. i wanted to have children as the 2 option that dr gave is to take a lupron injection or to have a hystronomy.After the 1st injection for 1 week i couldnt get out of bed due to heavy bleeding and cramps on my lower abdomen. Now my 6 months is over with 2 dose of lupron injection for 3 months each and i am subscribe with calcium and folic acid tablets. My dr said i will get my period and can try for a baby but the thing is that the bleeding sometimes is very mild and sometime a but like spotting. And today i had spotting and then a gain with hugh clots .. whats going on?? I cant even try for a baby and I dont want to get worse like before.. can anyone help?? | F | 30 | 3 months 1 1X M | 4/1/2010 | 4 | Endometriosis | Hot Flashes, body aches, mood swings, headache | I took Lupron 13 years ago. I had severe endo and was only in my mid 20's then and wanted more children. My endo started after I had my first child and I wanted to wait about hysterectomy so I chose Lupron. My hotflashes almost started immediately but my periods were so much better. I had been having to go to bed because I cramped so bad before Lupron and even the week after my period I would be doubled over with pain in my rectum that would put me on my knees in excrutiating pain that felt like a knife stabbing me. But now I think I see side effects from it but my endo hasn't gotten as bad as it was before I ever took it! I have just started having terrible periods again! It's like the Lupron worked on me for years and that is amazing. However, I have had joint pain that goes to the bone and I am so restless at night. My hair has thinned so much, but I can't say it is the Lupron that caused this but I feel like it did. If I would have known it would cause me this much joint pain and muscle aching I wouldn't have taken it. Although, at the time I started it I was desperate for pain relief so at the time it gave me my life back. It's just weighing out your options. I never had any more children after the one because I kept having miscarriages and not really sure why. I only took it for 4 mo and stopped because the hot flashes were so intense. But at the age of 41 and starting to have pms and heavy heavy painful periods again I think it's time for a hysterectomy. | F | 41 | 4 months 30mg 1X M | 3/26/2010 | 3 | Fibroids | None | I had serious reservations about getting the Lupron shot after reading a number of the patient comments ... I can say that for myself I have not had a single side effect. I even thought the medication was not working at all because I still bleed heavily after receiving the shot. I have not had any pain at the site of injection, no hot flashes that were horrible, no moodiness ... nothing. I can say that for the first time since February 15th I have been able to step outside of my home and enjoy a weekend out with friends without having to carry a bag with extra clothing. It is still early in my teartment so we'll see how this works, but as of today ... nothing. | F | 43 | 22.5 mg 1X day | 3/22/2010 Patient History | 1 | endometriosis | severe hot flashes, bone and joint pain and constant hip pain, "memory fog", weight gain, exhaustion, chronic migraines, trouble sleeping, depression | I wish I had listened to the other reviewers here. Lupron ruined my life. I went through all those side effects month after month thinking "maybe NEXT month it will help... maybe NEXT month..." but of course NOTHING. I am left with worse endo pain then ever, can hardly walk because of the lasting pain - my last shot was 3 months ago and I STILL don't feel normal - and I gained 40 lbs that I cannot seem to shed no matter what I do. Stay away from this drug!! | F | 27 | 6 months unknown 1X M | 3/20/2010 | 2 | severe stage 4 endomtriosis | cramps, spotting, lower back pain, loss of appetite, migraines, night sweats, acne, bowel issues. | I was forced to start taking Lupron again last month. After 8 years of successfully controlling endometriosis with Synarol, my insurance decided to stop covering it. After two months I was already having severe pain and the beginning of more growths. I tried Lupron years ago and was unhappy for all the reasons you see listed - plus, it didn't control my endomitriosis pain completely. I am still appealing the decision, but luckily have new health insurance beginning May 1. I am on the every three month dose. | F | 39 | 3 weeks 3X O | 3/4/2010 | 3 | To treat endometriosis post surgery | I'm coming up on my 4th month/shot of Lupron. I've been spotting with heavier episodes of bleeding since about the 3rd week. Hot flashes, extreme night sweats, mood swings, congestion, headaches, overall feelings of achiness/generally just feeling bad. Slight blurred vision moments, extremely dry eyes. Starting to have weight gain. | I had 5 ovarian cysts removed on 12/1/09, one being the size of a grapefruit. I also have a few fibroids remaining. My dr. recommended Lupron right after to ensure that no cysts grow back. At first, I lost weight. Now I'm gaining weight and never seem to be full or control my appetite. I'm up about 5-7 pounds from month 1. I work out, but find it hard to muster up the energy. I've also been bleeding with terrible cramps since about the 3rd week of treatment. Most of the time it is spotting, then it flares up. It especially flares up after working out including bad cramps. My dr. gave me Ponstel for cramps. I have to keep working out to manage this weight gain and bloating, but it's frustrating because of the bleeding/cramps. I'm nervous about my upcoming shot in about 2 weeks; it's a 3 month dose instead of the monthly shots. If my hair starts falling out, I might quit this treatment. This drug is also costing me a fortune. I hope it works and controls future periods/fibroids/cysts. I'm 30 and haven't had children yet....I would love to have children some day! Has anybody else been bleeding constantly for 3 months? (I'm also taking the ad-back therapy daily pill which helps limit the extremity of side-effects, although doesn't take them away). | F | 30 | 1xmonth 1X day | 2/27/2010 Patient History | 3 | Endometriosis | fatigue, insomnia, mood swings, severe muscle/joint aches, migranes (only a few), blurred vision (comes & goes), high blood pressure, hot flashes, night sweats. | I'm in my 3rd month of treatment. While the shot has taken away all of my pain and bleeding, it has left me with more side effects than I care to have. After suggestion from my doctor to try the ad-back therapy, I decided to try it...what could it hurt. But the side affects from the ad-back were actually worse than that of the side affects of the Lupron. Worse hot flashes, extreme mood swings, and horrible insomnia. After 1 week I stopped the ad-back and I am patiently waiting for the next 3 months to quickly pass and hope it has taken care of the issue. Next step for me is surgery. I would only recommend Lupron as a last ditched effort to save your Uterus and Ovaries. Try everything else first. If I had to do it all over, I would still suffer through these side affects rather than have the pain/bleeding or a radical hysterectomy at 35. | F | 35 | 6 months 3.75 1X W | 2/22/2010 | 3 | endometriosis | Bone and joint pain, headaches, mild memory/concentration problems, slight mood changes | I was diagnosed with endometriosis in June 2009 and started continueously using birth control (nuva ring) for 7 months to help minimize my symptoms. I noticed my symptoms never got any better, in fact they started to get worse. In December 2009 I finally saw my doctor and we discussed other options. My options were Lupron or surgery. After hearing about Lupron, I opted to try the surgery. I had my surgery in January 2010 and my doctor said that he was surprised the amount and severity of my endometriosis and scar tissue he found. After that he suggested that I start Lupron as well to help eliminate anything that he missed during surgery. I have only had one shot so far and it really hasn't been as bad as I thought. I have had mild symptoms and notice that even though the severity of my cramping is the same, the frequency has lessened. My doctor put me on an "add back" therapy which I believe has helped with the side effects of the shots. | F | 23 | 6 months 1X M | 2/19/2010 | 3 | Stage 4 Endo | Extreme joint pain (only 3-5 days after each shot), hot flashes, night sweats, chills, loss of appetite, extreme hair loss, memory loss, fatigue, urinary and bowel movement issues, and moodiness | I had surgery 8 months ago and found out that not only did I have Endo, but it was stage 4. I just had my 4th shot and I am not sure if it is all worth it. I have been having major issues with my bladder and the Dr. thinks the endo may still have grown and is effecting it. I have been able to deal with most of these side effects with a positive attitude and taking it in stride until today when I washed my hair and chunks came out. After blowdrying it, there are spots that are so thin it is almost bald. I am hoping and praying this comes back. I know it sounds vain, but we deal with so much pain and side effects on the inside, I hate that now it is showing on the outside too! | F | 33 | 4 months 1X M | 2/19/2010 | 5 | endometriosis | the only side effect that I have had from the Lupron shot is hot flashes, night sweats, and some vagnial smelling. | I was really scared about take Lupron from seeing the side effects that people have had especially on this site. I started my add back medication right away and at first I was a little crabby, and had spotting all the time I talked to my doctor though and she uped my add back meds and I was fine. | F | 28 | 6 months 1X M | 2/16/2010 | 4 | Endometriosis | Soreness the first week. | I wanted to submit a review after I finished taking Lupron because, when I first took the drug, the reviews terrified me. I was convinced I was going to end up depressed, gain 50 lbs, and be unable to walk. Well, I just finished taking it (two times of once every three months) and I had absolutely no problems. Of course, I was on Depo Provera for a long time before that, so my estrogen was already pretty low. Still, not everyone will have problems, so hopefully someone who just started the drug will see this and be given some perspective. In terms of pain, btw, it was okay--Depo helped with the pain more. | F | 22 | 6 months 1X O | 2/16/2010 | 4 | Endometriosis | Horrible cramping and spotting so far for the last 3 weeks since my first shot. I feel that my body temperature is a little bit warmer. My fingers will get bright red and hot while the rest of my body is fine- kind of weird. I was prescribed add-back which I'm sure has helped. Other than that, I've been pleased. | The cramping and spotting is the most annoying, but knowing that the cramping will get better from the Lupron reminds me why I'm taking it. These posts are scarey and I debated for a long time about taking the shot. I should have just done it right away. It's important to realize that everyone is different. For the most part, I feel exactly the same. | F | 26 | 3 weeks not sure 1X M | 2/11/2010 | 1 | Ivf suppression med | Severe migraines, ovulated through the drug, corpus luteum cyst | Within a couple days I had one of the worst migraines of my life. These lasted a couple of days and then subsided. At my suppression check, it was discovered I had ovulated while on lupron and had a large corpus luteum cyst. My doc then increased my dose fom 5 to 20 units which had the end result of oversuppressing me. My cl cyst was quite painful. When the cyst burst, I can honestly say it was the worst pain I've experienced outside of childbirth. For my next IVF cycle my RE switched me to a different protocol that did not involve lupron. | F | 30 | 3 weeks 5-20 units 1X day | 2/9/2010 |