COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | dural venous sinus thrombosis | Heavier,longer periods, some light-headedness. Just had to watch what I ate. | After 1 year on coumadin, I'm glad happy to report that I have fully recovered from the hemorrhage and blot clot in my brain. My Dr. is now phasing out the coumadin and in two weeks I will be drug-free! No more blood tests, or watching everything I put in my mouth, including over-the counter medications and prescriptions. Ciproflaxacin put my INR through the roof--watch out for that one! | F | 46 | 1 years | 2/20/2009 | 2 | DVT/Protein C Deficiency | very lathargic, achey muscles and joints, difficulty getting up after sitting for more than a couple of minutes, my brain feels like mush, I am so tired all of the time. | I was prescribed coumadin after developing a DVT in my right leg. Further tests show that I have a protein C deficiency which means I will require life long therapy. I have taken this drug for over a year now and the side effects seem to be getting worse. After reading comments on this sight I feel a little more confident about insisting that my family doc refer me to a hemotologist. I was told that this drug has no side effects....well we all can't be wrong. If you also are being treated with this drug due to a protein c deficincy I would love to hear from you. My email [email protected] | F | 49 | 1 years | 2/20/2009 | 2 | PE | steady weight gain, brusing | clots are cleared after 6 months of therapy, off the drug, but still can't lose the weight despite watching diet and working out 6 days / week. | F | 42 | 6 months | 2/18/2009 | 5 | pulmonary embolisms | I experienced light headedness on a couple occasions. I'm extremely fatigued ALL the time. Hours after I wake up I still feel groggy. I am having an increasingly hard time with concentration. I feel depressed. | It took weeks for me to get my INR over 2.0 and I've had some difficulty keeping it there. I was alternating 12.5 and 15 mg for about a month. Now I'm taking 15 mg daily. I am a lawyer so I spend a great part of the day doing analysis and writing. I've noticed over the last month or so that I am getting writer's block a lot and have a hard time concentrating. It's not that I'm daydreaming, but it takes me forever to make progress on my assignments. I feel like I'm in a mental fog and get overwhelmed easily. | M | 37 | 3 months | 2/14/2009 | 1 | PE after back surgery | I experienced extreme joint pain and rapid weight gain | As soon as I started taking coumadin I started experiencing flu like symptoms of every joint in my body ached. After 2 months the joint pain was so severe I needed help getting out of a chair after sitting for 10 minutes. I went to my Dr. 3 times to get them to take me off coumidin and they said it was a bad idea. I finally went to a hemotologist and that Dr. explained that keeping someone on coumadin after one episode of PE was more dangerous that the chances of having a second episode. After 5 months of agony I was finally taken off of coumadin and within 24 hours my joint pain went completely away and after one week I had already lost 10 pounds without trying. I would advise if you are having negative results with coumadin to seek out a specialist and find out the truth about this very dangerous drug. My understanding from the specialist I went to is that even if you have risk factors that could lead to a second episode the damages from coumadin far out way the benefits and you are | M | 45 | 5 months | 2/13/2009 | 3 | DVT/Factor V | Cold. Muscle cramps. Memory loss and confusion while on the generic. Take 4mg per day. | I was given Warfarin and my side effects were even worse until I got off of Warfarin. Now just cold and a few cramps. I take vitamins to control the muscle cramps. I requested/insisted on the real stuff, Coumadan and the side effects are now minor. I am a bit cold and can't loose weight. Within a day or two after switching I felt like my old self once off Warfarin. I workout everyday with no fatigue problems. My Doc seems to think that I will be on this forever and that is something that will not happen. I think they are affraid of being sued. INR levels are fine currently and can be maintained with diet changes in addition to plain old aspirin. I have no problems having a few drinks on a weekend. The Americian Heart Assoc. has a great piece on factor V and do not recommend a lifetime on Coumadin. Go look at this piece and you will see the odds are very small for a recurrance. A lifetime of rat poison is not for me. Can't wait till May and goodbye Coumadin. Doc and I will battle then. | M | 60 | 9 months | 2/11/2009 | 3 | AVR and aortic aneurysm graft | Fatigue attacks! Tiredness descends and I HAVE to go to sleep, but then I'm ok again. Always extremely cold or extremely hot. TIAs when coumadin levels have dropped and temporarily lost eyesight. Bleeding from bowels. A general fogginess/forgetfulness. Also, goes without saying, very bad bruising. | I have a high tagert INR due to TIAs. INR levels fluctate badly for no apparent reason,(Alcohol, vitamin K, aspirin etc. all monitored carefully.) | M | 41 | 3 years | 2/9/2009 | 2 | DVT/PE after ankle surgery | Extremely itchy skin on my entire body to a level that I simply cannot take anymore; major weight gain (12-15 lbs in 2 mths); thankfully no hair loss or lethargic feelings as many others have described. It's just this dry itchy skin that is making me feel like I'd rather be dead from a blood clot than alive on coumadin!! (jk) Four more months of this drug is going to be impossible. I've tried both the generic and the brand; they both have the same issue. | The coumadin is doing what is supposed to do from an efficacy standpoint; they just to need to make a non-itchy version. I saw a dermatologist who tried to say it is not from the coumadin, which is just a complete joke in my opinion. A topical drug called clobetasol does provide some minor relief, but you need about a bottle a week just to make being alive bearable. | M | 37 | 70 days | 2/5/2009 | 2 | atrial fibrillation | I have posted before, but now 7 months into 5mg of Coumadin, nothing has improved. Lethargic, tired much of the time, hard to get motivated, foggy brain. Aches and pains in joints and neck seem to have increased, and leg cramps have also kicked in. Some sleeping difficulty. Summer now, but the freezing cold hands and body is probably the worst side effect. Almost impossible to get warm in winter. | When I first took Coumadin (Warfarin) the pharmacist handed me four A4 pages about the medication. It lists 19 major serious side effects, but hair loss, feeling the cold, and others mentioned repeatedly on this site, do not get a look in. Why? I read one paragraph with interest: "This is not a complete list of all possible side effects. Others may occur in some people and there may be some side effects not yet known." A medication/poison which has been around for so many years, this is a disgraceful admission. If anyone has an alternative to taking this drug, please email me: [email protected] | M | 65 | 7 months | 1/31/2009 | 3 | DVT/PE after ankle surgery | Hair loss, fatigue, skin rash, headaches, dry skin, problems concentrating, trouble sleeping, cold hands and feet and sometimes very hot when it is freezing inside, joint pain, heavy periods and cramps, itchy scalp with small res sores, severe depression, anxiety, excessive weight gain and unable to loss even with diet and exercise,decreased sexual drive, dry hair and changes in hair texture, feel psace out often and forgetful, too many things, not sure if put them all | You have no idea how much it helped to rad the comments at the same time they scared me to death. I suppose the medicne has helped me, but I am not sure it is worth feeling like you are not you anymore. At least I am no crazy and I am not alone--there's a lot of us out there trying to go by. I wish drug companies cared and that doctors listened a bit more to their patients. So often I felt like I was loosing my mind and even wondered if I was imagining all these things I am feeling and that no one around me seems to understand or take into account based on what the doctors say. I can't wait to get of this medicine and claim my life back, have a child, be me again. I feel for all of you that are in the same boat. Yoga and meditation seem to help a bit, counseling, exercise. Don't give up. I am really considering getting off the medicine in a few weeks when I get tests that assure me that I no longer have clots. Good luck! | F | 32 | 6 months | 1/30/2009 | 3 | DVT right calf | Freezing hands, Sleep problems: Insomnia, night sweats and wake up with numbness in arms, Lethargic, Huge mood swings with increased irritability, Joint pain, Blood shot eyes, Diarreah | Just started taking coumadin 4 weeks ago, am transitioning from Lovenox. Experienced none of these problems with Lovenox over the past 6 months. I live in the mid-west and am used to cold winters, now I can't walk my dog 1 block with out my fingers feeling frozen and in agonizing pain. Have to run them under warm water coming in from the cold each time. | F | 38 | 1 months | 1/29/2009 | 3 | DVT | fatigue, excessive weight gain, hair loss | I was prescribed warfarin sodium (coumadin) after developing a bloot clot in my leg, attributed to being on the pill. During the 4 months I was on it, despite going off the pill and massively cutting down on alcohol consumption, I GAINED 25 pounds. After I was off the coumadin, I had my thyroid tested, as I do every year. I was diagnosed with mild hypothyroidism and prescribed synthroid about two months ago. I haven't gained any more weight, but haven't lost any either. I note weight gain was not listed as a warfarin side effect, but synthroid (thyroid replacement) indicates that it is not absorbed as well when on coumadin. Could there be a link between regular thyroid function and coumadin as well? Seems like a lot of the coumadin side effects (weight gain, dry skin, fatigue, memory/concentration problems) are also symptoms of hypothyroidism. | F | 34 | 4 months | 1/27/2009 | 5 | DVT/PE | Dry mouth/always thirsty, Muscle/Joint pain like when you have the flu, WEIGHT GAIN of almost 15 pounds, hyper-sensitive areas of the skin from time to time, changes in hair and skin (dryness), kind of spacey, hard to concentrate sometimes, get really hot at night without sweating, cold chills like before you get sick w/flu or common cold, thinning skin, purpura, overly fixated on getting ANY kind of injury, stiffness in neck and other joints in addition to mild pain. Have fallen twice during my drug therapy and FREAKED OUT! Both times my ample ass saved me..once slipped coming down stairs at home, once tripped on vacuum cleaner cord. | I had DVT that progressed to PE's after some extended periods of travel and being immobile in bed with the Flu. Dr thinks that HRT gave me my risk factor\are calling it a "provoked" event. I have been on Coumadin since March 3, 2008. I have had 3 CATs of the chest, 2 leg dopplers, and maintain an INR of 2.0-2.5.I no longer eat hardly anything w/Vit K. Got a list off the internet that gives amt of Vit K in different foods.Site is Dr Gourmet. Helps me manage diet. I keep gaining weight no matter what I do. Supposed to get off Coumadin at 1 year anniversary but would be lying if I said I wasn't nervous. No genetic/blood risk factors or disorders. Had symptoms for MONTHS but didn't put them all together until after the event. Am married to a Doctor and he didn't even put it all together until I couldn't breathe. I can't seem to get the e-mail on this site to work. Anyone who would like to e-mail me can do so at [email protected]. Would love to talk to anyone who was on | F | 54 | 10 months | 1/25/2009 | 1 | Blood Clot in Arm | My blood pressure dropped significantly while taking this medication. The first week I felt good without any side effects. During the second week I began feeling horrible. I was tired and felt like I had the flu. I was vomitting every morning. My blood pressure would hover between 70-90. I also had problems staying warm. Cold chills were very frequent! I told thhe doctors that this medication was what was causing these side effect listed above, but I got the same responce over and over: "Coumadin does not have any side effects." My cardiologist took me off of the medication after 3 weeks because he said I was at a high risk for internal bleeding. Also, while I was taking coumadin they could never get my levels right. I was always way too high, yet they never altered the dosage. I have been off of it for 4 weeks now, and I am still having trouble getting my blood pressure back to normal. | I know this medication can really help people who have blood clots, HOWEVER do your research. Have family members do research as well because doctors are under the impression this medication does not have any side effects, which is completely stupid! The more people you can have around that are informed as what to expect when you are taking this medication, the better off you will be. Do not play around with this drug, or take what your doctor says at face value. Get informed and have all the people around you informed as well. | M | 78 | 3 weeks | 1/21/2009 | 1 | DVT in right leg, Factor V Lieden | Tired, cold all the time, Poor concentration and retention, depressed, very difficult to lose weight | This drug has turned my life upside down. I can't do my job well because I am so tired in the afternoon. I have a hard time listening for long periods of time. And I need to lose weight to decrease my odds of having another DVT, but it's extremely difficult. Large amounts of exercise only maintain the weight and I keep decreasing my portions and meals and nothing makes a dent in the scale. Also, I still do not have a stable INR. I've been taking it since last January. I take 12.5 mg every day, but twice a week I take 15mg. It's very high and I'm pretty nervous. | F | 38 | 12 months | 1/21/2009 | 3 | DVT. PE. | Weight gain. Dry, itchy scalp with sores. Dry, itchy skin. memory not as clear as it used to be. Loss of hair on arms, legs and eyelashes. Loss of libido. Tired (but not to the extent that I am overly bothered - I just sleep more lol). | I am taking Warfarin, and whilst it is doing its job I will certainly put up with the 'not so good' bits. What I can't understand is that if everyone on here have very similar symptoms, why are the doctors saying that Warfarin doesn't have any side effects, we can't all be wrong, and as someone else said, we are the people taking the medication. | F | 47 | 10 months | 1/19/2009 | 1 | Multiple PE-both lungs /HRT induced | Weight gain, carpal tunnel in both hands, plantar fasciitis in one foot, joint pain, numb toes, cold all of the time except when having hot flashes, eczema on face. | This medicine is practically making life unbearable. I was diagnosed with bilateral multiple PE following the use of the Nuvaring fro HRT for over a year. In the past 2 days, I have not taken my dosage (7.5 3 days a week, 10 mg 4 days a week) because I can’t stand the way feel. I have been on it for 3 months. The Dr tells me I have 3 months left to go. I am seeing another Dr in 3 days to see if I can regulate clotting through diet and supplements instead of Coumadin. Has anyone else done this??? Please let me know. | F | 51 | 3 months | 1/16/2009 | 1 | Atrial Fibrillation | Brusing, body hair loss, bleeding from my tongue when brusing my teeth even though the warfarin is at normal (INR 2.0)levels. General malaise. | Considering this poison was created by the Nazi regime as a rodenticide it is surprising there are not more side effects. It is rat poison, plain and clear. | M | 66 | 700 days | 1/16/2009 | 2 | Blood Clot in Brain | Weight gain, cold hands and feet, bruising, nose bleeds, decreased ability to concentrate, severe acne. | I started taking coumadin in January of last year for a blood clot in my brain due to birth control and a blood disease. It took till December for my body to accept it and my INR to remain the same, or close to, at each blood test. Now I can go every other week instead of every week. Yay to no more bruises on my arm! I am taking 8 to 9 mg a night. The side effects i feel were never described to me. The weight gain is unreal! I am a teacher and I am always on my feet. I excersize daily, however I have gained at least 20 lbs. I never had more than one zit at a time and now I have severe acne. I am having trouble seeing the silver lining of this drug when all it is causing me now is angst. | F | 27 | 1 years | 1/15/2009 | 5 | PE/Factor V | Periodic anemia, heavier periods, bruising, and worst of all...I am FREEZING most of the time. Summer is bearable, but winter is unbearable. I have to sit in front of my heater with layers of clothes, drinking coffee and still COLD. The other troublesome side effect is low blood pressure, which really sucks.I have other symptoms many of you mentioned, but as I also take other meds and have other conditions, I cannot be sure they are related to warfarin. Those would include, tiredness, mild weight gain, dry skin, some hair loss, reduced physical endurance. | Coumadin and Lovenox saved life in 2002. I have Factor V and am told I will take it the rest of my life. I have accepted that. Staying alive is more important than the discomforts and other associated risks. I have noticed that my side effects were worse when I first started the drug. I don't know if they have lessened or I have just gotten used to it. The only thing I can't get used to is being cold. The hypotension and anemia are not pleasant either, but I have adapted. | F | 33 | 6 years | 1/14/2009 |