COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Factor V Leiden - excessive clots | has made my teeth extremely sensitive, almost painful at times | F | 48 | 8 months | 1/25/2010 | 5 | DVT... | fatigue, decrease in muscle strength, abdominal pain, diarrhea and hair loss. Although, I am not sure if the hair loss was due to the Coumadin or stress of the experience as I am still losing hair. | I was diagnosed with a DVT on 9/30/09 due to taking the birth control pill Loestrin 24. I was aware of the serious side effects that could be caused from taking the pill but didn't think I would experience any due to my age, no history of family clots, and I don't smoke. My DVT was located in my right iliac vein with extension into my inferior vena cava. Dr. told me it covered a large area. I started on Lovenox which I took for about 2 weeks then switched to Coumadin which I believe saved my life. I didn't appreciate the side effects, but it did help. I'm still alive. My INR level fluctuated quite a bit in the beginning. I started taking 2.5 mg, then 5 mg, then ended up taking 7.5 mg which finally stabilized my level. I had a follow-up cat scan on 12/29/09 and the clot is completely gone which was surprising. I am no longer taking Coumadin. My hematologist told me on 12/1/09 that my clot may not be gone within 3 months, and that I may have to be on Coumadin for 6 months or longer. Luckily, the Lovenox followed by Coumadin took care of it in 3 months. I did not develop any PE. | F | 22 | 3 months | 1/18/2010 | 4 | Blood clots & strokes | Factor 5 Leiden here, too. I had 3 strokes in one year all on the right side, but but damage left in 4 different locations on the right side. Docs thought it must be a hole in my heart. It wasn't. It wasn't until 3rd stroke that Leiden 5 disorder was discovered in my tests. No particular side effects during the first six months. | After taking coumadin for six months my PCP prescribed an antibiotic for an upper respiratory infection. She didn't have me check my coumadin pt or inr while taking it. The interaction caused my pt to go up to 5.6 and I developed a 3x2cm cranial bleed. This time the bleed was in the occipital area in the left hemisphere. I had difficulty processing what I was seeing. Ultimately, I couldn't read. My neurologist was quite angry at my PCP. My PCP thought that 5.6 was high, but not enough to worry about, but my neurologist said we should worry if it reaches any amount over 3.0. Lessen learned, the hard way! Gotta remember those interactions! I can read and write now, as evidenced by my post, but it was the strangest feeling in the world. | F | 55 | 4 years | 1/7/2010 | 4 | Mitral Valve re-placement | Hair loss with good re-growth (not balding), fatigue if dosage is missed, issues with memory (could be due to aging)and depression (stuck with this for the rest of my life - no wonder I am depressed), issues with bleeding and had 2 strokes - blot clots at the base of my brain. | Wonder drug, I am still alive, but much prefer the Heprin needles I took when I was pregnant. No brusing,no bleeding and its just the best. But has very damaging effects on ones bones. Oh and very expensive $12.00 per needle per day. | F | 41 | 21 years | 1/4/2010 | 5 | double pulmanary large emboli | none. Careful avoiding getting cut. | Got clots on trans Atlantic flight. Hadn't had this problem before on long flights. Probably genetic. Had several genetic tests and they were negative including MTHFR. Sister carries double defective MTHFR gene. Have stayed at 4 mil.1x a day all the time for stable PT control. | 68 | 3 years | 12/23/2009 | 1 | atreal fib | breising cold feet and cold all over | M | 76 | 3 months | 12/15/2009 | 5 | Massive DVT, Factor V, Occluded IVC | Slightly colder, increased flatulance | Require 15-20 mg to stay at 2.5 to 3.5 INR.Lovinox had negative effect, maxed out on heparin with no response, argatuban worked great(70-100 aPTT). Working fine so far. | M | 45 | 2 months | 12/14/2009 | 4 | Factor V Leiden | I have been on Coumadin since 1998 got my first blood clot in 1995 and after surgery in 1998 was diagnosed with Factor V. Really I haven't had any side effects. | If it wasnt for coumadin I would not probaly be alive.. Living with Factor V you have to be on coumadin the rest of your life. Right now I am off the coumadin and taking Lovinex shots for I am having 6 teeth pulled. In 2005 I had a tooth pulled and ended up with a clot in my colon..that was scarey.. have had clots in my right leg and lung.. | F | 47 | 11 years | 12/13/2009 | 1 | Bi-laterral pulmunary embolism | very severe headaches, anxiety to the point I did not want to leave the house, depression, lack of total concentration from WARFARIN had to switch to COUMADIN | I developed a blot clot as the result of wearing a leg cast Sept. 28th. One week after being put on warfarin the headaches started. I asked if it was from the warfarin and the Dr. said not likely. Then all of the other syptoms started and I was put on all different kinds of meds to help (so they thought). The Drs where being very good about it , we live in a small town and the Drs all discussed my condition quite often. Finally after 6 weeks I could not go on any longer, I was losing my mind. I went to see my Dr and begged her for some other alternative to warfarin because I will never make it through the holidays. One of the Coumadin nurses sugested we switch to Coumadin from warfarin. I started the Friday after Thanksgiving and within ONE week I was back to my self again. Well 80%. The funny thing was just because the Drs never heard of someone having these problems on warfarin before, it was like it just doesn't happen! | F | 48 | 59 days | 12/12/2009 | 5 | Heart Ablation Surgery/Arrhythmia | Bruised easily, bleeding more when cut. | I have no idea if Coumadin kept me from having a stroke or blood clot during my heart arrhythmia and ablation surgery, but I was taking it for prevention and it did it's job. The side effects I listed to the left seem to be a given since this drug is a blood thinner. I've experienced no other side effects. In fact I feel great and hope to stop taking this drug in January after my follow-up ablation appointment. | M | 35 | 4 months | 12/11/2009 | 1 | Mitro Valve Replacement | Depression, No energy, Bruise to easy, Gums bleed when level to high, and clots in kidney and bladder. | I've been on coumadin since dec of 96. That is when I had a mitro valve replacement. What was suppose to be a fairly routine surgery turned into a 13 hr surgery. Long story short, 2 open heart operations, lungs collapsed twice, respirator twice and I coded 3 times, Once on the table and 2 times in room. I have been on this rat poison for to long. I have 2 incidents where my bladder was filling up with clots. Energy is gone, And everytime I ask my doctor why they cant level off my coumadin, he says he is not sure, I wonder sometimes if it is even worth taking. | M | 31 | 13 years | 12/8/2009 | 3 | Factor V Leiden/ clot in Kidney | Cold (chill to the bone)feet all the time some times there is nothing that can warm them,hands too but not as much, tingles in toes and fingers, Have noticed hair thinning, Dizzy upon standing almost passing out sometimes, tired, | Compared to a clot I guess it's not bad. You can definitely tell when your levels need to be checked. I am considering going off coumadin for a time this year to see if symptoms come back. When I was off about 4 years prior to my clot, I would get severe double vision out of nowhere and I would have to wait for it to pass. I went to several Doctors but none thought of clots. My Doctor now said they could have been very small clots. I was also on the "pill" so that may have added to it and being off of it may help not to have these episodes with clots. It would be nice not to be cold all the time. Anyone else experience this? | F | 30 | 1.5 years | 12/6/2009 | 2 | Rt knee DVT | Constant fatigue, horrible hair loss, stiff joints, numbness in my toes, always feel cold, depress (probably from the hair loss)and diarrhea. | I've tried talking to my Dr about the side effects that I've had since starting this poison and he assures me that this is not related to the medication. I'm pretty sure he's full of crap especially after reading this site. I'll be seeing him next week and will be showing him this site...or maybe I'll get a new Dr. | F | 40 | 2 months | 11/28/2009 | 2 | DVT/PE | extreme, extreme fatigue, muscle spasms (in areas where there are no clots), cold chills, hot flushing, flu-like symptoms all the time, sharp pains in various parts of body, low back pain, panic attacks, dizzy/lightheaded (almost passing out),night sweats, abdominal cramps, diarhhea, rashes, tingly/numb skin, heart palpitations, extreme muscle strength decrease, extreme cold skin at times | I currently take 4MG per day, the highest dose I have ever taken was 7.5MG. My INR has never tested too high, and only tested too low when I was first being treated. I have been treated with both brand name Warfarin and Generic. I have no other significant medical issues, and no clotting disorders. My clots were attributed to birth control pills. Heparin injections are what stabilized my blood clots, not Warfarin, and Warfarin doesn't make the clots dissolve, it only picks up where Heparin left off and keeps your blood slick enough to prevent the clots you have from getting bigger, or from forming new ones. So no I am not satisfied that given the number of incidents of DVT/PE per year, they haven't found a better way to treat these conditions since the discovery of this medication (which was what, in 1930 or 40?) and that they blatantly refuse to accept that this medication does indeed have grossly uncomfortable side effects and its users are not "crazy". Don't kid yourself people this stuff is potent. It was accidentally discovered when farmers cattle were being found dead from consuming the plant it is derived from. Regardless of what the doctors and pharmacists have to say, I know that my symptoms will go away when I get off this medication. | F | 34 | 11 weeks | 11/28/2009 | 5 | DVT, left leg | The only major side effect? Awful tastes: bad eggs; rotten eggs; sour milk; rotted hide and flesh; constantly tasting these things anytime I salivate, breath checks out OK but tastes are just awful! | M | 31 | 15 days | 11/27/2009 | 3 | DVT | I took this medicine for 10 years. I thought I had all of the side effects everyone else is complaining about.... | However, I have recently quit and I still have headaches, stomache aches, insomnia, blurry vision... Maybe it wasnt the coumadin.. | F | 44 | 10 years | 11/19/2009 | 5 | DVT/PE | Not sure if these are all attributed to coumadin or if its part of the recovery/healing from the blood thicking. Here it is. Mental focus, decrease in muscle strenght and stiffness in the hip/lower back early morning and after walking for about 40 min. | I strongly recommending fighting your way back to health. Don't give up. I found simple sugar help alot with mental focus. I've stumble on this after I was force to quit tobacco smoking and alcohol drinking. So I turned to candy and caffine. Yes, I put on 30 -35 lbs in the last 6 mths. Prior to all this, I also lost 125 lb and going back to some of thing I did to lose the weight. I've started over the weekend and already notice a reduction in the stiffness and increase in energy. Good luck and don't stop fighting. | M | 51 | 6 months | 11/10/2009 | 3 | Multiple BiLateral Pulmonary Emboli | Constant head aches, lower back pain, mild depression, slight loss of alertness (feeling "not all there"), bruising, bloody nose, dry skin, shorness of breath (clot related) | I'm SO very happy to have found this. When I discuss my recent side effects, they tell me they are not related to coumadin. I NEVER had headaches before taking coumadin. I have had a headach EVERY DAY since leaving the hospital. The lower back pain is enough to make me cry in agony and no amount of Tylenol helps. I can't take aleve or Ibuprophen because my INR level goal is very high (4.0) and I've already had pulmonary bleeding. I REALLY REALLY hope this isn't permanent because after just one month I can't take it. I'm glad this medicine is saving my life but the side effects are getting worse. Thanks for this site, Its good to see other young people on this drug too. Look forward to hopefully setting up some kind of talk group. I do web-design so Im thinking of setting up a message forum (if there isn't already one). Please e-mail me if you are interested in the forum for discussing your life and how you have adjusted or are coping... | M | 23 | 1 months | 11/10/2009 | 5 | Mitral Valve Replacement | Tiredness, anxiety,weakness, once in a while dizziness, depression, not feeling like me | I dont know if it is the medicine, but it is weird that so many other people with different help problems are experiencing the same thing. I dont know what to say other than, they dont give you any true information before putting you on this medication. I am a lifer and I am thankful everyday there is something here that can assist with me having as normal of a life as possible and being able to live a long life with my family. I just wonder why they dont have any support groups for younger people as this would be of a great help. i am so tired of people saying it is no big deal, it is just a little pill and you will get use to it....I COULD SCREAM!!! i just want to be as normal as possible. I feel more calm seeing others my age and older going through the same things. I wish there was a group that specilizes in this mess because i just soo depressed. Let me not even get started when it is time for my period, i feel like a truck has run me over with how tired i get, plus the millions of pads and tampons i have to use. Ok...I feel better now. :) | F | 30 | 1.5 years | 11/9/2009 | 3 | Pulmonary Embolism | Extreme Fatigue, Bloating (esp. around my eyes), incoherent thinking and decision making, mild depression. | I understand why I was prescribed this medication and am aware of how life threatening PE's can be...however, judging by my experience and reaction with Warfarin I would not recommend anybody should take it unless absolutely neccesary, and if so, find an alternative option if your condition is long term. I am not a person who has been exposed to a lot of medication throughout my life, but I can honestly say that even though this drug has the ability to prevent clotting, its side effects have the ability to destroy your own personal thought process and wellbeing. Take this drug with extreme caution if you have to, and make sure you warn family and friends of the possibility you may become quite a different person (see my side effects). Be aware your doctor will advise you that Warfarin is not responsible for your side-effects. Don't argue...but don't believe either. | M | 38 | 8 months | 11/9/2009 |