COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | DVT/PE | Hair loss, joint pain, headaches, severe exhaustion... | I'd rather hang myself on a flag pole and have children beat me like a piņata. Seem to inhibit my active lifestyle. Can't believe no one has come up with a better solution. If anyone knows of a trial on WE-thrombin, I'd like to take part, will even move if it's a geographical difference. | M | 42 | 45 days | 7/2/2008 | 3 | PE from the pill and long flight | Tiredness, bruising easily, bleeding easily from small cuts and gums when flossing teeth, upper centre chest tightness especially when lying in bed at night, very heavy periods, slight hair loss | I am happy that it possibly saved my life. I only had to take it for 6 months and I have been off it now for about 1 week. Since coming off it I feel like I have lost my security shield in a way because I become paranoid whenever I get a new pain which I think could be another PE. However, I am happy to be off it. One thing I am greatly concerned about now is that I still have upper chest tightness which I notice more at night in bed, especially when I change positions in bed. I have seen a few doctors and they think it is stress causing the tightness but I don't think so. I have had an ecg and chest x-ray also and the doctor said the results were good. One doctor thinks I could have an inflammation of my chest wall and said to take panadol or an anti inflammatory tablet. I don't know what to do now. Maybe I need to see a specialist and not a G.P. | F | 37 | 6 months | 7/1/2008 | 3 | AVR and aortic aneurysm | Initially extreme cold, but now either too hot or too cold. Tired most of the time, but particularly exhausted after exercise. Tiredness seems to descend like a cloud and is impossible to avoid. Have suffered two episodes of a TIA where I lost my eyesight due to an embolus. Obviously bleeding and bruising which can be worrying at times and has needed treatment at A&E (even for bruising!) INR has been unstable throughout 2 years, until the last two months or so. Maybe my body is getting used to it! | No suitable alternative, or I would change meds. I am also on simvastatin, aspirin, fluoxetine and metoprolol. I do wonder about the mix of tablets and interactions. Some people seem fine on warfarin/coumadin but there seem to be an awful lot of us who have similar side effects. Too many people and too many similar comments for it to be a coincidence. My target INR is 3.5 and I do wonder if it is people at the higher end of the scale that have the problems. | M | 41 | 2 years | 6/21/2008 | 1 | multiple PE's both lungs | hairloss, vivid dreams, bruising, weight gain, sore joints and muscles and legs, shortness of breath, dizzy spells, itchy skin and scalp, memory loss, fatigue, bleeding | I was told that my PE's were caused by prostate cancer treatment for 12 years which tends to thicken blood. That and a sedentary job forms clots. May be true, but I get up and walk every hour now. Totally disgusted with this poison. Screw it! I'm taking myself off this crap this weekend and starting an herbal, Phenocane, a COX2 inhibitor without any known side-effects. I wish I new how long it will take to get coumadin out of my system. | M | 69 | 5 months | 6/21/2008 | 1 | dvt | Hair loss, weight loss severe fatigue after taking for 3 months.Also depression,shortness of breath Unquenchable thirst at times. | I am also concerned about this being a rat poison and most of my side effects macth those of a person that has ingested rat poison | F | 44 | 3 months | 6/20/2008 | 4 | DVT right leg/PE right lung | Hair loss, weight gain, depression, anxiety | I have been on Coumadin for 10 months now, the initial side effects did go away after a few months, nausea, headaches, so now I do feel better, except for the hair loss and depression at times, but that could be from this experience itself and not the drug. For everyone here looking for more answers please go to www.robprince.net/dvt/forum.asp?action=success , these people are friendly and will help you understand a lot of what you are going through - they completely got me through the first months after diagnoses. I hope this helps. | M | 44 | 10 months | 6/18/2008 | 5 | PE both lungs w/ DVT lower rt leg | Had my PE & DVT in Apr '06 and been taking Warfarin/Coumadin ever since. Occasionally I get cold hands or full body, but only during the winter. I tire very easily but that may well be due to potential lung damage from the clots. I tend to sunburn easily too, however I have NOT had any memory or hair loss or most of the other things others are having. No problems sleeping however I am experiencing a few small bouts with depression lately and am going to my Dr to sort that out. I do not think its related to the Coumadin as this is 2+ years since I started taking it. | Spent a week in the hospital with it all. D-dimer test had a reading of over 5000 and I was told by the Dr that I was extremely lucky to be alive after I passed out. Many die within the first 60 minutes. I was given a 'test' drug w/ my approval to break up the clots and clear them out, plus I had a filter installed for a couple months, otherwise I'd have been on oxygen for a minimum of 6 months. The Dr thinks the PE may have damaged my lungs somewhat, thus my tiring easily. Otherwise I'm a happy camper with it. Until something better comes along I'll continue to take it as I'm told I'll be a Coumadin (Warfarin) lifer. | M | 59 | 2 years | 6/9/2008 | 1 | Unidentified cause PE | Muscle pain, especially chest and arms, weight gain, depression, lethargy - inability to exercise/aerobics | I have been taking coumadin about 5 months, and have never had a stable INR. My concern with the drug is my muscle cramps, and feeling completely "spent" after an active regimen of aerobics for 12 months.... everyone (doctors and "friends") have said coumadin is benign! i NEVER felt this... this website and others experiences once again suggests a diff between law and mfr claims. Where is the FDA? | M | 43 | 5 months | 6/8/2008 | 5 | 16 Inch DVT left leg | always cold, heavy period, hair loss (minor bunches of strands), dizziness, easy bruising, gum bleeding when brushing teeth, bloating and headaches during the time may or may not be related to the medicine | I was on it for a year. It worked! | F | 22 | 1 years | 6/5/2008 | 4 | Clot in leg and small PE in lung. | Mainly pain in and around the greater saphenous vein where the clot occurred. Some moderate to severe chest pains at times. I had mild symptoms at the time the clot and PE were diagnosed in late 12/08. Started on Clexane and then on Coumadin for 6 months. I got the clot after an international flight of 14 + hours crammed into a middle seat in economy. While on Coumadin I have had to make several overseas trips (Business class only now!) and spent weeks in Australia, Japan and the USA. As a result, probably due to the diet changes, my INR has never been steady at the 2.5 required and has ranged between 1.5 - 3.7. | Reaching a steady INR of 2.5 has not been possible. Interestingly, I feel that most of my aches and pains have had a psychological basis. In March 08 I was experiencing leg and chest pains, most evident at night. My doctor ordered a leg ultrasound and lung CT scan. Both results showed no evidence of the clot or PE. My pains all but disappeared. Now, when I notice pain in the clot area I am usually in a stressful situation. For me it seems that the side effects of Coumadin arise from the stress of associated issues and lifestyle changes caused by obsessing somewhat on the obviously dangerous nature of this drug. Additionally I have noticed some weight gain however considering my diet is more bland and less healthy now, I am not sure I can blame the Coumadin directly. | M | 50 | 5 months | 6/5/2008 | 5 | DVT | Hair Loss, Headaches, Mood Swings, Nervousness, Weight Stabilization (I can't seem to lose weight) | I developed a DVT after a bunionectomy. My hematologist performed lab tests & found I am Positive Factor V & also positive anticardiolipin. It seems that patients who have Lupus have the positive anticardiopin HOWEVER, I have tested negative on all counts for Lupus which puts me in the "rare" group. Due to these two positive lab rslts, I will be on Coumadin for the rest of my life. At the beginning, my INR was very regular. I have to be at a high(about a 3.2). However, in the past two yrs, my dr cannot stablilize my dosing. My headaches are recurrent & I was put on high blood pressure pills for my migraines. I feel as though this treatment is a cop-out. To this day, I still feel very strongly that my headaches are contributed to the Coumadin. When my dosage changes from mth to mth, it takes a toll on my body. This is when I become increasingly tired & without a doubt, more headaches are observed (BY ME!). It's as if my body is trying to adjust to the ch | F | 38 | 7 years | 6/3/2008 | 5 | PE right lung | I feel tired but can't tell if it is the drug or the after effects of the PE; I also have pain in my shoulders and trouble raising my right arm. Again, I don't know if it is the drug or the PE. | After an initial couple of weeks with both lovenox and coumadin, I now have stabilized with INR around 2.5-3.0 while taking 5mg daily. I don't really have any major complaints; I have not had to make major changes in my diet or in my alcohol use (1-2 glasses of wine daily). The biggest change for me was having to give up my razor and use an electric one instead as a precaution. My greatest concern is not knowing how long I have to take it. My doctor told me to expect at least nine months, but could be much longer because they really don't know what caused the PE. It could have been the estrogen I took to relieve my hot flashes (I have a metastatic prostate cancer, which requires that I take androgen blockers and suppressants; they produce a male menopause with all the effects that women suffer). | M | 62 | 30 days | 5/30/2008 | 3 | DVT in left calf, PE | Constant headaches, moodiness, weight gain of at least 20 lbs, sometimes can't sleep at night, still have chest pains,sad and unsure if depressed. | Thank goodness I found this website! I agree with a lot of people about the weight gain. Doctors are hush hush about it! If you see how many times it is mentioned on this page it is ridiculous. I can't wait to get off of it. I want to see if there is a change. Feel free to e-mail if you have questions or just want to talk. It's good to know you aren't alone or going crazy! | F | 27 | 8 months | 5/21/2008 | 3 | SVC clot after PICC line insert | Fatigue, weakness, weight gain >30 pounds. Leg and foot cramps, sleep disturbances due to racing heart | I do not understand why the drug companies and dr's are allowed to say "no side effects" are associated with this drug. | F | 53 | 11 months | 5/4/2008 | 4 | PE after c-section | Fatigue, low libido, no appetite | I am new to this drug...only have been on it for about one month. I had to PE go into my pulmonary artery right after delivery of my twins via c-section. I coded, and they had to do open heart surgery to remove a 6.5 inch clot from my heart. I don't know if all these side effects are from the Coumadin, Oxycontin, or the surgery...or from being a mom of twins...LOL...but I am noticing people are complaining of weight gain. What is the average gain? I am wanting to lose weight as soon as the doctor ok's it, even though I only gained 17 pounds while pregnant. Are there more effects with higher dosages? I was just increased to 4mg because my PT-INR was 1.7 earlier this week. Also, I have completely stopped eating a lot of leafy greens that I love because it was easier to quit than to try and regulate having the same amount of Vitamin K every day. Anyone have any advice on a good balanced diet? One of my favorite drinks is Naked's Greed Machine, which is full of green veggies...an | F | 27 | 1 months | 4/30/2008 | 1 | Ext. DVT ankle-upr.illiack vien | Loss of sex drive/libido, loss of appetite, memory loss, severe fatigue/tiredness, severe irritability, periods of anxiety and depression, headaches, extreme acid reflux, mood swings, wieght fluctuation, cold feet, sensitive to temperature ie hot then cold etc, sweating at night, wierd dreams, cant get a good nights sleep, assortment of aches and pains that come and go. | I was diagnosed with extreme dvt in my left leg going from my ankle to my upper illiacc vien (near belly button) in 2006. Right after I was put on coumadin. Ever since I have not been myself and thought I was crazy or it was all in my head. I went to my doctor many times to get the same response (stress/depression/all in your head). Funny I never had these symptoms before taking coumadin. I just stumbled acrfoss this site today and it has changed my life. A huge wieght has been lifted off me - IM NOT CRAZY IT WASNT ME AND ITS NOT ALL IN MY HEAD. I would love to talk to anyone that is also going through this. Im going to my doctor to get off this poison. I would rather stop this drug and chance dying because this isnt living I feel halfway dead. Seeing this site has changed my life | M | 26 | 2 years | 4/30/2008 | 2 | DVT | I have been on coumadin for almost 22 years. I think of coumadin as both good and bad. The good is that it has saved my life. The bad is the side effects. When I first went on coumadin I began having trouble sleeping, which has still continued. I do not have the energy I once had. I have also felt like I have ADD while on coumadin. To summarize: anxiiety, lack of energy, sadness, and yes at times depression. I asked for almost twenty years if there were any side effects of coumadin, to which my hematologist said no. Finally, a primary care doctor informed me that there may be links to coumadin and depression/anxiety. He began to study this after his mother went on coumadin and he noticed the effects on her. | There is yet to be any other alternative for people with DVT. I am 100% convinced that there are grave side effects. (lack of energy, sadness, and depression/anxiety) | M | 38 | 21 years | 4/28/2008 | 1 | dvt | developed blood clot above knee after breaking fibula below knee,very tired,bad stomach pain,hair loss,2 times had massive unbearable pain in right shoulder couldn't move arm for 2 days nothing helped, anxiety, bad mood swings, night sweats, have period every 2 weeks for 8 days and very heavy | after being on it for 10 months I am on 20 mg and 15 mg every day inr's never consistent but I don't experience the bleeding at all if i cut my leg shaving the blood dries up in about a minute and the blood is sticky I also don't have any bruises at all.On lovenox and coumadin had massive cut on my knee requiring 3 stitches inside and 6 outside bleeding stopped pretty quickly. But I am so tired all the time and it's a different kind of tired like i'm dying tired. I have good days and bad days, mainly bad.Everyone tells me i'm too young to be this tired but glad I see others going through the same thing. I work on my feet about 12 hours a day and have 2 teenage kids so it's hard to rest but now it's different.My stomach hurts so bad not nauseated but intense pain but no blood in stool (plus I hate to throw up and have not had that happen yet) did cough up blood about 2 months after being on coumadin went to emergency room and doctor thought i was crazy for coming in. It was bright red b | F | 40 | 10 months | 4/28/2008 | 3 | Pulmonary Embolism. | Hair loss, depression, weight gain. | I do have to say that this medication did save my life and did help with preventing me from having any more blood clots. The downside of this medicine was that I was losing a lot of hair, moreso than your average fall out. I ended up gaining at least fifteen pounds while taking coumadin, even though I didn't change my diet or exercise. The combination of all the side effects may have made me depressed, but I'm a generally happy person so I don't know if the medication contributed to me being depressed as well. | F | 22 | 1 years | 4/24/2008 | 5 | I had post op complications, PE | My side effect are the usual hair loss, tired, weight loss instaed of weight gain, dry skin, cold, anxiety, watery eyes, loss of apertite(unless that's from the high blood pr. meds | I owe my lfe to warfarin, I would be gone without it, it was scary , when I went in to a clinic 1 and 1/2 days post op I only had trouble breathing, my blood oxygine level was 75% and dropping, but i had no significant symptoms, which made it real scary. Now that I am off the warfarin after 6 months, i too feel insecure without taking the warfarin, but the bad symptoms are slowly going away, but I still get excessive fatigue, so I have been reading about Protein S deficiency? and think there might be a corralation between blood clots and protein deficiency? | F | 51 | 6 days | 4/20/2008 |