LUPRON Reviews (LEUPROLIDE ACETATE)Average Rating: 2.7 (854 Ratings)Filter ResultsCompare LUPRON with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 |
More on LUPRON: Reviews Summary | FDA Adverse Event Summary
| RATING | REASON | SIDE EFFECTS FOR LUPRON | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | 3 LARGE Fibroids/Endo and Cyst | Serious Hot Flashes//Horrible Joint pain (especially in my knees) and my arm is always tingly and falls asleep at night. | I have been on Lupron for a few months now. I have 3 very large fibroids inside and outside of my uterus. I have a large cyst on my left ovary, and a large amount of endo. My first shot of Luporon wasn't so bad, although I did get a lot of hot flashes. The next time, I go the 3 month dose. Oh boy...I am putiing up with this b/c I really don't have a choice...The hot flashes come and go very often...and is very anoying! But the joint pain is killing me...it hurst so bad each time I walk up the stairs, bend down to reach something...just in general...my knees always hurt! I was pretty active before being on Lupron, and my joints never were a problem. Also, the doctor said that I need to loose a some weight before having surgery, but with one of the side effects of the drug is weight gain...it makes it all that more difficult. It is just very fustrating. I am staying on it as long as the Dr. says I need to be, but it wish there was another way. It makes me feel a lot older than | F | 30 | 3 months | 5/5/2008 | 4 | endo,after fibroid surgery | The only side effects I have are night sweats, heat flashes and mood swings. | I had surgery at the end of January, I have only had one injection. That was for the 1 month. My doctor didn't want me to get anymore injections; that is a great thing. My husband and I want to have children, so I hoping that lupron will help all the past problems withendo, and fibroids. | F | 36 | 3 months | 5/2/2008 | 5 | Estrogen positive Breast cancer | hot flashes, weight gain | I was diagnosed in '04 with Breast cancer which was Estrogen positive. My doctor put me on Lupron to keep me in menopause. I get a shot 1x a month for 2 years. My side effects are not bad at all. I have hot flashes but are tolerable. I've experienced weight gain, but I work out every day so I am able to maintain my weight. I don't find the side effects to be a problem at all. | F | 43 | 2 years | 4/30/2008 | 5 | 4 cm cyst on my ovary | Hot flashes...that's it!! I didn't even need to take the add-back therapy! | After researching on the internet all the possible side effects of this drug, I was scared to take this drug. I had the three month shot given to me in December 2007. At three months, the cyst was half its size!! I was given another shot in March 2008 and that should take care of my problem!!! | F | 31 | 5 months | 4/27/2008 | 3 | Severe Endometriosis | Significant weight gain, moodiness, blurred vision(usually only a day or 2 after each injection), body aches, insomnia | I just finished my 6th shot of Lupron. YAY! I will say that I hope to never take these injections again; however, my experience with Lupron was not near as bad as most others that write about their experiences online. I was scared to death to start Lupron b/c of what I had read. I guess everyone is different but I do know that not near as many people are going to get online and write about their good experiences as they do their bad ones. My main complaint is weight gain. I am taking Aygestin as well and have heard that causes weight gain more so than the Lupron. I'm not really sure. All I know is i'm ready to lose this weight and hopefully get pregnant soon! :) Anyone who has any questions or comments, feel free to e-mail me at [email protected]. | F | 24 | 6 months | 4/24/2008 | 3 | Shrink cysts/pre-op | Horrible insomnia, forgetfulness, breakthrough bleeding both months, increased appetite (10 pounds), irritable | Doc prescribed these shots for the two months prior to my surgery. I was told my breasts might get larger. They did, but only because I gained so much weight so quickly. Haven't had a good night of sleep in two months. Admittedly, that might be the actual cause of the terrible forgetfulness and irritability. But, I didn't have those before this blasted insomnia. First shot stopped period for two weeks. Then bled heavily for a week; followed by a week of regular to light flow. Second shot stopped everything again for two weeks. I have had light flow now three days. So glad the surgery is almost here and no more shots for me. TIRED and FAT. | F | 46 | 6 weeks | 4/22/2008 | 3 | Endo/Infertility | Dizziness, palpitations, extreme weakness, minor mood swings, hot flashes but those are not to bad. I have been on this drug once before, about 8-9 years ago. This time around not as bad. The only real bad part is the dizziness and palps. They get unbearable about a week before I am due for my next shot and does not stop until the next shot. Only three more months to go! I would not recommend using this drug unless it is a last resort. The pain management aspect of it has been minimal. | F | 29 | 3 months | 4/18/2008 | 5 | Endo,pain relief, to get pregnant | Night sweats, headaches, body aches, lower back pain, hot flashes, flushed complexion, irritability, mood swings,severe acne.fatigue,bloating in the beginning,water retention. | Despite the side effects Im glad I did it.Is surely has been better than having surgery again (last surgery Apr'07). I feel really good about having a sucessful pregnancy this time and Im pain free.I had my last injection almost 2 months ago on Feb.15th and my period still havent returned yet.I would recommend it, so far it has been worth it.At my last doc appt he said my Endo on my bowls,bladder was minimum and my uterus was firm and that was good because it was tender back in October 2007. Ive read alot of bad reviews about Lupron but I guess I was one of the lucky ones because it was no worse than the pain and up and downs of my periods,PMS, and abdominal cramps. The only real drawback was that I developed ugly acne that Im working hard now to try and get rid of, I have lots of dark spots and a ocassional breakout now something I never had before.GOOD LUCK TO ALL!!! | F | 29 | 6 days | 4/16/2008 | 4 | Prostate Cancer | I have experianced Hot flashes, Hip pain,slight insomnia, and slight tiredness | after reading alot of the negative comments on this site I was very concerned with having Lupron injections, I started of with a 1 month injection, I then had a 4 month injection, I have found benifit from Lupron, It seems there are more females getting adverse side effects from this drug than males, I agree with others regarding negative effects, We are all different what works for me doesnt work for others, But if you dont try it you will never know, There are treatments being used far worse than Lupron. | M | 59 | 5 months | 4/15/2008 | 3 | Endo | None at this time. Today was my first injection. I am both nervous, and happy at the same time. I am concerned after all the research I did, but at 28 I feel this is better than my other option, which was hysterectomy. I am hoping the MAJOR side effects discussed on this site are something that I can handle. | F | 28 | 1 days | 4/15/2008 | 1 | Endometriosis/ovarian cysts | Hot flashes, severe and quick-onset depression. Breast tenderness/pain. | I have a history of chronic depression, and after reading a list of possible side effects talked to my doctor about my worries of onset of depression accompanying the Lupron injections. She quickly said I shouldn't worry and that there was really no chance of depression as a side effect. Within three days I have dived into a depression so deep I can't pull my thoughts away from suicide. Constantly. I'm aware this is the medication, but I WANT TO WARN ANY WOMEN OUT THERE: if you have a history of depression, BE VERY CAUTIOUS! This is the worst I've been in years, and I'm terrified. DEPRESSION IS A VERY REAL POSSIBILITY. If your doc brushes you off, GET A SECOND OPINION. | F | 27 | 5 days | 4/14/2008 | 1 | fibroids | severe hot flashes, joint and bone paid, mood swings, vaginal dryness, weight gain | I took this drug for 4 months to shrink fibroids. I finished taking it in December and my period has not returned. The side effects still there. The joint pain is the worst. I was a fairly healthy person. I even teach Yoga. Now the knee and hip pain is so severe. I wasn't even suffering pain from the fibroids. The reason I took the medication was because they were so big and becoming very uncomfortable. I really regret taking this medication. I don't feel like the same person at all | F | 51 | 4 months | 4/11/2008 | 1 | Endo - PCOS | Severe: anxiety, depression - I became so mean towards others and I felt out of control. All Over Achy-ness: My hips hurt the worst, about 3 weeks after my first shot I started getting severe pain in my left wrist, It is still there and seems to be becoming worse. Insomnia and Fatigue - I can't go to sleep I am so restless and ten in the end I am so tired I almost can't function. | I honestly don't feel this drug has helped me in the way the doctor said it would. As of right now I do not have the pressure and pain I had prior to Lupron, but the side effects that have occured along with the medication are not worth it. I came so close to losing my job, because I work 11 hour days and some days I could not stand being on me feet for just a couple of hours. I was also so moody I almost felt like I could hurt someone. I would say mean things, not realizing what I was doing until afterwards. I cry all the time, over stupid stuff. Somedays I feel like I have lost all self control. Along with the Lupron I am taking Aygestin and Lexapro, and I don't feel this is helping much. If I had to do it all over again, I would say no to taking this medication. | F | 25 | 4 months | 4/10/2008 | 4 | Endo, cyst, pel pain, heavy bleed | Hot flashes and night sweats,impaired memory, fatigue, dry skin, heavy bleeding (for about 7 days), depression and mood swings. 1st shot on my butt and the 2nd on the deltoid muscle. The pain went away faster with deltoid muscle; severe headaches, especially the first few days of the injection. Sometimes the headache went all day all night non stop, but it got better into the course. The vagina is dry and sometime itchy. The hot flashes got worse the 2nd month and the add-back therapy with norethindrone didn't seem to help at the beginning, but after 2 weeks, hot flashes decreased. I feel really tired the first few weeks and still now, but learn how to deal with it. Women say they gain weight on Lupron, I went from my normal 98lbs to 93.5 lbs in 7 weeks. And then after taking norethindrone, I go back to 98 lbs in 3 weeks. Memory loss is a big deal: I couldn't recall my ATM pin that I have for 10 yrs, had to use my credit card. I forgot appointments, conversations, things to do. I | After 1 yr on Mircette for heavy period/pain, I started to have more severe pelvic pain every day. Some day I would have pain for hours and it was so unbearable that I would clench my teeth and my hands to sustain the pain while I was at work. For over a year, after many nights waking up to take ibuprofen and not 1 day went by w/o the pain, I reluctantly agreed with my doctor to take Lupron. 1st shot (3.75 mg, once a month) on 2/13/08, 5 days later, I started my period and then the bleeding got heavier and heavier. Day 6 or 7 into the bleeding, I would sit on the toilet for 1/2hr and every few minutes a gush of blood clot just flushed out of my body. I had to change pads every few hours and I thought that I would bleed to death. I emailed my doctor about that and she replied if the bleeding soaked 1 pad per hour and for 3 hrs continuously, check in with urgent care or page her. Along with the bleeding, I also experienced cramping and pain. But just on the evening of day 8, the bleed | M | 37 | 57 days | 4/9/2008 | 3 | Stage 4 Endo | Horrible Insomnia!, Hot flashes, memory loss, bone ache, mood swings, vaginal dryness. | I had a lapro in October which revealed stage 4 endo. It was everywhere, including my diafram. The doc. lasered as much as he could but was not able to get some of the areas so suggested Lupron. I just finished my 3rd month and had I known what I was getting myself into, I would NOT have taken it. They wanted me to continue for another 3 months but its not going to happen. The worst side effect for me was the insomnia. It was horrible the first month until they gave me ambian cr, which helped for a while but my hot flashed got so bad at night that I couldn't sleep through them even when on ambian. I just went 9 days with NO sleep at all so I decided to call it quits. I'm scheduled to do another lapro soon to see how much Lupron actually helped. My pain is significantly better but the side effects are much worse then the pain I was having. My doctor says he has never had anyone with such bad side effects but he has also never given it to someone younger then 29 before....so if your youn | F | 23 | 3 months | 4/9/2008 | 3 | Stage IV Endometriosis | I've only been on the shot for a week now, but, side effects have been minimal so far. I'm also taking aygestin. Mood swing, "vein" pain in legs, wrist and finger pain (on a scale from 1-10, it's about a 2). | I decided after a lot of debate to start Lupron (for 3 months, injection once a month). I was recently diagnosed with Stage IV endo, with colon involvement. It's not IN my colon, but attaching aggresively to it. In an effort to save my uterus so we can have a baby soon, and, to hopefully shed some of the colon involvement to avoid a resection, I started a week ago. Like another poster here, I am also keeping a blog of my Lupron/Endo Journey. http://i-am-not-endo.blogspot.com. | F | 27 | 7 days | 4/8/2008 | 3 | Endometreosis | Have yet to take Lupron shots, but considering it. Had Lapro in November 07. Prior to surgery had horrible horrible periods. Was in bed for three days out of the month once off the Bc pill because my husband and I were trying to get prego. It has now been 5 months after the surgery and my last period was not as painful as it had been before the surgery. However I do not want the pain getting as bad as it was. Do I follow my Dr advice and do Lupron for 6 mths or keep trying to get prego until the pain gets worse. I am tired most of the time and sick of this! Please help with any advice. | F | 27 | 0 days | 4/2/2008 | 2 | prostate cancer (T3a, 4+4) | hot sweats and flashes, altered liver function, raised sugar, osteoporosis threat, increased appetite, loss of stamina, high blood pressure, water retention | other than the typical hot sweats that seem to be easing as time passes -good news since i'm faced with a 28-month treatment- a couple of more unusual side effects are bothering. my liver functions (ALT, AST & total cholestrol)are high, i'm constantly hungry, and my blood pressure is raised ... perhaps from water retention. i am convinced the best way to manage lupron is through aggressive exercise that suits me very well since i row or ride daily anyway. it is a little tougher, but the yellow band on my wrist is an inspiration! i've held my weight gain to around five pounds, most of which i suspect is water since it fluctuates. exercise also helps with managing bone loss - i learnt i had thin bones (marginal osteoporosis level) when i underwent a base line bone scan. i am concerned about the long-term impact of lupron as well as becoming hormone refractory; does anyone have a prescribed course of treatment between 4-7 mths and 28 months? | M | 57 | 5 months | 4/2/2008 | 3 | Endo | Hot flashes, Depression, Emotional, I ache after I eat, Headaches | My pain is still there, not really sure what to say. I am going to keep going and see how it works ater a few more months | F | 18 | 30 days | 3/31/2008 | 4 | fibroids, trying to avoid hysterect | One one week into treatment, feeling great so far. Some hot flashed, some pain, but nothing serious. I seem to have more energy and get a lot done... I had bouts of depressions before, they have not been bad. Brief periods of headaches, again, not serious. | This is the last thing I am trying instead of hysterectomy, I really don't want to loose my uterus, it doesn't appeal to me. I am also in acupuncture treatment and taking chinese herbs, maybe that helps. | F | 46 | 7 days | 3/29/2008 |