COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  P.E. right lung Got cold very easily even in intensely hot weather, bruising, bug bites would not heal, hair loss. My INR would never stabilize (I was on 15 mg once a week and 12.5 the rest of the time), I was only in theraputic range twice in 6 months. I had to stop eating anything with vitamin K in it to try and figure out what was causing the low INR readings. Try eating no salad, no watermelon, no salad oils, no cranberries, etc. when on a long-term weight loss program, and during the summer to boot! Needless to say my weight loss came to a halt during my time in coumadin jail. Doctors could never really explain the cause of my P.E. other than taking a stab at it and blaming my birth control (ortho tricyclen). My pulmonologist wanted me on coumadin for 9 months, I called it off at 6, no longer able to tolerate the constant doctor appointments and the eating restrictions. I have no clotting factors. My only concern now is that since stopping the coumadin 6 days ago, I seem to be extremely itchy! I thought at first it was bug bites, but I'm not sure. Anyone with experience stopping coumadin F 30 6 months
9/12/2006
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 3  vasculitis, blood clotting I've been having these awful headaches. I already have a history of migrains, but these are just insane. Also more swelling of the joints (and since I already have Lupus, it's 10 times worse) and even lip swelling. Does anyone else get numb swollen lips out of nowhere, moving up into the top of your lip, base of your nose? I've also been extra emotional, having near anxiety attacks and sometimes very depressing thoughts. Almost mistook this stuff for Prednisone (it's an awful steroid for Lupus) even though it's a baby version in symptoms. Not very hungry, already was cold, but now, even colder. Feel really spaced out if I don't have a good enough breakfast and if I don't have my Vit. K the same time every day. I am thankful that it's keeping me alive. Had a couple heart attacks 5 years ago because of the Lupus and Blood clots and just recently had clotting in my spleen that took chunks out of it. Docs want me on it for the long run since if I don't, I'll most likely get clots else where. Of course I can't afford to have chunks taken out anywhere else, but it's pretty sucky since I'm young. Going back on disibility since my Lupus is getting worse. Anyone else have experience with Lupus and heart stuff. I have to start taking some other Lupus meds that are just as bad as Predisone. I don't know how that will effect my coumadin, but hey, it's all in the name of keeping me alive. Tried to cleanse myself of all this toxic medicine, but it only worked so much. Docs told me if I didn't do it their way, I wouldn't see 30. Nice, huh? Good thing I'm pretty spunky. Keeps my head above the water. Either way, I'd like to talk to folks about things. The Coumadin, if they are dealing with Lupus and how the F 22 2 weeks
9/11/2006
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 5  PE Heavier periods and now anemic. Taking iron, but craving ice because of the anemia. Bloated - belch a lot, but that seems to be settling down now. Also used to experience anxiety/panic attacks in the beginning, but possibly due to the experience of having a PE. F 44 1.5 years
9/8/2006
 2  low risk blood clots WOW! SO GLAD we found this site!! I have had severe and debilitating headaches, chills, general all over bad feeling...also, very sensitive skin, hair loss. Due to a long term hospital confinement, I developed low risk blood clots in lower leg area. I was only to be taking the drug for 3-6 mos. but I would not have been able to rehabilitate and recover if I had stayed on Coumadin - doc finally said okay to take an aspirin a day and recheck with ultrasound in a few weeks. We were not told anything about these side-affects and all the docs tried to tell us it wasn't Coumadin...very, very frustrating!!! I believe there is a way to have your doc report this to the FDA...PLEASE DO!! So others don't have to go through this!! M 43 20 days
9/7/2006
 2  2 x rt leg clots, FVL homozygous Mostly just exhaustion, lack of energy and headaches, cold hands and feet, body aches, slight nausea on occasion. Maybe weight gain but it is early days yet... I have always been an active and energetic person, and it has really blown me away how much this drug has affected my energy levels. I pass out every night and wake up feeling like I can hardly open my eyes every day. I am a lifer on the rat poison now, which is hard being only 26, what with the dietary and activity restrictions (used to be a keen basketballer, which is out of the question now). On the plus side, my liver will no doubt be grateful in future that I can't drink a great deal!! Positive attitude is everything. Feel free to contact me if you have any questions and good luck to all :) F 26 2 months
9/6/2006
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 2  2 x rt leg clots, FVL homozygous I just posted a second ago about my experience - I meant to add that my INR is stubbornly refusing to go up, and I am stuck on 1.6 - my dose is currently at 8.5mg daily but will no doubt increase next test, and I am still having to do the Clexane shots in the stomach every morning (2 months and counting!) :s F 26 2 months
9/6/2006
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 5  DVT/PE At 5mg/day, I can't say I've experienced any side effects. May be experiencing more bloating and flatulence but I don't know if that's from the Coumadin. I'm always cold so that's nothing new. I was taking Lovenox injections along w/ the Coumadin and didn't experience any side effects from that either. Maybe this is b/c I haven't been taking the drug very long and/or on a low dose or just plain lucky! So far so good. Since I haven't experienced any side effects and have a stable INR, I can't complain about this drug. I used to eat A LOT of salads and green veggies and having to cut back on them has been unfortunate. I am physically active (not as much at the moment due to ankle injury) but have recently discovered a family history of clots. Getting ready to be tested for Factor V Leiden. I hate to have to take this drug but sure beats the alternative. F 30 8 days
9/5/2006
 4  Recovering from DVD Hi Various side-effects including tiredness and nausea. The entire set of presently available food supplements seems to augment the 'blood-thinning' action of Warfarin. I want to take pycnogenol but I know it'll increase my INR value and the clinic will try to prevent me using this valuable supplement. In this connection, Warfarin is a nuisance but one must have it. Can't we have a better - more user friendly anticoagulant? Aspirin is just useless. M 70 2 years
8/19/2006
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 2  Clot at base of my brain Depression-severe; loss of appetite, but gain in weight; muscle pain all over; hot and cold; feet and hands numb and cold; insomnia; anxiety F 52 8 weeks
8/18/2006
 1  blood clot in my lung Weight gain,cold sleepless nights,depression. I am stiil on it. My dr. has me taking any where from 20-20 mg. and I do not feel at all comfortable taking it. F 54 8 months
8/18/2006
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 3  Factor V, Superficial Thrombosis on like, 7.5 mgs a day, Noticed a little irratability, headaches, Depression, Feeling Very tired all the time, but unable to sleep. Having probelems getting comfortable in my own bed. Some Of these may be caused by other meds too, Currently on Lovenox, to thin blood as well, and Vicodin for pain. Rough Side effects, and still no stable INR.. take the good with the bad. M 23 1 months
8/17/2006
 4  DVT/Factor Five Leiden Since taking coumadin I have had episodes of increased water retention, sudden weight gain (about 10 pounds in 1 month)and being extremely tired. Basic knowledge is that there will be increased bruising, which I've only had a problem if my PT/INR is too high. While discussing these concerns with my doctor, he says that their not related to the medication or coagulation problem. It is good to hear that others have had the same issues. Thank for sharing! F 26 2 months
8/15/2006
 4  Clot at base of brain Cold hands and feet; weight gain; depression; generalized pain all over; insomnia; hot flashes; headaches; numbness in hands and feet. I only have to remain on Coumadin for several weeks and I realize the necessity, however I am so very tired all the time and look forward to feeling better. It is so hard when your mind says "go" and your body says "no". F 52 2 months
8/15/2006
 4  Blood Clots in leg Lots of bruising, I was frequently cold, I have some problems maintaining an errection. It does work as far as the blood clots are concerned. M 39 3 months
8/10/2006
 3  clots in lungs Coldness, dry mouth, lots of bruising, maybe sexual problems, maybe problems sleeping. I take it because I'm scared of having more blood clots. M 43 5 months
8/10/2006
 4  PE rt Lung I started coumadin the middle of april because of 2 PEs in the rt lung. However the recent CT scan was negative and the Dr Still wants me to stay on the coumadin for 3 more months. Now I'm wondering if the Radiologist made a mistake when he read the film in the middle of the night. I absolutely hate taking the coumadin! I'm having Hot sweats even when I'm cold, I know that doesn't make sense, but my hands and feet are like ice cubes. Hair loss. My lower arms and lower legs ache all the time, plus I have occasional pain between the shoulder blades. Also I've gained weight, which I'm very unhappy about! I'm so glad to see others having the hot sweats also and weight gains, now I know I'm not completely nuts. I don't like the side effects of Coumadin! F 60 3 months
8/5/2006
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 4  PE rt lung I've gained weight and have some hair loss. Also I'm experiencing terrible hot sweats even though my hands and feet are cold. I was diagnosed with the PEs the middle of april. My recent CT showed that I no longer have PEs in the lung, but the Dr wants to keep me on the coumadin which I'm very unhappy with. He gave no reason other than he thought it'd be a good idea. I'm glad I checked this site as I was told the hot sweats were not side effects of the coumadin, which now I don't believe to be true. Also the weight gain appears to be a constant complaint of most of the peoples remarks on this site. Now I don't feel like I'm a complete nutcase. I'm beginning to question if Drs really pay attention to Patient complaints, it appears they just wave the complaints into thin air. Maybe we all should send to the pharaceutical company that makes coumadin our side effects, would they listen? I don't like Coumadin! I would suggest people look for the PDR pocket Guide to prescription drugs found in any bookstore. The book had several of the side effects that were reported by the posters on this site. F 60 3 months
8/5/2006
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 4  DVT left leg Actually taking Warfarin: headaches, COLD, tired, anxious, weight gain, nails & skin are changing, hot flashes much worse but they help me get warm! Mouth burns constantly, mood swings, strange dreams, rarely sleep the night through. The cold is simple to explain - thinner blood, but I never related the other symptoms to the drug. I'm having extreme joint pain & ran across this in the search. Clot due to HRT, so I thought a lot of symptoms were from eleminating HRT. I noticed the mood swings & severity of hot flashes increase or decrease with drug changes. F 54 2 years
8/3/2006
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 2  Pulmonary Embolism Thinning,dry brittle hair. Weight gain (15 lbs). Decreased tolerance to cold and heat. Is there anything I can do for the thinning dry brittle hair???? I'm afraid I'm going bald. F 42 2 years
8/1/2006
 2  TOTAL LEFT HIP REPLACEMENT/FRACTURE WEIGHT GAIN!!!!!!!!!!!!!20+ LBS IN JUST 2MOS SINCE THE SURGERY WITHOUT ANY DIET CHANGE...EATING A LOW FAT/DIABETIC DIET, AMAZING HUH?? COLD WHEN IT WAS NOTICABLY 85 DEGREES OUT AND I HAVE EARLY MENOPAUSE, SO THE HOTFLASHES NEVER STOPPED, TIRED, FATIGUE, INSOMNIA..IT GOES ON AND ON NO ONE EVER EXPLAINED ANY SIDE AFFECTS OF THIS DRUG TO ME, BECAUSE IF THEY HAD TOLD ME THAT WEIGHT GAIN WAS ONE...I'D TAKEN MY CHANCES...I'VE WORKED ALL MY LIFE TO KEEP/GET MY WEIGHT DOWN AND NOW I'M HEAVIER THAN WHEN PREGNANT THE LAST TIME IN JUST 2 MOS TIME! FOR ME, THE WEIGHT GAIN IS FAR MORE SERIOUS THAN THE THREAT OF A BLOOD CLOT THAT MAY NOT HAPPEN...NOW MY BLOOD PRESSURE IS ELEVATED WHICH THROWS IN ALL THOSE RISKS..CAN'T MOVE THAT GOOD DUE TO THE FRACTURE..SO NOW I MUST STARVE MYSELF TO JUST MAINTAIN THIS FAT BODY I'M LEFT WITH AND MY GLUCOSE IS UP TOO DUE TO THE WEIGHT GAIN..ADDED WEIGHT NO MATTER HOW YOU SLICE IT..IS NOT GOOD..SURELY DOCS CAN DO BETTER THAN THIS??? F 46 5 days
7/29/2006

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