COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Mulitple Pulmonary Emoboli hair loss, weird lumpy rash on back of shoulder and decolletage considering it has saved my life the side effects are not bad. both are slightly upsetting from a vanity point of view, but I am hoping that when I finish (i get to finish..) my treatment in 2 months the hair and skin will resolve itself... F 31 4 months
8/3/2009
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 5  Anticardiolipin Terrible heart burn, stomach aches, heavier blood flow I had multiple blood clots scattered throughout the upper and lower parts of both lungs. I take 3 mg tablets on monday, and the rest of the week I take 4 mg. Although it's frustrating that I have to take this for the rest of my life, it has saved my life. F 22 1 years
7/30/2009
 5  1 DVT + 6 PE,Prothrombin Factor II easy bruising, heavier and markedly more painful menstrual cycles, hair loss, always extremely cold, bleeding gums, extended bleeding episodes when I cut myself or have dental work I started Coumadin in 12/2007 after suffering 7 clots post surgery. I was then diagnosed with genetic thrombophilia (Prothrombin Factor II). Coumadin saved my life. After my sister died from a single PE and the same blood disorder, I was put back on Coumadin for life. My doctor will NOT permit Warfarin (generic) because he states it is not as closely regulated for dosages in generic form. Name brand only for me. It saved my life -- and keeps me alive. http://stoptheclot.org F 39 2 years
7/28/2009
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 5  stroke-APS When my INR is too low I get brain fog, headaches, aches in joints, hands shake and fatigue. When my INR is closer to 3.0 or higher, these symptoms go away. I also have been dx with reynaud's syndrome, fibromyalgia, and lupus. I've been on this since my stroke in July 2001 at age 48. I was told I have anticardiolipids in my blood. F 56
7/18/2009
 4  Factor V Leiden Hair thinning out, dizziness upon standing,chest pains at night,drying of facial skin,times of major anxiety and confusion. I noticed one more strange side effect since I started taking Coumadin. I have random erections throughout the day and my size has increased. I'm not trying to go off topic here or sound perverted either. M 41 2 months
7/10/2009
 3  DVT, PE, Lupus Anticoagulant weight gain. feeling blah & tired. can't deal with stress or multi task. pretty forgetful, unorganized and just plain dingy.... I am fighting the weight gain thing with Weight Watcher's. Starting to feel less tired, does help to get up off the couch & do something...ANYTHING! my attitude is better and I'm on the anti-depressents and THEY SOOOO HELP!! I'm hoping this keeps getting better since I too am a lifer. I guess I just wanted to update from my 6-16-09 comments. I agree ATTITUDE does help!! F 41 4 months
7/8/2009
 5   Just the usual bruising and a little additional bleeding when I cut myself. I have a blood clotting disease, APS, Coumadin has saved my life. M 76 11 years
7/5/2009
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 4  Massive PE 2001, PTE surgery 2002 Clouded memory, word mixing, short term memory issues, extreme nervousness in stressful situations... As for my Weight gain I believe this to be due to too many cheeseburgers and not necessarily the warfarin. I have days where I feel like crap, but I put my mind towards getting off my behind and doing something constructive. Usually after I start doing something I feel better. I am a lifer on this stuff. Have been taking it for 7 years now. I do find that I have trouble mixing words in stressful situations like giving presentations or talking to my boss...makes me feel like a retard sometimes...Oh well, I just get over it, life is way too short to stress especially over what other people think. I do not have any other issues really...I play bass in a rock band and do not have problems learning songs so doing what I love is not affected by this. Yes it is a poison, but so is breathing Los Angeles air. The choice is yours, and a positive attitude is 100% the solution. M 29 7 years
7/2/2009
 3  DVT - double PE Weight gain, lethargy, blurry vision in the morning I had a venous thrombolysis to remove a 2 foot petrified blood clot. Was in the ICU for 5 days. Two weeks later I clotted again and they repeated the procedure and put in 18 inches of stents in the artery. I am on 12.5 mg but they have trouble keeping me theraputic. One week I am at 1.5 PT/INR and the next week in the ER getting a brain CT because the INR is so high. I put up with the drug because I kind of like living. I still fly and ride the harley and do other nonsensical stuff. M 55 2.5 years
7/2/2009
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 3  venous thrombosis in brain Constant weight gain. Inability to concentrate- foggy head at times. Joint Aches. Depression. FATIGUE! My doctor is unwavering about 1 full year on Warfarin. I am barely going to make this. I don't have nausea, but some days feel dizzy and always, always, extremely tired on this crazy stuff. I was extremely concerned when I kept hearing that there are NO side-effects to this drug. ANY time you take a foreign substance into your body there IS a side-effect. The fact nobody in the medical world wants to admit this or research these common persistant symptoms further is odd and disconcerting. I have no hair loss but I've only been on Warfarin for three months and have gainded 15 pounds. Hard to lose when they want you to keep your diet the same so as not to effect your INR. F 47 3 months
6/26/2009
 2  DVT/PE Panic Attacks, Sweaty Feet and Hands, Confusion, Not able to Concentrate, Sunburn Feeling on the Skin, Shortness of Breath, Water retention and Feeling like passing out at times. Nobody wants to listen. I broke my ankle had surgery and developed a clot three weeks later went to my lung. I was on Lovenox and then Warfarin since. At first I was resistant and after taking 15 MG it boosted the level and then I started feeling these systems. Nobody Listens when you tell them your having this problem because they said the drug doesn't cause these systems. I went to emergency room a few days ago because of this and they found nothing wrong with me. Blood was okay, Heart okay and the CT proved the blood clot in my lungs was gone. My doctor wants me on this for a year. I don't know if I can take it for that long. I thought maybe my body would get used to it. F 38 3 months
6/24/2009
 4  Aortic Valve Implant Hair Loss, Weight Gain, Heavy Menstration I had open heart surgery in December of 2006 (I was 33) as a result of a dissected aorta. Dr's decided to go with an Aortic Valve Implant which, in their opinion, will allow me to live a next-to-normal life without another surgery. Unfortunately, I will have to be on Coumadin for the rest of my life and I probably won't be able to have children because of the need for Coumadin. I've been working out (swimming 1 mile & Bike 4 miles five times weekly) for two months now and have been frustrated because, while I feel my body changing, I have not lost one pound. Now, I'm wondering if it's the Coumadin. If so, there is not much I can do about it other than keep working out. F 35 3 years
6/21/2009
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 3  Splenic infarct; multiple PE's The biggest concern is hair loss. As a 68 year old woman, I am terrified that I will soon be bald. In the 3 years on coumadin, I have lost more than half of my hair. I am truly weighing life as a bald person or taking my chsnces w/o coumiden. Does ANYONE have an alternate treatment that doesn't cause hair loss? Please help me. F 68 3 years
6/21/2009
 1   confusion. joint pain dizzy frequently. When I told the doctor he said (via a call from his nurse)that it was not possible that coumadin could be causing this. Today, fathers day, I quit taking coumadin and changed my doctor. I know my body better than any doctor. Quality of life is very important to me; I don't need any doctor essentially telling me "its in your head." As far as I am concerned; he is the jerk, not me! M 78 4 months
6/21/2009
 3  DVT cluster in left leg & PE extreme fatigue, aches in joints, numbness in arms, swelling in left leg, lots of dreaming, feel BLAH & unsociable most of the time, weight gain. I have been diagnosed with Lupas Anticoagulant. They will retest me in about 2 months. I hope that I really dont have this crap! I hate taking this med. even though I havent slept this good in years. But I hate being so tired & worn out, cranky & unsociable. Paranoid about cutting or bruising myself-- I am a klutz so the worry is warranted. But still hate it. Do not want to take this forever. But so glad to have found this website. Cause my doctor also acted as if I was crazy & these side effects were all in my mind!!! And now I know, they are real. Thanks!!! F 41 3 months
6/16/2009
 3  PE, DVT, Factor V, Prothrombin Severe weight gain, fatigue, hair loss, heavy periods, more susceptible to cold, joint pain, memory loss, trouble focusing. I initially started taking Coumadin when I was 24 after I had a PE and was diagnosed with Factor V, and Prothrombin abnormalities. After two years on the medication I was begging the doctor to take me off. I could not do anything except sleep. I had tremendous weight gain going from a size 8 to a size 14! I was switched to Lovenox shots when I began trying to have a family and there was an immediate difference. I began losing weight without even trying, even when I was pregnant and trying to put on more weight. Shortly after my children were weaned I was put back on Coumadin because of the side effects of Lovenox and all of the old symptoms came back, including the weight. The only difference is the fatigue either it is not as severe as before or having been sleep deprived with young children my body has adjusted. F 34 6 years
6/7/2009
 4  a-fib excessive bruising,blood in urine,hair loss i had open heart surgery for blocked arteries in october 2008 and developed a-fib. i am on multiple drugs for high blood pressure and high cholesteral. i want to come off of the coumadin and am considering having an ablation procedure to correct the a-fib. F 58 7 months
5/24/2009
 1  pacemaker I am writing this for my mother. She is now is now in a rehab facility after falling and hitting her head. She had a hemorraghic stroke and ischemic. Coumadin levels high. Best guess is that the coumadin caused the hemorraghic stroke, which caused her to fall, hit her head and further cause an ischemic stroke. She is very confused, has a major concussion. She complained up to to this point of extreme fatigue, loss of hair, dry skin. Her life had been reduced to sleeping while on coumadin We really hope she survives. We do not know if she will ever go back to her normal, very active life. She is now nearly blind from the location of the stroke. F 87 2 years
5/21/2009
 4  2 clots in leg and several in lungs I’m very tired. I don’t sleep through the night and once I wake up it is extremely difficult to go back to sleep. I’m having vivid dreams, which I never had before. I find my concentration is slipping away at times and I tend to forget small details, such as my fax number at work. I'm still having blood work twice a week. My INR level is staying around 3.4. I ride a Harley, which the Dr. wants me to give up due to bleeding issues. I do carry a much better first aid kit with me now. I may have to be a lifer as my identical twin brother tested positive for Factor V. I've been told I can't be tested for Factor V because I'm on coumadin. But if he has it, I'm sure I do. M 52 3 weeks
5/20/2009
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 4  Portal Vein Thrombosis major dizziness, weight gain (especially in stomach), sensitive to heat (get overheated very quickly), crazy nightmares for the first month, hair falling out, bad menstrual cramps/heavy periods, overall feeling of just not 100% (I am usually extremely active,fit, thin, healthy so this is a major bummer) Yes, my blood clot is gone, but these side effects are just miserable. I am wondering if Lovenox shots are an option. But, as everyone else has stated on this site, the doctors and nurses just think I am crazy! I am actually seeing 2 hematologists and they both tell me that these are not likely side effects of the drug. I have tried both generic and brand name and they are both the same. F 34 3 months
5/10/2009
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