LUPRON Reviews (LEUPROLIDE ACETATE)

Average Rating: 2.7 (853 Ratings)

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 DRUGS USED IN DISORDERS OF GROWTH HORMO HORMONAL BIOLOGICAL RESPONSE MODIFIERS

 Type: Rx Drug

  

LUPRON  (LEUPROLIDE ACETATE):  Leuprolide is used to stop early puberty (precocious puberty) in children. It helps to delay sexual development (such as growth of the breasts/testicles) and the start of menstrual periods. It also helps slow down early bone growth to increase the likelihood of reaching normal adult height. Leuprolide works by decreasing the amount of sex hormones that a child's body makes (estrogen in girls, testosterone in boys).   FDA Approval Date: 1985-04-09 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR LUPRONCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Endometriosis Stage III Extreme fatigue, nausea and decreased appetite, gastrointestinal problems (stomach bloat and constipation), excessive thirst (crazy, dry mouth!), acne starting on face, and lots of crying. The endo pain was intense the first few days, but now it is gone. The worst thing about this drug is the exhaustion so far. As an athlete, I’m finding it hard to train and eat when tired and nauseated. I am taking Bone Up, Evening Primrose Oil, Fish Oil, Flaxseed Oil, Borage Oil, Mutli-Vitamin, Extra Vitamin D, C, and B6 in the mornings and evenings so I don’t know if any of that helps with the side effects. I took all of the listed supplements before starting Lupron as well. F 27 2 weeks
3.75 mg 1X M
11/16/2010
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 4  uterine fibroid of 22cm Lupron wasnt as bad as i read other people's comment on it.was on lupron for 6months to shrink my fibroid prior to surgery and it worked for me. it wasn an easy 6months either but i was positive about it by eating lots of fruits and veggie with soy milk. F 30 6 months
3.75mg 1X M
11/15/2010
 1  endometriosis severe hot flashes multiple times per hour, difficulty sleeping, mental confusion, forgetfulness, headaches, very moody and depressed, breast swelling and pain that comes and goes. I still had some cramping, but not like I had with my period. Oh and the expected lack in sex drive occurred, but I didn't expect sex would be so painful. My eyes have become very painful, dry and scratchy, and sometimes so bad I can't decide what hurts less - keeping them open or closed. The eye pain even wakes me up at night still and I've been off this hormone treatment for 6 weeks (last shot was 2.5 months ago). I am so angry that I listened to my doctor and no longer trust him. I was diagnosed with endo when I was 28 and had a lap back then and refused to take lupron back then. Well, now I'm 34, married and we want to have kids and my doctor (different one this time) convinced me this would help. I had another lap this past July and then started Lupron. I had extremely painful periods, so bad I cried sometimes and no amount of advil would help and sometimes with cramps all month long and missed at least a day or of work each month. The side effects from this drug are FAR worse. Now that I have been reading up on this drug, I've learned these side effects could last from a few months up to years!!!? It doesn't even make sense to take this drug, the best it could do is buy you 6 months without the endo growing back again. I guess I'll wait and see if I ever get my period back and eventually will have a hysterectomy. I wanted to share my story in hopes it may help someone else from making the same mistake I did. F 34 2 months
not sure 1X M
11/7/2010
 4  Endometriosis The first time I took Lupron the first three months were not that bad some hot flashes and aching in the joints. After my second injection I have been in severe daily pain and can hardly walk on some days. I am also experiencing Depression and have cried every day for weeks and have memory loss. Even though my side effects have been bad I would still take it again my endo was much worse F 32 6 months
11 2X O
11/6/2010
 1  endometriosis Severe anxiety...back pain so debilitating it was hard to walk...severe depressive episodes....Horrible hot flashes F 47
375 mg 1X M
11/6/2010
 1  Severve endometriosis After the 3rd shot I had severe joint and muscle pain, major hair loss, and all day and night time sweats. After the shots were done, I ended up having 2 more kids then they preformed a "radical" just months after the birth of my last child. I am known for having high tolerance to pain however the everyday pain was overwhelming especially being a full time worker and a Mother of 3. To this day I feel as though this shot was a horrible decision. I still have pain in my joints and bones. Not as bad as it was before but it is very frequent. I am a silent sufferer and won't let this stop me from doing anything. F 36 6 months
1X M
11/5/2010
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 3  YES Major fatigue, weight gain 15 pounds, hot flashes, night sweats, skin discoloration I was placed on this medication because I was diagnosed with Endo. I am on my fifth shot and cannot wait until I have my last injection. I can deal with the hot flashes and night sweats but it has caused me to gain weight which is depressing. Hopefully after the last injection most of the weight will fall off. F 23 6 months
1X M
10/26/2010
 3  IVF Back pain, joint (knee)pain, and headaches Note: so far on day 5 of ~10 Will have to wait and see on the results, which of-course are the results of Lupron and the other drugs. Thought I would share because I found this site helpful to see that other people were experiencing similar symptoms. F 39 10 days
10 Units 2X day
10/25/2010
 5  endometriosis and ovarian cysts mild hot flashes, mood changes (depression, irritability), acne, weight loss My experience with Lupron has been a positive one. I have hot flashes daily but they're pretty mild. No night sweats. I have a history of depression and needed to go back on Zoloft around the 2nd week of the first shot because of irritability and frequent crying spells. I felt better immediately. I expected to have weight gain but I actually began losing weight, about 5 lbs total. The worst side effect for me has probably been the acne. It's very stubborn despite using tretinoin cream and metronidazole cream to my face. Lucky for me, I haven't had any of the nightmare side effects some people describe. No pain, no memory loss, etc. I'm taking 1 shot/month x 6 mos. F 35 5 months
3.75 mg 1X M
10/19/2010
 3  Endometriosis. Hot flashes, cold flashes, horrible mood swings, depression, agitated easily, crying, trouble sleeping, extreme fatigue, weight gain, headaches, joint pain, stomach aches, decreased sex drive, vivid dreams, don't want to do anything but sit on couch or sleep. I was put on Lupron a week after my 4th laproscopic surgery for chronic endometriosis (I have had one surgery per year since 2006), and my doctor said the next surgery will be hysterectomy. So he put me on this drug to prevent the endo from returning so quickly, trying to buy me some time to get pregnant one more time before doing hysterectomy. So I am currently taking this drug once per month for the next 4 months. I felt the side effects right after getting the injection. Cried for days with terrible mood swings and anger towards my poor husband. Once Monday came, I called the doc and requested something to help w/symptoms. He put me on Lexapro (for depression, mood swings, and hot flashes) and hormone therapy. So after just one week of taking these meds, I am feeling MUCH better, but still have trouble sleeping and hot flashes. Still feel very tired all the time. Still have headaches. But I keep telling myself it's only temporary, and I can get thru it. I would suggest you ask your doc for meds to help with the side effects before you get the shot, or the same day, as I waited a full week and my husband was thinking I was going insane and even slept on the couch. We never fight, and I have never called him a name before. And this drug made me a monster, taking everything out on him for no reason at all. I also have a therapist, so I made an emergency appt w/her and took my husband in with me to talk about how I need extra support and attention during this time, and it help F 27 2 weeks
1X M
10/14/2010
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 4  endo I was really scared to use this drug because of everyones bad experiences. My worst fear was worsening depression as I am bi-polar. I have not seen this happen. My sex drive is still normal for me. After the first week, I had some cramping an bleeding but nothing like my normal period. I am now having hot flashes that are mild, no sweating and I have a little trouble sleeping. I notice I have more hot flashes when I am trying to sleep. I will re-evaluate and update my experience as time goes on. I am only in my first month of treatment but these side effects are worth the end result that I expect to have from this drug. F 46 2.5 weeks
1X M
10/13/2010
 3  Endometriosis I have not started taking Lupron, but I get my first shot this Thursday. My Dr. told me of the side effects: mild weight gain, moodiness, hot flashes, nausea and vomitting, nightsweats, etc. But, I was unaware of the other effects like hair loss, depression, anger issues, loss of desire and interest, and ETREME weight gain of 20 pounds, like some have experienced. I am only 18 and just got diagnosed with endo last month, but it has been ongoing for two years because I had ovarian cysts before. I also had a ruptured cyst that produced extra fluid in my uterus. Overall, I've had a lot of issues with ongoing medical conditions. Now that I have learned more of the symptoms of Lupron, I'm scared to take it! I'll be sure to post after I get the shots. F 18 6 months
2X AN
10/12/2010
 3  fibroids very heavy bleeding HOT FLASHES and mood swings mostly, I took 1 dose that last 90 days...I am only 30 days into it and now starting to notice some weight gain...but hope with some exercise I can get it under control. After my shot the bleeding stop for about a week then was back on for about 2. I have been okay for about the past 2 weeks and hope it all stays gone until surgery in Dec. So far so good F 28 3 months
1X AN
10/11/2010
 1  Large Fibroid Tumors & Anemia Increased bleeding, increased cramping, swelling of abdomen and feet, nausea, depression, general pain, difficulty sleeping If you have a choice-don't take these injections! I wouldn't recommend them for anyone, especially children!! I was absolutely miserable after taking them. My doctor recommended I take a series of Lupron injections. She said the insurance company would insist on having the injections to shrink the tumors I had, therefore allowing me to have a more simple vaginal hystorectomy instead of an abdominal one. The doctor did not tell me that about a week after EVERY injection I would be hit with overwhelming symptoms, including excruciating pain from swelling, cramps, bleeding and clotting, nausea, and depression. I pretty much lost my summer, cause I didn't feel like doing anything or going anywhere. I never knew when I would begin bleeding again. Anything would make me start crying, I was a mess. I finally got to have my surgery this week, and I was able to have the "easier " vaginal surgery. Still, the doctor said one of the fibroids was about the size of a grapefruit-so I don't know how much it had actually been shrunk down. I DON'T think it was worth waiting for 3 months to try for the easier surgery. The pain and loss of my summer was not worth the wait. I would have rather gone ahead and had the abdominal surgery, gotten it over with and not had to endure the 3 months of bad side effects. I would not recommend anyone taking these injections to anyone. They are horrible. F 51 3 months
1X M
10/8/2010
 1  fibroids very heavy bleeding musle pain. hot flashes, continued heavy bleeding I got the injection and suffered side effects but my bleeding slowed down a lot for five or six weeks, then I got terrible stomach pain and cramps increased bleeding I went back to the doctor my hemogloban was 4.4 I was admitted to our small local hosp started on the first of four units of blood I would recieve and was transferred to a large hosp in a bigger city by ambulance and after I was stableized had a hysterctomy I was able to keep one ovary that happened on Friday and I am in a lot of pain but i am so glad that it is over, I do not think the shot helped at all and oh yea I am still havin hot flashes from it. F 42 2 months
every 3 mo 1X day
10/4/2010
Email
 3  endometriosis Hot flashes, night sweats, insomnia, slight depression, headaches, tiredness, hair loss I already have 2 beautiful children and my husband and I will not be having anymore. This Lupron stuff is the last stop before a radical hysterectomy. My Dr. wanted to put the surgery off as long as possible due to my age. I am hoping this is worth all the side effects. I feel like if these are the same side effects as menopause why not just get it over with and have the hysterectomy already since we are finished with kids and the older I get the worse my over all symptoms with anything relating to my priod get. F 29 6 months
1.75mg 1X M
10/3/2010
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Patient History
 1  Severe Endometrios WARNING. I got 2 three month doses of the drug. First 3 months not too bad. Second shot for the last three months, all hell broke loose. I experienced 20lb weight gain in a period of 6 months. Depression, Fatigue, Hot Flashes, Loss ability to sleep. Musle & joint soreness, gum & teeth sensitivity and hairloss. Mood Swings. I 've been off the drug for 6 months now and completely sysptom free except for weight issue and hair restoration. Sex drive completely turned-off. The site of a man made me think of committing murder. Hair and weight issues are improving now that I've been off the drug for 6 months but very slow. Unless your desperate to have a baby or you have a life threatening illness, I do not recommend this drug. Side effects will be minimum for first 3 months of treatment but you are guaranteed hell after the first three months. This experience have given me a whole new perspective on doctors, drugs and my overall health. I felt like a 35 year old stuck in a 85 year old women's body. F 35 6 months
2X O
9/25/2010
Email
 4  Severe Endometriosis Hot flashes early evening or late afternoon & bad head aches began 10 days after first injection, dizziness, blurred vision, mental delay/slowness, slight weight gain (5-8lbs), acne at first but then my skin became super clear!,sadness, lethargy. No breakthrough bleeding. I began add-back therapy 5mg Aygestin when my side-effects began, 10 days into it which supposedly is making it better than without it. **My endometriosis symptoms were atypical: i suffered for years but never consistently. Some months i was completely fine, then other months in utter agony. Laperoscopy confirmed endo when ovarian cysts were removed. Fallopian tubes still blocked. Like you, I was terrified to start Lupron after reading all the horror stories online, so i wanted to share my positive experiences as i was desparate for encouragement (and not just from my doctor). I'm on 11.25 Depot 3-month shot (one time injection) supposed to be for 6 month but i'll prob only do one dose as my insurance won't cover it again and I fear not getting so lucky with the side effects the second time around! So far, so good: its been almost a month and the effects are totally manageable. Headaches suck bad sometimes and i notice everything is worse when my period is due (but won't come). Otherwise, I can't complain too much. It was bothersome at first, but i prepared for the worst and have been pleasently surprised. **I also changed my diet to cut out dairy and greatly reduce wheat, added tons of vitamin supplements like B-complex, Calcium, zinc, multi, cod liver oil and excercise 3 times per week** I think my boobs might have gotten slightly bigger (woo hoo!) and i'm trying to beat any possible weight gain. My libido was NOT reduced at all and definitely no vag dryness, if anything, slightly better lubed! Its still early in my treatment so I'm not sure if I'll still have good things to say next month, but for now my advice is to TRY IT YOURSELF since everybody reacts differently and there is no way to know until you do it. True that you can't go back once you start, but I got lucky, so maybe you will too! F 29 3 months
11.25 1X O
9/15/2010
 1  Endometriosis mood swings, hot flashes, headaches while on it, gained 80lbs After being on this drug I developed Fibromyalgia, TMJ, chronic headaches, among other issues plus my Endometriosis did NOT go away. I had NONE of these issues before being on Lupron(except endo). NO ONE SHOULD BE ON THIS DRUG in general, but especially for after a 12month period, the FDA says that is enough for a lifetime because it is a reproductive toxin. F 21 6 months
1X M
9/14/2010
 5  endometriosis No side effects, although doctor prescribed HRT 3 months into the injections to make sure I didn't have excessive bone loss, hot flashes etc. I have been on Lupron for 8 years due to prevent growth of large endometrioma. Has worked like a charm, feel great. No weight gain that I'm not purely responsible for! Had excrutiating, pass out kind of pain prior to Lupron, so life on the drug has been amazing. Has been great for me, would have no hesitation recommending it. F 48 8 years
monthly 1X M
9/9/2010
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