COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Date added.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  mechanical aortic and mitral valves Suddenly my INR is off the wall I was 7.2 went to hopital and they gave me to much vitamin K and now I cant get over 1.4 so hepburn needles self administered in my belly again. I also experience rapid heart rate mostly at night and have recently last couple of days I cant seem to sleep enough which is a switch since I mostly dont sleep well with being so hot and a rapid heart beat. I go into atrial fibulation frequently i am not sure if the coumadin INR level being so low is a side effect . I am taking 15 mg a day of coumadin plus the injectable hepburn but i am alive and that is a good thing F 49 1992 days
4/19/2008
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 4  dvt, now protein c disorder weight gain, tired ALL the time, some mood swings - also problems w/managing coumadin and dilantin F 52 5 months
4/17/2008
 4  A-Fib Weakness,headache, feeling cold much of the time, bruising. I have only been on Coumadin for 3 weeks this time after a cardio-version for my A-Fib. I was previously on it for about 3 months in 2005. It was interesting for me to read many of the comments because I was beginning to wonder about my health, and see that the weakness, headache and coldness I'm experiencing is common to others. Tiredness is kind of a subjective term. However, I can tell you that I work out a lot. Both weight lifting and running. My strength and stamina have been hugely effected by taking the coumadin. Quite measureably. M 53 24 days
4/7/2008
 2  DVT,PE, genetic clot tendency What is the benefit of this process, reporting my side effects without opportunity to feedback and support from other folks on Coumadin? A 'side effect' for me is the lack of useful information. My doc sees deep fatigue as related to menopause, my doc sees being cold all the time as menopause, my doc sees constant sweats as menopause (haven't had menses in over three years). . . anything I report, she writes off as menopause. She insists that are no side effects to coumadin and no alternatives for me to take. She refuses to help me access reliable information so I can consider alternatives. So, okay, she doesn't want to risk malpractice by helping me make an informed choice about my body and my life and my wellbeing? If docs can't help me figure this out, who can? Quacks who throw up websites and scare me about rat poison? I feel light, disconnected from my body, I am sure it is the coumadin. I can't take this the rest of my life and I totally am not going to. I was in a he Here is a response to the person who said she has a problem getting her INR tested when she travels. I carry an order for the blood test with me, from my doc. Then I go to almost any clinic that does blood draws. They take the blood and phone or fax the results my coumadin clinic back home and then my coumadin clinical pharmacist contacts me if I need to change my coumadin dosage. It is easy to handle INR while traveling if you have doctor blood draw order. You might have to pay cash to the business that draws your blood . . . or you might get lucky and find a place that takes your insurance. Once you are stable, geez, you don't need a test very often, once a month, right? I don't have a blood clot and no signs of one. But I have tons of side effects and I aint going to live with them 'for the rest of my life'. Apparently, I have a genetic predisposition that gives me a slight tendency to clot. I got my first clot at age 52. At the time, I weighed 330 pounds and had uncontrolle F 54 2 years
4/7/2008
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 3  PE in both lungs I am not sure if from the medication, but lately my mind feels foggy, extremely anxious, lethargic, and sensitivity to external stimuli. Very easily become cold and it feels the cold feels intolerable. I was on 2-3 INR for a year and then have been on 1.5-2.0 for three years. I think I became addicted to diet colas for energy and now feel really lousy so have stopped the colas, nutrasweet, suppplements used along with South Beach diet. Dr. does not see any neurological signs so may be Coumadin related. M 52 4 years
4/6/2008
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 2  Factor V Leiden / DVT Hair loss, depression/ loss of ambition (not to mention scholarships...), fatigue, leg, muscle and joint pain, LONG periods, dry mouth, disrupted sleep patterns (either can't fall asleep, or can't get enough), scratches and bruises take WEEKS to heal, always FREEZING, can't lose initial weight gain. taking 15 mg 4 days a week, and 20 mg 3 days a week. this seems high to me... but GP is monitoring on hematologist's suggestion. i was told that i would have to take this drug for merely 6 months, but doc keeps increasing dosage and time lengths. please email any suggestions or tips! F 20 18 months
3/30/2008
 3  pe in both lungs/factor V-Leiden Weight gain of approx 15 lbs in 5 months. Very dry skin and scalp. Slight rash on face and forehead. Joint pain in shoulders and arms. After having kidney infections, found I had large stone that severly damaged kidney, with 2 stones remaining. At same time dr. noticed large cysts on both ovaries and removed them, (without asking if blood clotting ran in my family). 5 days after pelvic surgery, I went to emergency room with severe chest pain, and spent 10 days in hospital with multiple blood clots in both lungs. Now on coumadin, but want to get off asap, even due to finding out I have the Factor V-Leiden gene. My 70 year old dad (now 93) was put on coumadin & almost died at age 75 due to sub-dural hematoma in brain...So I am really scared to take it forever. Any help would be greatly appreciated. F 52 5 months
3/26/2008
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 3  DVT immediate effect - gas, bloating, constipation, failure to have complete bowel movement; increased appetite; inability to lose weight; lethargy; depression - didn't know why but realized it was Coumadin. I have been taking Coumadin know for 5.5 months. It has kept the DVT from re-occurring. I am not taking the 5 mg a day prescribed - I'm taking 1 mg which my body can handle. Quality of life issue - do I want to feel good or do I want to feel bad and live longer? I want to feel good. One thing I like about this drug - it improved sexual pleasure. M 54 5.5 months
3/23/2008
 4  DVT Left Calf I experienced many side effects initially including loss of appetite, weight loss and I was always hot. After a month of the medications many side effects have subsided. After my initial weight loss, I had some weight gain (which I don't blame on this medication). However, try as I might, I have not been able to take off a single pound and wonder if the medicine has something to do with it. Most side effects could be explained because of my condition. After being diagnosed with a small blood clot in my leg I was put on coumadin right away and told to go on bed rest. Prior to all this happening I was active, doing an exercise video several times a week at home, taking kickboxing 2 days a week and bike riding with my family. While on bedrest, my clot worsened and now I have total blockage. The pain was so intense I didn't want to do anything except cry. It hurt all the time, but anytime my leg was vertical was particularly brutal. To avoid using the bathroom so much, I greatly reduced eating and drinking (also the fact that if nobody was around to serve me the pain wasn't worth it). So I attribute my initial weight loss to that and the fact that the muscle I had built was turning to fat. I believe that I was initially hot because it was such an ordeal for me to get around. It was like a workout to walk into the other room. Thank goodness for the blessing of a new F 39 7 months
3/18/2008
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 3  DVT POST KNEE SURGERY I HAD TO TAKE COUMADIN FOR SIX MONTHS JUST FINISHED THREE WEEKS AGO I SUFFERED WITH HEADACHES,WEIGHT GAIN,BLOATING,SWEATING,HEAVY PERIODS,SWELLING AND PAIN IN MY LEGS ,GETTING OUT OF BREATH EASILY AND HORRIBLE MOOD SWINGS AND NO ENERGY THIS MEDICINE DOES DO WHAT IT IS SUPPOSED TO BUT, HOWEVER THERE ARE MANY SIDE EFFECTS I HAD NO CHOICE BUT, TO TAKE IT DUE TO THE FACT I HAD A POST OPERATIVE CLOT THAT MOVED FROM MY CALF UP TO MY FEMORAL ARTERY OTHERWISE I COULD HAVE HAD A PULMONARY EMBOLUIS THAT COULD HAVE KILLED ME I DO HOPE THEY CAN FIND A MUCH SAFER BETTER ONE IN THE FUTURE I AM JUST THANKFUL TO NOT BE ON IT FOR LIFE. F 48 6 days
3/16/2008
 3  Two clots in leg, one in brain Weight gain, heavy periods, mood swings I don't know if my dissatisfaction is due to the drug or the simple fact that I am chained to it by my blood clotting condition. My first episode was caused by birth control pills and the second two by pregnancy. I was even on heprin and then lovenox during the pregnancy. F 31 2.5 years
3/15/2008
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 3   2 episodes of partial loss of eye sight - INR was tested it was about 1.00. Genetic issues Itchy ankle and sometimes tighes reduced sex drive M 90 days
3/6/2008
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 3  multiple pe abdominal hysterectomy Constant headache, dry skin, constipated, hand and legs go completely numb while sleeping, iritable, depressed, blurred vision, tired, complete body weekness, cold and hot flashes. Of course I am not able to take any hormones after my hysterectomy. Started Estrodial patch day of surgery and ended up with 7 clots in my lung 3 days later. Dont' know if it was surgery or hormone related or not related at all. I hate this drug but am thankful it was available when needed. Took 4 months to get into the "theraputic range". Today is my first day off of coumadin. I begged the docs to take me off. The docs say I should be okay, just need to watch for same symptoms I had. Am scared to death I will get another PE, but am willing to risk it to be off of this medication. Was taking 11mg daily and 12.5 Mon and Fri. F 48 6 months
3/1/2008
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 2  Embolism in my lungs The primary side effect is a very unwanted weight gain. The surface of my body feels very hot and sleeping is difficult. I really do not know how long I can withstand the discomfort this medicine causes - even if it means loss of life. I was diagnosed this past Christmas (2007) while traveling in Switzerland - the medication I received there did not affect me as the American version of Coumadin seems to. I did not experience the weight gain or the burning skin in Europe. M 69 49 days
2/27/2008
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 5  DVT in hepatic portal vein None that I can pinpoint, other than the *wonderful* side effect of it curing all of my fibromyalgia/chronic fatigue symptoms that I had for over ten years. If Coumadin is causing any of the symptoms I deal with, they're nothing compared to those caused by chronic fatigue syndrome. To those who consider Coumadin a poison, remember that it's poison to rats, not humans. Chocolate, for example, is sheer delight for people, but it will kill a cat quickly. Also, keep in mind that many of the symptoms reported on this site can also be related to the actual disease going on. I've had great results with it. F 49 4 years
2/22/2008
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 5  DVT-RIGHT LEG (7 CLOTS BEHIND KNEE) WHILE TAKING COUMADIN I EXPERIENCED HAIR LOSS, FATIGUE, LIGHT-HEADED/DIZZINESS AND MEMORY LOSS. SINCE I HAVE BEEN TAKEN OFF OF THE MEDICINE, THE MOST PROFOUND AND NOTICEABLE SIDE EFFECT THAT STILL LINGERS IS MEMORY LOSS. I THOUGHT THAT ONCE I WAS OFF OF THIS POISON, IT HAS BEEN OVER 2 YEARS NOW, ALL OF THESE SIDE EFFECTS WOULD DISAPPEAR...NOT SO. I HAD A SHINY BALD PATCH ABOUT THE SIZE OF A GRAPEFRUIT IN THE BACK OF MY HEAD. THE HAIR HAS SINCE GROWN BACK...ABOUT A YEAR LATER. I'M PLEASED WITH THE RESULTS OF THE MEDICINE THAT HELPED WITH MY MEDICAL CONDITION BUT I AM NOT PLEASED WITH THE LINGERING SIDE EFFECTS. I STILL HAVE ONE CLOT THAT WAS TOO DANGEROUS TO REMOVE BUT IT IS TIED OFF (BYPASS) AND SHOULD, ACCORDING TO THE DOCTORS, DISSOLVE ITSELF. I CONTINUE TO HAVE ISSUES WITH REMEMBERING BASIC THINGS. F 44 6 months
2/22/2008
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 3  Slight Stroke & Atrial Fibrilation Exhastion, slight weight gain, insomnia, trouble concentrating. After 4 months, still attempting ro regulate dossage. three steps forward and then two steps backward. I am told I will be taking "Warfarin" the rest of my life. I hate being chained to the anticoagulation clinic for my remaining time on this earth - drat it all, anyway! F 73 4 months
2/22/2008
 4  DVT, Leiden V unusually tired, particiularly in late afternoon; feel cold most of the time; experienced some weight loss when I first started on warfarin but that's over. I got the news in December that I need to be on this drug "indefinitely" because they don't have a good reason for why I got this clot. The specialist told me there is a 30% chance I'll get another one if I don't stay on the warfarin so I will continue to take this drug. F 45 7 months
2/11/2008
 3  2 DVTs left calf None I kept the INR between 1 and 2 for most of the time on general principles (vitamin K must do something good)and recently took it up to the therapeutic range of 3. M 5 days
2/11/2008
 4  Anti-phospholipid; 3 strokes Tiredness and fatigue mainly. Some depression including one severe case. Disrupted sleep patterns - either too much or not enough. Also on a lesser scale aching legs, stomach cramps, bloating, and sensitive skin including sun burn very easily (ie while wearing sun screen). None of these things were a problem pre-Coumadin. INR fluctuates wildly at times and has never been considered stable. It is not the nicest thing to be told the drug you have to take for the rest of your life is a poison, but without it I would be either dead or brain damaged. Coumadin, for all its problems, has more than likely saved my life (which is why I rated it a four). I have often spoken to my doctor about the tiredness, had any number of tests but never put it down to the Coumadin. Seeing that about half of the respondents cited tiredness or fatigue I guess I have my answer. It sounds strange but it is oddly reassuring to read about the common experiences so many have had and feel "normal" for a Coumadin patient. Until something better comes along I will stick with it. Thanks to all for sharing your experiences too. Stay well. M 37 10 years
2/4/2008

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